Why can't I read anymore?

[Guest guest]

Guess I'm not alone after reading today's posts; this disease has me so

depressed too but what's worse is now it takes me almost 2 hours to read one or

two emails! 5 minutes or so and I'm out like a light for as long as an hour;

same thing happens talking on the phone and driving too has become almost

impossible. Instant need to sleep triggered by certain things. I can talk to

people face to face but not on phone; how does that even make sense? TV tires

me out but not as bad but had to cxl cable; you all know about choosing which

bills to pay and which not to; will probably have to cxl Cobra this month; does

anyone know how much the dr in santee charges with no insurance? I have waited

a year for the appt and hope now i can afford it. It really stinks that it all

comes down to money in the end! As far as trying to convince others that I

really am sick and not just lazy and a hypochondriac, i have given up; my family

just doesn't get it and i have lost pretty much all my friends (not cuz i vent,

i'm careful not to complain) but because i'm no fun anymore; too sick to go out

or do anything but lay in bed; it's an amazing feat just to get thru the day.

My family thinks I am addicted to pain meds and need to stop taking them and

don't understand I will be back in a wheelchair without them and do not want to

live like that. Anyway, somehow, we've got to change things; I am so shocked

that so few people know anything about Lyme! How do you know when it's too late

to be cured; it's gone to my brain and now maybe my heart (having a lot of chest

pain and short of breath); way beyond pain at this point although that has

become too much to bear even with narcotics. Praying for a miracle for us all,

robin