Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 My problem is my veins are hard to find too. When I need to give blood I have them take blood out of my top of my hand where the veins are easier to locate and much less painful. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 In a message dated 4/20/01 9:33:21 AM Eastern Daylight Time, lilmoxy2000@... writes: > " No I don't want blood that came from a dwarf I > might shrink the next time I take a hot shower. " > > Just goes to show how wide spread ignorance is. > Yep, that is a shame sometimes how wide spread ignorance is. I donated blood in the past and I never had any problems with anyone telling me about donating blood because of my stature. The only problem that I encountered is my veins are hard to find on my arm so I have the " vampires " ;-) take it from my vein on top of my hand. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 In a message dated 6/4/01 12:16:01 PM Eastern Daylight Time, WadeAnd@... writes: > Hi Group, > > I have a question that I thought some of you may be able to answer. There > is a blood drive where I work this month. Is it okay to give blood after > the mgb? I'm just over 2 months post-op and don't remember hearing that a > person shouldn't give blood, but thought I should ask first. > > Any thoughts? > > Thanks for helping. > > Love, in OK > MGB - 3/29/01 w/Dr. R > 303/256.5 @ 2 months post-op > > NOPE Dr. R says never. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 NO! YOu should not donate blood anymore. It's in the manual. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I don't remember anything about giving blood at all. But I know Clinic's are going to be somewhat different because of the different questions that are asked. Anyone else know? If I need to e-mail Barb or Dr. R, I will but thought if some of you knew that I wouldn't have to bother them :-) _______________________________________________________ I thought I remembered Dr.R saying no about giving blood. Steph P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Thanks for all the responses. I missed, or don't remember that. I think I'm going to go back through the manual and let stuff soak in AGAIN. I've had so much on my mind lately, I can't seem to remember anything! It's very frustrating. Thank you again. in OK ___________________________________________________ NO! YOu should not donate blood anymore. It's in the manual. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 We're not supposed to give blood again, ever. Too easy to deplete us, too hard to recover and get our iron back up. I saw someone post that a while back, straight from having talked with Dr. R, and I remember it clearly. So, that's the scoop. . .PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 We should not donate blood. After the MGB we make blood much more slowly than before. Prior to my surgery in October to have a total hip replacement Dr. R. told me not to even donate blood for my own use. The orthepedic surgeon wanted me to have three pints drawn over a month or maybe it was over two months so it would be on hand if needed during the hip surgery. Dr. R. said " No. " We become anemic easily and should never give blood for others or our own use. Fryer MGB 3-20-00/ 363 now 244 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 not only did he say " no " to giving blood, but I am a bone marrow donor and he said no to that also. Re: Donating Blood I thought I remembered Dr.R saying no about giving blood. Steph P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I thought I remembered Dr.R saying no about giving blood. Steph P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I used to be an avid donor and when I asked Dr. R this question he said absolutely NO more blood donation forever! > Hi Group, > > I have a question that I thought some of you may be able to answer. There is a blood drive where I work this month. Is it okay to give blood after the mgb? I'm just over 2 months post-op and don't remember hearing that a person shouldn't give blood, but thought I should ask first. > > Any thoughts? > > Thanks for helping. > > Love, in OK > MGB - 3/29/01 w/Dr. R > 303/256.5 @ 2 months post-op Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 , Dr. R. does not want us donating blood. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 That is an emphatic NO! Dr. R had made this very plain. Pat Donating Blood Hi Group, I have a question that I thought some of you may be able to answer. There is a blood drive where I work this month. Is it okay to give blood after the mgb? I'm just over 2 months post-op and don't remember hearing that a person shouldn't give blood, but thought I should ask first. Any thoughts? Thanks for helping. Love, in OK MGB - 3/29/01 w/Dr. R 303/256.5 @ 2 months post-op Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I asked Dr. Rutledge about donating blood and all he said was " NO, YOU CAN NEVER DONATE BLOOD AGAIN. " Joni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Hi , You'll probably get tons of answers, but I did ask Dr. R this personally because I was an avid blood donor. He said no, we need our iron. Sorry! Rosemary Locklear Donating Blood > Hi Group, > > I have a question that I thought some of you may be able to answer. There is a blood drive where I work this month. Is it okay to give blood after the mgb? I'm just over 2 months post-op and don't remember hearing that a person shouldn't give blood, but thought I should ask first. > > Any thoughts? > > Thanks for helping. > > Love, in OK > MGB - 3/29/01 w/Dr. R > 303/256.5 @ 2 months post-op > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 << I didn't read the giving blood post to which Steve was replying, though some had to do with blood letting. But in the past the issue of whether it's fair to give blood when our blood might be seriously contaminated has arisen and people have worried about its ethics. >> Just want to second this; it seems logical that atleast some of us have harmful pathogens in our blood that they may not be able to screen for. Some PWC's unknowingly have lyme; do they screen for that? Personally I've opted not to donate blood. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2001 Report Share Posted September 12, 2001 YES. I have been donating blood every two months for the past 20 years. AB - Donating Blood > You must be 17 or over and 110lbs to donate, but can LP's still > donate even though they may fit this criteria? Just a thought. May > sound silly but you never know. > -Lila > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2001 Report Share Posted September 12, 2001 YES. I have been donating blood every two months for the past 20 years. AB - Dwarfism is not a blood disease. If you do not know, then I strongly suggest talking with the Doctor. Donating Blood > You must be 17 or over and 110lbs to donate, but can LP's still > donate even though they may fit this criteria? Just a thought. May > sound silly but you never know. > -Lila > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Sharon, I had a similar experience, but even worse. I had a total hip replacement in June, and donated my own blood for the surgery, which is standard. While I was in the hospital, my doctor informed me that I wouldn't be able to donate blood anymore, except for myself, because it came up with a false/positive for HIV. When he told me this, I was on drugs and hurting, and I just laid there and cried. Of course, all I heard was the HIV part. They can do an additional test to show that I really don't have it, but it costs money, and the blood center won't do it. At that time, I was not diagnosed with AIH yet, and I didn't know what was going on. I'm still not sure that it's because of the AIH or something else screwy with my blood. But I imagine it's because of the AIH. nne [ ] Donating blood > I have a question for you all. Last year, following 9/11, I > attempted to give blood. At the time I had been in remission for 7 > years, was on no medication, and basically had forgotten about my > AIH. However, the people in charge of the blood drive, including the > supervisor with whom I was eventually transferred, totally refused to > consider anyone with any type of hepatitis as donors. Is this > another example of lack of knowledge on their part, or is there any > danger to the blood supply from our blood? > > Sharon G. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 No it just shows how ignorant they are. However sometimes AIH is triggered by hepatitis C. But there are tests for that and they do them when you donate anyway. They probably think you are making up a story about how your hepatitis is not contagious. I don't think those people are that well trained anyway, they run you through like cattle even tho you are trying to do a good thing. [ ] Donating blood I have a question for you all. Last year, following 9/11, I attempted to give blood. At the time I had been in remission for 7 years, was on no medication, and basically had forgotten about my AIH. However, the people in charge of the blood drive, including the supervisor with whom I was eventually transferred, totally refused to consider anyone with any type of hepatitis as donors. Is this another example of lack of knowledge on their part, or is there any danger to the blood supply from our blood? Sharon G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Dear nne, Wow what a thing to be hit with. How can they tell you that when they don't know for sure? How callous. Re: [ ] Donating blood Sharon, I had a similar experience, but even worse. I had a total hip replacement in June, and donated my own blood for the surgery, which is standard. While I was in the hospital, my doctor informed me that I wouldn't be able to donate blood anymore, except for myself, because it came up with a false/positive for HIV. When he told me this, I was on drugs and hurting, and I just laid there and cried. Of course, all I heard was the HIV part. They can do an additional test to show that I really don't have it, but it costs money, and the blood center won't do it. At that time, I was not diagnosed with AIH yet, and I didn't know what was going on. I'm still not sure that it's because of the AIH or something else screwy with my blood. But I imagine it's because of the AIH. nne [ ] Donating blood > I have a question for you all. Last year, following 9/11, I > attempted to give blood. At the time I had been in remission for 7 > years, was on no medication, and basically had forgotten about my > AIH. However, the people in charge of the blood drive, including the > supervisor with whom I was eventually transferred, totally refused to > consider anyone with any type of hepatitis as donors. Is this > another example of lack of knowledge on their part, or is there any > danger to the blood supply from our blood? > > Sharon G. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Hi everyone - It's that " H " word...family & friends started using different cutlery, cups etc when I was first DX...I was treated almost like a leper...until I found written info on AIH and let them read it. Mind you at the beginning I was just as ignorant...anyone remember seeing a red sticker on their hospital folder...alert & contagious? Most people and a lot of medics havent heard of the disease. Then again, its good to know that the screening of blood is working even if they dont get it quite right. I had a complete new supply of blood when I had my AAA op and it did cross my mind afterwards if I'd picked anything else up. Anyway, the fresh new blood made me feel like a spring lamb for a few weeks after the op....my lfts dropped to normal and stayed normal enough to get me off prednisone. Ive wondered if it was the fresh blood or whether it would have happened in any case. Love Jan [ ] Donating blood > > I have a question for you all. Last year, following 9/11, I > attempted to give blood. At the time I had been in remission for 7 > years, was on no medication, and basically had forgotten about my > AIH. However, the people in charge of the blood drive, including the > supervisor with whom I was eventually transferred, totally refused to > consider anyone with any type of hepatitis as donors. Is this > another example of lack of knowledge on their part, or is there any > danger to the blood supply from our blood? > > Sharon G. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 > I have a question for you all. Last year, following 9/11, I attempted to give blood. However, the people in charge of the blood drive, including the supervisor with whom I was eventually transferred, totally refused to consider anyone with any type of hepatitis as donors. Is this another example of lack of knowledge on their part, or is there any danger to the blood supply from our blood? > Sharon G. Sharon, With a little preparation, you should have no problem donating blood. I used to donate blood every quarter, and then when I was diagnosed I was concerned that I would be refused. I contacted United Blood Services (the unit that comes to our community for blood collection) in writing and explained my condition and my question of donating. I was told to have my GI (doctor) write a letter that explains that AIH is non-viral and also state my most recent LFT's and the medication I was taking (prednisone only at that time). That took about three weeks. I then received clearance from the director of United Blood Services to donate blood. I donated blood a couple of times. I always took the clearance letter with me and had to show it to the technicians. They always photo copied it and stapled it to my paperwork. When I began taking 6MP along with the prednisone, I knew that I would no longer be accepted as a blood donor. I always felt it was such a small sacrifice to donate blood. All it took was an hour and a little discomfort to help so many others. I miss it. Good luck to you in your quest. (in WY) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 .... I find that strange...about the blood donating thingie...when I was Dxd AIH my doctors of course could not explain why I got it but there was some disscussion about picking it up thru all the blood I have been GIVEN in the last 10 yrs. or from the new liver that I received. I think it (the cause) was even stranger to them because I in no way fit the profile of a person who gets autoimmune diseses. In any event I can't be a donor because of my slight anemia and my bone marrow cancer. But the point i'm trying to make is that it is possible the genetic defects road in on my transfusions. Go figure....it would sem that somehow the medical profession would find a definite cause for autoimmune diseases. love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Jan....so you felt like a " spring lamb " ? So, do you feel now like the.. old EWE? I'm sorry I couldn't help and I do feel a little SHEEPISH.....please don't get mad and sic your MUTT ON me..... I just kill my self.... well got to signoff it's getting a little too WOOLY i may be a wolf, but you know what kind of clothes I wear. Oh.,,oh.,oh, my sides are hurting from the SHEAR maddness I evoke..... love jerry P..S. I hope I haven't gotten your GOAT. quick some one get me a Kleenex... Quote Link to comment Share on other sites More sharing options...
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