Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Has anyone experienced having or chosing to take an alternative to Biaxin with Mepron for Babesia. I experienced a rash with erythromyacin about 20 years ago and was told to try the Biaxin anyway because it is so important to my treatment. I picked up to prescription today and read that a rash is considered an extreme allergic reaction and now I am afraid to take the Biaxin as it is in the myacin family. This is just not going to be easy is it? Anybody been allergic and stayed on the drug or any drug? Can you do that? Also, I have been on Doxy (prescribed by another doc which I started taking because I was beginning to feel worse and afraid not to have something working in my system while waiting for the Mepron to come in at the drug store) for the last 4 days and experiencing flu like symptoms and headaches, esp in back of head and neck. I sometimes feel pretty good in the morning and then go downhill pretty fast. Is it in any of your experiences that Herx effects happen so soon and this way? Or is this the Babesia just getting worse? Is this how it can act? I was put on Minocycline for trace gram neg staff in my sinuses earlier this month before my Bab diag and had to come off after 6 days because of shakes and tachtycardia. I wasn't sure if this was the fact that I was also taking some decongestants (I have dysautonomia/POTS and have since I was a teenager.. this runs in my family).... but now I am wondering if it was herx reaction. Any similar experiences? I am still in shock with this diagnosis and emotional. Then I think I am losing my mind and worry about neuro symptoms.. like when I forgot my son's name a few months ago for about 10 seconds. It was very scary. I think I fear the cognitive, psych symptoms and deterioration more than anything else. I know I have been losing words more and forgetting what I am talking about in conversations and needing lists more. My mind races at times and I get racing images coming at me. I thought this was due to the excess adrenaline that I supposedly experience because of my POTS (adrenaline surges to make heart beat faster because of low blood volume)... but..... ??? I also realize that I have been on a short emotional trigger the last few years.. at times, esp when having symptoms. Now that I look back... Thank you for any words of wisdom, experience, and assurance (please!!!!:-)), as I am getting depressed fast, would be so welcome. I have accessed tons of info and am grateful for all the info and a bit discouraged at how much the medical community is at odds to the extent it is. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 I am on the Lyme Buhner group, and I follow his protocol for Lyme and its co-infections. I used artemisinin and boneset tea for babesia and I had a quick recovery. For more info read Buhner's Lyme book or health./group/ . good luck with it whatever you do. ellen > > Has anyone experienced having or chosing to take an alternative to Biaxin with Mepron for Babesia. I experienced a rash with erythromyacin about 20 years ago and was told to try the Biaxin anyway because it is so important to my treatment. I picked up to prescription today and read that a rash is considered an extreme allergic reaction and now I am afraid to take the Biaxin as it is in the myacin family. This is just not going to be easy is it? Anybody been allergic and stayed on the drug or any drug? Can you do that? > Also, I have been on Doxy (prescribed by another doc which I started taking because I was beginning to feel worse and afraid not to have something working in my system while waiting for the Mepron to come in at the drug store) for the last 4 days and experiencing flu like symptoms and headaches, esp in back of head and neck. I sometimes feel pretty good in the morning and then go downhill pretty fast. Is it in any of your experiences that Herx effects happen so soon and this way? Or is this the Babesia just getting worse? Is this how it can act? > I was put on Minocycline for trace gram neg staff in my sinuses earlier this month before my Bab diag and had to come off after 6 days because of shakes and tachtycardia. I wasn't sure if this was the fact that I was also taking some decongestants (I have dysautonomia/POTS and have since I was a teenager.. this runs in my family).... but now I am wondering if it was herx reaction. Any similar experiences? > I am still in shock with this diagnosis and emotional. Then I think I am losing my mind and worry about neuro symptoms.. like when I forgot my son's name a few months ago for about 10 seconds. It was very scary. I think I fear the cognitive, psych symptoms and deterioration more than anything else. I know I have been losing words more and forgetting what I am talking about in conversations and needing lists more. My mind races at times and I get racing images coming at me. I thought this was due to the excess adrenaline that I supposedly experience because of my POTS (adrenaline surges to make heart beat faster because of low blood volume)... but..... ??? I also realize that I have been on a short emotional trigger the last few years.. at times, esp when having symptoms. Now that I look back... > Thank you for any words of wisdom, experience, and assurance (please!!!!:-)), as I am getting depressed fast, would be so welcome. I have accessed tons of info and am grateful for all the info and a bit discouraged at how much the medical community is at odds to the extent it is. > Sally > > Quote Link to comment Share on other sites More sharing options...
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