Re: Salt- C help!!

[Guest guest]

I don't even think you should attempt this IMHO. This is something you need

to consult a dr for. If something happens it could come back on you. You

need antibiotics and need to get her the right meds/dose. There things that

do go wrong w/salt/c and w/a fragile child and at this age you could be

asking for trouble w/o a dr overseeing. I wouldn't even attempt it.

_____

From: [mailto: ] On Behalf

Of Tara Romanowich

Sent: Friday, July 17, 2009 8:45 AM

Lyme Aid

Subject: [ ] Salt- C help!!

Hello, I am about to start Salt/C with my daughter, but we are not with a

LLMD yet. We are scheduled to see Dr. J in October. I would like to try

some things in the meantime. Is there a source I could find some good

protocol info for kids on Salt/C?

She is 4 with developmental delays...she drools a lot, so she looses fluids

all day long...keeping her hydrated is no easy task (oral motor delays), so

I am a bit nervous about Salt/C.. .My get feeling is to start very

slow...She is tiny...she 's 4 and is 25 lbs...

What would be the best source of info for me? Thanks so much! :-) tara

[Guest guest]

Tara, I myself wouldn't try that with her, I would be worried about

dehydration.  There are several other options.  Do you have many Lyme books?  I

would recommend reading up on other treatments.

 

From: Tara Romanowich <tvromanowich@...>

Subject: [ ] Salt- C help!!

" Lyme Aid " < >

Date: Friday, July 17, 2009, 6:45 AM

 

Hello,  I am about to start Salt/C with my daughter, but we are not with a LLMD

yet.  We are scheduled to see Dr. J in October.  I would like to try some things

in the meantime.  Is there a source I could find some good protocol info for

kids on Salt/C?

 

She is 4 with developmental delays...she drools a lot, so she looses fluids all

day long...keeping her hydrated is no easy task (oral motor delays), so I am a

bit nervous about Salt/C..  .My get feeling is to start very slow...She is

tiny...she 's 4 and is 25 lbs...

 

What would be the best source of info for me?  Thanks so much!  :-) tara

 

 

[Guest guest]

Hi Tara,

 

I would caution against the Salt C protocal for your daughter due to the

excessive drooling. if you choose to try this protocol then monitor her vitals

closely, heart rate and blood pressure. I will be happy to check her vitals any

time.

 

She is a bit frail in my opinion for the therapy. I can also put you in touch

with someone that had very negative results so please use caution and start slow

and low if you choose the therapy,,,

 

Warmly,

 

Sudylo RN/CHT

www.juliashbot.com

From: Tara Romanowich <tvromanowich@...>

Subject: [ ] Salt- C help!!

" Lyme Aid " < >

Date: Friday, July 17, 2009, 9:45 AM

 

Hello,  I am about to start Salt/C with my daughter, but we are not with a LLMD

yet.  We are scheduled to see Dr. J in October.  I would like to try some things

in the meantime.  Is there a source I could find some good protocol info for

kids on Salt/C?

 

She is 4 with developmental delays...she drools a lot, so she looses fluids all

day long...keeping her hydrated is no easy task (oral motor delays), so I am a

bit nervous about Salt/C..  .My get feeling is to start very slow...She is

tiny...she 's 4 and is 25 lbs...

 

What would be the best source of info for me?  Thanks so much!  :-) tara

 

 

[Guest guest]

>

> You are not likely to get a balanced discussion of the protocol on that

> forum since the moderator promotes it.

> Phyllis Mervine

> CALDA

> Empowering Patients Through Advocacy & Education

> --

>

And IMHO if you have to be talked into something, you should back up until the

pressure is gone!

[Guest guest]

, I know this is argumentative, but I have to say it anyway (and NOT

because I'm of a strong opinion on Salt-C either way, but more because of the

contrary messages in your last post). Call me nit-picky if you like; I don't

mind.

First you said " I have documented allot of the testimonials of people using it

successfully on my Lyme Resource Cd "

Then you said " But don't simply discount the protocol on hearsay. "

I'm sorry, but testimonials ARE heresay. Unless we're researching a treatment

that has very clear research, statistics, etc. we tend to get nothing BUT

heresay -- the input of people who've done it, whether their experience was good

or bad. Then we weigh what we've learned from others to (hopefully) make the

right choice for us.

I do not think it is fair to people who are searching for ways to improved their

health to call something you agree with " testimonials " and what you don't agree

with " heresay " .

That said, any sick person worth their salt (pun intended) will do research on

the " testimonials " to try to find out both the positive and the negative before

they blindly throw themselves into ANY treatment. This is a hard thing to do

when you're mentally impaired by Lyme, and I only think it FAIR if we merely put

forth our experience in as unbiased a manner as possible.

That is only my opinion and I am often wrong.

Best health to all,

>

>

> I have documented allot of the testimonials of people using it successfully on

my Lyme Resource Cd (see the files section of this forum here). I have also

documented the one case that I know that a person required hospitalization

because of the protocol.

>

> Nothing is perfect and we are all different. Some things work for one and not

another. But don't simply discount the protocol on hearsay. Find out more on

your own and make your own decisions.

>

>

>

> > [ ] Re: Salt- C help!!

> >

> > You are not likely to get a balanced discussion of the

> > protocol on that

> > forum since the moderator promotes it.

> > Phyllis Mervine

> > CALDA

> > Empowering Patients Through Advocacy & Education

> > --

> >

[Guest guest]

Fair enough statement. I stand corrected!

What I meant is don't just hear one side of an issue. Try and see what else

is available on it. But you are 100% correct. Really all we have atm is

hearsay to go on as far as most alternate (non-antibiotic) Lyme treatments

go.

I know that when I started my journey to help my wife combat Lyme I believed

Rife was totally quackery. Today I moderate a support group for Rife

technology. So I am always willing to learn new things!

> [ ] Re: Salt- C help!!

>

> , I know this is argumentative, but I have to say it

> anyway (and NOT because I'm of a strong opinion on Salt-C

> either way, but more because of the contrary messages in your

> last post). Call me nit-picky if you like; I don't mind.

>

> First you said " I have documented allot of the testimonials

> of people using it successfully on my Lyme Resource Cd "

>

> Then you said " But don't simply discount the protocol on hearsay. "

>

> I'm sorry, but testimonials ARE heresay. Unless we're

> researching a treatment that has very clear research,

> statistics, etc. we tend to get nothing BUT heresay -- the

> input of people who've done it, whether their experience was

> good or bad. Then we weigh what we've learned from others to

> (hopefully) make the right choice for us.

>

> I do not think it is fair to people who are searching for

> ways to improved their health to call something you agree

> with " testimonials " and what you don't agree with " heresay " .

>

> That said, any sick person worth their salt (pun intended)

> will do research on the " testimonials " to try to find out

> both the positive and the negative before they blindly throw

> themselves into ANY treatment. This is a hard thing to do

> when you're mentally impaired by Lyme, and I only think it

> FAIR if we merely put forth our experience in as unbiased a

> manner as possible.

>

> That is only my opinion and I am often wrong.

> Best health to all,

>