New poll for

[Guest guest]

What are Cardlp IgM; PTT -LA; MPV; Globulins? Thanks.

>

>

> Enter your vote today! A new poll has been created for the

> group:

>

> Did anyone test high for the following before being diagnosed with

Lyme?

>

> o Cardlp IgM

> o Sed Rate

> o PTT-LA

> o Globulins

> o MPV

>

>

> To vote, please visit the following web page:

> /surveys?id=2097025

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the

> web site listed above.

>

> Thanks!

>

[Guest guest]

Enter your vote today! A new poll has been created for the

group:

Would you like to see a separate Lyme Aid group dedicated to members in your

state? (An example would be Lyme Aid Connecticut.) The purpose of these groups

would be to help Lyme Aid members find local support in a large variety of ways

such as local doctors, local school regulations, local grocery stores who

delivery etc. I am willing to run the list in the same way I run Lyme Aid with

the acknowledgement that on topic subjects will not only include Lyme issues but

also any kind of local issues. Are you interested?

o Yes

o No

To vote, please visit the following web page:

/surveys?id=2542575

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the

web site listed above.

Thanks!

[Guest guest]

I also belong to a state group already and feel that one state group is plenty.

And I just found out there is a group for every state already in place. It would

be great if we could all work together instead of spreading out into more

groups. It's a great idea, but already happening

aynrandi <aynrandi@...> wrote:

State Lyme Groups are already set up. I belong to because I

also want to know how people are doing across the U.S. in other

states. I don't see how belonging to 2 state groups would be

helpful. Can't we just use what we already have?

Be well,

Connie

>

>

> Enter your vote today! A new poll has been created for the

> group:

>

> Would you like to see a separate Lyme Aid group dedicated to

members in your state? (An example would be Lyme Aid Connecticut.)

The purpose of these groups would be to help Lyme Aid members find

local support in a large variety of ways such as local doctors, local

school regulations, local grocery stores who delivery etc. I am

willing to run the list in the same way I run Lyme Aid with the

acknowledgement that on topic subjects will not only include Lyme

issues but also any kind of local issues. Are you interested?

>

> o Yes

> o No

>

>

> To vote, please visit the following web page:

> /surveys?id=2542575

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the

> web site listed above.

>

> Thanks!

>

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Games.

[Guest guest]

********There needs to be a support group in every city of the US.....the

more the merrier and more successful bringing education and awareness to

thousands of unknown.....There are four groups in Arizona and I'm working on

setting up more.....There is NO National organization at this point and won't be

at the rate they are going.....This isn't about control IT IS ABOUT BRINGING

EDUCATION AND AWARENESS. I would love to see a support groups set up within

each hospital....they have the room and the budget to support support

groups....I did this within the HepC community and it was quiet

successful....the

downfall is finding the people who are interested in running each group....each

group should be there to MEET THE NEEDS of their locals.

*********Plus another thing that is wrong with only having one group per

state is the people running these groups tend to make it clickish and if anyone

God Forbid speaks up that is not in line with the support group leadership,

then they kick them out....ROFL....yes folks, you heard me right....I speak

from experience...

**********Tina and myself was banned from the LymeNet Group Leaders

when we co-founded

_www.leaparizona.com_ (http://www.leaparizona.com) , as they said we were

trying to divide the state....How absurd... National leadership comes from

experience and I haven't found any one group that shows me that they are

capable

of running a " National " group for Lyme....I have been a part of organizing

associations and national organizations, serving on their Boards of Directors

for the past 35 years (I'm 62 yrs old) and I have seen nothing within the Lyme

communities that proves to me that we have the right leadership to serve in

this capacity. The Lyme communities are TOO DIVIDED because of poor

leadership....when the time comes for a national organization then it will

happen, in

the mean time the more coverage we have the better for those suffering and

for those who are ignorant about this horrific disease.

********I personally know of BILLS that have been stopped in committee

because control freaks wanting to put their name on something....No, until you

can

give me " real " leadership I will continue to move forward organizing in the

areas I am and encouraging local support groups in every city, in every

state...Support groups will FLOCK to good leadership, but unfortunately that is

NOT what is happening here in the USA.

Angel Huggzz

or Angel

www.lymecommunity.com

[Guest guest]

Hello Robynn@...,

In reference to your comment:

I'm glad you have a local group which helps with local support like

local activities, local car pools, local doctors etc! That is not

the case for many folks in other states. I'm hoping to help those

individuals find the local support they are needing.

=)

Robynn

*********This is VERY true Robynn.....too many states do NOT have any type

of support groups set up...I believe there should be one in EVERY city and/or

EVERY hospital...

PS Participation is completely voluntary! There is no reason you

would need to join two state groups. In fact if your state group is

providing what is needed to it's members I'm sure no one from Lyme

Aid would request a group from your state be created in the first

place. =)

********If I can help you in any way Robynn let me know....

[Guest guest]

Hi all, I already started an On Line support group

for New Mexico last Fall.

nmlymediseasesupportnetwork/

I also post allot of Politcal info that Phyllis From

CALDA sends me. So we have a group here thats both for

support and Politcal. But its good that you are

thinking of individual States too. Thank you.

Love & Light,

Yemaya

There is no Epidural during a Spiritual Rebirth.

The Last time we mixed Politlcs & Religion. People got burned at the stake.

________________________________________________________________________________\

____

Sick sense of humor? Visit TV's

Comedy with an Edge to see what's on, when.

http://tv./collections/222

[Guest guest]

I appreciate what you are trying to do, Robynn, and I agree every

state, even every major city, should have a Lyme support group. But

if the groups that already exist are not filling everyone's needs,

why not make them better? Politics and support are not mutually

exclusive. You can do both.

Be well,

Connie

> >

> > State Lyme Groups are already set up. I belong to

because

> I

> > also want to know how people are doing across the U.S. in other

> > states. I don't see how belonging to 2 state groups would be

> > helpful. Can't we just use what we already have?

> >

> > Be well,

> > Connie