RE: IV Steroid / LDN/mobility

[Guest guest]

I would stick with LDN (you do not say how long you have been on it) it takes some time to work. I have been on it a year and have seen multiple, gradual improvements including in mobility. I would not have more steroids if I was you. My mother (who had MS) was given lots of cortisone (for the pain – it did not help), became psychotic & had to be admitted to a psychiatric ward where the chief psychiatrist said psychosis was a common side effect of cortisone. If you decide to take it do lots of research first. You do not say if you take baclofen. From my experience this can dramatically affect the balance of people with MS. Is bad balance the reason you need a walker? You did the right thing to get rid of the narrow minded neuro & doctors. My experience is that neurologists are the most negative & narrow minded of all & I have not been near one in 5 years & have never been better. I think all the other stuff you are doing is great. You need to take alpha lipoic acid & Vit B with LDN. Have you tried self hypnosis – I found this very helpful. Also ask your local MS soc about electrical stimulation I am hoping to do some this year as I am working on trying to get my leg to lift. Also maybe they could suggest some exercises that would help. Good luckTrish While in the hospital for my 1st serious MS attack in Spring 2008 I was given 1 IV bag a day for 3 days to stop my attack & speed healing... & after a month's in & out of hospital physical rehabilitation was eventually back to walking without assistance. I still had numbness & tingling in my hands & feet. I went on Rebif per my doctors recommendation. After reaching full dose Rebif, I developed a second attack in the Fall of 2008. I had decided to try LDN just prior to this & my Neurologist & doctors refused to allow me LDN. I eventually found a doctor in another state who...after receiving my MRIs & medical records... & a phone consult...prescribed me steroids in pill form to stop my attack & I quit Rebif cold turkey & began LDN at full dose at the same time. Yeah, I know. It's not advised. I stopped seeing my neurologist. I'm uninsured but have found a hospital willing to work with me regarding payments. I have been MS attack free since. I have had no bad affects from LDN. I love it, as a matter of fact, and am an advocate for it. My issue is that I have not regained my ability to walk without a walker. I wonder if I could find a doctor to prescribe me an IV drip of steroids...would my mobility improve as it did the first time around. Does anyone have any thoughts about that. I realize steroids are not healthy for the body...but I would be willing to take several more IV treatments if I could be free of my walker. From what my neurologist showed/explained to me...most of my scars occur in my spine rather than in my brain & when it has occurred in my brain it is mostly happening in my white matter. I suppose that means that scars in the spine tend to be more permanent (for those on LDN) than those that occur in the brain? I currently have no doctor... & guess I would have to go to a hospital for the IV steroids, I assume. Anyone have any other idea. I exercise every day, meditate, practice yoga nidra, am a vegan (I eat organic whenever I can & take lots of supplements including GABA, Omega Oils & Vit D) & practice kundalini yoga. I have no fatigue. Apart from tingling from the waist down(mostly in my feet), tingling in my hands, moderate difficulty urinating & eventual muscular fatigue after standing for a duration...I feel great. Any suggestion/response would be appreciated. I'm at my ropes end as to what to do to walk again without assistance.