Re: Please tell me if this is mental Physical Therapist fussed at me.

[Guest guest]

Hi Sandy,

I'm so sorry that you had to go through that! That PT is a mean

person and should get a job in a boxing arena...

You are not crazy, those are lyme symptoms and they can manifest that

way.

I was always a tough person as well, I had my daughter is 34 minutes

flat, major surgery and left the hospital within 23 hours because I

could sleep better at home. And now it's very difficult to tolerate

something that would in other ocassions just brush up on me.

Can you change your PT? You have enough to worry about without her

adding stress to your life! Furthermore the stress will weaken your

immune system.

Hang in there,

> I am just needing to cry because I have started PT for my cervical

neck.

>

> I have done this electronic traction for two days the today was the

> third.

>

> She had me do some exercise with a rubber band thing and while I

was

> doing it my back got into those twitches and jerky like things.

>

>

> This is something that I have only recently been having happen. It

is

> almost like when you use a muscle and it gets shaky because you

have

> not used it only this is much more extreme.

>

>

> She told me to stop it and then told me to just quit there was not

> reason for me to do this. Nothing medical would cause this.

>

> She was very harsh and then told me to sit down and she said that

when

> I taked it would stop.

>

> She said I would scare the other patients. Am I doing this

mentally?

>

> I feel like it is when I stay in a position for a few minutes or

maybe

> seconds longer than normal than some places start this.

>

> It is very rhythmic. It was going up and down my back.

>

> My arms do this over my head and it is only in certain positions

and I

> just need to know am I mentally doing this? I had a pinched nerve

last

> summer and my arm and hand are still numb from that. Some real

> weakness that I know is not mental.

>

>

> I know I have a mental disorder even befoe lyme I had some major

> depression and anxiety early in my life.

>

> I have alway thought I was a tought person. I have been thrown

from

> horses and just got back on and when I was pregnant I had

preeclamsia

> and had a lot of weight gain that was mostly fluid.

>

> I worked all the way until I had my daughter and times I have been

sick

> I would not give in.

>

> I don't want to be so making this up in my brain. How can I tell if

> this is a mental thing?

>

> The neuro surgeon that has me doing PT may not believe in lyme. He

> just sent me to PT because of encroachemnt on neural formania and

> bulging disk and he mentioned arthritis. Then did a lumbar MRI and

I

> have three buldging disk there.

>

> Am I crayzier than I thought I was ?

>

>

> Sandy

[Guest guest]

<<<The neuro surgeon that has me doing PT may not believe in lyme. He just sent

me to PT because of encroachemnt on neural formania and bulging disk and he

mentioned arthritis. Then did a lumbar MRI and I have three buldging disk

there.

Am I crayzier than I thought I was ?>>>>

Sandy,

You are not crazy..............the MRI itself is showing you that there is a

problem in your back.

I also had bulging disks in my back......I had pain in my back and in my right

hip. So bad in the hip I would limp, and had lots of trouble getting up from a

sitting position.

Unfortunately, the PT I received in my local area, did not help me at all. So I

drove an hour away to see a Neurosurgeon. He sent me to Kessler Institute (one

of the top PT facitlities on the East Coast).

My PT dx the problem as my S-I joint in my hip. I have had three S-I joint

injections along with plenty of PT over 8 months. I must say the pain is gone,

I no longer limp, and I get right up from sitting without hesitation. ..I owe

all that to my Physical Therapist.

I think you should find a different facility for your PT............a good

Physical Therapist should be able to figure out what is going on and help you to

return a functional level with your back........my PT never said she couldn't

help me..in fact they believe many times the MRI doesn't tell the WHOLE story.

Scare the other patients............are you kidding!!!

Start looking for another PT.

Conniek

[Guest guest]

Connie - strictly from a health professional's perspective, your PT

is not...professional, I mean. As far as I am concerned, once you

told her that the movements were not voluntary, she should have

accepted that and dealt with it. Haranging you and casting aspersion

on your character is strictly off limits. If it's possible, finding

a more patient-friendly rehab group would be a good choice, IMHO.

Diane

> > <<<The neuro surgeon that has me doing PT may not believe in

lyme.

> He just sent me to PT because of encroachemnt on neural formania

and

> bulging disk and he mentioned arthritis. Then did a lumbar MRI

and I

> have three buldging disk there.

> > Am I crayzier than I thought I was ?>>>>

> >

> > Sandy,

> >

> > You are not crazy..............the MRI itself is showing you

that

> there is a problem in your back.

> > I also had bulging disks in my back......I had pain in my back

and

> in my right hip. So bad in the hip I would limp, and had lots of

> trouble getting up from a sitting position.

> >

> > Unfortunately, the PT I received in my local area, did not help

me

> at all. So I drove an hour away to see a Neurosurgeon. He sent

me

> to Kessler Institute (one of the top PT facitlities on the East

> Coast).

> > My PT dx the problem as my S-I joint in my hip. I have had

three S-

> I joint injections along with plenty of PT over 8 months. I must

> say the pain is gone, I no longer limp, and I get right up from

> sitting without hesitation. ..I owe all that to my Physical

Therapist.

> >

> > I think you should find a different facility for your

> PT............a good Physical Therapist should be able to figure

out

> what is going on and help you to return a functional level with

your

> back........my PT never said she couldn't help me..in fact they

> believe many times the MRI doesn't tell the WHOLE story.

> > Scare the other patients............are you kidding!!!

> >

> > Start looking for another PT.

> > Conniek

> >

> >

> >

> >

[Guest guest]

Sandy,

Your not any crazier then me ;-)

Have you had your daughter checked for Lyme? When my wife was

pregnant with our son she also had preeclamsia and gained a lot of

weight. She has a problem with her hip as well. Turns out that our

son has Lyme. We discovered this when he was 12 months old. He was

born with two minor birth defects. He has a red splotch on his

shoulder blade and he had minor urethra (I think that's correct)

that was corrrected with a minor surgery. My wife also has it. We

never saw an EM rash or tick on either of them and I have never seen

a tick on any of the three of us in the past 2 years. I suspect

that I gave it to my wife and she in turn gave it to my son. The

doctors claim that this couldn't have happened because they say we

have different strains, who knows???

Please don't every take that type of treatment from a health care

provider. Your the boss!

8 months ago I was having terrible neurological problems coupled

with mental anguish, stress and panic attacks. It got so bad one

day that the doctors office had called to tell me that an opening

had come up and they just needed my information to book that time

for me. They asked me my address and my home phone number and I

couldn't tell them! I had been having bad Lyme brain, going from

room to room not knowing why I was there, I was getting lost in my

own house. Since then I have been getting noticable better. I told

my dr. that she had cured the problem of men never knowing

directions when driving :-)

Stick with it and seak a better PT. Look for one that has

experience with Lyme patients.

Be well,

> I am just needing to cry because I have started PT for my cervical

neck.

>

> I have done this electronic traction for two days the today was

the

> third.

>

> She had me do some exercise with a rubber band thing and while I

was

> doing it my back got into those twitches and jerky like things.

>

>

> This is something that I have only recently been having happen.

It is

> almost like when you use a muscle and it gets shaky because you

have

> not used it only this is much more extreme.

>

>

> She told me to stop it and then told me to just quit there was not

> reason for me to do this. Nothing medical would cause this.

>

> She was very harsh and then told me to sit down and she said that

when

> I taked it would stop.

>

> She said I would scare the other patients. Am I doing this

mentally?

>

> I feel like it is when I stay in a position for a few minutes or

maybe

> seconds longer than normal than some places start this.

>

> It is very rhythmic. It was going up and down my back.

>

> My arms do this over my head and it is only in certain positions

and I

> just need to know am I mentally doing this? I had a pinched nerve

last

> summer and my arm and hand are still numb from that. Some real

> weakness that I know is not mental.

>

>

> I know I have a mental disorder even befoe lyme I had some major

> depression and anxiety early in my life.

>

> I have alway thought I was a tought person. I have been thrown

from

> horses and just got back on and when I was pregnant I had

preeclamsia

> and had a lot of weight gain that was mostly fluid.

>

> I worked all the way until I had my daughter and times I have been

sick

> I would not give in.

>

> I don't want to be so making this up in my brain. How can I tell

if

> this is a mental thing?

>

> The neuro surgeon that has me doing PT may not believe in lyme.

He

> just sent me to PT because of encroachemnt on neural formania and

> bulging disk and he mentioned arthritis. Then did a lumbar MRI

and I

> have three buldging disk there.

>

> Am I crayzier than I thought I was ?

>

>

> Sandy

[Guest guest]

<Connie - strictly from a health professional's perspective, your PT

is not...professional, I mean.>>

Diane,

I didn't post anything about my PT not being professional..

I think you meant this post for Sandy,

In fact, my PT was terrific........and I am writing a letter to her supervisor

stating such,

Connie

[Guest guest]

Dear Sandy,

No you are not crazy, I also got the same crap from my MD's before I was

diagnosed with lyme. I kept getting muscle twitches up and down my

legs...usually my right one. I went to my MD and she said it was stress

related (because I was planning a wedding and about to get married), she

said " maybe your body and mind are telling you that you don't want to get

married. " I was furious, I still haven't seen her since then. trust

me...it is probably lyme related or something else. But I don't think it's

all in your head. i see a neurologist as well, he knows about my lyme but

he is also curious about MS becuase I am getting symtoms related to that as

well. it's so tough to have all these strange feelings going on in your

body, but stay strong...and if possible avoid that PT! Good Luck

writes:

[Guest guest]

dear sandy,

i'm so sorry that you had to suffer this unkind treatment from your health

provider, uncompassionately adding to the stress that you are already

dealing with. in situations like this, i have to remind myself that people

often act like the pt did because they are frustrated by their ignorance of

what is going on, they don't know how to help, and unfortunately, they are

not strong enough to admit that they don;t know.

i have also experienced spasms and tremors, some of my most obvious and

strange symptoms three years ago. i saw two neurologists. one called it

stress-related, the other referred me to psychiatrist. neither would

consider anything related to lyme (or to the nerve damage i had in my neck

from fall down stairs). both spasms and tremors have significantly

diminished this year since treatment for lyme.

be kind to yourself. you are doing everything you can to help your healing.

deep peace,

kendra

[Guest guest]

Connie - you are so right - I did mean the message for Sandy. I am

glad your p/t is such a good one. I am in rehab for knee replacement

and neck stuff(I think it is Lyme related). I was telling my therapist

about Sandy's experience and she was appalled!!

Diane

> <Connie - strictly from a health professional's perspective, your PT

> is not...professional, I mean.>>

>

> Diane,

> I didn't post anything about my PT not being professional..

> I think you meant this post for Sandy,

> In fact, my PT was terrific........and I am writing a letter to her

supervisor stating such,

>

> Connie

>

>

[Guest guest]

> Am I crayzier than I thought I was ?

>

> Sandy

Dear Sandy,

May I offer the possibility that you are more sane than you think?

Scaring the other patients? What an inappropriate thing to say. I think the

PT didn't understand what was happening, had to pretend she did, and got

scared as well. Not a very professional reaction.

Best,

Deanna