Please help!

[Guest guest]

Hello Fiona

Know that your father loves you and does not expect you to be able to

solve his problems for him. You are their for him, that's all that

anyone who's chronically sick can hope for.

My older sister worries about me too much, she's a GP herself and feels

the pressure of my condition on her shoulders. I wish she wouldn't

worry so.

Regards,

Fiona wrote:

> Hi, I have joined some of these lists on behalf of my dad, with the

> hope that somebody might be able to help him. Here's a brief

> history:- My dad is 59. Many years ago he had a motorcycle accident

> and hurt his back, but over time it got better and for many years he

> lived a normal working life. He also has psoriasis. Over the years he

> had spells when his back got bad, but with physio and treatment he

> improved. Then about 12-13 years ago it got really bad, causing him a

> great deal of pain; and for the past 10 years he has been off work,

> now permanently disabled. Tests etc showed that his condition is quite

> complicated - he had several slipped discs with a trapped nerve which

> is calcified, and the bottom of his spine is crumbling. He gets severe

> sciatic (sp?) pain which affects his legs , feet and toes. He also now

> has psoriatic arthritis, and his psoriasis is very bad. Over the years

> he has had courses of physio, various pain meds etc etc etc... There

> is no operation that can help, and would probably leave him in a

> wheelchair. Anyway, since Christmas he has gone downhill very fast. He

> can no longer drive and is in agony nearly all the time. He is

> spending nearly all his time laying on his side in bed (he is getting

> alot of pain in the base of his spine and can't sit), and hardly ever

> comes downstairs. He has been on methotrexate, but it made him feel

> too bad. He cannot bear to have physio with the pain he has. In the

> past he has used a TENS machine, but didn't find it much use. We have

> a very understanding GP, but he doesn't really know what else to do at

> the moment. Dad is now taking morphine for the pain, but he is still

> in quite alot of pain. The meds is making him very constipated, and

> the straining is making his pain worse. He also looks and feels so ill

> in himself and is getting very depressed. I feel so helpless and

> desperately want to be able to help him. If anyone has any idea's

> please let me know - I don't want him to suffer any more. The GP is

> coming to see him tomorrow, so maybe he will have another idea. Please

> Help. love

> Fiona

> *~*~*

>

>

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[Guest guest]

Dear Fiona,

Has he ever tried a tilt table? It takes the pressure off the piched

nerves, and kinda pulls those disks back apart a little- instant

relief for me for a little while. I've been looking for one for home

that I can afford, I know they are out there. Some physical

therapies & med supplies have them, for traction for the neck & back.

Water therapy in warm water would help too, same reason, takes the

pressure off.

And here is a recipe we called dynamite: 1 cup prunes, 1 cup

applesauce, 1 cup bran or wheat germ. Whip it together in the

blender. It is quite good when warm. Only takes a few spoonfuls a

day, once " cleaned out " . A spoonfull of mineral oil at night will help

slide out a BM in the morning.

And ask about adding a med for nerve pain. A muscle relaxer would

help too, you usually have muscle spasms with movement with low back

probs, so you dont move much= more constipated.

You're a good daughter. Love is good medicine.

Hope this helps.

> Hi,

>

> I have joined some of these lists on behalf of my dad, with the hope

that somebody might be able to help him. Here's a brief history:-

>

> My dad is 59. Many years ago he had a motorcycle accident and hurt

his back, but over time it got better and for many years he lived a

normal working life. He also has psoriasis. Over the years he had

spells when his back got bad, but with physio and treatment he

improved. Then about 12-13 years ago it got really bad, causing him a

great deal of pain; and for the past 10 years he has been off work,

now permanently disabled. Tests etc showed that his condition is quite

complicated - he had several slipped discs with a trapped nerve which

is calcified, and the bottom of his spine is crumbling. He gets severe

sciatic (sp?) pain which affects his legs , feet and toes. He also now

has psoriatic arthritis, and his psoriasis is very bad. Over the years

he has had courses of physio, various pain meds etc etc etc... There

is no operation that can help, and would probably leave him in a

wheelchair.

>

> Anyway, since Christmas he has gone downhill very fast. He can no

longer drive and is in agony nearly all the time. He is spending

nearly all his time laying on his side in bed (he is getting alot of

pain in the base of his spine and can't sit), and hardly ever comes

downstairs. He has been on methotrexate, but it made him feel too bad.

He cannot bear to have physio with the pain he has. In the past he has

used a TENS machine, but didn't find it much use.

>

> We have a very understanding GP, but he doesn't really know what

else to do at the moment. Dad is now taking morphine for the pain, but

he is still in quite alot of pain. The meds is making him very

constipated, and the straining is making his pain worse. He also looks

and feels so ill in himself and is getting very depressed. I feel so

helpless and desperately want to be able to help him.

>

> If anyone has any idea's please let me know - I don't want him to

suffer any more. The GP is coming to see him tomorrow, so maybe he

will have another idea.

>

> Please Help.

>

> love

> Fiona

> *~*~*

[Guest guest]

hi,<br>i buy " Fixomull Stretch " 5cm*10m made in

Germany.<br>my pt showed me how to tape my knees- the taping

varies accoring to your problem - i tape my right

differently than my left (b/c i have a big tilt in the left

knee that doesn't exist in the right one).<br>i

couldn't understand why they told you not to tape your

knees. taping was better for my knees than a brace, but

these things vary from one person to another. <br>did

you see an os? do you know what caused your cp? it is

usually a result of something else: mal-alignment,

overuse of knees, etc. you have to learn the cause in

order to treat the problem properly. did you take

x-rays? mri? <br><br>about the pain:<br>several months

ago i was in dreadful knee pain, couldn't walk, sleep

at night, do anything. refused to take Nsaids b/c

they never helped me. <br>went to a MD-homeopath who

gave me something to stimulate my immune system, and

solved the problem in a matter of days. <br><br>hope

this helped a bit.<br><br>-sigal

[Guest guest]

I found out I had CP only after having a lateral

release surgery. I wish I had know before as I would

NEVER have had the surgery. I am now worse off and I

too have been told there is nothing more they can do

for me and worker comp will no longer pay for

anything related to this injury. I think I need to hire an

attorney. I wish I could be of more help too you, but I too

don't know what to do as I am in pain a lot of the time

and I just injured my back and neck trying to protect

my knee.

[Guest guest]

Hello,<br><br>Thanks for your speedy reply..I did

have x-rays..but the only persaon who suggested what

had caused my cp was the pt...who said 'it had been

caused by the way I had walked from

childhood(mal-alighnment).<br><br>I presume by os you mean an orthapedic

sugeon??..I

saw one in 1998..he did an arthroscopy on my left

knee and said then the wear and tear was

'minimal'..the pain was real bad then..and its got worse and

worse.<br><br>The pt said not to use tape because it weakens the

surrrounding muscles???..I don't care about that anymore I

just want some relief!!!<br><br>I am thinking of

trying some 'alternative' thrapies..so thanks for your

advice on that.<br><br>I'm determined to get some

relief..I cannot go on like this..once again thanks so

much.<br><br>take care<br><br>love<br><br>callyannexxx

[Guest guest]

Hiya,<br><br>Thanks for your reply..its horrible

when they say there is nothing more they can do..it is

just like being 'written off'.<br>Do you work now? I

would seek legal advice if your worker comp will no

longer pay for anything related to the injury.<br>What

caused your CP?<br>I have never known pain like this it

just goes on and on and on..yuk...I have 'better' days

but never a 'painfree' day.<br><br>take

care<br><br>love<br><br>callyannexxx

[Guest guest]

I do still work, but have switched to office work

so I sit most of the time. I think I am going to

contact an attorney. I was injured by a co-worker who

felt the need to pick me up and drop me on a concrete

floor. NICE huh?

[Guest guest]

hi,<br>i'm not a pt or an os, but your pt's

theory sounds a bit strange to me. <br>as far as i know,

taping is supposed to put the patella in a better

position so that the right muscles will start working

(such as the VMO). <br>i also have a born knee

malalignment & taping helps me tramendously.<br><br>i suggest

going to an os (orthopedic surgeon) again (maybe a

different one), and consulting another pt. preferably

someone you heard good references of. <br>i used to go to

a pt who did me no good, and after a month i left

her and started going to my current excellent pt - &

my knees never felt better.<br>in any case, try to

find the source for your pain and treat it. this is

the only way to overcome cp.<br><br>-sigal

[Guest guest]

Hi Jackie,

I have the same problem with my feet and finding shoes. I was in my friend's

wedding last June and found my shoes at Nordstrom's. I needed bone colored

shoes and Nordstrom's had a few different styles to choose from. It was the

perfect place to go, nice adult shoes that I could feel comfortable wearing. If

you don't live near a Nordstrom's ask them to send you a catalog. They should

be more than willing to help you find just what you need. Sincerely, Patti

LittleLadyQT@... wrote: I was just wondering if anyone out there could

direct me to the best

possible shoe stores on the web or here in WI for WIDE SIZE 1-1 1/2 feet.

Cinderella of Boston makes shoes that are too narrow. I do not have luck at

Payless Shoe Source or Stride Rite who's shoes are too juvenile. I have a

friend's wedding coming up next month and I do not want to wear sneakers.

Any suggestions....

Jackie

[Guest guest]

http://www.weddingaccessories.net/sauchild.htm

http://store.nordstrom.com/category/cat_boutique.asp?category=2376776~2374327~23\

77860~2377876

http://www.rubyslippers.net/mall/girls_dress_shoes.asp

[Guest guest]

Patti Bell wrote:

>

> Hi Jackie,

> I have the same problem with my feet and finding shoes. I was in my friend's

wedding last June and found my shoes at Nordstrom's. I needed > bone colored

shoes and Nordstrom's had a few different styles to choose from. It was the

perfect place to go, nice adult shoes that I > could feel comfortable wearing.

If you don't live near a Nordstrom's ask them to send you a catalog. They

should be more than willing to > help you find just what you need. Sincerely,

Patti

If you go to the Nordstrom's website ( http://www.nordstrom.com/ ) and

go to Advanced Search, you can search by shoe size (Adult and

Children). This saves a lot of time in checking out shoes that are

unlikely to fit.

Judy

[Guest guest]

Not to mention, there is a Nordstroms ATTACHED to the Marriott hotel which

hosts the 2002 National Conference in Salt Lake City this upcoming summer.

(How's that for a cheesy plug?) ;-)

Re: PLEASE HELP!

Patti Bell wrote:

>

> Hi Jackie,

> I have the same problem with my feet and finding shoes. I was in my

friend's wedding last June and found my shoes at Nordstrom's. I needed >

bone colored shoes and Nordstrom's had a few different styles to choose

from. It was the perfect place to go, nice adult shoes that I > could feel

comfortable wearing. If you don't live near a Nordstrom's ask them to send

you a catalog. They should be more than willing to > help you find just

what you need. Sincerely, Patti

If you go to the Nordstrom's website ( http://www.nordstrom.com/ ) and

go to Advanced Search, you can search by shoe size (Adult and

Children). This saves a lot of time in checking out shoes that are

unlikely to fit.

Judy

[Guest guest]

Due to inclement weather and security threats in Washington, DC the

number of attendees at the rally was much lower than anticipated. We

were hoping to raise the additional funds that were not raised prior

to the rally and through sponsorships by selling t-shirts and other

merchandise at the rally.

Unlocking Autism still has outstanding bills amounting to $12,000 in

conjunction with this year's event. The majority of this money is

owed to the host hotel. Because of no shows, we did not pick up a

very significant number of our block of rooms that were contracted,

but we still have to pay for them.

We have put most of our merchandise on sale on our website at

www.unlockingautism.org. We need your help. Please consider

purchasing one of our t-shirts or other great items today or making a

donation. For those who would like to order items or make donations

by mail, please forward your information to: Unlocking Autism PO Box

1086 Baton Rouge, LA 70821-1086 Thank you

I have come across an " Issue " at another group that I think I would be

remiss if I didn't address it here...

Just to clarify if there is any doubt in anyone's mind. What I (Deborah

A Delp) post here both general knowledge and personal) is free to be

redistributed to anyone you think may benefit from the information.

As to what other people post I guess proper Internet etiquette would be

to ask before hand when it comes to personal info. However, if it's

general autism information I don't see a need to ask and wait for a

response. Recognition of where the information was obtained would be

nice of course, with a link back to the group here..but not mandatory

of course LOL. To me the key is to get the information out as quickly as

possible.

For those who have problems with this please reconsider before you opt

to leave the group.

[Guest guest]

..> We have evidence that the VA can process just about any VA Claim

within 30

..> days. That all the delays have been a con game.

The VA delays can be agonizing, but I've gotten excellent results from

the Disabled American Veterans. My petitions usually take 60 days or so

at the longest when I let the DAV represent me. I'm a Life Member, but

they'll do it for free, even for non-members.

Please remember that the current Congress has significantly CUT the VA

BUDGET. I assume this was in order to be certain there was money enough

to allow the wealthiest 1% to each have their $30,000/year tax cuts, but

that's a guess on my part.

Cynically,

========================================================================

========

I hold it that a little rebellion now and then is a good thing,

and as necessary in the political world as storms in the

physical.

... It is a medicine necessary for the sound health of

government.

-- Jefferson

========================================================================

========

[Guest guest]

Hi ,

First off Welcome to the group... Please tell us about yourself... I'm Helen from Ohio 53...

Sorry, I have no experience of what you are asking about... Have you called your Better Business Bureau in your area about this company and if they are legitimate??? They should be able to tell you about the company itself... Go to your local senior centers in your area and ask about it... Ask your local newspaper if they have had any articles written about this subject... There should be plenty of info out there for you, my advice is to check all that you can before doing something so drastic... I know money is hard to come by when medication and Dr. bills need to be paid... I'll look around for ya and see what I can come up with... What state are you from???

((( Welcoming Hugs )))

Helen

Hi! I'm new here at this group and it seems like you have members are professionals and knowledgeable. I was wondering to see if anyone in this group has "personal experience" in senior life settlement. I have been researching the Internet about it. It seems OK to me but I figured, before I commit, I need to talk to someone with personal experience in senior life settlement.There is a company here in Idaho, Progressive-Life.com, who buys different kinds of life insurance policies. I am thinking aboutselling my life insurance policy to them to pay for medical expenses and to leave something to my family (just in case). I don't want to do mortgage our house 'cause I don't want to leave my love ones with bills in the event I pass away. They are offering more than the accelerated benefits my insurance carrier is offering me. Personally, and based on what I have seen so far, I think senior life settlement is good for me BUT I need a second opinion from someone who really had an experience selling their life insurance policy.Any input, comments, and/or suggestions would be greatly appreciated.Thank you in advance.

[Guest guest]

,

Welcome to the group! My advice to you would be to get a free

consultation with an estate lawyer. There are different laws for

different areas, and I'm sure you don't want your debts to be passed on

to your family, no one does. If you tell me which area you are in, I

can ask my attorneys to see if they know anyone in your area.

Hugs,

, group owner

please help!

Hi! I'm new here at this group and it seems like you have members are

professionals and knowledgeable. I was wondering to see if anyone in

this group has " personal experience " in senior life settlement. I

have been researching the Internet about it. It seems OK to me but I

figured, before I commit, I need to talk to someone with personal

experience in senior life settlement.

There is a company here in Idaho, Progressive-Life.com, who buys

different kinds of life insurance policies. I am thinking about selling

my life insurance policy to them to pay for medical expenses

and to leave something to my family (just in case). I don't want to

do mortgage our house 'cause I don't want to leave my love ones with

bills in the event I pass away. They are offering more than the

accelerated benefits my insurance carrier is offering me. Personally,

and based on what I have seen so far, I think senior life settlement

is good for me BUT I need a second opinion from someone who really

had an experience selling their life insurance policy.

Any input, comments, and/or suggestions would be greatly appreciated.

Thank you in advance.

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[Guest guest]

,

My understanding is that you want the IEP done so he has one when August school

starts up. However, it does NOT excuse them form an ISFP at least until his 3rd

birthday. In South Carolina the IEP is done and an ISFP is in place until the

start of the school year when a child turns 3 during the summer (at least it

used to be this).

I would not sign the waiver. I would ask for an ISFP for whatever services he

can receive and then do an IEP to begin in August when school starts. IF they

will not continue services from July 29th until school starts, at least he is

only without services for no more than a month.

Hope this helps,

mom to Bridget 11 in SC

Please help!

I'll try to make this as short and specific as possible....considering I'm

upset.

I've read through the KS regs. I understand that they are required to begin

the tranisition from part c to part b at least 90, but no more than 180 days

before the child's 3rd birthday.

What I don't understand is why our child should lose services over the summer

when his birthday isn't until July 29th. I assume that he *shouldn't* and that

is why they want me to sign the waiver saying I don't want services under part C

after the IEP is signed.

Does signing the IEP in the Spring (two months before his third birthday)

automatically disqualify my child for part C?

Should I tell them that I will only sign the waiver declining part C services

if they will agree to ESY in the IEP?

Thanks!!!

Schulte

[Guest guest]

Hi,

My computer has been down for the past week so I'm not sure that I am

following what this thread is about BUT, your child is elegible for EI services

as

stated on the IFSP until he or she begins school and is getting services from

them.

My husband is an Service Coordinator for the EI program here. He even has

some twins who turn 3 this month and he will continue their services until

school starts in August. And another friend of mine has a son who turned 3 last

month and he continues his services until he starts preschool in the fall.

Have you had the IEP? It seems to me that this is where this needs to be

addressed.

[Guest guest]

In a message dated 4/11/2004 12:40:36 PM Central Daylight Time,

_Schulte@... writes:

> I just don't think I should have to give up summer services for him until

> he actually turns three.

>

>

He shouldn't have to give up summer services even after he turns three. My

Micah is three and a half. Had his first IEP in Jan. after he turned three.

They are done twice a year for preschoolers. He never gave up summer services

but was carried over on the IFSP although i know in New York that is changing

and a child HAS to be transitioned by three. However Micah is getting

services this summer also through his IEP.

Loree

[Guest guest]

In a message dated 4/11/2004 1:40:30 PM Eastern Daylight Time,

_Schulte@... writes:

> The coordinator of EI is saying that after I sign the IEP he can no longer

> get services under an IFSP. I can't for the life of me figure out if this is

> true. I've read through the laws and I still don't know. I've read both

> actually on different websites.

That's not the way it is in NY. I know I signed Liam's IEP in June (he had

turned 3 in March) and EI services were covered until September. After that

the IEP kicked in.

I know a little girl who turned 3 in September. She was elligible for EI

services until January.

Kathy, Liam's mom( 6)

[Guest guest]

Hi

Yes, I want the IEP in place by the time school starts. I just don't think I

should have to give up summer services for him until he actually turns three.

The coordinator of EI is saying that after I sign the IEP he can no longer get

services under an IFSP. I can't for the life of me figure out if this is true.

I've read through the laws and I still don't know. I've read both actually on

different websites.

One website said after the IEP is in place they still qualify for Part C until

their birthday. Another website said that after the IEP is signed is up to the

team whether or not they provide services during the summer the child turns

three.

I'm going to an advocating training on the 27th of April, about transitioning

from Part C to Part B.

Thanks for your response,

Schulte

Please help!

I'll try to make this as short and specific as possible....considering I'm

upset.

I've read through the KS regs. I understand that they are required to begin

the tranisition from part c to part b at least 90, but no more than 180 days

before the child's 3rd birthday.

What I don't understand is why our child should lose services over the

summer when his birthday isn't until July 29th. I assume that he *shouldn't*

and that is why they want me to sign the waiver saying I don't want services

under part C after the IEP is signed.

Does signing the IEP in the Spring (two months before his third birthday)

automatically disqualify my child for part C?

Should I tell them that I will only sign the waiver declining part C

services if they will agree to ESY in the IEP?

Thanks!!!

Schulte

[Guest guest]

, I just reread what you said in the second paragraph. I asked for this!

I told them I was afraid (based on what they were telling me) that he would lose

summer services and I wouldn't sign the waiver. I told them I wanted him

covered under the IFSP until July 29th. I said we could prepare the IEP this

spring (as they wanted). But, I wouldn't sign it until fall when school started.

Again, she told me they couldn't do that!

The funny part is...I honestly don't think that they are trying to be difficult.

I think that they are used to having parents just go along with whatever they

said they need to do. I don't think it occurred to her at all that I would have

a problem with signing such a waiver. She said she has had other people do this

in the past.

I told her that it might be best for them, but it wasn't in my son's best

interest.

[Guest guest]

Dunno about that, cause if I agree and am part of the team I always sign. I

dont sign if changes need to be made, etc. We only do sign the attendance

page, actually and not any other part of the IEP.

[Guest guest]

In a message dated 4/13/2004 11:47:22 AM Eastern Daylight Time,

loree5@... writes:

We only do sign the attendance

> page, actually and not any other part of the IEP.

You have no statement you sign that you give permission to implement the IEP

or that you agree with the IEP as written?

Cheryl in VA

[Guest guest]

In a message dated 4/13/2004 10:58:41 AM Eastern Daylight Time,

loree5@... writes:

<<<<Where is this stated because in New York we do sign the IEP's>>>>>

Hey, I didn't write the statement about NY ... I am in VA and here we

encourage all parents to sign ... either that you agree or disagree ... but

signing

is important if you want your wishes known about implementation of the IEP

presented to you!

Cheryl in VA