Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 How many out there have been diagnosed with what matter lesions? I hear it is common in Lyme Disease but quite often " misdiagnosed " as MS. I am looking for input/opinions on this as well as what you might have done for treatment. I found out from a basic MRI that I do have white matter lesions. I am still trying to determine what treatment path to follow, i.e., IV antibiotics or alternative treatments, rife, IRT, Far-infrared sauna, etc... I am also researching Dr. Cowden's protocol. Both my daughters (10 and 7) have been diagnosed with Lyme as well. Thanks in advance for your input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Thanks for the response. Do you mind me asking what were your symptoms and what did you do to get better? > > I had an MRI 7 years ago and it stated that I also had a spot of > white matter and it was probably MS. I went to a neurologist > and they both said I did not have MS and that it could be from > Lyme, but I also had candidias all over and they said it was > more likely from that. Since the candidias is under control I > do not have any of the Lyme symptons and have been very healthy > for the past year and a 1/2, I would like to get another MRI, > but our insurance won't pay for one and I feel better than ever. > > Blessings for your continued healing process. > DonnaLee > > > > _____________________________________________________________________ _______________ > Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 The University of Calgary has done two studies where they have proven that MS sufferers with active MRI visible brain lesions, will be helped by 200mg of oral Minocycline daily. In the 2nd study 8 of 10 MS sufferers were symptoms free after 24 months of Minocycline, and one was partially free or symptoms, but was taking a reduced dosage, while the 10th person dropped out of the study. If you have actually have LD or MS, then taking Minocycline will treat both diseases! " Canada has one of the highest rates of multiple sclerosis (MS) in the world. The Hotchkiss Brain Institute (HBI) is at the forefront of research in and understanding how to control the disease, characterized by immune system malfunctions that trigger attacks on nerve cells and myelin in the central nervous system. HBI researchers recently found that an existing drug commonly used to treat acne – minocycline – may help patients with MS by reducing damaging inflammation in the brain. This pilot study led by Dr. Luanne Metz, professor in the Department of Clinical Neurosciences, assessed whether oral minocycline prevented the development of new brain lesions caused by MS in ten people with active relapsing-remitting MS. The work of Metz and her colleague, Dr. Wee Yong, also a professor in the Department of Clinical Neurosciences, discovered that minocycline significantly reduces inflammatory activity in the brain. If results are confirmed in larger studies, these findings offer the possibility of a new, safe and more affordable treatment option for people with MS. In 2002, Dr. Yong found that minocycline decreased tissue damage and significantly improved movement in mice with a disease similar to MS. As well, this research may have some promise as a treatment for spinal cord injury. These studies provided the basis for human trial. Metz and Yong have also collaborated on another study that looked at the potential for minocycline to be even more effective when used in combination with Copaxone – another drug used to treat MS. The results will be available in 2007 " from: http://medicine.ucalgary.ca/med/about/research_06-07_hbi cheers Duncan > > I had an MRI 7 years ago and it stated that I also had a spot of > white matter and it was probably MS. I went to a neurologist > and they both said I did not have MS and that it could be from > Lyme, but I also had candidias all over and they said it was > more likely from that. Since the candidias is under control I > do not have any of the Lyme symptons and have been very healthy > for the past year and a 1/2, I would like to get another MRI, > but our insurance won't pay for one and I feel better than ever. > > Blessings for your continued healing process. > DonnaLee > > > > ________________________________________________________________________________\ ____ > Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I have white matter lesions. Fortunately, I have had MRI's in the past so we can compare them. Mine are from tick disease. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 In 2001, MRI showed a focal white spot on my brain that my neurologist felt was a sign of neuro-Lyme. In 2004, three years after IV treatment, another MRI revealed the lesion is still present and has not changed at all. I now wonder whether it was related at all; I'd like to find out other causes of these bright spots, but haven't had the oomph to do the research for quite some time. Best wishes for recovery in Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 You name it, I had it, I thought I was going absolutely crazy. I had muscle twitching, felt like things were crawling under my skin, veins would burn, brain fog, couldn't get my words to come out the way I wanted then to. Couldn't eat (horrible abdominal pain), couldn't sleep, felt like I was buzzing most of the time. Felt like my head was filling up (I know that sounds strange). Felt exhausted, but couldn't sleep with all the weird sensations. Heart palpitation, eyes burned, joints ached, would get headaches like my head was about to explode (at times I wished it would have). Anxiety and depression definitely, because my doctors kept saying it was in my head. Would get feverish and then very cold. If I can think of more, I'll e-mail them to you, I have a journal that I kept when I was going through all this. I went to an infectious disease doctor, who worked with my nutritionist (whom is very literate in Lyme about 1/2 her patients have Lyme and has been working with them for many years). I started out with Samento and a Burbor Detox, when I could tolerate that she added Cumando and Quinea and a lot of supplements that my body was depleted in. I also stay away from gluten and sugar. I also took shots for yeast (because my original doctors, put me on 2,000 mg. of amoxicillin a day for 6 weeks (almost killed me), I couldn't eat a thing and the candidias went crazy. I hope this helps, I know what it feels like to be ill and h ave the utmost compassion for anyone with any illness. I pray that you are on your road to healing. Blessings, DonnaLee ________________________________________________________________________________\ ____ Building a website is a piece of cake. Small Business gives you all the tools to get online. http://smallbusiness./webhosting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 My husband has white matter lesions, these were found a year after the tick bite. He also has seizures, has lost his hearing and voice. anita > > How many out there have been diagnosed with what matter lesions? I > hear it is common in Lyme Disease but quite often " misdiagnosed " as > MS. I am looking for input/opinions on this as well as what you might > have done for treatment. I found out from a basic MRI that I do have > white matter lesions. I am still trying to determine what treatment > path to follow, i.e., IV antibiotics or alternative treatments, rife, > IRT, Far-infrared sauna, etc... I am also researching Dr. Cowden's > protocol. Both my daughters (10 and 7) have been diagnosed with Lyme > as well. > > Thanks in advance for your input. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 This sounds like my husband who we are treating as though he has lyme induced ALS. My husband does not have seizures but has little strength. The non-lyme friendly neurologist we went to diagnosed him with Alzheimers - he has none of those signs - just normal aging (he's 70) memory loss - no worse than many others at that age. What treatment are you doing for the hearing and voice, if anything? Ann -- [ ] Re: White Matter Lesions My husband has white matter lesions, these were found a year after the tick bite. He also has seizures, has lost his hearing and voice. anita Quote Link to comment Share on other sites More sharing options...
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