1st post~ Diagnosed Yesterday

[Guest guest]

All the symptoms you have described I suffered from except for the psychiatric

issues. Mine quickly went into MS symptoms, but I am doing very well now. There

is hope so hang in there.

You have not mentioned how much experience your doctor has in treating

Lyme/co-infections. Have they told you it has been found in breast and cow milk?

The acid in the stomach does not kill Lyme and the co-infections that are

associated with it. Organic milk is free of the buggers because of the temp at

which it is pasteurized.

You need to watch your baby carefully. Any, and I mean any, chronic illness is

suspect, ex...ear infections, allergies, etc...

I was very sick with Lyme with both pregnancies and breast fed both. We have no

way of knowing whether I passed this insidious disease on to them in utero or

while breast feeding. Had I been properly diagnosed we could have very well

prevented this from happening to our children.

Back to your question, you will get better if you have the right doctor, right

meds, and you make major lifestyle changes. When your body says it is not

feeling well or you are tired, you must listen to it. Also, find someone who

sells Shaklee products. I have been off and on this brand three times, and each

time I feel significantly better when I go back to Shaklee.

If you want to know what I take email me klcst@...<mailto:klcst@...>

Take care-

Torrey

LifeLyme of Texas

www.lifelyme.org<http://www.lifelyme.org/>

[ ] 1st post~ Diagnosed Yesterday

Hello everyone

Thank you for having me a part of your group. I look forward to

reading thru the posts here and learning all I can about Lyme.

I have a few questions though.

I assume I have had Lyme for over 7 months now. I was exposed to

newly hatched ticks from a xmas tree back in Jan and shortly

afterwards, I had flu-like symptoms. But, I did not notice a

bullseye rash and just thought it was the flu.

Over the course of the last 7 months, I have deteriorated

significantly and did not know what was happening to me. I have had

fevers on a daily basis of about 100 degrees for 7 months. Docs did

not know what was wrong and just left it at a FUO and sent me on my

way.

Over the months, I have lost hair, had what I thought was Raunaud's

phenomenon in my toes, as well as foot swelling, leg nerve damage

and numbing, joint pain, neck and back pain, heart

palpitations,headaches, dizziness, fatigue, significant memory loss,

inability to spell correctly, losing my way when I drive, boy, the

list goes on.

This past week, I developed significant mental problems, was

extremely anxious, paranoid (not so bad, but enough for me to

recognize it as such) personality changes, cant seem to focus on

anything, not tv, not the computer, not simple tasks at hand, cant

focus enough to cook or clean.

Basically, I am a mess.

Has anyone experienced these things?

I am waiting for the meds to be called in to the pharmacy, but so

far they have not been called in.

I am still breastfeeding about twice a day and worry about that. I

dont think my little one will gladly give up nursing in the

morning. Night I can cut out, though.

I am assuming I am in 3rd stage Lyme by now? Not so sure. I only

got a call from the nurse and was informed doc was going to treat me

for lyme and nothing much was said.

I am fearing that this will actually be a lifelong thing to deal

with ~ that the damages are now irreversible. How true is that at

this stage of Lyme?

How likely is it to relapse again. And how likely is it to not

respond to treatment?

Hearing of the Herx reaction here in the group was new to me. I am

glad I read about that. To be honest, I dont know how much more

illness I can take; but of course I will take the meds. Just not

looking forward to worsening of symptoms I just want to feel

better.

Has anyone experienced long-term fevers like me? Did the fevers

finally break after treatment? That is the one thing bothering me

the most. Wipes me out completely.

Well, I think that is all for now. I am sure I will have more

questions as the days go by.

One thing which worries me, is I am a stay at home mom, but have

been thinking of finding a job, but to be honest, at the moment, I

dont feel like I can hold down a job Will it get better?

What do I do about the xmas tree experience? I thought nothing

really of it, but come to think of it, purchasing from a nursery,

there should be some level of safety. I best get down there and

complain. Not sure what more I can do. Next xmas, we will

definately get a fake tree.

Thanks again for having me and letting me get this all out.