Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 > Dear Friends, > > I don't know about you, but I am both angry and tired of seeing the > CDC Surveilance Criteria as the only mode of being COUNTED! > > They Want Numbers ... Let's Give them Numbers! > > I found this nifty little site which hosts Petitions for free, and I > decided I need a positive way to channel this pent up energy of > constantly reading how there are only 25,000 case of Lyme Disease! > > So I started an electronic petition. My Goal is to get 250,000 > signatures, and will make the results of the Petition available to > everybody who wants it. This Petition also allows for people to sign > anonomously. > > Dog Gone it > > LYME DISEASE IS A CLINICAL DIAGNOSIS! > > And it is high time WE GET COUNTED. > > PLEASE HELP ME to distribute this to everyone you know. > > To add your name to this petition go to: > > http://www.thePetitionSite.com/takeaction/491421206 > > > Reminder, you can only sign the petition once. And if you do not > have Lyme Disease, please do not sign. > > ---- > > > I have just read and signed the petition: > > Lyme Disease Patients " WE COUNT " > > http://www.thePetitionSite.com/takeaction/491421206 > > If you have been Diagnosed with Lyme Disease, please take a moment to > sign this Petition. > > This petition will be open for one year. > > The CDC surveillance criteria causes Lyme Disease to be under > reported. > > Many of us who suffer from this Disease are NOT being Counted. > > This Petition will be sent to our Senators, Congressmen, and Public > Health Departments to let them know ... > > WE DO COUNT! > > WE DESERVE TO BE COUNTED! > > LYME DISEASE is a Clinical Diagnosis! > > Please Sign this Petition if you have been Clinically Diagnosed with > Lyme Disease. > > NOTE: If you have not been Clinically Diagnosed with Lyme Disease, > please DO NOT sign this petition. > > Remember YOU DO COUNT! > > One by One we are Finding Each Other > > One by One we are Finding We are NOT Alone > > Together We CAN Make a Difference! > > --- If you know of someone who has Lyme Disease, please take a moment > to forward this Email to them. --- > > It takes 30 seconds and will really help. > > Please follow this link: > > The system centralizes signature collection to provide consolidated, > useful reports for petition authors and targets. Please forward this > email to others you believe share your concern. > > To view additional petitions, please click here: > > http://www.thePetitionSite.com > > Thank you > is > > Total Signatures: 1 > The 1st signature* as of 2:38 AM PDT Jul 21, 2005 > > # 1 7/21/05 2:35 AM is Benkowski, Federal Way, WA, US > > To add your name to this petition go to: > > http://www.thePetitionSite.com/takeaction/491421206 > > *Signers may choose to hide their identity to the public. Such names > will appear as " Anonymous " on the PetitionSite.com and advocacy > emails similar to this. (The signature number above may not match the > number assigned to your signature on the first page of the petition.) > > To view additional petitions, please click here: > http://www.thePetitionSite.com HI ALEXIS! GOOD FOR YOU! Thanks for the phone calls by the way and I am sorry I did not call you when I was in Seattle. I was only there for two days and we had too much to do, but I still do want to talk more to you. Hey, I am going to send your petition to my whole lyme group mail list, over 150 people if that is ok with you? I am sure you won't mind. Give me a call or email me as well. I still want to chat about the state stuff. Are you on the support group leaders email group list? I can tell you about that. in Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 Dear is, I live in Rhode Island and our local paper had a whole article about this exact controversy. I thank you for the petition which I signed. Good Luck! is writes: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 > HI ALEXIS! GOOD FOR YOU! Thanks for the phone calls by the way and > I am sorry I did not call you when I was in Seattle. I was only > there for two days and we had too much to do, but I still do want to > talk more to you. Hey, I am going to send your petition to my whole > lyme group mail list, over 150 people if that is ok with you? I am > sure you won't mind. Give me a call or email me as well. I still > want to chat about the state stuff. Are you on the support group > leaders email group list? I can tell you about that. > > in Arizona Hey Hi : LOL ... now I am going out of town ... LOL But one of these days we will get a chance to sit and chat. YES YES YES ... PLEASE DISTRIBUTE PETITION TO AS MANY PEOPLE AND BOARDS YOU KNOW OF. I see it as the ultimate in " chain-letters " with a purpose. LOL I know many folks aren't on boards or are on other boards ... so I am hoping folks will continue to just run with it. Of course this morning when I woke up, I thought of a few more things I would have/should have captured (info wise) ... but oh well, too late now. Last time I checked we already had 59 signatures --- in what 4 hours or so? I think it will be great for all the leaders to get a copy of the final results, so they have some ammunition of being able to say ... hey I've got 300 people in Florida ... yet CDC only counted 10 in 5 years. What's up with that. LOL. Burocrates love numbers! So heck ... lets give them numbers! Hugs, is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 is, My wife, son and I all signed it! All, Please take a moment and consider signing the petition. The more names we get the more momentum our cause will have. Be well, > Dear Friends, > > I don't know about you, but I am both angry and tired of seeing the > CDC Surveilance Criteria as the only mode of being COUNTED! > > They Want Numbers ... Let's Give them Numbers! > > I found this nifty little site which hosts Petitions for free, and I > decided I need a positive way to channel this pent up energy of > constantly reading how there are only 25,000 case of Lyme Disease! > > So I started an electronic petition. My Goal is to get 250,000 > signatures, and will make the results of the Petition available to > everybody who wants it. This Petition also allows for people to sign > anonomously. > > Dog Gone it > > LYME DISEASE IS A CLINICAL DIAGNOSIS! > > And it is high time WE GET COUNTED. > > PLEASE HELP ME to distribute this to everyone you know. > > To add your name to this petition go to: > > http://www.thePetitionSite.com/takeaction/491421206 > > > Reminder, you can only sign the petition once. And if you do not > have Lyme Disease, please do not sign. > > ---- > > > I have just read and signed the petition: > > Lyme Disease Patients " WE COUNT " > > http://www.thePetitionSite.com/takeaction/491421206 > > If you have been Diagnosed with Lyme Disease, please take a moment to > sign this Petition. > > This petition will be open for one year. > > The CDC surveillance criteria causes Lyme Disease to be under > reported. > > Many of us who suffer from this Disease are NOT being Counted. > > This Petition will be sent to our Senators, Congressmen, and Public > Health Departments to let them know ... > > WE DO COUNT! > > WE DESERVE TO BE COUNTED! > > LYME DISEASE is a Clinical Diagnosis! > > Please Sign this Petition if you have been Clinically Diagnosed with > Lyme Disease. > > NOTE: If you have not been Clinically Diagnosed with Lyme Disease, > please DO NOT sign this petition. > > Remember YOU DO COUNT! > > One by One we are Finding Each Other > > One by One we are Finding We are NOT Alone > > Together We CAN Make a Difference! > > --- If you know of someone who has Lyme Disease, please take a moment > to forward this Email to them. --- > > It takes 30 seconds and will really help. > > Please follow this link: > > The system centralizes signature collection to provide consolidated, > useful reports for petition authors and targets. Please forward this > email to others you believe share your concern. > > To view additional petitions, please click here: > > http://www.thePetitionSite.com > > Thank you > is > > Total Signatures: 1 > The 1st signature* as of 2:38 AM PDT Jul 21, 2005 > > # 1 7/21/05 2:35 AM is Benkowski, Federal Way, WA, US > > To add your name to this petition go to: > > http://www.thePetitionSite.com/takeaction/491421206 > > *Signers may choose to hide their identity to the public. Such names > will appear as " Anonymous " on the PetitionSite.com and advocacy > emails similar to this. (The signature number above may not match the > number assigned to your signature on the first page of the petition.) > > To view additional petitions, please click here: > http://www.thePetitionSite.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 Thanks so much ! In less than a week we have a little over 300 signatures. But your right ... we need to keep the momentum going. The stories are amazing! It really hits you when you see so many people with similar stories from all around the country. Again thanks for taking the time to be counted! Sincerely, is > > Dear Friends, > > > > I don't know about you, but I am both angry and tired of seeing the > > CDC Surveilance Criteria as the only mode of being COUNTED! > > > > They Want Numbers ... Let's Give them Numbers! > > > > I found this nifty little site which hosts Petitions for free, and > I > > decided I need a positive way to channel this pent up energy of > > constantly reading how there are only 25,000 case of Lyme Disease! > > > > So I started an electronic petition. My Goal is to get 250,000 > > signatures, and will make the results of the Petition available to > > everybody who wants it. This Petition also allows for people to > sign > > anonomously. > > > > Dog Gone it > > > > LYME DISEASE IS A CLINICAL DIAGNOSIS! > > > > And it is high time WE GET COUNTED. > > > > PLEASE HELP ME to distribute this to everyone you know. > > > > To add your name to this petition go to: > > > > http://www.thePetitionSite.com/takeaction/491421206 > > > > > > Reminder, you can only sign the petition once. And if you do not > > have Lyme Disease, please do not sign. > > > > ---- > > > > > > I have just read and signed the petition: > > > > Lyme Disease Patients " WE COUNT " > > > > http://www.thePetitionSite.com/takeaction/491421206 > > > > If you have been Diagnosed with Lyme Disease, please take a moment > to > > sign this Petition. > > > > This petition will be open for one year. > > > > The CDC surveillance criteria causes Lyme Disease to be under > > reported. > > > > Many of us who suffer from this Disease are NOT being Counted. > > > > This Petition will be sent to our Senators, Congressmen, and Public > > Health Departments to let them know ... > > > > WE DO COUNT! > > > > WE DESERVE TO BE COUNTED! > > > > LYME DISEASE is a Clinical Diagnosis! > > > > Please Sign this Petition if you have been Clinically Diagnosed > with > > Lyme Disease. > > > > NOTE: If you have not been Clinically Diagnosed with Lyme Disease, > > please DO NOT sign this petition. > > > > Remember YOU DO COUNT! > > > > One by One we are Finding Each Other > > > > One by One we are Finding We are NOT Alone > > > > Together We CAN Make a Difference! > > > > --- If you know of someone who has Lyme Disease, please take a > moment > > to forward this Email to them. --- > > > > It takes 30 seconds and will really help. > > > > Please follow this link: > > > > The system centralizes signature collection to provide > consolidated, > > useful reports for petition authors and targets. Please forward > this > > email to others you believe share your concern. > > > > To view additional petitions, please click here: > > > > http://www.thePetitionSite.com > > > > Thank you > > is > > > > Total Signatures: 1 > > The 1st signature* as of 2:38 AM PDT Jul 21, 2005 > > > > # 1 7/21/05 2:35 AM is Benkowski, Federal Way, WA, US > > > > To add your name to this petition go to: > > > > http://www.thePetitionSite.com/takeaction/491421206 > > > > *Signers may choose to hide their identity to the public. Such > names > > will appear as " Anonymous " on the PetitionSite.com and advocacy > > emails similar to this. (The signature number above may not match > the > > number assigned to your signature on the first page of the > petition.) > > > > To view additional petitions, please click here: > > http://www.thePetitionSite.com Quote Link to comment Share on other sites More sharing options...
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