Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Tara, I think Vit. D is only bad if you believe in Marshal's protocol and beliefs. Most people I talk with on other lyme forums are taking Vit D and not a small amount. I take 2000 a day, and while I do have babesia, my lyme is dormant as far as I can tell. Also i have been taking Cod Liver in the capsules for several years for arthritis. It is best to go to the doctor and get your Vit D checked correctly and I forget the name of the correct test.. Often mainstream doctors will give you the wrong test. Doug From: Tara Romanowich <tvromanowich@...> Subject: [ ] Vitamin D issue " Borrelia Multiple Infections group " <BorreliaMultipleInfectionsAndAutism > Cc: " Lyme Aid " < > Date: Wednesday, July 15, 2009, 8:58 PM We have always liked taking Cod Liver Oil. (We are big Weston Price Fans) and now I am understanding that Vitamin D is not helpful to someone with Lyme...Is this true? Does someone have a short explanation why? Is the best thing to take regular fish oil or flax? Thnaks, tara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Where did you get this information? Can you document? Pam Tara Romanowich wrote: > > > We have always liked taking Cod Liver Oil. (We are big Weston Price > Fans) and now I am understanding that Vitamin D is not helpful to > someone with Lyme...Is this true? Does someone have a short > explanation why? Is the best thing to take regular fish oil or flax? > > Thnaks, tara > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 I read in Dr. Weil's newsletter that cod liver oil should be avoided because any toxins (ie mercury) in the fish are stored in the liver. Flax is great as an anti-inflammatory and immune builder.? Buy in bulk & grind fresh for use daily.? Before my Lyme Dx my vit D levels were a bit low even though I took supplements.? My MD increased from 1000 to 2000 iu daily.? I have heard of a doc who doesn't think vit D supplementation is helpful in Lyme.? It's not listed specifically? in Dr. Burrascano (just good multi-vit) guidelines or Buhner.? I take reg. fish oil (wild caught smal fish) twice a day. Kim We have always liked taking Cod Liver Oil.? (We are big Weston Price Fans) and now I am understanding that Vitamin D is not helpful to someone with Lyme...Is this true? Does someone have a short explanation why?? Is the best thing to take regular fish oil or flax? ? Thnaks, tara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 There is a bit of controversy over this. One side (Marshall Protocol) says the Vit D is messed up by the Lyme and the cycle needs to be broken. The other side says the opposite, you need more Vitamin D to heal and to try to kill the bacteria other ways. I do know my wife had extremely low Vit D levels until she started supplements and tanning beds. www.msadams.com > Re: [ ] Vitamin D issue > > Where did you get this information? Can you document? > > Pam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Tara, Rereading Dr Burrascano Jr., MD treatment guidelines he DOES mention Vit. D deficiency as a problem and recommends getting your fasting blood level checked.? If not in the upper half of normal range to take 2000-4000 units daily for several weeks to make up deficit. And then a lower maintenance dose based on blood level monitoring.? I went to an endocrinologist (pre Lyme Dx) who said the only supplement he takes is vitamin D. Hope this is helpful. Kim We have always liked taking Cod Liver Oil.? (We are big Weston Price Fans) and now I am understanding that Vitamin D is not helpful to someone with Lyme...Is this true? Does someone have a short explanation why?? Is the best thing to take regular fish oil or flax? ? Thnaks, tara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 When I owned a tanning salon years ago before my total downfall I tanned all the time (well, not over doing it) but I felt the best when I was tanning!! I even have one in the basement - have to start again as I have not tanned in years - I know it will help me feel better but when you are sick even walking down in the basement and tanning is to much energy - now that I am finally getting some energy back I am going to start back up - I will keep you updated - but I know it helps you feel better - I seen tons of people come in for that reson only to tan at the salon - you have less of a chance to get skin cancer in a tanning bed without burning and over dueing it than you do going outside and burning your self good!! Diane > > There is a bit of controversy over this. One side (Marshall Protocol) says > the Vit D is messed up by the Lyme and the cycle needs to be broken. > > The other side says the opposite, you need more Vitamin D to heal and to try > to kill the bacteria other ways. > > I do know my wife had extremely low Vit D levels until she started > supplements and tanning beds. > > > www.msadams.com > > > Re: [ ] Vitamin D issue > > > > Where did you get this information? Can you document? > > > > Pam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I was referring to the Marshall Protocol about the vitaimn D...trying to limit your sun exposure, Vit D intake, etc...intuitively it doesn't seem healthy/balanced to me, but I am new to the lyme diagnosis, so I was looking for feedback.. Thanks so much! Tara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I've been thinking about the Vit D issue a lot. I think I do better when I get sunlight, the key is to not get HOT. I think the heat is what actually drains me and makes me feel worse. From: dkbmama <dkbmama@...> Subject: [ ] Re: Vitamin D issue Date: Thursday, July 16, 2009, 5:38 PM When I owned a tanning salon years ago before my total downfall I tanned all the time (well, not over doing it) but I felt the best when I was tanning!! I even have one in the basement - have to start again as I have not tanned in years - I know it will help me feel better but when you are sick even walking down in the basement and tanning is to much energy - now that I am finally getting some energy back I am going to start back up - I will keep you updated - but I know it helps you feel better - I seen tons of people come in for that reson only to tan at the salon - you have less of a chance to get skin cancer in a tanning bed without burning and over dueing it than you do going outside and burning your self good!! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 > > We have always liked taking Cod Liver Oil. (We are big Weston Price Fans) and now I am understanding that Vitamin D is not helpful to someone with Lyme...Is this true? Does someone have a short explanation why? Is the best thing to take regular fish oil or flax? > > Thnaks, tara Hi Tara, Here is an extremely interesting essay by Mark A. Crislip, M.D., that was published just yesterday at Science-Based Medicine.org. There are several paragraphs on Vitamin D and on the protocol that says Vitamin D must be avoided for all diseases. http://www.sciencebasedmedicine.org/?p=563 Sue B. ========================== Some excerpts: Generally speaking the problem for patients, especially in the northern latitudes, are diseases made worse by vitamin D deficiencies. What diseases are treated with this protocol? " Th1 inflammatory diseases " and symptoms currently being treated with the Marshall Protocol include: ALS (Lou Gehrig's), Ankylosing Spondylitis, Asperger's, Back pain, Barrett's esophagus, Bipolar disorder, Candidiasis, Cardiac Arrythmia, Celiac disease, CFS / CFIDS / ME, Chronic Lyme/Borreliosis, Crohn's Disease, Diabetes insipidus, Diabetes type I, Diabetes type II, Dementia, Depression, Epilepsy, FM (Fibromyalgia), Gastroesophageal reflux disease, Hashimoto's Thyroiditis, IBS (Irritable Bowel Syndrome), Interstitial cystitis (IC), Inflammatory bowel disease, Irritable bowel syndrome, Kidney stones, Lofgren's syndrome, Lupus In `Overlap' With Other Connective Tissue Diseases, Mania, MCS (Multiple Chemical Sensitivity), Migraine headache, Morgellon's, Multiple Sclerosis, Myasthenia gravis, Neuropathy, OCD(Obsessive Compulsive Disorder), Osteoarthritis, Panic attacks, Parkinsons, Pervasive Developmental Disorders- Not Otherwise Specified, POTS (Postural Orthostatic Tachycardia Syndrome), Prostatitis, Psoriasis, Psoriatic arthritis, Raynaud's syndrome/phenomenon, Reactive Arthritis (Reiter Syndrome), Restless leg syndrome, RSD (Reflex Sympathetic Dystrophy), Rheumatoid Arthritis, Sarcoidosis, Scleroderma, Sinusitis, Seasonal affective disease (SAD), Sjogren's, Ulcerative colitis, Uveitis, Vertigo , Other Th1 diseases which should respond to the Marshall Protocol: Alzheimer's, Anorexia Nervosa, Bulbous pemphigus, Cystic fibrosis, Macular degeneration, Polymyalgia rhuematica, Polymyositis, Schizophrenia (5) " That's a good list. Back pain, mania, osteoarthritis, vertigo, and kidney stones all have the same pathogenesis and treatment. I went to medical school for what? Quote Link to comment Share on other sites More sharing options...
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