Re: Getting the word out about LDN

[Guest guest]

Unfortunately, most folks live in denial of things they might do for their own health. They want a magic pill, or someone far up, or from far away to fix them, AMA and the drug companies have spent years encouraging patients to be dumb and dumb founded. Remember T Edison, failed twenty one hundred times before he got the light bulb to work w/o burning out.

But he never saw them as failures, to him each one was a learning experiences.

I read a book, "I am a graduate of -uck you university" The guy was a land broker, he told how he put deals together, by dressing large, renting rolls royce auto's and claiming to be from the other side of the mississippi. When he arrived on scene, everyone took note and never asked questions, ie like Trumph. My mother had a saying, only one percent of the people know what is happening, two percent help that one percent, and the other ninety seven percent don't have a clue as to what is really happening, they feel they were put on this earth to procreate and nothing else, maybe watch tv, drink a little beer and barby and who is ahead in some sports activity. A rather small box they reside in.

Anywho be persistent, reap your gratification from doing what you think is right, noone will ever nail you to the cross, for spreading the truth. Should you help one person, the word will surely spread like wildfire.

stay vertical, david a lubbock, tx

[low dose naltrexone] Getting the word out about LDN

I work hard everyday posting about LDN on Facebook with information and Videos and no one ever responds but when someone post some dumb or silly thing there everyone leaves a comment... go figure.Our local news station was all about MS and had a panel of Doctors answering questions for an hour and I called 100 time and never got through even when it rang. I really think they were faking being on the phone! I think there was one doctor there and the rest were stand ins.Even the weatherman told about how he has MS and the Doctors said there is no cure or hope for MS... BULL! I do believe they want everyone on expensive medicines. I emailed the station... no reply.I emailed several MS groups asking if I could attend and speak about Lowdosenaltrexone and not one reply as they all go through the MS Society site to be screened first.How can this be... its nuts! Something that works and is ignored by almost everybody... I'm losing hope fast as my words fall upon deaf ears!

[Guest guest]

I have had the same results, people that I know would benefit from LDN will not listen. I have spoken to a dozen people, including relatives, without any feed back. At this time I am inclined to say f**k em, but I will still try to offer help even if it is rejected. LDN works for me and if that is as far as it goes, OK.SterlingFrom: georgeadams13090 <nypatandgeorge@...>Subject: [low dose naltrexone] Getting the word out about LDNlow dose naltrexone Date: Monday, February 28, 2011, 5:10 PM

I work hard everyday posting about LDN on Facebook with information and Videos and no one ever responds but when someone post some dumb or silly thing there everyone leaves a comment... go figure.

Our local news station was all about MS and had a panel of Doctors answering questions for an hour and I called 100 time and never got through even when it rang. I really think they were faking being on the phone! I think there was one doctor there and the rest were stand ins.

Even the weatherman told about how he has MS and the Doctors said there is no cure or hope for MS... BULL! I do believe they want everyone on expensive medicines. I emailed the station... no reply.

I emailed several MS groups asking if I could attend and speak about Lowdosenaltrexone and not one reply as they all go through the MS Society site to be screened first.

How can this be... its nuts! Something that works and is ignored by almost everybody... I'm losing hope fast as my words fall upon deaf ears!

[Guest guest]

I have been giving my wife LDN against all advice I received from my Doctors, here in India and it is only from the feedback people like you have given on this group and I am forever grateful for that.RajeevIndia From: "bicyclenutmail-ldn@..." <bicyclenutmail-ldn@...>georgeadams13090 <nypatandgeorge@...>;

low dose naltrexone Sent: Tue, March 1, 2011 11:58:17 AMSubject: Re: [low dose naltrexone] Getting the word out about LDN

I have had the same results, people that I know would benefit from LDN will not listen. I have spoken to a dozen people, including relatives, without any feed back. At this time I am inclined to say f**k em, but I will still try to offer help even if it is rejected. LDN works for me and if that is as far as it goes, OK.SterlingFrom: georgeadams13090 <nypatandgeorge@...>Subject: [low dose naltrexone] Getting the word out about LDNlow dose naltrexone Date: Monday, February 28, 2011, 5:10 PM

I work hard everyday posting about LDN on Facebook with information and Videos and no one ever responds but when someone post some dumb or silly thing there everyone leaves a comment... go figure.

Our local news station was all about MS and had a panel of Doctors answering questions for an hour and I called 100 time and never got through even when it rang. I really think they were faking being on the phone! I think there was one doctor there and the rest were stand ins.

Even the weatherman told about how he has MS and the Doctors said there is no cure or hope for MS... BULL! I do believe they want everyone on expensive medicines. I emailed the station... no reply.

I emailed several MS groups asking if I could attend and speak about Lowdosenaltrexone and not one reply as they all go through the MS Society site to be screened first.

How can this be... its nuts! Something that works and is ignored by almost everybody... I'm losing hope fast as my words fall upon deaf ears!

[Guest guest]

You are not alone.

We know someone who's son, about 13 years old, suffers from MS, and as

already wheel chair bound. As soon as I learn t about LDN and MS I let

them know, I sent them several links with information. In the end I

was told they were not interested on any more information.

There is only one thing the Drs have done very well, and that is to

train us all to only pay attention to information that comes from a Dr,

and only take stuff that comes in a bottle from a big name laboratory

with a UPS code and an overinflated price; the higher the price, the

more effective it is.

[Guest guest]

Just as an encouragement, I've been telling LOTS of people about LDN (LOTS of

people have illnesses!) and we haven't even been using it for more than 2 weeks!

Yet I trust all the good reports on here and so far 3 people I've mentioned it

to are ordering it or seriously considering it!

[low dose naltrexone] Getting the word out about LDN

low dose naltrexone

Date: Monday, February 28, 2011, 5:10 PM

I work hard everyday posting about LDN on Facebook with information and Videos

and no one ever responds but when someone post some dumb or silly thing there

everyone leaves a comment... go figure.

Our local news station was all about MS and had a panel of Doctors answering

questions for an hour and I called 100 time and never got through even when it

rang. I really think they were faking being on the phone! I think there was one

doctor there and the rest were stand ins.

Even the weatherman told about how he has MS and the Doctors said there is no

cure or hope for MS... BULL! I do believe they want everyone on expensive

medicines. I emailed the station... no reply.

I emailed several MS groups asking if I could attend and speak about

Lowdosenaltrexone and not one reply as they all go through the MS Society site

to be screened first.

How can this be... its nuts! Something that works and is ignored by almost

everybody... I'm losing hope fast as my words fall upon deaf ears!

--

Toni

------

Mind like a steel trap...

Rusty and illegal in 37 states.

[Guest guest]

I just started taking it about a month ago, and I've known about it for over a year.  It can take people time, even if it is a great decision (incidentally, I have crohns, and I believe it is helping me, to be determined as I was in a nasty flare when I started) 

Think about it as planting a seed.  When they see something about it on the web, or on a news program, they will remember that they heard about it from you.  Everyone isn't a pioneer.  I have a friend with ms I was trying to convince to try because I knew it was where the best results were...hopefully now that I'm on it, she'll seriously consider it. 

Best of health to you both!On Tue, Mar 1, 2011 at 10:48 AM, <liv4him@...> wrote:

 

Just as an encouragement, I've been telling LOTS of people about LDN (LOTS of people have illnesses!) and we haven't even been using it for more than 2 weeks! Yet I trust all the good reports on here and so far 3 people I've mentioned it to are ordering it or seriously considering it!

[low dose naltrexone] Getting the word out about LDN

low dose naltrexone

Date: Monday, February 28, 2011, 5:10 PM

I work hard everyday posting about LDN on Facebook with information and Videos and no one ever responds but when someone post some dumb or silly thing there everyone leaves a comment... go figure.

Our local news station was all about MS and had a panel of Doctors answering questions for an hour and I called 100 time and never got through even when it rang. I really think they were faking being on the phone! I think there was one doctor there and the rest were stand ins.

Even the weatherman told about how he has MS and the Doctors said there is no cure or hope for MS... BULL! I do believe they want everyone on expensive medicines. I emailed the station... no reply.

I emailed several MS groups asking if I could attend and speak about Lowdosenaltrexone and not one reply as they all go through the MS Society site to be screened first.

How can this be... its nuts! Something that works and is ignored by almost everybody... I'm losing hope fast as my words fall upon deaf ears!

--

Toni

------

Mind like a steel trap...

Rusty and illegal in 37 states.

-- Amy Paliwoda213.249.5861amypaliwoda.com

[Guest guest]

Also have a friend whose husband, ironically was diagnosed with MS too! They

are both pursuing LDN.

[low dose naltrexone] Re: Getting the word out about LDN

Here is a suggestion:

We have a local MS meeting where sufferers come together. I remember my first

meeting when I was sobbing and in tears, with my husband and mother along for

support. At the time, it was called the Newly Diagnosed and Mildly Affected, and

it was sort of a starter-group for the first year after diagnosis. We were

expected to move on to the " regular " group of those in wheel chairs in two to

five years. It was run by a lady in a wheel chair from an accident.

Over the years, we found that not everybody needed to move on and we all became

very close, helping others through their trials and hugging the new people who

came to join us.

I moved away from Texas before finding LDN, but stayed in touch with the group.

I made a point of being back in Austin on the second Tuesday of a month so that

I could walk into that meeting and SHOW them just what was possible. It was a

huge break through for a lot of people.

I am suggesting that this is something that you can do locally and feel of use.

If you cannot be invited as a speaker, then consider going just to be part of

the MS people. You can't preach, but you can always offer your story.

We all spread the word in a million different ways. Keep being creative and

please don't give up. The idiots will be legion, but some will hear the word

when they are ready. Those are the people that we want to contact.

Hang in there!

Francie

>

> I work hard everyday posting about LDN on Facebook with information and Videos

and no one ever responds but when someone post some dumb or silly thing there

everyone leaves a comment... go figure.

>

> Our local news station was all about MS and had a panel of Doctors answering

questions for an hour and I called 100 time and never got through even when it

rang. I really think they were faking being on the phone! I think there was one

doctor there and the rest were stand ins.

> Even the weatherman told about how he has MS and the Doctors said there is no

cure or hope for MS... BULL! I do believe they want everyone on expensive

medicines. I emailed the station... no reply.

>

> I emailed several MS groups asking if I could attend and speak about

Lowdosenaltrexone and not one reply as they all go through the MS Society site

to be screened first.

>

> How can this be... its nuts! Something that works and is ignored by almost

everybody... I'm losing hope fast as my words fall upon deaf ears!

>

[Guest guest]



Amy, I like your words, much wisdom there. Brain docks will tell, we have a filter between our senses and our brain.

This is the way it was explained to me. You purchase a bright shiny new cab colored car, you drive it home thinking you have something very special, but after a few days, you begin to notice a lot of cars like you, damm, every tom, dick and harry bought one of these cars. Of course the cars were there all the time, you just did not notice as your brain filter screened it out as not important, as our senses during a one day period is like a million things, so we blow off most of them and never really know we do. Our friend the filter helped us out.

Hence when folks get down, they will stay that way, as they can never see the rainbow after a rain. I suppose that is why most of us are dumb and pretty much obligated to stay that way, unless we open our eyes.

stay vertical, david a lubbock tx

[low dose naltrexone] Getting the word out about LDN low dose naltrexone Date: Monday, February 28, 2011, 5:10 PM I work hard everyday posting about LDN on Facebook with information and Videos and no one ever responds but when someone post some dumb or silly thing there everyone leaves a comment... go figure. Our local news station was all about MS and had a panel of Doctors answering questions for an hour and I called 100 time and never got through even when it rang. I really think they were faking being on the phone! I think there was one doctor there and the rest were stand ins. Even the weatherman told about how he has MS and the Doctors said there is no cure or hope for MS... BULL! I do believe they want everyone on expensive medicines. I emailed the station... no reply. I emailed several MS groups asking if I could attend and speak about Lowdosenaltrexone and not one reply as they all go through the MS Society site to be screened first. How can this be... its nuts! Something that works and is ignored by almost everybody... I'm losing hope fast as my words fall upon deaf ears! -- Toni ------ Mind like a steel trap... Rusty and illegal in 37 states.

-- Amy Paliwoda213.249.5861amypaliwoda.com

[Guest guest]

Well, since I had trouble shipping it to Canada, I ordered it from All Day Chemist to be sent to my close friend who lives in States (I ordered some other things the same way prior). She first confirmed that the package arrived, than she kept avoiding my emails for a month, and than, just before we were schedule to visit her, she informed me that she REFUSES to give it to me! Quote: " I don't want you to kill yourself " !!!!! Sending her couple of links to get informed didn't change her point of viw... I finally did manage to find a way to get it..... three months later.....

JJ

[Guest guest]

Re; LDN cost. When I buy it on line the cost comes down to about 20 cents US per day. Not to try LDN due to cost is wrong, the product is safe at 300 mg so at 4.5 it is certainly safe. Go to the group site and read what 8000 people have to say, forget the doctor he/she is married to the pharmaceutical companies. You are in charge of your health.Sterling> I have had the same results, people that I know would benefit from LDN will> not listen. I have spoken to a dozen people, including relatives, without any> feed back. At this time I am inclined to say f**k em, but I will still try to> offer help even if it is rejected. LDN works for me and if that is as far as> it goes, OK.> Yes, but if your doctor does not prescribe it for you, and you are notdesperate enough to go out on a limb to find something that makes you feelbetter, then you are not likely to try something "new and different",particularly not something that "Big Brother"

sanctifies,since, it isobvious that it is not on the list of ordinarily prescribed medications,since you all appear to order it over the NET, rather than going to yourlocal chemist to buy it with a doctor's script, AND if it is not eligiblefor a government rebate, then why would you be inclined to try it?I am desperate, and, can afford, at the moment to give LDN a year's trial tosee if it will help me, but I have known about it for the last maybe 4months but have not ordered it because I wanted to run it by my neurologistfirst, partly because I do worry that it will cause me more problems than Ihave already, and because I will have to pay full cost for it over the NET,instead of getting a government rebate as I do with all my otherpharmaceuticals.The unknown is scary, particularly as regards your health, and if it isEXPENSIVE and scary, then I can understand people not being willing to

tryit. And, so often, what works for you does not work for me, as our healthproblems are not the same, regardless if our symptom are similar.MareeMelbourne, AUSTRALIA

[Guest guest]

hi ness, if we take ldn along with many other vitamins and supplements [*], how do we know it's the ldn working

i would always suggest ldn alone for 6 months and then introduce [*] if needed

plus there is a cost factor

regards/peter/london/ms primary progressive

I have also had the same attitude, even when replying to someone who has joined the group asking questions, giving them the answers, then have the attitude, don't believe you can take it with this, or you can't take it with that, or it may do this......................... when they really have nothing to loose.

It is a shame that we must feel that we must just give up, but I am starting to feel that way too.

Ness, UK

[Guest guest]

We use LDN as a cream. We see benefits... how many people think that cream doesn't even get into your body??? So anyway, my point is, if you are afraid to try it orally, you can use the cream and still get benefit.

On Wed, Mar 2, 2011 at 12:11 AM, <bicyclenutmail-ldn@...> wrote:

Re; LDN cost. When I buy it on line the cost comes down to about 20 cents US per day. Not to try LDN due to cost is wrong, the product is safe at 300 mg so at 4.5 it is certainly safe.  Go to the group site and read what 8000 people have to say, forget the doctor he/she is married to the pharmaceutical companies.  You are in charge of your health.

Sterling> I have had the same results, people that I know would benefit from LDN will> not listen.  I have spoken to a dozen people, including relatives, without any

> feed back.  At this time I am inclined to say f**k em, but I will still try to> offer help even if it is rejected.  LDN works for me and if that is as far as> it goes, OK.> Yes, but if your doctor does not prescribe it for you, and you are not

desperate enough to go out on a limb to find something that makes you feelbetter, then you are not likely to try something " new and different " ,particularly not something that " Big Brother "

sanctifies,since, it isobvious that it is not on the list of ordinarily prescribed medications,since you all appear to order it over the NET, rather than going to yourlocal chemist to buy it with a doctor's script, AND  if it is not eligible

for a government rebate, then why would you be inclined to try it?I am desperate, and, can afford, at the moment to give LDN a year's trial tosee if it will help me, but I have known about it for the last maybe 4

months but have not ordered it because I wanted to run it by my neurologistfirst, partly because I do worry that it will cause me more problems than Ihave already, and because I will have to pay full cost for it over the NET,

instead of getting a government rebate as I do with all my otherpharmaceuticals.The unknown is scary, particularly as regards your health, and if it isEXPENSIVE  and scary, then I can understand people not being willing to

tryit.  And, so often, what works for you does not work for me, as our healthproblems are not the same, regardless if our symptom are similar.MareeMelbourne, AUSTRALIA

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I'm reading your messages and I can relate to your feelings, I experience the

same. But - so let's be defiant, let's not give up. I read about somebody today

who I had written to a year ago but not thought it had led any further. Today I

read this person is about to start LDN. Brilliant. The message in a foreign

forum triggered something. I'm chuffed.

Silvia

>

> I have also had the same attitude, even when replying to someone who has

joined the group asking questions, giving them the answers, then have the

attitude, don't believe you can take it with this, or you can't take it with

that, or it may do this......................... when they really have nothing

to loose.

>

> It is a shame that we must feel that we must just give up, but I am starting

to feel that way too.

>

>

>

> I have had the same results, people that I know would benefit from LDN

will not listen. I have spoken to a dozen people, including relatives, without

any feed back. At this time I am inclined to say f**k em, but I will still try

to offer help even if it is rejected.

>

> I work hard everyday posting about LDN on Facebook with information

and Videos and no one ever responds but when someone post some dumb or silly

thing there everyone leaves a comment... go figure.

no reply.

> Something that works and is ignored by almost everybody... I'm losing hope

fast as my words fall upon deaf ears!

>

[Guest guest]

I guess that was the end of a friendship? It would have been for me. What a

silly person!

Good on you for perseverance

Silvia

>

> Well, since I had trouble shipping it to Canada, I ordered it from All Day

> Chemist to be sent to my close friend who lives in States (I ordered some

> other things the same way prior). She first confirmed that the package

> arrived, than she kept avoiding my emails for a month, and than, just before

> we were schedule to visit her, she informed me that she REFUSES to give it

> to me! Quote: " I don't want you to kill yourself " !!!!! Sending her couple

> of links to get informed didn't change her point of viw... I finally did

> manage to find a way to get it..... three months later.....

>

> JJ

>

[Guest guest]

In the meantime someone with cancer can be dead

I am using the Free version of SPAMfighter.SPAMfighter has removed 2058 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

On 2/3/11 4:11 PM, " bicyclenutmail-ldn@... "

<bicyclenutmail-ldn@...> wrote:

> Re; LDN cost. When I buy it on line the cost comes down to about 20 cents US

> per day. Not to try LDN due to cost is wrong, the product is safe at 300 mg so

> at 4.5 it is certainly safe.  Go to the group site and read what 8000

> people have to say, forget the doctor he/she is married to the pharmaceutical

> companies.  You are in charge of your health.

>

> Sterling

>

Who are you buying from, Sterling? And do you get it ready to take in pill

form or do you have to stuff around measuring , titring and mixing to enable

you to get this price of 20c a day?

Fortunately, for me, the Aust $ is now parity with the US$ -- several years

ago the exchange rate for us was very poor, and it would have cost me a lot

to buy Naltrexone, since the cost, here in OZ is looking like it would be

around $100au for a month supply. Without a permanent job, that is a lot of

money

Maree

Melbourne, AUSTRALIA

[Guest guest]

HI RAJEEV - GUESSED ON HINDI AND WAS RIGHT

LDN IS NOT A CURE BUT LONG TERM BUT A VERY GOOD CHANCE IT WILL SLOW THE PROGRESSION AND IT CAN REVERSE SYMPTOMS, STICK WITH THE LDN AS NOTHING TO LOOSE AND A LOT TO GAIN

I AM INTO MY 4TH MONTH AND NOW ON 4.5ML [sOLUTION] AND HAVE IDENTIFIED THE BEST PROVIDER IN THE UK, ASSUME YOU HAVE DONE SO IN INDIA, DONT THINK THERE HAS BEEN ANY RESERACH INTO DIFFERENT SUPPLIERS AS EVERY MS IS DIFFERENT

MY MS WAS DX IN 1995 PRIMARY PROGRESSIVE, ALL IN MY LEGS, STIFFNESS, CRAMPS, SPASMS, CRAMPS ETC PLUS BRAIN FOG AND DEPRESSION, WHAT LDN HAS DONE FOR ME IN 3 MONTHS IS LESS FATIQUE, BETTER BLADDER AND BOWELS SO FINGERS CROSSED FOR THE LEGS

SINCERELY HOPE YOUR WIFE IMPROVES OR A LEAST STAY THE SAME, YOU MUST BE POSITIVE

KEEP GOING AND STAY WITH IT, I'LL TRY AGAIN IN HINDI

भगवान भला करे और विशà¥à¤µà¤¾à¤¸ रखो, आप भागà¥à¤¯à¤¶à¤¾à¤²à¥€ थे जब हम आपको कà¥à¤°à¤¿à¤•à¥‡à¤Ÿ में खेला, या यह हमारा भागà¥à¤¯ था?

REGARDS PETER

Dear ,

Thanks for your e-mail and it is really a surprise you typing in Hindi !! Even I can't do that though I am a complete North Indian, Hindi speaking person.

What is your experience with LDN. My wife lost her left eye vision and after all the treatment and LDN also, her vision has not improved. When we repeated MRI the lesions in the brain were inactive but spinal chord lesions have increased.

Don't know what to do, but am pressing with LDN, atleast she is tolerating it.

Please tell something about you if you dont mind. Thanks in advance.

Regards.

Rajeev Agarwal

INDIA

[Guest guest]

We all wish you that best.Sterlingमैं LDN साथ रहने के लिठऔर मेरी इचà¥à¤›à¤¾ है कि तà¥à¤® और अपने सरà¥à¤µà¤¶à¥à¤°à¥‡à¤·à¥à¤  पतà¥à¤¨à¥€. बू गूगल अनà¥à¤µà¤¾à¤¦à¤¿à¤¤

From: georgeadams13090 <nypatandgeorge@...>Subject: [low dose naltrexone] Getting the word out about LDNlow dose naltrexone Date: Monday, February 28, 2011, 5:10 PM

I work hard everyday posting about LDN on Facebook with information and Videos and no one ever responds but when someone post some dumb or silly thing there everyone leaves a comment... go figure.Our local news station was all about MS and had a panel of Doctors answering questions for an hour and I called 100 time and never got through even when it rang. I really think they were faking being on the phone! I think there was one doctor there and the rest were stand ins.Even the weatherman told about how he has MS and the Doctors said there is no cure or hope for MS... BULL! I do believe they want everyone on expensive medicines. I emailed the station... no reply.I emailed several MS groups asking if I could attend and speak about Lowdosenaltrexone and not one reply as they all go through the MS Society site to be screened first.How can this be... its nuts! Something that works and is ignored by almost everybody... I'm

losing hope fast as my words fall upon deaf ears!