Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 After reading Rich's story (and others here) I feel I am relatively fortunate in my situation. Two years ago, due to a swollen knee, I was diagnosed as having long term Lyme. After several false starts with oral antibiotics, I got relief with a month IV of Ceftriaxone. However, I have lingering balance and lightheadedness problems, that seem to be getting worse. My LLMD says I will likely have to go back on IV, the current 2 months of Amoxicillin having had little effect. My question to you folks out there is; based on your experience, can I reasonably expect to get relief from the above symptoms? W Baltimore Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 That about normal I still get the balance problems, other. good luck Bud avalonf@... wrote: After reading Rich's story (and others here) I feel I am relatively fortunate in my situation. Two years ago, due to a swollen knee, I was diagnosed as having long term Lyme. After several false starts with oral antibiotics, I got relief with a month IV of Ceftriaxone. However, I have lingering balance and lightheadedness problems, that seem to be getting worse. My LLMD says I will likely have to go back on IV, the current 2 months of Amoxicillin having had little effect. My question to you folks out there is; based on your experience, can I reasonably expect to get relief from the above symptoms? W Baltimore Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 yes you can get relief...but it takes time...doxy may be a better bet then iv... eric avalonf@... wrote: After reading Rich's story (and others here) I feel I am relatively fortunate in my situation. Two years ago, due to a swollen knee, I was diagnosed as having long term Lyme. After several false starts with oral antibiotics, I got relief with a month IV of Ceftriaxone. However, I have lingering balance and lightheadedness problems, that seem to be getting worse. My LLMD says I will likely have to go back on IV, the current 2 months of Amoxicillin having had little effect. My question to you folks out there is; based on your experience, can I reasonably expect to get relief from the above symptoms? W Baltimore Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 Definitely! I have polyneuropathy and ataxia. I ended up getting a service dog last year so I could walk with security. Waterloo - CO Tacy Marie & Custer 970-430-5378 www.frenchbulldogrescue.org Eye on Creation Photography LLC " If you are attacked by a circus troupe, go for the juggler " On Sun, Jul 18, 2010 at 11:58 AM, Janet Ring <janet.ring@...> wrote: > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 Yes, I have been experienceing this for the past few months, some days more so than others.Never had a problem til recently and I've been ill 5+ years.This is common with Lyme, but doesn't make it any easier to deal with lol. On Sun, Jul 18, 2010 at 12:58 PM, Janet Ring <janet.ring@...> wrote: > > > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 I recently had that and it turned out to be due to mold toxins. I believe Lyme can also cause that as both Lyme toxins and mold toxins are biotoxins that can cause similar issues. See http://www.chronicneurotoxins.com for more info. On Sun, Jul 18, 2010 at 10:58 AM, Janet Ring <janet.ring@...> wrote: > > > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 YES!!!!! that is one of my worst symptoms, I am so " off " all the time I feel like i'm going to fall over when i'm up walking around, it's not vertigo, it's just like a weird tipsy feeling. Bridget > > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 that and migraines was one of my first symptoms for years. the balance problems/dizziness/vertigo have all gone away with treatment. On Sun, Jul 18, 2010 at 10:58 AM, Janet Ring <janet.ring@...> wrote: > > > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Yes, that was my first and main symptom. I had it checked by a bunch of specialists - including an ear/nose/throat doctor - but they couldn't find any other cause. They finally figured out I had lyme and when an LLMD put me on antibiotics the dizziness eventually mostly went away. Don On 7/18/2010 1:58 PM, Janet Ring wrote: > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Absolutely. Lyme gets in the brain and nervous system -- including the nerves that handle balance, as well as the ones throughout the body that enable us to stay upright. We're also very prone to opportunistic sinus and middle ear infections that take advantage of our distracted immune system's inability to fight off other stuff. And there's also NMH and POTS, both of which affect balance (as well as making us simply want to sit down -- I had this for 15 years, and wanted to faint whenever I stood up for more than 30 seconds). These are rooted in the adrenal problems we have when Lyme does its favorite trick of getting into the HPA axis. Sara On Jul 18, 2010, at 10:58 08AM, Janet Ring wrote: > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 How does lyme affect our HPA axis ? Why do we have low body temp with lyme ? Why do we swell up when we eat bread or pasta and how can we get rid of this.  How do we stop our adrenals from failing and get out thyroid to work again and how can we stop from getting diabetes with lyme ? or worse cancer....Thanks. > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Yes, I have the balance problem without dizziness. And it seems to be getting worse. It's as if my lower back and thighs suddenly turn into play doh, and won't function. I've apparently had Lyme or somehing like it for the past 9 years, and only now gotten a clinical diagnosis. Am taking teasel for it. Have high hopes. LOU > > Has anyone experienced balance problems (feeling unsteady on their feet, > > e.g.) from Lyme? I'm having that experience now and don't know if it's > > connected to Lyme. > > > > Thanks, > > > > Janet > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 As others have stated, my initial symptom was extreme dizziness. That has improved dramatically since I've been on ABX but I still have frequent issues with my balance. I've just gotten used to it being part of my new " normal. " I am very cautious to always use handrails, particularly on steps ... Anne > > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 I am the same way and have been since, well, forever. LOL My LLMD sometimes wouldn't even do the whole stand-with-your-feet-together-and-eyes-closed thing because I'd tip over getting up out of the chair! LOL I've seen this exact symptom (the being " off " or " tipsy " , but not actually dizzy) listed as a babesia symptom many, many times. Mine did improve a little over about a year and a half of Lyme and Bart treatment, and I think has gotten even better after 4 mo of Mepron for the babesia. Unfortunately I don't think I'm cleared of the babesia yet, and my LLMD won't prescribe anymore Mepron as he is retiring. =( in TX [ ] Re: Balance Problems YES!!!!! that is one of my worst symptoms, I am so " off " all the time I feel like i'm going to fall over when i'm up walking around, it's not vertigo, it's just like a weird tipsy feeling. Bridget > > Has anyone experienced balance problems (feeling unsteady on their feet, > e.g.) from Lyme? I'm having that experience now and don't know if it's > connected to Lyme. > > Thanks, > > Janet > > > > > > Quote Link to comment Share on other sites More sharing options...
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