Re: Bicillin im injections and/or Rocephin im

[Guest guest]

Hi Barb,

I've used the Bicillin LA shots but only after I tried the orals for

a year then the IV rocephin for over three months then a year and a

have of Bicillin shots starting at twice a week tapering down to once

a month.

I did however add HBOT ( hyperbaric oxygen ) to the protocol

and so far I have been antibiotic free for over a year.

BTW, I tested postive for lyme, bartonella and early on erhlichia.

Blessings,

Sudylo RN/CHT

Basking Ridge, NJ

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>

> Hi all, this is my first post here. I was diagnosed in late June

with

> Lyme via Western Blot through IGenex. My first month of treatment

was

> doxy 400mg per day for a month. My last two months was Mepron/Azith

of

> which I will continue for coinfections for two more months.

>

> I just started bicillin im injections 1,2 million per week for one

> month and then I'll be on 2.4 per week thru Xmas. Has anyone had

> success with the bicillin? I have neuro symptoms and it took

exactly

> one year to be diagnosed. I've had seizures, tremors, etc.,

>

> I was supposed to do IV therapy of rocephin but was told by my lyme

Dr.

> to do forego the rocephin for now and try the bicillin. He said

they've

> had some real success stories with the bicillin. I wonder if I am

> postphoning the inevitable?

>

> Any information from experience would be greatly appreciated.

>

>

> Barb in San Francisco

>

[Guest guest]

I was thinking about trying ti too...

eric

sf5charm <pabtj@...> wrote:

Hi all, this is my first post here. I was diagnosed in late June with

Lyme via Western Blot through IGenex. My first month of treatment was

doxy 400mg per day for a month. My last two months was Mepron/Azith of

which I will continue for coinfections for two more months.

I just started bicillin im injections 1,2 million per week for one

month and then I'll be on 2.4 per week thru Xmas. Has anyone had

success with the bicillin? I have neuro symptoms and it took exactly

one year to be diagnosed. I've had seizures, tremors, etc.,

I was supposed to do IV therapy of rocephin but was told by my lyme Dr.

to do forego the rocephin for now and try the bicillin. He said they've

had some real success stories with the bicillin. I wonder if I am

postphoning the inevitable?

Any information from experience would be greatly appreciated.

Barb in San Francisco

[Guest guest]

I was infected summer of 05. Started treatment 5 months ago.I have been on doxy

for 3 months and rocephin IV for 2 months with a bit of azithromycin thrown

in.I'm still having a lot of musclar/joint pain, fatigue, sleep and cognitive

dysfunction. I am now going to try bicillin treatment. to see if if I can get to

a symptom free life. Please keep me posted of your progress or lack of one. I've

read some protocols which suggest using amoxicillin with or after a course of

penicillin injections. it would be enriching, if a group of us chronics could

follow a similar course of treatment in order to qualify a course of treatment

as beneficial or not.

Best to all

mike in New York

[Guest guest]

How are you all treating coinfections? I'm hearing four months of treatment

for coinfections?

Barb

[Guest guest]

I've been doing Bicillin injections for 14 weeks and will go up to 20. Yes

they do help, but very slowly. My doctor uses them more for Strep but it

does help with Lyme. I will be doing the last of my shots in conjunction

with starting IVs.

At 06:30 PM 9/30/2006, you wrote:

>Hi all, this is my first post here. I was diagnosed in late June with

>Lyme via Western Blot through IGenex. My first month of treatment was

>doxy 400mg per day for a month. My last two months was Mepron/Azith of

>which I will continue for coinfections for two more months.

>

>I just started bicillin im injections 1,2 million per week for one

>month and then I'll be on 2.4 per week thru Xmas. Has anyone had

>success with the bicillin? I have neuro symptoms and it took exactly

>one year to be diagnosed. I've had seizures, tremors, etc.,

>

>I was supposed to do IV therapy of rocephin but was told by my lyme Dr.

>to do forego the rocephin for now and try the bicillin. He said they've

>had some real success stories with the bicillin. I wonder if I am

>postphoning the inevitable?

>

>Any information from experience would be greatly appreciated.

>

>Barb in San Francisco

>

>

[Guest guest]

I've had amox and bicillin and I had herxes with both. Also good

combination is Tindamax, Zithro.

At 10:44 AM 10/1/2006, you wrote:

>I was infected summer of 05. Started treatment 5 months ago.I have been on

>doxy for 3 months and rocephin IV for 2 months with a bit of azithromycin

>thrown in.I'm still having a lot of musclar/joint pain, fatigue, sleep and

>cognitive dysfunction. I am now going to try bicillin treatment. to see if

>if I can get to a symptom free life. Please keep me posted of your

>progress or lack of one. I've read some protocols which suggest using

>amoxicillin with or after a course of penicillin injections. it would be

>enriching, if a group of us chronics could follow a similar course of

>treatment in order to qualify a course of treatment as beneficial or not.

>Best to all

>mike in New York

>

>

[Guest guest]

I am currently on my last three weeks of a two month regimen of Levaquin

for Bartonella. It seems to be helping my neuro symptoms.

W

Baltimore

pabtj@... wrote:

>How are you all treating coinfections? I'm hearing four months of treatment

>for coinfections?

>

>Barb

>

>

>

[Guest guest]

Hey Mike where are you in NY? I am in NYC. I have been on bicillin before

usually with zithromax and it worked awesome but then all of my symptoms came

back a year and a half later. I should have stayed on it olonger or took a

higher dose because it definately got me a lot better. I was on 1.2 million

units once a week and then 2.4 million units once a week for almost a year

straight. When I stopped I was still better for a year and a half. It was

awesome

but now it doesnt seem to work as well. Also amoxicillin is used in

conjunction with probeniced to enhance the effects of the amoxicillin. Hope you

are

feeling better-Val

[Guest guest]

dear val

I live in monroe, ny which is about 50 miles north of nyc on the west side of

the hudson river.

sorry to hear that your regimen of bicillin for about a year didn't do the trick

and that now its not having the same effect as the first go-round. actually, I'm

surprised that you were able to stay on bicillin for so long without other

consequences. I've been on doxy for 3 months and rocephin with azithromycin for

2 months and I really needed to get off these antbx to let my body recover. I

have thrush in my mouth and on my face with a general upheaval to my gi track.

it also nice to let my left arm heal up a little too.

thought it would be prudent to rest a bit before the next assault and all I have

been able to fathom is that Dr cameron in mt kisco uses bicillin with or without

amoxicillin to get some positive results. whatever that means...

what is clear to me is that there is no clarity for the chronic sufferer. that

we are reliant on a compromised medical community for a solution which so far is

non existent and that long term antibiotic therapy is at best a coping mechanism

or halfway measure till a real remedy is discovered.

re: nancy's outrage at the apathy out there. first off, as a democratic party

organizer, its a daily occurence to visit our people's apathetic responses in

the face of so many evils. being strident in the papers can't hurt us vis-a vis

the medical-pharm complex , but its really a poor forum for long term sufferers

like us. papers, like newsday , are in the biz to foment controversy, etc. in

order to sell papers. they are not in the least interested in the truth.

What I find strange is that in the midst of this plague, we have no real support

groups out there, meeting regularly and actively. the internet is a great way to

share info across wide areas but its inconsequential for achieving change in the

real world. it might even also contribute, like life in the burbs, to a further

sense of isolation and hence, inactivity. there is no substitute for people

meeting mano-a-mano in order to share their real-life experiences, resources

and hopefully pursue measures which will alleviate this awful crisis. I'm

seriously considering starting one here in the hudson valley maybe in orange

county, ny where I reside.

its clear from tina in arizona that we need our own insurance program.Absent

universal healthcare, one with our own approved provider network. we need to

underwrite research for a cure and possibly a fund to help the most

economicallly distressed, etc. etc.lots to do!

[Guest guest]

Hi Mikey,

I wholeheartedly agree with your concerns about the lyme community. I have

been in and out of the lyme (chronic) community for years and do see progress

albiet slow. I have also worked at the state level and find government change

very, very slow. We have a very active lyme group here in Kansas City and do

what we can to get the word out about the issues, and lobby local politicians.

I am quite irritated with the new guidelines from IDSA and think this will cause

a further divide int he tx community.

I do agree that we need to band together for universal healthcare for those

individuals who can't get insured otherwise. It's just nonsense to think that

here in the USA there are people who can't get medical care or meds because of

cost. Got any ideas? I think we could look to other disability/healthcare

groups for ideas about grassroots action rather than reinventing the wheel as it

were.

With regard to what appears to be apathy from a previous post, I am so tired

sometimes I have a hard time holding down the little part time job I have to pay

for my insurance, and then can't really plan things due to the irregularity of

the flare ups. I know lots needs to be done and other groups are struggling

just like us. We just have to keep moving forward and with each step hopefully

we are making progress for tick borne diseases.

cooky

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