another new member...

[Guest guest]

Hi group

My name is . I'm writing this from Santa Fe, NM. I've been

disabled since 1987 - when I got my first diagnosis: Epstein Barr

Virus- which months later started being called Chronic Fatigue Immune

Dysfunction Syndrome (CFIDS)- then got an additional diagnosis of

Fibromyalgia a year later- and then soon after developed severe

Multiple Chemical Sensitivities (MCS) finding high levels of chemicals

in fat tissue. After working with these mystery illnesses trying many

things-and surrendering to not being able to work-over a 2 1/2 year

period -I made a documentary about my experience with these illnesses

in '95 (funny you don't look sick) -- I was living on the east coast

for 20 years -but after 2 1/2 years unable to find safe affordable non-

toxic- non moldy housing- I found housing Santa Fe (through my MCS

contacts in the Southwest- working on another documentary- Homesick) I

have been here since 2004- I thought I was getting stronger- doing

more- more brain power- but started going down in mid August and

in Jan got diagnosed having positive anitbodies for Lyme- (via ignenex

and 3 doc's opinions) so I'm a newcomer to Lyme-- no one is saying-

this was what I had all along- one is saying this looks like a more

recent infection- 1 - 1/2 years old????? So I'm on doxeycycline now

for 3 1/2 weeks- it's really odd to get my head around " having Lyme " or

identifying my symptoms as being from Lyme and not from MCS or CFIDS or

Fibro-

Anybody have this or a similar experience--of late diagnosis after

other illnesses?

I'm pretty pooped with taking just 200 mg of doxy a day- lots of ear

ringing- a recently acquired symptom! argh

anyway- here I am- hoping to connect with folks--

glad this group is here- best- susan