Lupus

[Guest guest]

> Thank you for the info, yes he has ordered the

ANA - Antinuclear antibodies (autoimmune)

CRP - C-reactive protein (tissue inflammation)

FBC - full blood count (info on red and white blood cells)

ESR - erythrocyte sedimentation rate (measures inflammation)

Glucose

Bone profile

Liver

iron studies

and of course TFTs - thyroid function tests

Looks like you are being well looked after. Keep us posted.

Miriam

[Guest guest]

Hi Miriam

I rarely go to the GP and have to feel pretty rough to go.

In this case calamine lotion is too drying, this inflammed itch needs

moisturising. The doctor told me I need to moisturise daily, which I always

have done as a matter of course anyway as my skin is dry.

Chris

>

If I went to the GP every time something like that happened I would be there

every week! Calamine lotion is soothing for itchy skin, by the way.

> Miriam

[Guest guest]

****He has prescribed prednisolone. Looks like I will have to start eating lots of fish!

Hello

Just a few tips ... You say your doc has prescribed preds (prednisolone). You didn't specify, but I am assuming that he is not talking about physiological dosages (as we are used to on this forum for low adrenal function), but therapeutical dosages to combat the lupus - which is a totally different ball game.

First of all - Doctors often do not pay much attention to this kind of detail, but please be aware that high dosages of preds can damage your stomach lining. Therefore it would be prudent to take something like Zantac (or any other gastroprotectant) to protect your stomach whilst on a high dosage. This is not really necessary for small amounts of preds, but when you fight an autoimmune disease (like lupus), then we are talking high dosages, and it is sensible to take precautions. Also, always take your preds with food - for the same obvious reasons of stomach protection.

After a short time on preds you are likely to feel very hungry a lot of the time ... so watch you diet very carefully and stick to a plan from the outset. High preds are likely to make you put on weight - they might also affect your mood, you might feel very thirsty at times (best to stick to plain water), and you might need the toilet more often than usual. There is a long list of other side effects to preds, so please be prepared. I think it helps to know that there will be things that are out of your control, and rest assured that those symptoms will subside when the dosage of preds is reduced. I don't know what your doctor is advising, but the usual treatment for this kind of autoimmune condition is to first hit the immune system hard (with preds) to get the lupus into remission and then to very slowly reduce the preds to a low maintenance dosage.

Also please ask your doc if taking high Vit E and taking extra omegas would be of advantage (for your skin). Personally I would definitely add milk thistle after the first week or so to help the liver detox, and I would also add a probiotic daily (Acidophilus), because the preds - similarly to antibiotics - will kill off the good bacteria in your gut. So the Acidophilus will ensure that the good guys in your intestines will get replenished. After all, you've got enough problems, you don't want to add Candida to the list. And stick to a good diet - it is now more important than ever....

Remember - whilst on preds, your immune system will be suppressed or at least reduced - so you will be more susceptible to picking up any kind of infection. Stay clear of anyone who has a cold or any other infectious disease. Avoid public places where lots of people congregate.... Just apply common sense, and you'll be fine.

And please let us know how you are getting on,

best of luck,

[Guest guest]

Hi

I have 30 x 5mg Prednisolone. Have to take 6 all in one go on day 1, reducing by

1 each day. Not sure if this is a high dose or not.

Chris

> Hello Just a few tips ... You say your doc has prescribed preds

> (prednisolone). You didn't specify, but I am assuming that he is not

> talking about physiological dosages (as we are used to on this forum for

> low adrenal function), but therapeutical dosages to combat the lupus -

> which is a totally different ball game.

>

[Guest guest]

Hi

I too had (have) Lupus. I am now in

remission. I also had dreadful skin issues too - unable to go out in the

sun unless I had factor 60 on my face and my whole body covered up with winter

clothes and carrying a parasol to keep the sun off my head it was an absolute

nightmare – people used to stare at me and thought I was mad - I was even

burning through the glass on my car – I was getting severe sunburn –

my Husband had to have tinted glass fitted to my car and it still didn’t

help. I now know what was causing this – Beta Carotene building up

in the liver because my thyroid was not metabolising it properly – once I

got on thyroid meds the liver started to move faster and it stopped over

night. I had had this problem for over 3 threes at that time and

every time I heard the weather forecast that it was going to be a hot day I would

cry as I knew what was coming for me. Now when I hear it is going to be

nice – like anyone else I say – Oh lovely. My remission came

into being when I started on thyroid medication and having loads of metal

fillings removed – this alone caused a lot of my Lupus blood tests to go

negative instead of positive – I am not sure if you are a thyroid

patient too.

If you need to ask me anything please do – I had

an almost complete and utter breakdown of the human body due to the Lupus (with

renal involvement the worst case scenario) /Thyroid and then adrenal issues and

I am still here and in fact never felt better. Take care of

yourself and get plenty of sleep and less stress.

There is a theory that Lupus is caused by low

cortisol issues so research this as much as you can.

Keep well

Kind regards

Mandy

[Guest guest]

***I have 30 x 5mg Prednisolone. Have to take 6 all in one go on day 1, reducing by1 each day. Not sure if this is a high dose or not.

Hello

Dosages of steroids depend on body weight. I can only say with certainty which guidelines are used in veterinary medicine, but I do believe that the same rules apply in human medicine too, namely ....up to 2 mg per kg body weight of preds per day are categorized as "anti-inflammatory" dosages, 2 - 4 mg per kg body weight would count as "immuno-suppressive" dosages.

I may have mixed this up, but are you the who is very slight in statue, but on quite a high dosage of Levothyroxine? - or is this another Chris. - If you are the one I am thinking of, then for your body weight 30 mg preds on the first day is not a dosage to be sneezed at, but it is not awfully high either and thankfully nowhere near immuno-suppression. The way your doctor is tapering the dosage (going down by 5 mg per day) is actually very clever. Some doctors cut dosages by half after 5 days and then by half again after another 5 days etc.... which in my experience (with dogs, I hasten to add) is not working as well as going down in little easy steps, as suggested for you.

Since your dosage is not excessively high, it is probably not vitally important for you to protect your stomach. However, if it were me, I would rather be safe than sorry. Zantac (or any other protectant) is easily available over the counter, although if your doctor prescribes it, then it should be free for you. Please do remember to ask your doc about taking Vit E and omegas - it might help.... and certainly take probiotics to protect your intestines, I can't emphasize this enough. (Although take probiotics at opposite times to the preds - perhaps in the afternoons - not together)

Very best wishes,

[Guest guest]

Hi

Yes this is me, I'm 44kg and on 200mcg thyroxine (same as my little dog).

I have noted everything you have said and will let you know what the bloods say.

Many thanks

Chris

>

> Hello

I may have mixed this up, but are you

> the who is very slight in statue, but on quite a high dosage of

> Levothyroxine? - or is this another Chris. - If you are the one I am

> thinking of, then for your body weight 30 mg preds on the first day is

> not a dosage to be sneezed at, but it is not awfully high either and

> thankfully nowhere near immuno-suppression. The way your doctor is

> tapering the dosage (going down by 5 mg per day) is actually very

> clever. > best wishes,

>

[Guest guest]

Hi Mandy

Many thanks for your response, yes I am a thyroid patient and take 200mcg

thyroxine. It sounds like you had a horrendous time of it, I dont have it as bad

as you but I am my own worst enemy, I love the sun despite knowing full well

what is going to happen. Its so damned annoying because I dont actually burn, I

go brown easily, but the rash feels like it is burning under the sun once it

starts but itches incredibly out of it and it's not all over my body.

I was intending to make an appointment to see if I could get a slight increase

of thyroxine as I have become tired to the point I have now reluctantly had to

give up my 2 day a week job which I absolutely loved, but as my TFTs say I am

hyper I have resisted knowing the response I would get.

Did/do you also get tired, headaches, hair falling out and ulcers in your mouth

and up your nose???

Do you have to see a specialist or is it controlled by your GP?

I am awaiting blood results so will let you know the outcome.

Chris

>

> Hi

>

> I too had (have) Lupus. I am now in remission. I also had

> dreadful skin issues too - unable to go out in the sun unless I had

> factor 60 on my face and my whole body covered up with winter

> clothes and carrying a parasol to keep the sun off my head it was

> an absolute nightmare -

[Edit Abbrev Mod]

[Guest guest]

Hi

You MUST keep out of the sun (any sun whatsoever –

keep covered up) as it puts a strain on the adrenal glands and the going brown

is an adrenal issue not a tan – I will answer you now privately as might

go off the thyroid subject in trying to help.

Kind regards,

Mandy

[Guest guest]

> Hi,

> My friend was just diagnosed with Lupus, and I am wondering if anyone here has

cured their lupus on Bee's program?  I've read that Lupus is caused by candida,

and I tried telling my friend this, but she didn't believe me.  Are there any

success stories that can prove to her that Lupus can be cured by the candida

diet?  I would really appreciate it.

+++Hi . No, I don't know anyone with lupus who has done my program, even

though is is caused by candida. However, whether the person has candida, lupus,

any other autoimmune disease, etc. it means their immune system is very

depressed, which must be built up in order to achieve health, and that's what

this program does.

The only way to build up the immune system is with " proper nutrients " (my diet

and supplements) and by eliminating toxins and damaging foods like sugar, table

salt, soy products, improperly prepared grains, nuts, seeds, etc., " bad " oils

and fats, etc.

Actually all diseases like lupus, candida, cancer, organ malfunctions, etc. stem

from one factor, which is the poor condition of the body mainly due to lack of

" proper nutrients " and toxins.

Obtaining the " proper nutrients " all humans require in order to be healthy means

the body will become capable of healing itself the way nature intended. Dr.

Price proved that " proper nutrition " changes DNA/genes too.

The best, Bee

[Guest guest]

Hi - these effects could be caused because of the

prednisolone. How long have you been taking this and why are you taking it.

Perhaps you should have stopped your levothyroxine for a week or so before you

started it. It tells you on the Patient Information Leaflet to tell your doctor

if you are suffering with low adrenal reserve because you will need to boost your

adrenals with steroids before commencing levothyroxine, so probably this

applies even when you have been taking levothyroxine. I would talk to your GP

about this, because it might mean you are now taking too much levothyroxine and

need to lower the dose. It will be good to get your blood results to see what

is happening. Were these done to check your thyroid function?

luv - Sheila

I've not had any results back yet so am hoping

no news is good news.

Does anyone know if Prednisolone and thyroxine make you hyper. This past few

days have been dreadful. My heart has been feeling like it is going to jump

out, beating very irregularly with massive palpitations with bright red burning

chest last night (and no sun). Pains in groins, gums, stabbing pains in throat

and at times been like a jittering jack in the box.

I started off taking 6 as I was told to down to the 1 this morning (thyroxine

taken at night), I have 9 left, do I now continue to take 1 per day for 9 days,

anyone know?

No virus

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13:05:00

[Guest guest]

Hi Sheila

I've had loads of tests done and the GP has given me the Prednisolone because he

suspects I have Lupus. I did ask him if it would interfer with the thyroxine and

he said no, but now not sure if he realised how much thyroxine I am on in

relation to the dose of Prednisolone he gave me.

Chris

>

> Hi - these effects could be caused because of the prednisolone. How

> long have you been taking this and why are you taking it. Perhaps you should

> have stopped your levothyroxine for a week or so before you started it. It

> tells you on the Patient Information Leaflet to tell your doctor if you are

> suffering with low adrenal reserve because you will need to boost your

> adrenals with steroids before commencing levothyroxine, so probably this

> applies even when you have been taking levothyroxine. I would talk to your

> GP about this, because it might mean you are now taking too much

> levothyroxine and need to lower the dose. It will be good to get your blood

> results to see what is happening. Were these done to check your thyroid

> function?

>

>

>

> luv - Sheila

[Edit Abbrev Mod]

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.0.238 / Virus Database: 270.11.35/2033 - Release Date: 03/31/09

> 13:05:00

>

[Guest guest]

***I've not had any results back yet so am hoping no news is good news.Does anyone know if Prednisolone and thyroxine make you hyper. This past fewdays have been dreadful. My heart has been feeling like it is going to jump out,beating very irregularly with massive palpitations with bright red burning chestlast night (and no sun). Pains in groins, gums, stabbing pains in throat and attimes been like a jittering jack in the box.I started off taking 6 as I was told to down to the 1 this morning (thyroxinetaken at night), I have 9 left, do I now continue to take 1 per day for 9 days,anyone know?

Hi

I would imagine that this would have been the reaction to the preds. I have no experience with humans on substantial dosages of preds, only dogs. When a dog is first put on a high-ish dose of preds, it usually becomes very subdued and withdrawn. Considering that dogs have a much higher pain threshold than humans (I think it's 8x higher), it is hard to know what is actually going on - particularly since they are usually already in very great pain and distress at the time they get diagnosed with an autoimmune disease.

Did the preds improve your skin symptoms, and have those painful sensation subsided now that you are only taking 1 pred (5 mg) per day? - and has the heartbeat become regular again? I do hope so, as 5 mg really is a very low dosage, which should - apart from keeping the lupus under control - also support your adrenal function.

You better give your doc a call and tell him about your experience and ask him for further instructions. I would imagine that he is waiting for the test results before making up his mind how to proceed next. If for any reason you can't get in touch today, I would keep on taking 1 tablet/day until he tells you otherwise.

Something I feel you should know (and hopefully your doc will tell you that as well) is that the ANA test can have a high failure rate. A positive test result will be 100% reliable, but a negative test result could be a false negative. Again, I am talking from a doggy perspective, but about half the dogs that were without a doubt suffering from SLE (systemic lupus erythematosus), or variations of lupus, had negative ANA tests. So vets often come to a diagnosis of lupus via clinical signs and symptoms and they treat speculatively. Autoimmune diseases are extremely steroid responsive. If the clinical signs and symptoms improve rapidly, then that in a way confirms the diagnosis. - I have no idea how this is handled in human medicine, but I would imagine very similarly.

Please keep us all posted on your progress and let us know what your doctor says.

Warm wishes,

[Guest guest]

Hi

I feel much better thank you, everything has subsided so I will continue now

with the 5mg until I hear from GP.

I rang the surgery this afternoon and apparently a lot of tests go to Oxford and

take some time to come back.

Chris

> - I have no idea how this is

> handled in human medicine, but I would imagine very similarly.

> Please keep us all posted on your progress and let us know what your

> doctor says. Warm wishes,

>

[Guest guest]

***> I feel much better thank you, everything has subsided so I will continue now with the 5mg until I hear from GP.

Hi

Glad you are feeling ok and your skin is back to normal.....

The fact that the preds have made the skin condition immediately subside, points very much in the direction of this being an autoimmune condition (i.e. lupus) - rather than having any bacterial or viral cause. - Please remember to take probiotics every day to keep your intestines in good condition... (this really is important). And if your doctor has no objections, I would supplement Vit E and also a supplement high in Omegas. This will help the skin..... and, of course, stay out of the sun

And please let us know what the test results reveal.

Love,

[Guest guest]

Hi Mick,I don't think anyone in this group will be able to hazard a guess as to what you have, but if it turns out to be lupus, this site has information that may be of help:http://www.webspawner.com/users/ecslupustx/index.htmlWith best wishes,Dudley Delany

dudley_delany

[Guest guest]

Hi

http://www.pubmedcentral.nih.gov/articlerender.fcgi?tool=pubmed & pubmedid=6212170

Pathogenesis of spontaneous autoimmune thyroiditis in obese strain (OS) chickens

G. Wick, R. Boyd, K. Hála, S. Thunold, and H. Kofler

[[....While the studies published on work with the former models have considerably increased our knowledge on the immunological phenomena underlying systemic lupus erythematosus (SLE) in particular and autoimmune phenomena in general, the OS has some definite advantages: SAT is an organ-specific disease and it occurs very early in life, i.e. during the first 2-3 weeks after hatching.

That this disease arises in an avian species is especially fortunate since the immune system of birds is so clearly compartmentalized into B- and T-dependent portions, facilitating more straightforward investigations of effector and suppressor mechanisms than in mammals. Furthermore, experimental manipulation of the embryo can readily be performed in ovo. Finally, great progress has been made in recent years concerning the function and structure of the chicken MHC, the B locus, which was also extended to the OS where several sublines have been established which are homozygous at this locus.....

.....The phenotypic symptoms of hypothyroidism are small body size, abundant subcutaneous and abdominal fat deposits (hence the designation 'Obese'), lipid serum, cold sensitivity, long silky feathers (Fig. 1), small combs and wattles, poor laying ability as well as low fertility and hatchability. T3 and T4 are characteristically decreased or lacking and the clinical symptoms can be reversed by supplementation with thyroid hormones, but not thyroid-stimulating hormone (TSH). All these symptoms have their corollaries in human Hashimoto's disease, such as dwarfism, cutaneous alterations, high lipid content of serum, etc.....

It's almost as if the RCP have been deliberately kept in the dark... about all this work.

best wishes

Bob

>> I went out in the sun last week and come up all lumpy and itchy on my shins, arms and chest which happens every year but thought while it is still a bit itchy, red and lumpy I would let the duty doc have a look.> > Well, he thinks I have lupus and have to go and get a whole load of bloods done before starting the steroids he has prescribed.> > Anyone any experience of this?> > Chris>

[Guest guest]

Hi bob,

There are none so

blind as those who refuse to see………………. And

now refuse to back down

Subject:

Re: Lupus

Hi

is an organ-specific disease and it occurs very

early in life, i.e. during the first 2-3 weeks after hatching.

.....The phenotypic symptoms of hypothyroidism are

small body size, abundant subcutaneous and abdominal fat deposits (hence the

designation 'Obese'), lipid serum, cold sensitivity, long silky feathers (Fig.

1), small combs and wattles, poor laying ability as well as low fertility and

hatchability. T3 and T4 are characteristically decreased or

lacking and the clinical symptoms can be reversed by supplementation

with thyroid hormones, but not thyroid-stimulating hormone (TSH). All these

symptoms have their corollaries in human Hashimoto's disease, such as dwarfism, cutaneous alterations, high lipid content of

serum, etc.....

It's almost as if the

RCP have been deliberately kept in the dark... about all this work.

best wishes

Bob

[Guest guest]

Thank you Dr. du Toit for so much sharing with us. I certainly appreciate all the details you place in your replies and am appreciative of your knowledge. Thank you.

Barbara Linde

Lupus

I need to gather as much information on Lupus as I can. I've been recently diagnosed and I really dislike the prescription medication that I've been put on. I intend on living a happy, healthy life, not one full of "what is this stuff doing to me" > Let me know all of your stories, please. Thank you in advance.Rozanna

[Guest guest]

Dear Rozanne, There is something which is causing kind of stress in to your body .Can be from any origin, energetic,virus, alergy, etc . It´s necessary to know more about symptoms in order to understand what the disease wants to inform . To start take care what you eat and how!! Make some tests , some kind of foods can be good to others and be not the best for you. Magnetic fields where you live or where you work can make a diference, there are so many causes , should understand the disease correctly and then to take adequated actions .Are you trying SCIO ?!Quantic Regards,Frazão Vaz

From: rozannamoore2 <rozannamoore2@...>Subject: Lupusqxci-scio-epfx-english Date: Wednesday, September 9, 2009, 9:47 PM

I need to gather as much information on Lupus as I can. I've been recently diagnosed and I really dislike the prescription medication that I've been put on. I intend on living a happy, healthy life, not one full of "what is this stuff doing to me" > Let me know all of your stories, please. Thank you in advance.Rozanna

[Guest guest]

Dear Dr. Renier du Toit:

Thank you very, very much! Merci, Beaucoup! Doris B.

Lupus

I need to gather as much information on Lupus as I can. I've been recently diagnosed and I really dislike the prescription medication that I've been put on. I intend on living a happy, healthy life, not one full of "what is this stuff doing to me" > Let me know all of your stories, please. Thank you in advance.Rozanna

[Guest guest]

I appreciate the time and effort put into your response! Thank you for sharing

your knowledge. Sometimes the outcomes look rather bleak but you have inspired

me to keep working away.

Rozanna

[Guest guest]

Michele, cold processed whey (and selenium) has shrunk cancer and reduced lupus

and other degeneratives. I think it is preventive.

There are PubMed queries and a copy of a key cancer work in the glutathione

references:

http://tinyurl.com/glutathione-references

This example taken from the Lupus query is a 2010 study on oxidative stress in

lupus:

http://www.ncbi.nlm.nih.gov/pubmed/19874339

The selenium / cancer references are probably easy to find. Selenium is more

useful with glutathione precursors than alone.

all good, sorry for the OT friends; useful though?

Duncan

>

> In addition to being paranoid that I will end up with cancer, I do have lupus.

It would be great if one product would help to keep me from having cancer and

also help my lupus. The biggest lupus complaint is that when I have a " flare " I

ache from head to toe and very fatigued.

>

[Guest guest]

Here you can read about the experience of others with ldn

and lupus

https://ldndatabase.dabbledb.com/page/other/gesZjsZJ#

dr berkson sees good results with ldn and lupus

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