Guest guest Posted April 21, 1999 Report Share Posted April 21, 1999 Does anyone know of a doctor who specializes in CFS in the Southern California area (San Diego). I was a patient of Dr. Ferre's but since I'm unable to drive long distances, I need to find a good doctor closer. Thanks. _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 - Did you try www.oxytherapy.com and go to the physician referral section? Or go across the border and see Dr. Carolyn Bormann? I Bless You and Bless You with All Goodness, Zell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hi Mark, Welcome to the group. & nbsp; You are lucky to live in Ohio and I am sure you will be hearing those who have been to Cleveland Clinic singing their praises. & nbsp; They seem to have a lot of experience there. & nbsp; Many have traveled good distances to go there. We are glad to have you join our group. Maggie Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hi Mark I think that you will find several here that have been EXTREAMLY happy with the Clevland Clinic. How lucky you are to already be in Ohio. Check in the files and the database section of the website for a list of GI's surgeons and hospitals. Good Luck Paige > Hi, > > I'm new to the group. Was diagnosed with achalasia in 1998. I'm > looking for a new doctor in my area. Someone very experienced with > this disease. Previous doctors no help. > > Getting progressively worse, dialation not effective anymore, lost > 30 pounds in the last 10 months. > > Mark from Dayton, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Welcome to the group!The first place I would recommend is The Cleveland Clinic. I've been a patient at the University of Michigan, but I wasn't happy with the doctor that I saw there, so it's worth it to me to drive to another state to see an experienced doc. I see Dr. Richter at TCC, and there are I think maybe half a dozen docs in the Swallowing Disorders Clinic at TCC. You can call Dr. Richter's secretary Peg Krivac at 216-445-9102. TCC probably sees more achalasia patients per year than any other facility in the world. There are other doctors in other parts of the country that also have a lot of achalasia experience, but you'll be hard-pressed to find one in Ohio with more experience than TCC. Debbi in SW Michigan Hi,I'm new to the group. Was diagnosed with achalasia in 1998. I'm looking for a new doctor in my area. Someone very experienced with this disease. Previous doctors no help.Getting progressively worse, dialation not effective anymore, lost 30 pounds in the last 10 months.Mark from Dayton, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 In a message dated 2/13/2004 6:30:15 AM Eastern Standard Time, bullscreek@... writes: Hi,I'm new to the group. Was diagnosed with achalasia in 1998. I'm looking for a new doctor in my area. Someone very experienced with this disease. Previous doctors no help.Getting progressively worse, dialation not effective anymore, lost 30 pounds in the last 10 months.Mark from Dayton, Ohio Hi Mark, I live in Northern KY, and have been seeing a new GI by the name of Dr. Norman Gilinski and he is alfilliated with the University of Cincinnati hospital. I have not been diagnosed with achalasia, but he is knoledgeable of it and we have discussed it. Most of the people in this support group speak very highly of the Cleveland Clinic. If things don't work out with Dr. Gilinski, that's where I will head next, the Cleveland Clinic. Take care, Jan in Northern KY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Hi Mark, I live very close to you, I am in Columbus. I had my surgery at OSU Hospital. My surgeon was Melvin. I had great results. Please let me know if you have any questions. Jenifer > Hi, > > I'm new to the group. Was diagnosed with achalasia in 1998. I'm > looking for a new doctor in my area. Someone very experienced with > this disease. Previous doctors no help. > > Getting progressively worse, dialation not effective anymore, lost > 30 pounds in the last 10 months. > > Mark from Dayton, Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Bill I live in the Phoenix area. I haven't heard of him. I went to Dr. Worthington at Arizona Orthopedics in Mesa. He was really good. He was confident and I am really happy with the results I've had. I know there are alot of good doctors in this area but Worthington was recommended to me. He has alot of experience. Good Luck! DebBill Victor <wrvictor@...> wrote: Has anyone had joint replacement surgery performed on them by orthopedic surgeon Dr. A. Camarata in the Phoenix, AZ area?If so could you tell me if your experience was a good one?Thx,Bill for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 I LIVE IN NEBRASKA SO I CAN NOT HELP MUCH. I WOULD SUGGEST THAT YOU TRY JOHN HOPKINS FIRST THEN CALL YOUR LOCAL MEDICIAL SOC. OR THE UNIVERSITY. GOOD LUCK, THERE ARE MANY OTHERS HERE FROM YOUR COUNTRY. BUD 617 <laura617@...> wrote: I am new to the Lyme world. I am looking to be tested through Igenix and am looking for an excellent LLMD in the VA/DC/MD (I am being seen at s Hopkins for GI issues and could get in there, if there was a recommended doctor). Or, for that matter, if there is a doctor that you would not recommend, that would be helpful as well! I have seen too many uneducated doctors and I can't waste more time bouncing around from doc to doc. I have undiagnosed health concerns and a friend with Lyme suggested that I find a good LLMD in the area. Thanks for your help. --------------------------------- Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Hi Tom, welcome to this group. I remembered we had one member from Houston that had a myotomy, so I went to the database to check the listing of recommended doctors and found the following: Houston, Texas Dr. Reardon Head of Noninvasive Chest and Abdominal Surgery at Baylor College of Medicine 713-790-3140 myotemy and partial nissan Fundoplication He's very experienced with myotemy and Gerd. I couldn't be more pleased with my outcome. I think he's brilliant! lindwoodwebtv (DOT) net I remembered how pleased she was with this doctor but I have no idea what his qualifications are. You might check him out there. I believe her's was an open procedure. Her email address is listed there also but I have no idea if that is still good. If you want to try it, I'm sure would be glad to tell you all she knows about him. Maggie AlabamaWho's never won? Biggest Grammy Award surprises of all time on AOL Music. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 In reference to your comment: Should I look for a GI physician? Hi Tom, Yes, I would think so. Sorry, I had meant to say in my reply that I did not know who 's GI was, and if you were able to contact her, I'm sure she would share that information with you. As you said, Houston has many good medical centers. I would check and see if any of them had a swallowing center and start there. You do need a GI though that has experience in treating achalasia. Call these centers, ask for the head of gastroenterology and quiz him about how many achalasia patients they have treated. Maggie Who's never won? Biggest Grammy Award surprises of all time on AOL Music. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Thanks for the replies. Is it normal to go to a surgeon for a initial diagnosis? Maybe that will be the eventual treatment, but I'm not looking to walk into a doctor's office asking for any surgery. Should I look for a GI physician? > > Hi Tom, welcome to this group. > > I remembered we had one member from Houston that had a > myotomy, so I went to the database to check the listing of > recommended doctors and found the following: > > Houston, Texas Dr. Reardon Head of Noninvasive Chest and > Abdominal Surgery at Baylor College of Medicine 713-790-3140 myotemy and partial > nissan Fundoplication He's very experienced with myotemy and Gerd. I couldn't be > more pleased with my outcome. I think he's brilliant! _lindwood@..._ > (mailto:lindwood@...) > > I remembered how pleased she was with this doctor but I have no idea > what his qualifications are. You might check him out there. I believe > her's was an open procedure. Her email address is listed there also > but I have no idea if that is still good. If you want to try it, I'm sure > would be glad to tell you all she knows about him. > > Maggie > Alabama > > > > **************Biggest Grammy Award surprises of all time on AOL Music. > (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 > 48) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 i wonder if anyone knows of another way to find a doctor besides the search function on lymediseaseassociation.org. i searched there and found 4 doctors, all of them unavailable for one reason or another. thank you , PA ________________________________ From: Maureen Havenner <havenner@...> Sent: Sunday, June 21, 2009 12:37:40 AM Subject: RE: [ ] very basic questions about lab tests - help please? , You should visit www.lymediseaseasso ciation.org for information and for a list of Lyme Literate MDs. You can register and they will give you names of docs close to you who treat in accordance with the LDA guidelines (i.e., more sensitive labs, a clinical diagnosis, attention to co-infections and longer antibiotic treatment periods). I found my doc on the LDA referral list although I also asked around the lyme support groups in my area and found out that my doc was highly recommended by others. You should look for a lyme support group in your area because that is often a great source of information about local resources. My 21 year old son also has lyme (and babesia) and has been treated for three years now by Dr. J. in New Haven (the long treatment period is because he was sick for several years before diagnosis... he is much, much better although still requires treatment.) I take him cross country because Dr. J has treated more cases of pediatric lyme disease than anyone. If you want to contact me off-list for more information about that particular doc, please feel free. Maureen havennerdaycorp (DOT) com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 Ask this list. We often send people referrals (off-list, because most Lyme lists have a policy of never naming doctors in posts). And a lot of LLMDs don't put themselves on the LDA list for the same defensive reasons -- it's like sticking a target on your forehead. Does anybody here know a doc in PA that can see and her kid in the next couple weeks? Sara On Jun 22, 2009, at 7:12 AM, wrote: > i wonder if anyone knows of another way to find a doctor besides the > search function on lymediseaseassociation.org. i searched there and > found 4 doctors, all of them unavailable for one reason or another. > > thank you > , PA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 Try the Healing Well Forum on Lyme or the MDJunction forum on Lyme, there are a lot of people in treatment on those boards that may be able to help you. Marika > > i wonder if anyone knows of another way to find a doctor besides the search function on lymediseaseassociation.org. i searched there and found 4 doctors, all of them unavailable for one reason or another. > > thank you > , PA > > > > > ________________________________ > From: Maureen Havenner <havenner@...> > > Sent: Sunday, June 21, 2009 12:37:40 AM > Subject: RE: [ ] very basic questions about lab tests - help please? > > > > > > , > > You should visit www.lymediseaseasso ciation.org for information and for > a list of Lyme Literate MDs. You can register and they will give you > names of docs close to you who treat in accordance with the LDA > guidelines (i.e., more sensitive labs, a clinical diagnosis, attention > to co-infections and longer antibiotic treatment periods). I found my > doc on the LDA referral list although I also asked around the lyme > support groups in my area and found out that my doc was highly > recommended by others. You should look for a lyme support group in your > area because that is often a great source of information about local > resources. > > My 21 year old son also has lyme (and babesia) and has been treated for > three years now by Dr. J. in New Haven (the long treatment period is > because he was sick for several years before diagnosis... he is much, > much better although still requires treatment.) I take him cross country > because Dr. J has treated more cases of pediatric lyme disease than > anyone. If you want to contact me off-list for more information about > that particular doc, please feel free. > > Maureen > havennerdaycorp (DOT) com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 I took my daughter to Miami Children's and the spinal/scoliosis specialist there is Dr. Asghar. My understanding is that he used to be the attending physician for Dr. Betz at Shriner's Philly. Dr. Asghar along with "nie" the cast tech with over 25 years experience applied my daughter's Cotrel cast a few weeks ago. Dr. Asghar is pretty big on casting and very knowledgable and experienced on pretty much all the treatments out there for scoliosis . He and nie will be applying a second cast beginning of November.From: Connie <tovi39@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Thursday, October 13, 2011 4:52 PMSubject: Re: Doctor Referral I used to live in that area and we went to Children's hospital in Miami. We went there for everything. We can't name doctors on this group but if you go to their website you will find names of the orthopedic surgeons. When I lived there they weren't doing casting but that was 7 years ago. Hopefully things have changed. Connie VianaOn Oct 13, 2011, at 12:51 PM, "" <michelle.board@...> wrote: My family relocated this year to the Miami / Fort Lauderdale area and I wanted to find out if anyone can recommend a doctor in this area? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 Hi , We also live in South Florida and travel to Shriners in SC. We've been to Miami Childrens Hospital and the " best " Ortho's in Broward County. Needless to say, we ended up in SC and do not doubt we made the right decision. Miami Childrens does cast but it's not Mehta casting. Feel free to email me if you have any questions. ~Rita > > My family relocated this year to the Miami / Fort Lauderdale area and I wanted to find out if anyone can recommend a doctor in this area? Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2011 Report Share Posted October 17, 2011 Thank you! > > > Â > >My family relocated this year to the Miami / Fort Lauderdale area and I wanted to find out if anyone can recommend a doctor in this area? Thanks! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 are you looking for an ET mehta casting doc? My family relocated this year to the Miami / Fort Lauderdale area and I > wanted to find out if anyone can recommend a doctor in this area? Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Please read CASTs netiquette when you get a chance. Thank you! HRH > I took my daughter to Miami Children's and the spinal/scoliosis specialist > there is Dr. Asghar.  My understanding is that he used to be the > attending physician for Dr. Betz at Shriner's Philly.  Dr. Asghar along > with " nie " the cast tech with over 25 years experience applied my > daughter's Cotrel cast a few weeks ago.  Dr. Asghar is pretty big on > casting and very knowledgable and experienced on pretty much all the > treatments out there for scoliosis .  He and nie will be applying a > second cast beginning of November. > > > ________________________________ > From: Connie <tovi39@...> > " infantile scoliosis treatment " > <infantile scoliosis treatment > > Sent: Thursday, October 13, 2011 4:52 PM > Subject: Re: Doctor Referral > > >  > I used to live in that area and we went to Children's hospital in Miami. > We went there for everything. We can't name doctors on this group but if > you go to their website you will find names of the orthopedic surgeons. > When I lived there they weren't doing casting but that was 7 years ago. > Hopefully things have changed. > > > Connie Viana > > On Oct 13, 2011, at 12:51 PM, " " <michelle.board@...> wrote: > > >  >>My family relocated this year to the Miami / Fort Lauderdale area and I >> wanted to find out if anyone can recommend a doctor in this area? >> Thanks! >> >> > Quote Link to comment Share on other sites More sharing options...
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