LDN for my Multiple Sclerosis- Weekly(ish) update

[Guest guest]

I started LDN earlier this month (3 mg nightly) and simultaneously started a

journal to track how I feel on this new med. (I have RRMS.)

This post is today's " entry " from my Facebook notes.

After finding this LDN Group so helpful I thought that a weekly report of

my own progress might be of interest. So here ya go:

********************** Tuesday, August 24, 2010 *****************

Pity the poor inventors frustrated in their attempts to build a Time Machine!

My condition provides frequent (though uncontrollable) trips back " in time "

every so often--no batteries required. I time traveled just this morning!

Woke up today with first conscious thought, " Wow, this is just like I felt in

May! " -- meaning " I feel JUST as dizzy and sick as I did 3 whole months ago! "

despite myriad physician visits, medications, and good old American " patience "

and " positive thinking. " " Time " (at least not these 3 month's time) does NOT

" heal all wounds. "

Reading has become my only pleasureable pasttime since painting the walls

became impossible. Second only to sitting on my ass at my PC, reading is one of

the few activities I can do without moving my head, looking around, blurring the

furniture.

I have emailed my nurse practitioner to request info on treatment I

previously declined. Getting desperate despite LACK of funds!

I pop my LDN nightly which is likely harmless if not a total waste; I'll give

it 3 months at current dose then increase to 4.5 which Doc originally

recommended. [i'm not understanding other LDN users' immediate reactions after a

couple days on the stuff; placebo?]

I blew off some guy who I might have dated-- I told him honestly I need a

personal shopper, maybe a nursemaid, but a boyfriend? .....

.....edited out NON-LDN-related parts...........

LDN will be stopped for the week or so prior to oral surgery 9/1 until off pain

meds. Tooth extraction under sedation; will NEED pain meds.

There are No new effects pos or neg from LDN; no difference in pain level

(chronic mild joint pain; feet/leg neuro pain at nite moderate).

Energy level remains Poor.

(Thanks for reading; see Facebook if desired for progress notes. Joy .)