Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi I personally think that any pathogen that produes toxins, such as those which you have tested for are worth eradicating, since otherwise they are only a burden on our bodies. With the MSH production, maybe in the longterm it will return to normal - dont forget Shoemaker is still only into this in the short term really. Or even maybe Cheney's HGH & growth factor protocol is they way to go to rebuild this. Dave > I was doing some research on MSH online when I found this. I about fell out > of my chair!! I have had my hopes up so much and then I read that end stage > CFS don't recover from the shoemakers protocol!!!????? I have been sick for > over ten years and I am completely disabled, so I am in the bad stages of > this. Am I reading this correctly, are some of us just fooling > ourselves?????? Someone please correct me if I am reading this wrong, because > I feel pretty depressed about this. > > > Leptin stimulates the production of alpha melanocyte stimulating hormone > (MSH), which in turn controls production of endorphins (the body's natural > " opiates " ) and melatonin (which regulates sleep) in the hypothalamus. CFS > patients rarely have much MSH. Eradicating CNS does nothing to the high > leptin and low MSH levels in patients with " end-stage CFS, " says Shoemaker, > but it certainly does in patients who are diagnosed acutely and treated > aggressively, preventing irreversible damage to the MSH-manufacturing pathway. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hey , It is far too early to get scared about " end stage " concepts. There is simply not enough research. Keep yourself focused on finding out what exactly you have, various infections???? Also, one thing I love about Cheney is his idea to get into warm water up to your neck. If you can possibly do this it helps tremendously. It helps the lymph system and it just feels good. I know Cheney talks about 3 stages of this disease, but I have seen people in what he would label stage 3 recover. I have certainly seen people with brain fog recover. Don't give up. a Carnes > I was doing some research on MSH online when I found this. I about fell out > of my chair!! I have had my hopes up so much and then I read that end stage > CFS don't recover from the shoemakers protocol!!!????? I have been sick for > over ten years and I am completely disabled, so I am in the bad stages of > this. Am I reading this correctly, are some of us just fooling > ourselves?????? Someone please correct me if I am reading this wrong, because > I feel pretty depressed about this. > > > Leptin stimulates the production of alpha melanocyte stimulating hormone > (MSH), which in turn controls production of endorphins (the body's natural > " opiates " ) and melatonin (which regulates sleep) in the hypothalamus. CFS > patients rarely have much MSH. Eradicating CNS does nothing to the high > leptin and low MSH levels in patients with " end-stage CFS, " says Shoemaker, > but it certainly does in patients who are diagnosed acutely and treated > aggressively, preventing irreversible damage to the MSH-manufacturing pathway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I'm contacting you to let you know that there is hope for you. I've been ill since 1989. Call Dr Bihari in NYC for help. His # is 212 9294196. Haven't met a person yet that he has not helped. He does phone conferences. Naltraxone will help a lot. I am not cured. But I work full time and am self supportive. I function at about 85% which is very, very good, amd acceptable. Good luck.. Carol in LI, NY. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Carol, would you summarize Bihari's approach to treatment. I try to keep an updated list of doctors for cfs patients. Thanks, a Carnes > I'm contacting you to let you know that there is hope for you. I've been ill > since 1989. Call Dr Bihari in NYC for help. His # is 212 9294196. Haven't > met a person yet that he has not helped. He does phone conferences. > Naltraxone will help a lot. I am not cured. But I work full time and am self > supportive. I function at about 85% which is very, very good, amd acceptable. > Good luck.. Carol in LI, NY. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 I agree this is a bit of a shock. Maybe if MSH turns out to be a key factor in recovery we will be able to supplement it in the form of a hormone creme or patch. At least you know you are low in msh. So far I cannot find anyone to do the test for me in the UK. Any suggestions team? Still waiting for nasal swab results. Regards Dave x > I was doing some research on MSH online when I found this. I about fell out > of my chair!! I have had my hopes up so much and then I read that end stage > CFS don't recover from the shoemakers protocol!!!????? I have been sick for > over ten years and I am completely disabled, so I am in the bad stages of > this. Am I reading this correctly, are some of us just fooling > ourselves?????? Someone please correct me if I am reading this wrong, because > I feel pretty depressed about this. > > > Leptin stimulates the production of alpha melanocyte stimulating hormone > (MSH), which in turn controls production of endorphins (the body's natural > " opiates " ) and melatonin (which regulates sleep) in the hypothalamus. CFS > patients rarely have much MSH. Eradicating CNS does nothing to the high > leptin and low MSH levels in patients with " end-stage CFS, " says Shoemaker, > but it certainly does in patients who are diagnosed acutely and treated > aggressively, preventing irreversible damage to the MSH- manufacturing pathway. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2005 Report Share Posted October 30, 2005 Hi, The company Zengen has developed MSH products and it seems they are currently being trialled. Some info here: http://www.zengen.com/technology.htm#czen If you check the News--> Press Release section, you'll find news of the most recent trials they've conducted. So hopefully this means it will be released in the not-too-distant future. > > Deb, > > Dr. Shoemaker had told me to check with him in 6 months about MSH and that > will be in January. I think it will be a while before it is approved, if it > indeed is approved. Keep on chugging!! > > Lucy > > > > > > > >hi lucy - have only been on recup a month - way too early to say if > >anything is happening.....lab forgot to draw my c4, had it redrawn > >yesterday.....it'll be so interesting if msh becomes available for all of > >us with no detectable amts..... ....... > >deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 I have ordered in the past a herbal formula the boosts MSH. It is actually called MSH. I can not remember where I got it. Can anyone help me . Merlyn Quote Link to comment Share on other sites More sharing options...
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