Re: Tired of ignorant docs...

[Guest guest]

Your ER visit is so typical for lyme victims. Too often the default

response from ER practitioners when you mention lyme exposure is denial,

then fear, threat, sometimes intimidation and if you don't shut up about

lyme disease then you get called " delusional " . Beware and try to stay

away from the ignorant - its bad for your health.

[ ] Tired of ignorant docs...

Date: Sun, 09 Sep 2007 13:32:35 -0000

Grrrrrr....once again, I am faced with another very " uneducated "

doctor.

But I know that I am not the only one, but I just feel the need to

vent.

I ended up having to go to the local ER on Thursday morning, because

of another bout of dizziness...

I have been dizzy before, but nothing like this... They diagnosed me

as having Vertigo, gave me a dose of Antivert(mecylzine) and sent me

home.

While I having blood drawn, the nurse and I were talking about my

illness and the fact that I have already been diagnosed with

Fibromyalgia and that I felt very strongly that I actually had Lyme

Disease, but that I had not been diagnosed for that yet...

While we were talking, the ER doctor had walked in to examine me and

overheard us talking.

After the nurse finsihed with the blood and had walked out, the

doctor

turned to me and said " Tell me what makes you think that you have

Lymes Disease? "

[Guest guest]

Lyme disease is a life threatening condition.

[ ] Re:Tired of ignorant docs...

Date: Tue, 11 Sep 2007 12:31:16 -0000

Dagmar,

" Duh " is right... I am so tired of hearing " all your tests came back

back and everything looks okay... You are fine to go home " ....

Everytime I hear that I just want to scream " BUT I AM NOT FINE!!

PLEASE HELP ME!! " , but of course I don't. I just keep my mouth shut,

so I don't look even more delusional and leave.

The worst part is, that I fear....no i know that if I ever have to

the

ER for a truly life-threatening problem, like a cardiac arrest or

something, I am probably not going to make it, because they refuse to

believe that it could be a Lyme related problem.

I don't even know for sure if the Dr. even ordered a Lyme Test and

even if it did, it was probably an ELISA and we all already know how

" reliable " those are... I have already had 2 negative ones and each

time, my Medicaid has refused to cover a Western Blot or any other

testing to do with Lyme, because of the initial negative ELISA's...

If Medicaid won't cover it, then they want money up front.. I can't

afford to do that. If they would bill me and let me pay as I can,

then that would be different.

Money is the whole reason that I have not yet been to see a LLMD,

even

though I already have one picked out and have filled out all the

paperwork.

It just gets so aggravating... I am surprised that your hospital even

admitted that they " made a mistake " by not listening to you and

called

you with the results.

Ellen

Nunno, LLC

Technical Writer

e-mail:rebeccanunno@...

website:sickfromatick.com

[Guest guest]

Ellen, You are not alone! Dont give up! I know from what I have read that most

ER doctors are CLUELESS! Were you able to find a Lyne doctor in your area? I

know most hospitals have doctor referal numbers where you can call up and find a

specialist? I actually looked in the phonebook and found several doctor referal

numbers. From everything I have heard and read you have to keep looking til you

find the doctor who will listen to you. I can understand your vent! It is so

frustrating when people are " Lymeingnorant " My boss actually said to me after

one week of being out of work: " well, aren't those antibiotics working yet?? "

She had no clue. I felt like reaching right thru that phone to her!! And I am

usually and kind, mellow person! Lucky the woman who is head of Human Resourses

knows people who have had Lyme and her own poor little dog was infected by the

Lymemonster!!! Yep, people can be ignorant...but NOW I feel that it is my job to

educate them!!! I plan on returning to work parttime soon (Hopefull! One of my

other bosses who is an Occupational Therapist suggested to them that I come back

part time...SHE has a clue!!) and I plan on Enlightening everyone about

Lymemonster. So I think it helps that those that are unfortunate to have had

personal experiance with this that we should share our stories with others so

there will be less ignorant people! I wish you good luck and health:)