Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Hello all, I have CREST and first started LDN 2 1/2 years ago after a horrible bout with iritis that left my eyes dry and light sensitive and my upper jaw in constant pain, like my head was swelled. My alternative doctor put me on 3 mg and told me to stay there. I don't see him anymore, he's too far away, but he calls in the prescription. 6 months later all my eye and face symptoms were gone! My Raynauds still remained, that was it. However, I have found out I have pulmonary hypertension. It has gone from 29 mmHg in December 2008 to 34 in January 2010 and now July 2010 it is 41. I am wondering if an increase in LDN would be beneficial. I am also considering AP (antibiotic protocol) to get at the underlying CREST which presumably, though minimized by LDN, is causing the PH. LDN has done wonderful things for me but it has not helped my PH and I don't know if I should increase it or try the AP protocol. I don't have a lot of time to monkey around because it is advancing fast. I know the obvious answer is ask the doctor who prescribed it and I will but I am trying to see if anyone has personal experience with this first. I don't see that anyone on this board has posted about pulmonary hypertension. I did see something on another random site that LDN is actually bad for lung issues so maybe it actually has made my situation worse? Quote Link to comment Share on other sites More sharing options...
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