ALS and/or Lyme

[Guest guest]

Hallo,

I'm writing you from Romania (east Europe) in the hope to find some

in formations, to help me to start a proper treatment and find a

specialist doctor.

Three years ago, I was bitten by an insect (I don't know if it was a

tick, because I've never seen it) and I have a head ache for one week

and a rush on my face( but not a bull's-eye). Two years later, a lot

of neurological symptoms started and I was diagnosed with

polineuropathie and finally with ALS.

My son (who lives in Montreal, Canada) suggests me to do the

test but it was negative. Three months later I did the Western Blot

and it was positive, but my neurologist told me that it's not

relevant and the final diagnostic is ALS. In may, my son came in

Romania and bring a blood kit to send it in USA, to Medical

Diagnostic Laboratories L.L.C. in Hamilton , NJ.

We've shipped the kit in 24 hours by FedEx Express and all the

results for mycoplasma, lyme and co-infections was negative except

the C6 peptide by who was positive.

We where triumphants, but not for long time, because the laboratory,

send us a new letter, for inform us that they made a mistake and the

C6 peptide results was negative.

Me and my son, we think there is Lyme instead of ALS but is only an

instinct and we have no confirmation and we don't know any specialist

in the area.

I was on diereses antibiotics for three month ( azitromicin,

claritromicin, samento, colloidal silver, …).Presently, I take

antibiotics ( doxy ) . I have muscles contractions and trembling, the

feet are very swollen; I have locomotion problems and bladder

difficulties.

I don't know what medication I have to continue and I am

disorientating.

I want to ask you if you know any lyme literate doctor in my country(

Romania ) or in Germany ( I have some relatives there, in Berlin,

and they can help me, but the transport is a big problem )

..

Thank you and I wish you all the best !