Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 Your experience with Lyme is fairly common. Two weeks of doxy probably didn't eliminate Lyme so it had eight years to infect you. It's probably going to take you quite a bit longer than 6 months to recover. When I was first diagnosed I took doxy for 6 months, felt great at the end of it and, thinking I was cured, went off it. Within 2 months I knew I wasn't cured. That was nearly 3 years ago and I'm still trying to find the right drugs and combination of drugs. Jessie > > My story-I had lyme 8 yrs ago and was treated for 2 weeks with doxy. > Years went by and fatigue and body pain increased til I had diagnosis > of Fibromylagia. Every blood test, bone scans, MRIs, found nothing. > > 6 months ago, I went to a LLMD and was put on 3 g a day of Amoxy. Of > course, I was sick as can be with chills, neck and head pain, achy > knees, worst flare ever.. After two weeks there was improvement with > energy and less pain. continued improvement until I had enough energy > to not only work but to go out at night and even bought a townhouse. > > I went off the abx due yeast and stomach problems. I am hitting rock > bottom again. Lot of the symptoms are from stress but I don't think the > Lyme is gone-reason, I was over 70% better on abx. > > So, I go back to the Lyme dr tomorrow night. I guess he will put me > back on. Then I will feel like hell for a week or so. > > Anyone else have similar stories? > Feel free to write at my account. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 How long did you stay on the Amox? At 10:13 PM 7/30/2006, you wrote: >My story-I had lyme 8 yrs ago and was treated for 2 weeks with doxy. >Years went by and fatigue and body pain increased til I had diagnosis >of Fibromylagia. Every blood test, bone scans, MRIs, found nothing. > >6 months ago, I went to a LLMD and was put on 3 g a day of Amoxy. Of >course, I was sick as can be with chills, neck and head pain, achy >knees, worst flare ever.. After two weeks there was improvement with >energy and less pain. continued improvement until I had enough energy >to not only work but to go out at night and even bought a townhouse. > >I went off the abx due yeast and stomach problems. I am hitting rock >bottom again. Lot of the symptoms are from stress but I don't think the >Lyme is gone-reason, I was over 70% better on abx. > >So, I go back to the Lyme dr tomorrow night. I guess he will put me >back on. Then I will feel like hell for a week or so. > >Anyone else have similar stories? >Feel free to write at my account. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Hello, regarding your experience with abx, some of us on the list are using natural antibiotics. I am, following the protocol of Buhner, Healing Lyme Naturally. If you search on the list and also on the Lyme-topics list under 'alternative treatments' or 'Buhner' you can locate the discussion, or feel free to e-mail me off-list. I've only been on the protocol for 2 months, and I am symptom free, but I only had one symptom when I started. I don't really know if I am Lyme free and Buhner suggests following the regime for 18 months. Others on the list have said that they have totally eliminated Lyme using this system or other natural methods. Personally [and this is not a popular opinion] I would not take axb for years and decades. My research has lead me to believe that anx actually depress the immune system. Good luck, ellen - In , " " <scorpionallure@...> wrote: > > My story-I had lyme 8 yrs ago and was treated for 2 weeks with doxy. > Years went by and fatigue and body pain increased til I had diagnosis > of Fibromylagia. Every blood test, bone scans, MRIs, found nothing. > > 6 months ago, I went to a LLMD and was put on 3 g a day of Amoxy. Of > course, I was sick as can be with chills, neck and head pain, achy > knees, worst flare ever.. After two weeks there was improvement with > energy and less pain. continued improvement until I had enough energy > to not only work but to go out at night and even bought a townhouse. > > I went off the abx due yeast and stomach problems. I am hitting rock > bottom again. Lot of the symptoms are from stress but I don't think the > Lyme is gone-reason, I was over 70% better on abx. > > So, I go back to the Lyme dr tomorrow night. I guess he will put me > back on. Then I will feel like hell for a week or so. > > Anyone else have similar stories? > Feel free to write at my account. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 4 months. I am back on it again per my Dr. In , Frick <laurafrick@...> wrote: > > How long did you stay on the Amox? > > At 10:13 PM 7/30/2006, you wrote: > > >My story-I had lyme 8 yrs ago and was treated for 2 weeks with doxy. > >Years went by and fatigue and body pain increased til I had diagnosis > >of Fibromylagia. Every blood test, bone scans, MRIs, found nothing. > > > >6 months ago, I went to a LLMD and was put on 3 g a day of Amoxy. Of > >course, I was sick as can be with chills, neck and head pain, achy > >knees, worst flare ever.. After two weeks there was improvement with > >energy and less pain. continued improvement until I had enough energy > >to not only work but to go out at night and even bought a townhouse. > > > >I went off the abx due yeast and stomach problems. I am hitting rock > >bottom again. Lot of the symptoms are from stress but I don't think the > >Lyme is gone-reason, I was over 70% better on abx. > > > >So, I go back to the Lyme dr tomorrow night. I guess he will put me > >back on. Then I will feel like hell for a week or so. > > > >Anyone else have similar stories? > >Feel free to write at my account. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 The reason I ask it that I have been on it 1 months and I have very bad vaginal yeast issues. It is this way for all abx after about two weeks and I have to stop. How do you handle this problem? At 03:43 AM 8/3/2006, you wrote: >4 months. I am back on it again per my Dr. > >In <mailto: %40> , >Frick <laurafrick@...> wrote: > > > > How long did you stay on the Amox? > > > > At 10:13 PM 7/30/2006, you wrote: > > > > >My story-I had lyme 8 yrs ago and was treated for 2 weeks with >doxy. > > >Years went by and fatigue and body pain increased til I had >diagnosis > > >of Fibromylagia. Every blood test, bone scans, MRIs, found nothing. > > > > > >6 months ago, I went to a LLMD and was put on 3 g a day of Amoxy. >Of > > >course, I was sick as can be with chills, neck and head pain, achy > > >knees, worst flare ever.. After two weeks there was improvement >with > > >energy and less pain. continued improvement until I had enough >energy > > >to not only work but to go out at night and even bought a >townhouse. > > > > > >I went off the abx due yeast and stomach problems. I am hitting >rock > > >bottom again. Lot of the symptoms are from stress but I don't >think the > > >Lyme is gone-reason, I was over 70% better on abx. > > > > > >So, I go back to the Lyme dr tomorrow night. I guess he will put me > > >back on. Then I will feel like hell for a week or so. > > > > > >Anyone else have similar stories? > > >Feel free to write at my account. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 The weird thing is, I had *constant* vaginal yeast infections for years and years. No problem now despite the massive amonts of antibiotics, even if I forget the Diflucan and Theralac. It first got better when I started low-carbing 5 years ago. Have you eliminated starches and sugars from your diet? No juices, starchy veggies, grains, etc? No sweeteners? I eat protein (meat, fish, poultry, tofu) and salads, and a few fresh vegetables from the garden, and drink only water. No pasta or potatoes or rice or anything made with wheat or anything processed. It makes a huge difference. Yeast loves sugar. If you're not already doing it, it might be worth a try. Frick <laurafrick@...> wrote: I wish that would work for me. I've taken Nizoral three times daily, Theralac as well and had yeast develop in 2 weeks. I struggle every day with it. I wish I could find something to work, it drives me crazy. --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 Honestly no, I have not cut out all sugar, it is so restrictive and hard to to. I try to cut down but it seems it has to be an either or thing. So far the LLMD has not said anything about it, but I may have to bite the bullet and give it a try. Thank you for your suggestions. At 10:32 PM 8/3/2006, you wrote: >The weird thing is, I had *constant* vaginal yeast infections for years >and years. No problem now despite the massive amonts of antibiotics, even >if I forget the Diflucan and Theralac. > >It first got better when I started low-carbing 5 years ago. Have you >eliminated starches and sugars from your diet? No juices, starchy veggies, >grains, etc? No sweeteners? I eat protein (meat, fish, poultry, tofu) and >salads, and a few fresh vegetables from the garden, and drink only water. >No pasta or potatoes or rice or anything made with wheat or anything >processed. It makes a huge difference. Yeast loves sugar. > >If you're not already doing it, it might be worth a try. > > > > Frick <<mailto:laurafrick%40cox.net>laurafrick@...> wrote: I >wish that would work for me. I've taken Nizoral three times daily, >Theralac as well and had yeast develop in 2 weeks. I struggle every day >with it. I wish I could find something to work, it drives me crazy. > > >--------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ >countries) for 2¢/min or less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Good luck, , It is hard to start, but much easier after the first two weeks. If you have kids, or a husband who simply must have starch & sugar, tell them that you need them to keep their snacks hidden. It's easier to get over the hump if you don't have temptation right in front of your face. Take a potassium supplement. You will lose water at the start and potassium with it. This will make your muscles feel weak if you don't supplement. Drink lots of water. I make a breadlike thing with eggs that can be used for sandwiches, if you have trouble letting go of sandwiches. Beat egg whites 'til stiff, beat yolks and add 1 tbsp cottage cheese or ricotta for each yolk - beat. Fold whites and yolk mixture together and place on baking sheet in mounds. Bake at 300F 'til they start to brown. Leave them to sit for a day in the fridge, and they become very roll-like. Sometimes I add in ham chunks (press dry between paper towels first) or cheese chunks or sun dried tomotoes - then they make a nice snack all by themselves. You can even make it flat on a cookie sheet, and after baking, add pizza toppings and re-heat. It's not bread, but it's not bad. If you're near a Whole Foods, they have great low-carb pasta made from the fiber in yams. It's sold in baggies, in water, and it's very good, but not cheap. Over all, though, cobb salads are a mainstay. I make a dressing with olive oil and vinegar, a bit of stevia and whatever herbs look interesting that day. Olive oil is a very healthy fat. Sometimes I just make a little chicken boullion, add olive oil and parsley, and sip it like a hot drink. It can really kill cravings. Anyway, best of luck. This diet is unbelievably helpful with Lyme. I would not function well without it. Frick <laurafrick@...> wrote: Honestly no, I have not cut out all sugar, it is so restrictive and hard to to. I try to cut down but it seems it has to be an either or thing. So far the LLMD has not said anything about it, but I may have to bite the bullet and give it a try. Thank you for your suggestions. --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Thank you for the tips. I'll get it a try. I have to travel over the next week, so I'll give it a shot after I return. At 07:45 AM 8/4/2006, you wrote: >Good luck, , > >It is hard to start, but much easier after the first two weeks. If you >have kids, or a husband who simply must have starch & sugar, tell them >that you need them to keep their snacks hidden. It's easier to get over >the hump if you don't have temptation right in front of your face. > >Take a potassium supplement. You will lose water at the start and >potassium with it. This will make your muscles feel weak if you don't >supplement. Drink lots of water. > >I make a breadlike thing with eggs that can be used for sandwiches, if you >have trouble letting go of sandwiches. Beat egg whites 'til stiff, beat >yolks and add 1 tbsp cottage cheese or ricotta for each yolk - beat. Fold >whites and yolk mixture together and place on baking sheet in mounds. Bake >at 300F 'til they start to brown. Leave them to sit for a day in the >fridge, and they become very roll-like. Sometimes I add in ham chunks >(press dry between paper towels first) or cheese chunks or sun dried >tomotoes - then they make a nice snack all by themselves. You can even >make it flat on a cookie sheet, and after baking, add pizza toppings and >re-heat. > >It's not bread, but it's not bad. If you're near a Whole Foods, they >have great low-carb pasta made from the fiber in yams. It's sold in >baggies, in water, and it's very good, but not cheap. > >Over all, though, cobb salads are a mainstay. I make a dressing with olive >oil and vinegar, a bit of stevia and whatever herbs look interesting that >day. Olive oil is a very healthy fat. Sometimes I just make a little >chicken boullion, add olive oil and parsley, and sip it like a hot drink. >It can really kill cravings. > >Anyway, best of luck. This diet is unbelievably helpful with Lyme. I would >not function well without it. > > > > Frick <<mailto:laurafrick%40cox.net>laurafrick@...> wrote: >Honestly no, I have not cut out all sugar, it is so restrictive and hard to >to. I try to cut down but it seems it has to be an either or thing. So >far the LLMD has not said anything about it, but I may have to bite the >bullet and give it a try. Thank you for your suggestions. > >--------------------------------- >Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates >starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2006 Report Share Posted August 5, 2006 , you have talked about your diet before and you sound as if you are doing well w/ your protocol overall. Do you have any problem with cravings for carbs/sweets? This is a huge problem for me, especially when I don't sleep well but have to keep going the next day. Also, do you have any stomach upset w/ abx that requires eating some carbs w/ them? I read a post several months back where someone said Dr. B recommended taking certain abx w/ crackers. Thanks for all your great posts. Margherita Re: [ ] Re: Lyme AGain The weird thing is, I had *constant* vaginal yeast infections for years and years. No problem now despite the massive amonts of antibiotics, even if I forget the Diflucan and Theralac. It first got better when I started low-carbing 5 years ago. Have you eliminated starches and sugars from your diet? No juices, starchy veggies, grains, etc? No sweeteners? I eat protein (meat, fish, poultry, tofu) and salads, and a few fresh vegetables from the garden, and drink only water. No pasta or potatoes or rice or anything made with wheat or anything processed. It makes a huge difference. Yeast loves sugar. If you're not already doing it, it might be worth a try. Frick <laurafrick@...> wrote: I wish that would work for me. I've taken Nizoral three times daily, Theralac as well and had yeast develop in 2 weeks. I struggle every day with it. I wish I could find something to work, it drives me crazy. --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2006 Report Share Posted August 5, 2006 diflucan, probiotics In , Frick <laurafrick@...> wrote: > > The reason I ask it that I have been on it 1 months and I have very bad > vaginal yeast issues. It is this way for all abx after about two weeks and > I have to stop. How do you handle this problem? > > At 03:43 AM 8/3/2006, you wrote: > > >4 months. I am back on it again per my Dr. > > > >In <mailto: %40> , > >Frick <laurafrick@> wrote: > > > > > > How long did you stay on the Amox? > > > > > > At 10:13 PM 7/30/2006, you wrote: > > > > > > >My story-I had lyme 8 yrs ago and was treated for 2 weeks with > >doxy. > > > >Years went by and fatigue and body pain increased til I had > >diagnosis > > > >of Fibromylagia. Every blood test, bone scans, MRIs, found nothing. > > > > > > > >6 months ago, I went to a LLMD and was put on 3 g a day of Amoxy. > >Of > > > >course, I was sick as can be with chills, neck and head pain, achy > > > >knees, worst flare ever.. After two weeks there was improvement > >with > > > >energy and less pain. continued improvement until I had enough > >energy > > > >to not only work but to go out at night and even bought a > >townhouse. > > > > > > > >I went off the abx due yeast and stomach problems. I am hitting > >rock > > > >bottom again. Lot of the symptoms are from stress but I don't > >think the > > > >Lyme is gone-reason, I was over 70% better on abx. > > > > > > > >So, I go back to the Lyme dr tomorrow night. I guess he will put me > > > >back on. Then I will feel like hell for a week or so. > > > > > > > >Anyone else have similar stories? > > > >Feel free to write at my account. > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2006 Report Share Posted August 5, 2006 Hi, Margherita, Thank you for the complement. You are very kind. I am doing well over all - not as well as I'd like, but I figure I probably got Lyme when I was maybe 9 years old, and babesia when I was 32, finally got diagnosed 10 months ago, and I'm turning 50 in just a few weeks. So I think I'm getting off easy compared to many here. The diet makes a huge, huge difference. I started it because of my husband's diabetes, but it proved to be a godsend for me. I have no digestive issues at all when I stick to the diet, but if I eat carbs, especially wheat, I will get severe cramping and diarrhea, and loud ringing in my ears along with an increase in joint/muscle/fascia pain, especially in my hands and low back. I have had pharmacists recommend eating crackers with oral abx, and I just smile and say, " OK, " and plan instead to take them with eggs or tofu or a bit of tuna or something. I used to get daily cramping and diarrhea, sometimes with pain so severe that I'd pass out. But that all ended when I gave up the starches and sugars. I have been tested for wheat allergy and celiac disease - don't have either. And I recently had a colonoscopy - again, the perfect colon - no issues whatsoever. I just can't handle stuff fermenting in my gut. I'm not perfect about sticking to the diet. I go months without cheating at all, without even wanting to cheat. Then, I'll go to a party and eat something I shouldn't, and all bets are off. It's takes me a few days to get over the cravings once I fall off the wagon, and I'll end up cheating a teeny bit daily until I get it back under control. Luckily, I guess, my hands and back and innerds are strong reminders and motivators. I have read that a single cheat can elevate your insulin levels for 48 hours, and that will give you intense cravings. So you have to figure 48 hours of no starches or sugars before the cravings will start to diminish. And if you cheat, you're starting all over. Some researchers say that if you taste something sweet, or even smell cookies baking, many people will immediately have an insulin increase in preparation for the expected rise in blood sugar. So even fake sugars are best avoided in the beginning. Many of the artificial sweeteners will cause cramping and diarrhea as well, especially the sugar alcohols, and for me, they all increase the day sweats to an unacceptable level. If you haven't slept well and need energy for the following day, have a couple eggs for breakfast with a slice of cheese. Cook the eggs in olive oil. The cheese has a gram or more of carbohydrate, and the eggs have a gram each. Your body can convert the protein in the eggs to carbohydrate slowly over several hours. And the fat can be burned as fat (keytones) for energy, or can be converted to carbohydrate very slowly for long-term energy. Carry a jar of macadamia nuts for an emergency snack. They have a few carbohydrates and plenty of fat, along with a satisfying crunch, and shouldn't kick off cravings. Make sure to supplement at the very least a multivitamin, magnesium and potassium. Don't take the magnesium with calcium - take one in the morning and the other at night. Don't worry about increasing your fat intake as long as you keep the carbs very low. I eat a LOT of fat, all of it good quality (olive oil, avocado, etc), and my good cholesterol (HDL) is 112; bad cholesterol (LDL) is ninety-something. Tricgycerides are under 40. Those are good numbers, and high cholesterol and triglycerides run in my family. I'm the only one not on lipitor. It's hard, especially when you are surrounded by starch and sugar-eaters. But it is so very worth it. When I first started, I got rid of all the carbs in the house, and I was *ripping* through the cupboards, absolutely frantic to find something to satisy the cravings. They eventually passed. Hope this helps, Margherita <mmdh@...> wrote: , you have talked about your diet before and you sound as if you are doing well w/ your protocol overall. Do you have any problem with cravings for carbs/sweets? This is a huge problem for me, especially when I don't sleep well but have to keep going the next day. Also, do you have any stomach upset w/ abx that requires eating some carbs w/ them? I read a post several months back where someone said Dr. B recommended taking certain abx w/ crackers. Thanks for all your great posts. Margherita --------------------------------- Music Unlimited - Access over 1 million songs.Try it free. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.