Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 My son's only lyme symptom......the crescent markings in his throat......yet I had him tested because of his slapped cheek look and red ears (sometimes) and.... so many family members have lyme. His test (Igenex positive) showed an exposure in the past. The llmd is having him do the urine challenge test now. The llmd also does not know what is going on with his slapped cheeks but she talked of rosecea as a possibility. Anyway when I googled rosecea I went on sites and looked at natural alternatives. I read there is a depletion of B vitamins. There were a number of products to try, also. If you can't find the website - email me and I will look again because I did not bookmark it. --- bluesky <bluesky@...> wrote: > Hello all, > > Can anyone point me in the direction of an article > or website that describes > Lyme flushing? I've only recently heard about it > and don't know anything > about it. > > On a related topic, I've been having lots of skin > problems with the cold dry > weather. This happens every year, but this year > seems worse. When this > started I also got some bright red spots on my face > that looked different > than the typical dryness, chapping, and reaction to > the cold. > > A dermatologist gave a tentative diagnosis of > rosacea. Doing some initial > reading and seeing pictures of it online, I believe > that's what I have. > > I'm trying to learn about both the Lyme flushing and > rosacea. And I wonder > if there's a connection. Should anyone be able to > help me with some info or > some resources for research I'd appreciate it. I > would really like to avoid > having a nose like W.C. Fields. > http://www.skinema.com/Act5cea.html > > My searching so far shows almost nothing in the way > of natural treatment for > the rosacea. Only chemicals and antibiotics. With > my chemical > sensitivities and lack of tolerance for antibiotics > after using them for > four years, I really want to find a better way to > heal. > > Thanks. > > Be well, > Deanna > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Janis On Autism Enzymes (or other way around)a group, they talk about problems with phenols (certain foods contain this) causing the red ears. It's a very knowledgable group about supplements, but not Lyme. THey use digestive enzymes with many positives for this. My son also has this most all of the time, but I don't have control over his eating habits- he is positive for Lyme and has the diag for Attention Deficit Disorder. He tested low in Biotin and B6, but don't know if this is the direct reason. Take care Rose Marie > > > Hello all, > > > > Can anyone point me in the direction of an article > > or website that describes > > Lyme flushing? I've only recently heard about it > > and don't know anything > > about it. > > > > On a related topic, I've been having lots of skin > > problems with the cold dry > > weather. This happens every year, but this year > > seems worse. When this > > started I also got some bright red spots on my face > > that looked different > > than the typical dryness, chapping, and reaction to > > the cold. > > > > A dermatologist gave a tentative diagnosis of > > rosacea. Doing some initial > > reading and seeing pictures of it online, I believe > > that's what I have. > > > > I'm trying to learn about both the Lyme flushing and > > rosacea. And I wonder > > if there's a connection. Should anyone be able to > > help me with some info or > > some resources for research I'd appreciate it. I > > would really like to avoid > > having a nose like W.C. Fields. > > http://www.skinema.com/Act5cea.html > > > > My searching so far shows almost nothing in the way > > of natural treatment for > > the rosacea. Only chemicals and antibiotics. With > > my chemical > > sensitivities and lack of tolerance for antibiotics > > after using them for > > four years, I really want to find a better way to > > heal. > > > > Thanks. > > > > Be well, > > Deanna > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Hi Deanna, I have all kinds of strange skin things going on since lyme. I too have been diagnosed with cea. I also have red scabby places on my face from what is diagnosed as seborrhetic keratosis that eventually turn brown. Then I have small pimples which dry up all over my body and make a minute scab. My doc prescribed Differin for the scabby places on my face and Nortate for the cea, but I quit using them because I am on soooo many other meds now. cooky > > Hello all, > > Can anyone point me in the direction of an article or website that describes > Lyme flushing? I've only recently heard about it and don't know anything > about it. > > On a related topic, I've been having lots of skin problems with the cold dry > weather. This happens every year, but this year seems worse. When this > started I also got some bright red spots on my face that looked different > than the typical dryness, chapping, and reaction to the cold. > > A dermatologist gave a tentative diagnosis of rosacea. Doing some initial > reading and seeing pictures of it online, I believe that's what I have. > > I'm trying to learn about both the Lyme flushing and rosacea. And I wonder > if there's a connection. Should anyone be able to help me with some info or > some resources for research I'd appreciate it. I would really like to avoid > having a nose like W.C. Fields. http://www.skinema.com/Act5cea.html > > My searching so far shows almost nothing in the way of natural treatment for > the rosacea. Only chemicals and antibiotics. With my chemical > sensitivities and lack of tolerance for antibiotics after using them for > four years, I really want to find a better way to heal. > > Thanks. > > Be well, > Deanna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Rose Marie My son is 26 and I too don't have much influence over his food choices even though he lives at home while finishing college. So what do I plug in for that website? I wonder if my son should have muscle testing to see what all would benefit him. He is angry to think he might also have lyme like the rest of us. He was out of state for two years but his g'friend who grew up in Poughkeepsi had lyme as an elementary student. (I digress with all this info you don't need.) He also only has student insurance. Yikes! His very ill brother who sees Dr. B., thank God, is cobra(d) with our very fine insurance. Thank you and I will try finding the autismenzyme site. Is there something you do differently to find a group? I don't remember how I found this lyme group. Janis --- fancy1413 <fancy1413@...> wrote: > Janis > On Autism Enzymes (or other way around)a > group, they talk > about problems with phenols (certain foods contain > this) causing the > red ears. It's a very knowledgable group about > supplements, but not > Lyme. THey use digestive enzymes with many positives > for this. My > son also has this most all of the time, but I don't > have control > over his eating habits- he is positive for Lyme and > has the diag for > Attention Deficit Disorder. He tested low in Biotin > and B6, but > don't know if this is the direct reason. Take care > Rose Marie > > > > > > > Hello all, > > > > > > Can anyone point me in the direction of an > article > > > or website that describes > > > Lyme flushing? I've only recently heard about > it > > > and don't know anything > > > about it. > > > > > > On a related topic, I've been having lots of > skin > > > problems with the cold dry > > > weather. This happens every year, but this year > > > seems worse. When this > > > started I also got some bright red spots on my > face > > > that looked different > > > than the typical dryness, chapping, and reaction > to > > > the cold. > > > > > > A dermatologist gave a tentative diagnosis of > > > rosacea. Doing some initial > > > reading and seeing pictures of it online, I > believe > > > that's what I have. > > > > > > I'm trying to learn about both the Lyme flushing > and > > > rosacea. And I wonder > > > if there's a connection. Should anyone be able > to > > > help me with some info or > > > some resources for research I'd appreciate it. > I > > > would really like to avoid > > > having a nose like W.C. Fields. > > > http://www.skinema.com/Act5cea.html > > > > > > My searching so far shows almost nothing in the > way > > > of natural treatment for > > > the rosacea. Only chemicals and antibiotics. > With > > > my chemical > > > sensitivities and lack of tolerance for > antibiotics > > > after using them for > > > four years, I really want to find a better way > to > > > heal. > > > > > > Thanks. > > > > > > Be well, > > > Deanna > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Janis Would you believe I don't know how to find their address to paste it in here- I'm sorry. It's called Enzymesandautism I think you search and then write this one in. I don't remember how to do it. Am sorry. Yes mine's 19 and angry also about all the supplements, lyme, the world sometimes.Tonight again is the same problems. You coud also google phenols too to read more. If you can't control the diet he probably won't do it unless he sees it helping. It's the pits. THey have to try this for awhile and then they'll see postives, but they won't. The probiotics, if you can get him to take them from what I've read will help to produce some B vits and it'll help some with the yeast too. We take CP1 from Custom Probiotics. I give son 4 a day and I and husband take 3. The fellow we get them from said you could go up to 6 without a problem, esp since husband and I are on antibiotics for lyme. I also take Candex, Nystatin, and Diflucan for this. Take care Rose Marie > > Rose Marie > > My son is 26 and I too don't have much influence over > his food choices even though he lives at home while > finishing college. > > So what do I plug in for that website? > > I wonder if my son should have muscle testing to see > what all would benefit him. He is angry to think he > might also have lyme like the rest of us. He was out > of state for two years but his g'friend who grew up in > Poughkeepsi had lyme as an elementary student. (I > digress with all this info you don't need.) He also > only has student insurance. Yikes! His very ill > brother who sees Dr. B., thank God, is cobra(d) with > our very fine insurance. > > Thank you and I will try finding the autismenzyme > site. Is there something you do differently to find a > group? I don't remember how I found this > lyme group. > > Janis > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Thanks Rose Marie I did get to the thousands of . didn't find it but I did not think to type it in......I did not look on the page for a search. I will go back to the page again. I also have a 19 and 23 year old with lyme - one son has been very ill for 6 years & the other for a year. So my 26 year old does not want to go thru what they are going thru. --- fancy1413 <fancy1413@...> wrote: > Janis > Would you believe I don't know how to find their > address to paste it > in here- I'm sorry. It's called > Enzymesandautism I > think you search and then write this > one in. I don't > remember how to do it. Am sorry. > Yes mine's 19 and angry also about all the > supplements, lyme, the > world sometimes.Tonight again is the same problems. > You coud also google phenols too to read more. If > you can't control > the diet he probably won't do it unless he sees it > helping. It's the > pits. THey have to try this for awhile and then > they'll see > postives, but they won't. > The probiotics, if you can get him to take them from > what I've read > will help to produce some B vits and it'll help some > with the yeast > too. We take CP1 from Custom Probiotics. I give son > 4 a day and I > and husband take 3. The fellow we get them from said > you could go up > to 6 without a problem, esp since husband and I are > on antibiotics > for lyme. I also take Candex, Nystatin, and Diflucan > for this. > Take care > Rose Marie > > > > > > Rose Marie > > > > My son is 26 and I too don't have much influence > over > > his food choices even though he lives at home > while > > finishing college. > > > > So what do I plug in for that website? > > > > I wonder if my son should have muscle testing to > see > > what all would benefit him. He is angry to think > he > > might also have lyme like the rest of us. He was > out > > of state for two years but his g'friend who grew > up in > > Poughkeepsi had lyme as an elementary student. (I > > digress with all this info you don't need.) He > also > > only has student insurance. Yikes! His very ill > > brother who sees Dr. B., thank God, is cobra(d) > with > > our very fine insurance. > > > > Thank you and I will try finding the autismenzyme > > site. Is there something you do differently to > find a > > group? I don't remember how I found this > > > lyme group. > > > > Janis > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Janis I just got done reading a book called Mold Warriors by Ritchie Shoemaker he's a dr out in land. It makes so much sense!! He talks about Lyme releasing toxins also, same way that mold does. I would highly reccommend getting this book and reading it. I'm going to ask our LLMD about it and being checked for some of the markers, am hoping to do all of us. It would answer so many questions and then we'd be able hopefully to follow this dr's protocol and see. I bought it off of his website- $21 it was very well worth it to me. www.chronicneurotoxins.com I would think that yeast die-of would also create toxins. Yep son is 19, daughter is 24 and she's reading more, but I think it's just too much for him to get his mind around. If only he'd get to eating healthy and drinking more water, but... Oh I go onto the groups site to read the messages and I noticed that the enzyme addy in the message I wrote you can just click on. You would have to join the group I think, esp to post, wonderful group of people tho. Take care Rose Marie > > Thanks Rose Marie > > I did get to the thousands of . didn't > find it but I did not think to type it in......I did > not look on the page for a search. I will go back to > the page again. > > I also have a 19 and 23 year old with lyme - one son > has been very ill for 6 years & the other for a year. > So my 26 year old does not want to go thru what they > are going thru. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 I attended a lyme monthly meeting in D.C. recently and a fellow in the audience is only following Shoemaker's protocol and having success. Dr. Burrascano had my son detox with cholestyramine (sp) before he put my son on abx. Do you feel that my son with rosecea could benefit from Shoemaker's suggestions? I purchased the Rife book and the Healing Lyme with herbs book that is recommended on the lymenet forum. Do you post there? My user name is valymemom. Just recently 6 of us in the northern VA area started meeting for lunch and to exchange ideas about the protocols and docs our kids are seeing. Three other women have lyme like me. It's been nice talking with you. --- fancy1413 <fancy1413@...> wrote: > Janis > I just got done reading a book called Mold Warriors > by Ritchie > Shoemaker he's a dr out in land. It makes so > much sense!! He > talks about Lyme releasing toxins also, same way > that mold does. I > would highly reccommend getting this book and > reading it. I'm going > to ask our LLMD about it and being checked for some > of the markers, > am hoping to do all of us. It would answer so many > questions and > then we'd be able hopefully to follow this dr's > protocol and see. I > bought it off of his website- $21 it was very well > worth it to me. > www.chronicneurotoxins.com I would think that yeast > die-of would > also create toxins. Yep son is 19, daughter is 24 > and she's reading > more, but I think it's just too much for him to get > his mind around. > If only he'd get to eating healthy and drinking more > water, but... > Oh I go onto the groups site to read the > messages and I noticed > that the enzyme addy in the message I wrote you can > just click on. > You would have to join the group I think, esp to > post, wonderful > group of people tho. > Take care Rose Marie > > > > > > Thanks Rose Marie > > > > I did get to the thousands of . > didn't > > find it but I did not think to type it in......I > did > > not look on the page for a search. I will go back > to > > the page again. > > > > I also have a 19 and 23 year old with lyme - one > son > > has been very ill for 6 years & the other for a > year. > > So my 26 year old does not want to go thru what > they > > are going thru. > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Janis I don't know I assume so, but this is something I want to talk with our LLMD about. The rosecea I've seen posted about on the autism enzyme group, but I can't remember specifically what was said. I know I'm glad I got the book and read it. Gosh Dr B! Have you asked him? He's like the father of healing folks- I would think he may have an idea. No I've not been on Lymenet, what's the addy? This is wonderful to get together with others! Others many times can see/think of things that we can't cos we're so close to the problem. There's also a book Herbal antibiotics by Buhner- I got it,but haven't started anything from it as we're doing reg antibiotics and frankly I don't know how to fit everything else in and I've reached my max for detox with the Flagyl 1/4 tab every other day at the moment. I'm looking/thinking/trying to get up the courage to try Detox max from our LLMD, but haven't yet. Same here- maybe post what you do find out. Take care Rose Marie > > I attended a lyme monthly meeting in D.C. recently and > a fellow in the audience is only following Shoemaker's > protocol and having success. Dr. Burrascano had my > son detox with cholestyramine (sp) before he put my > son on abx. > > Do you feel that my son with rosecea could benefit > from Shoemaker's suggestions? > > I purchased the Rife book and the Healing Lyme with > herbs book that is recommended on the lymenet forum. > Do you post there? My user name is valymemom. > > Just recently 6 of us in the northern VA area started > meeting for lunch and to exchange ideas about the > protocols and docs our kids are seeing. Three other > women have lyme like me. > > It's been nice talking with you. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.