Re: New intro.

[Guest guest]

, Hi I am Peggikaye and both my kids have OCD. My oldest has a more

severe case than my youngest. But my youngest has several co-morbidities that

go along with the OCD ... Tourette's Syndrome, autism, severe ADHD, severe

impulse control and several others. has the OCD; trichotillomania

(hair pulling) and possible Tourette's syndrome. When I took to the

doctor I was afraid he would dismiss me or tell me I was trying to attribute

's problems to so I took lots of information with me. I had

found on line a quiz that helps figure out how much OCD there is. I thought I

would forward the links to you so that you could take the info to your sons

doctor with you if you wish. <A HREF= " http://www.ocdhelp.org/faq.html " >OCD?</A

>

<A HREF= " http://brainphysics.com/ocd/ybocs.html#test " >compulsion/obsessions

scale (Y-BOCS</A>

<A HREF= " http://www.brainphysics.com/ocd/list.html " >Checklist of Common OCD

Symptoms</A>

<A HREF= " http://www.ocsda.org/tools/cc-checklist.html " >Child's Compulsions

Checklist for OCD</A>

<A HREF= " http://www.ocsda.org/tools/co-checklist.html " >Child's Obsessions

Checklist for OCD</A>

<A HREF= " http://www.ocsda.org/ " >OC & Spectrum Disorders Association</A>

These are the sites that I found the most helpful in getting my info together

to take to the pediatrician. You may already have them. If not and for some

reason you can't access one or more of them let me know and I can copy and

past and send to you (or anyone else for that matter).

Welcome to the list. Looking forward to getting to know you. This is a great

group of people.

Peggikaye

[Guest guest]

Hi :

Welcome to the list. Thanks for introducing yourself and

DJ. The symptoms you describe sound very familiar to me. To diagnose OCD

offficially it takes a structured interview with a mental health

professional. Actually I diagnosed my son using Internet resources when I

head the water pipes going on and off over and over. It suddenly dawned on

me he was washing his hands and that I had read about that in a health

newsletter that I subscribe to. I remembered it being called obsessive

compulsive and typed that into a search engine and viola, our lives were

changed in an instant.

There are some very good treatments for OCD and getting early treatment is

key. The best treatment is cognitive behavior therapy (CBT), in particular

exposure and response prevention (E & RP). THe tricky part is to find a

therapist who is knowledgeable and skilled enough to treat a young child

like DJ. You will probably find that you need to fill the role of

co-therapist and reading Dr. March and Mulle's book, " OBsessive

Compulsive Disorder in Children and Adolescents " which describes the state

of the art treatment for OCD, will help you to learn that.

Our son, Steve, now 13, has been helped most with CBT. He also has

depression (MDD) and medications have been necessary for this. Depression

frequently travels along with OCD and can interfere with CBT. There are

many parents of young kids on this list who will be able to make very

constructive suggestions to you and your family. Take care, aloha, Kathy (H)

kathyh@...

At 06:25 AM 06/01/2000 +0000, you wrote:

>Hi my name is and I am the mother of three little children. DJ

>is my oldest and he is 5 years old. He also has a brother who is

>three and a sister who just turned one. DJ is the one who we think

>may have OCD. We have not been to a dr. and had a diagnosis as of

>yet. Just last night my husband finally agreed that there was

>something going on with our son. He was very worried about a clown

>that was going to be in his preschool class today. He obsessed on

>this clown all night and he was terrified that the clown was going to

>do something with fire. He couldn't get this clown out of his mind.

>This is just the latest of very many things he worries about. We

>first noticed his behavior about 2-3 years ago when he would have to

>have his bedroom door closed and once he closed it he would have to

>push on it several times just to be sure it was closed. He would

>worry about his door being closed any time we left the house and if

>he came home and it was open he would be upset about it. He also

>went through a phase where he was literally tucking in his shirt all

>day long, or his shoe laces had to be tied exactly even, or his

>hockey pads have to be put on several times because one is tighter

>than another, and another of his latest is that after having a bowel

>movement he will literally wipe his bottom for 3-5 minutes straight.

>He loves to collect junk, I call him my little garbage collector, and

>just last night I read that this was a sign/symptom of OCD. I also

>read that it was hereditary??? If so, it makes sense because my

>niece (from my husbands sister) has been diagnosed with OCD. And my

>sister in law also was believed to have had it.

>

>This is just some of my story. I am hoping that you all can help me

>figure out where to go from here and what steps I need to take to

>have this diagnosed. Does it sound like OCD to you? Are there any

>good books on this subject? And how do you all deal with the worries

>and obsessions/repetitions?

>

>Any advice or insight you may have would be extremely helpful!!!

>

>Thanks in advance.

>

>Sincerely~

>

[Guest guest]

Thank you Kathy. We are looking to get a referral

from our ped. to go see a therapist. I actually know

of a wonderful phsychiatrist who helped my sister

through severe depression and suicide when she was in

junior high and high school. I am hoping he will be

able to accept one new patient. Hopefully he doesn't

have OCD but the more I talk to others with children

with OCD the more convinced I am that this is the

problem we are experiencing. Luckily I am home with

my kids so I will be able to fill the role of

co-therapist when necessary!

Thank you again to everyone who responded with tips

and advice.

--- Kathy Hammes <kathyh@...> wrote:

> Hi :

>

> Welcome to the list. Thanks for

> introducing yourself and

> DJ. The symptoms you describe sound very familiar

> to me. To diagnose OCD

> offficially it takes a structured interview with a

> mental health

> professional. Actually I diagnosed my son using

> Internet resources when I

> head the water pipes going on and off over and over.

> It suddenly dawned on

> me he was washing his hands and that I had read

> about that in a health

> newsletter that I subscribe to. I remembered it

> being called obsessive

> compulsive and typed that into a search engine and

> viola, our lives were

> changed in an instant.

>

> There are some very good treatments for OCD and

> getting early treatment is

> key. The best treatment is cognitive behavior

> therapy (CBT), in particular

> exposure and response prevention (E & RP). THe tricky

> part is to find a

> therapist who is knowledgeable and skilled enough to

> treat a young child

> like DJ. You will probably find that you need to

> fill the role of

> co-therapist and reading Dr. March and

> Mulle's book, " OBsessive

> Compulsive Disorder in Children and Adolescents "

> which describes the state

> of the art treatment for OCD, will help you to learn

> that.

>

> Our son, Steve, now 13, has been helped most with

> CBT. He also has

> depression (MDD) and medications have been necessary

> for this. Depression

> frequently travels along with OCD and can interfere

> with CBT. There are

> many parents of young kids on this list who will be

> able to make very

> constructive suggestions to you and your family.

> Take care, aloha, Kathy (H)

> kathyh@...

>

> At 06:25 AM 06/01/2000 +0000, you wrote:

> >Hi my name is and I am the mother of three

> little children. DJ

> >is my oldest and he is 5 years old. He also has a

> brother who is

> >three and a sister who just turned one. DJ is the

> one who we think

> >may have OCD. We have not been to a dr. and had a

> diagnosis as of

> >yet. Just last night my husband finally agreed

> that there was

> >something going on with our son. He was very

> worried about a clown

> >that was going to be in his preschool class today.

> He obsessed on

> >this clown all night and he was terrified that the

> clown was going to

> >do something with fire. He couldn't get this clown

> out of his mind.

> >This is just the latest of very many things he

> worries about. We

> >first noticed his behavior about 2-3 years ago when

> he would have to

> >have his bedroom door closed and once he closed it

> he would have to

> >push on it several times just to be sure it was

> closed. He would

> >worry about his door being closed any time we left

> the house and if

> >he came home and it was open he would be upset

> about it. He also

> >went through a phase where he was literally tucking

> in his shirt all

> >day long, or his shoe laces had to be tied exactly

> even, or his

> >hockey pads have to be put on several times because

> one is tighter

> >than another, and another of his latest is that

> after having a bowel

> >movement he will literally wipe his bottom for 3-5

> minutes straight.

> >He loves to collect junk, I call him my little

> garbage collector, and

> >just last night I read that this was a sign/symptom

> of OCD. I also

> >read that it was hereditary??? If so, it makes

> sense because my

> >niece (from my husbands sister) has been diagnosed

> with OCD. And my

> >sister in law also was believed to have had it.

> >

> >This is just some of my story. I am hoping that

> you all can help me

> >figure out where to go from here and what steps I

> need to take to

> >have this diagnosed. Does it sound like OCD to

> you? Are there any

> >good books on this subject? And how do you all

> deal with the worries

> >and obsessions/repetitions?

> >

> >Any advice or insight you may have would be

> extremely helpful!!!

> >

> >Thanks in advance.

> >

> >Sincerely~

> >

>

>

>

__________________________________________________

[Guest guest]

Judy,

She needs way more antibiotics than just 10 days! She should see an LLMD as

soon as possible. Try to persuade your GP into giving more antibiotics

until your LLMD appointment. He/she will be hesitant to give more

azithromycin (since it is usually just a 5 day course), but may consider a

few weeks of doxycycline. Take a copy of the ILADS protocol (www.ilads.org)

with you when you revisit the GP.

Take care,

On Sat, Jul 11, 2009 at 3:14 PM, Judith Durante <jd.hsmedford@...>wrote:

>

>

> Hi.

> My 19-y/o daughter was diagnosed with Lyme this week. She's probably had it

> since March, possibly longer. She never had a rash.

>

> Our GP gave her a 10-day supply of azythromycin.

>

> I'm very concerned that this is not enough. Is there anyone here who has

> had any success (or not?) with this course of treatment?

>

> Thank you.

>

> ~Judy

>

[Guest guest]

The good news: it's still pretty early, and she's lucky to have gotten

a clear diagnosis using the standard tests. Those tests have failed a

great many of us. The fact that they caught her case will make

everything that follows much, much easier.

Don't worry about the rash. Fewer than a third of us ever noticed one.

The bad news: No, this is almost certainly not enough -- not in

someone who's been infected this long already. At this point, it's

probably well-lodged in several forms, and throughout several body

systems. And ten days of antibiotics isn't even up to the current

infectious disease standard, which calls for 3-4 weeks of antibiotics

(and even that fails two-thirds of the time).

Were it my kid (and, in fact, my kid was firmly diagnosed just last

week -- he probably got it from me in the womb), I'd get her to a Lyme-

literate MD ASAP, and expect to be in for several months full-spectrum

treatment. The fact that she's young and the case is still fairly new

means you should be able to get very good results with 6-12 months of

treatment. I know that sounds like a long time, until you know that a

longer-standing case in older people can take 2-5 years.

If you need a doctor, we can recommend one to you off-list.

Sara

On Jul 11, 2009, at 12:14 PM, Judith Durante wrote:

> Hi.

> My 19-y/o daughter was diagnosed with Lyme this week. She's

> probably had it

> since March, possibly longer. She never had a rash.

>

> Our GP gave her a 10-day supply of azythromycin.

>

> I'm very concerned that this is not enough. Is there anyone here

> who has

> had any success (or not?) with this course of treatment?

>

> Thank you.

>

> ~Judy

[Guest guest]

Hi. i am 13 y/o girl dealing with many long term lyme stuff. I try as much as

possible to be a shoulder to lean on with other teens in this world with lyme.

email me at horsegirl@... if you want to talk more.

I would love to talk with your daughter and you a little, I am now on zithromax

and i know that you will most likely need AT LEAST 6 weeks of this treatment in

order for it to fully kill off early lyme stages and the 'life cycle' of the

lyme bacteria... but i am no MD.... this is a big researched issue, how long to

treat lyme in early stages so it doesn't become late stage lyme, and when is it

late stage, and how to treat that also! unfortunately i have a very good reason

to tell you your doc most likely may not agree to 6 weeks if tretment. I

strongly encourage you to find somelace to view 'Under Our Skin' a touching lyme

documentary.....

so sorry, not providing a sales pitch here, just want to say welcome to the

group, and god bless your heart for finding it because this has been a god sent

gift to me! :-)

hope to get an email from you soon!

Elaina

From: Judith Durante <jd.hsmedford@...>

Subject: [ ] New intro.

" on " < >

Date: Saturday, July 11, 2009, 3:14 PM

Hi.

My 19-y/o daughter was diagnosed with Lyme this week. She's probably had it

since March, possibly longer. She never had a rash.

Our GP gave her a 10-day supply of azythromycin.

I'm very concerned that this is not enough. Is there anyone here who has

had any success (or not?) with this course of treatment?

Thank you.

~Judy

[Guest guest]

I recommend you find an LLMD in your area for consultation. You might try the

Lymenet board and see if someone can refer you to a good LLMD in your area.

>

> Hi.

> My 19-y/o daughter was diagnosed with Lyme this week. She's probably had it

> since March, possibly longer. She never had a rash.

>

> Our GP gave her a 10-day supply of azythromycin.

>

> I'm very concerned that this is not enough. Is there anyone here who has

> had any success (or not?) with this course of treatment?

>

> Thank you.

>

> ~Judy

>

>

>

[Guest guest]

Twenty-four hours, and tons of research later, I am convinced that my dd needs

to see a specialist ASAP.

I completely understand the urgency of the situation, and I will be calling

someone today.

I am so sorry for those of you who are suffering permanent effects of Lyme.

Thank you SO MUCH for all the thoughtful replies.

~Judy in NJ