Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 She is the offical spokesperson for lyme for the Lyme Association. Her I believe brother in law or a cousin died of lyme. --- Connie Siese <Cslyme@...> wrote: > HI, > > MJF tested positive for Lyme many years ago, I > think I originally read > the " original " article on Art Doherty's site at > geocities. But one of the > " other " doctors told him he couldn't possibly have > lyme. He still doesn't > have a clue when others on his TV set came down with > " Parkinsons " SHEESH. > Art has probably 10,000 articles. Don't ever give > up. Start a support > group in your area.........be your own group, have > control over your own > donations. United we stand. It is a matter of > plugging away at it a little > at a time. Try and get a reporter to do a story on > you that will bring > attention to Lyme in your area. You wouldn't believe > how many people will > call. Just start as a grass roots group until you > are sure what your goals > are.Write to all those people again. If they get > enough letters they may > listen. I always do paper letters, not e-mail, they > can delete it, but > someone has to open the paper letter. I kept > checking the big office supply > stores sale and clearance tables and got some super > nice expensive stuff for > almost nothing. Keep your letters to the > point...........don't tell every > single detail......one to one and a half pages in > good print is good. Get > their attention.Quote anything you can that is true > and you can back up. > Always thank them for their time. > > Now that I have rattled on......I guess I should > start my letter campaigns > again. You may always write to me privately and I > will help. > > Hugs, > Connie, Michigan > [ ] Re: Question - national > recognition day? > > > > > > OH, > > R. Gere the big movie star? > > Has he supposedly felt bad? > > > > I knew MJ Fox had Parkinson. Does he give any > reconigition to that > > being from lyme? > > > > I know that Amy Tan has spoken about it. I heard > something about the > > actress Mcdonald speaking but I didn't know > if she had a > > connection to the illness. > > Well as sad as it is there is going to be others. > > > > > > > >> >> Sandy, > >> >> > >> >> Yes. We need to raise conciousness. I would > recommend a grass > >> >> roots target marketing campiagn where we would > send letters and > >> >> emails to targeted decision makers in D.C., at > the same time try > >> > and > >> >> get some celebrity sponsorship (perhaps > writing Oprah, Montel > >> >> , The Ellen DeGeneres Show...) and > then follow it up by a > >> >> March on Washington. We need to get the word > out to anyone that > >> > has > >> >> been effected to join us, either the ones > effected families or > >> >> friends. > >> >> > >> >> If that's what you had in mind let me know how > I can help. > >> >> > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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