Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I have been taking LDN for about 2mth now and started on a low dose of 1.5mg and now I'm taking 3.0 mg and I think it will be @that dose for a while. I have very vivid dreams everyday with LDN. Is it doing anything for MS, not sure. Any feedback is greatly appreciated.Sent from my BlackBerry device on the Wireless NetworkFrom: low dose naltrexone Date: 20 Aug 2010 14:17:06 -0000<low dose naltrexone >Reply "No Reply"<notify-dg-low dose naltrexone >Subject: [low dose naltrexone] Digest Number 6308Low Dose Naltrexone Messages In This Digest (21 Messages) 1. Gluten-free on LDN?From: pcjbef 2a. Filler issues???From: zahavi 3. Re Lyme & CarnivoraFrom: barbara lochner 4a. Day TwoFrom: uxordepp 5a. Re: If you have Diabetes, have you noticed anything with LDN??From: ilovevintagebarbies 5b. Re: If you have Diabetes, have you noticed anything with LDN??From: zahavi 6. (no subject)From: Angel 7a. Something weird is going on when I reply to a messageFrom: ilovevintagebarbies 7b. Re: Something weird is going on when I reply to a messageFrom: carcinoidwarrior 8a. Mag SterateFrom: Angel 8b. Re: Mag SterateFrom: Baker 9. (no subject)From: Angel 10a. LDN FILLER??From: SARA WILLIAMS 10b. Re: LDN FILLER??From: carcinoidwarrior 10c. Re: LDN FILLER??From: Baker 11a. Re: IodineFrom: tina waite 12a. The 2010 edition of the free LDN book 'Those Whose Suffer Much, KnowFrom: Cris Kerr, Case Health 12b. Re: The 2010 edition of the free LDN book 'Those Whose Suffer Much, From: cat707k 13a. New Gluten Free Cookbook Coming...From: tobdncng@... 13b. Re: New Gluten Free Cookbook Coming...From: LarryGC 14. Fw: [low dose naltrexone] Would you recommend a good LDN website just From: Kruger View All Topics | Create New Topic Messages 1. Gluten-free on LDN? Posted by: "pcjbef" cyndi@... doc_ef Thu Aug 19, 2010 11:56 am (PDT) Does anyone know why is it reccommended to go gluten-free when taking LDN? Back to top Reply to sender |Reply to group |Reply via web post Messages in this topic (1) 2a. Filler issues??? Posted by: "zahavi" zahavi100@... z100a2002 Thu Aug 19, 2010 11:58 am (PDT) Never change a winning horse_____ I am using the Free version of SPAMfighter <http://www.spamfighter.com/len>.SPAMfighter has removed 523 of my spam emails to date.Do you have a slow PC? <http://www.spamfighter.com/SLOW-PCfighter?cid=sigen>Try free scan! Back to top Reply to sender |Reply to group |Reply via web post Messages in this topic (3) 3. Re Lyme & Carnivora Posted by: "barbara lochner" blochner2001@... blochner2001 Thu Aug 19, 2010 1:05 pm (PDT) My cousin, age 50, was dx with " maybe Lyme " . He was originially dx with Parkinson's by two doctors. He lives in north New Jersey and does landscape work for wild animal parks, zoos, estates. So it makes sense it is Lyme.Through research I found Carnivora.com. It is based on the chemistry of the Venus fly trap plant and is able to penetrate cells and dissolve bacteria, etc., in hiding behind cell walls.My cousin has been taking Carnivora for a couple of months, in addition to the meds/supplements his Lyme doctor has recommended. He is feeling better and back to work.If you have Lyme or know anyone who does, please check out Carnivora. There is also research on line that states it has knocked out the HIV virus in some people. Recent reports that the virus XMRV is present in people with Chronic Fatigue. I understand this is in the same Herpes family as the HIV virus. I am going to start Carnivora myself and see what happens. to my CFS. Barbara Lochner Back to top Reply to sender |Reply to group |Reply via web post Messages in this topic (1) 4a. Day Two Posted by: "uxordepp" jprocure@... uxordepp Thu Aug 19, 2010 1:06 pm (PDT) Hi FolksI have just passed my second night with LDN 4.5mg.So far, so good. My sleep has been a little bit disturbed, but it usually is anyway, so I have temporarily (I hope) gone up to my stronger sleep med which seems to be helping.Tonight I will try the weaker med. In a week, I'll try LDN and 5htp alone and see what happens.If candida is going to flare up, will it happen right away? I am anticipating it will and am taking measures like reducing carbs and eating xylitol. I will get some oregano oil or something later this week. So far though, the yeast has been quiet.Does anyone else use xylitol as an anti-candida agent? How do you use it?ThanksJaye Back to top Reply to sender |Reply to group |Reply via web post Messages in this topic (2) 5a. Re: If you have Diabetes, have you noticed anything with LDN?? Posted by: "ilovevintagebarbies" doodlebug1@... ilovevintagebarbies Thu Aug 19, 2010 1:06 pm (PDT) I ask because I am questioning if my husband actually has Type 1 Diabetes, i.e. Latent autoimmune diabetes of adults (LADA) instead of the Type 2 they diagnosed him by. He's very thin and his diabetes is a tough one. i.e. he's gotten progressively worse far faster than I thought people get with Type 2.It's too soon to tell if the LDN is helping. He's only been back on it for 1 1/2 weeks after a six week hiatus that I don't want to happen again. But I'm hopeful for him.JaneFrom: ilovevintagebarbies <doodlebug1gmail>Subject: [low dose naltrexone] Something weird is going on when I reply to a messagelow dose naltrexone Date: Thursday, August 19, 2010, 11:39 AMWhen I press reply to a message right on the group, it automatically shows the individual's name and not the group name. That is not normal. I finally figured out that I have to manually change it each time to go to the group!So if you have gotten a private email from me, it wasn't intended.Jane ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Note to MS sufferers using LDN. For MS LDN's main purpose is to halt disease progression, not improve symptoms. If you get symptom improvement on LDN then that's an added plus, only approximately 2/3 of those with MS using LDN will see symptom improvement. LDN will not repair permanent damage already done. LDN can halt disease progression and this can allow the body to heal itself but healing is not a guarantee even if LDN halts the progression. Damage from paralysis may never improve, hearing may never return if you've lost hearing or eyesight if nerve damage has occurred. If you have candida yeast overgrowth or bacterial infections you must clean them up for LDN to work properly. You may have to clean up your diet. As doctor McCandless has said many times, LDN is not a stand alone treatment. It's not going to perform 100% miracles unless one is very mild relapsing remitting MS and has little to no damage. Low Dose Naltrexone Forum http://ldn.proboards.com/index.cgi? -- > > From: ilovevintagebarbies <doodlebug1@... <mailto:doodlebug1%40gmail.com> > > Subject: [low dose naltrexone] Something weird is going on when I reply to a message > low dose naltrexone <mailto:low dose naltrexone%40> > Date: Thursday, August 19, 2010, 11:39 AM > > When I press reply to a message right on the group, it automatically shows the individual's name and not the group name. That is not normal. I finally figured out that I have to manually change it each time to go to the group! > > So if you have gotten a private email from me, it wasn't intended. > > Jane > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 I have had SPMS for 15 years & RRMS for 45 years and have seen the following Improvements over the last year since taking LDN: 1 Flexibility of leg, at first only in the middle of the night (after taking LDN at 9pm) now all day as well – can kneel for the first time in 15 years 2 Improved strength and balance of left leg, can stand balanced on both legs for the first time in many years (not very well). Combination of improved flexibility, strength & balance has lead to improvement in mobility 3 Regained 80-90% of smell and taste which I lost nearly completely for 3 years 4 Improved co-ordination of left hand. When I first regained it a few months after I started taking LDN I could type perfectly. Then I lost it due to allergic reaction to LDN & now I have the improved co- ordination but weakness of hand negatively impacts on the co-ordination. Little & ring finger the weakest. 5 Have totally regained normal speaking - I had been gradually losing both the strength/projection of my voice for the last 2 years. Raising my voice and even talking was often an effort – now I am told not to talk so loud! 6 Choking – much, much improved had hardly any in last few months 7 Pins & needles and flares of pain like being jabbed with a needle – none in last five months 8 No colds/flu & no bouts of sinus (which used to be a constant problem & lead to exacerbation of MS – LDN boosts immune system) 9 Bladder improved 10 Feel really good/cheerful (LDN releases endorphins) BUT I have had to stop LDN because of severe spasms keeping me awake all night. I have been off LDN for a month (still spasming) and I have started LOSING some of the benefits. The following has happened – flexibility & mobility much less, post nasal drip returned, some choking, loss some of sense of smell, pain flares in toesL Two months later I am still spasming but am taking 2.00 mg of LDN transdermally once a week which stops the sinus, choking and pain flares. It has also proved the spasms are caused by allergy to LDN as the night I take it they are much, much worse. As I have been dealing with multiple allergies for years I know that as long as I persist I will deal with this one too. LDN is magic just persist & be patient & you will see it too BUT if you are at all allergic I would strongly recommend you take it transdermally – transdermal has benefits too : 1 immediate absorption 2 do not need to take it with food 3 easier to adjust the dose up or down as you need All the best Trish I have been taking LDN for about 2mth now and started on a low dose of 1.5mg and now I'm taking 3.0 mg and I think it will be @that dose for a while. I have very vivid dreams everyday with LDN. Is it doing anything for MS, not sure. Any feedback is greatly appreciated. Sent from my BlackBerry device on the Wireless Network Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Trish, take 1000mg of magnesium and 1000mg of calcium before bed, L-Taurine. Also consider getting some magnesium oil and soak feet as per instructions on jug or google search the magnesium oil. Have your vitamin D level checked. Try eliminating gluten from your diet and see if that helps also. , LDN user 7 yrs for chronic progressive MS ================================================= > > I have had SPMS for 15 years & RRMS for 45 years and have seen the following > Improvements over the last year since taking LDN: > > 1 Flexibility of leg, at first only in the middle of the night > (after taking LDN at 9pm) now all day as well - can kneel for the first time > in 15 years > > 2 Improved strength and balance of left leg, can stand balanced on > both legs for the first time in many years (not very well). Combination of > improved flexibility, strength & balance has lead to improvement in mobility > > 3 Regained 80-90% of smell and taste which I lost nearly completely > for 3 years > > 4 Improved co-ordination of left hand. When I first regained it a > few months after I started taking LDN I could type perfectly. Then I lost > it due to allergic reaction to LDN & now I have the improved co- ordination > but weakness of hand negatively impacts on the co-ordination. Little & ring > finger the weakest. > > 5 Have totally regained normal speaking - I had been gradually > losing both the strength/projection of my voice for the last 2 years. > Raising my voice and even talking was often an effort - now I am told not to > talk so loud! > > 6 Choking - much, much improved had hardly any in last few months > > 7 Pins & needles and flares of pain like being jabbed with a needle > - none in last five months > > 8 No colds/flu & no bouts of sinus (which used to be a constant > problem & lead to exacerbation of MS - LDN boosts immune system) > > 9 Bladder improved > > 10 Feel really good/cheerful (LDN releases endorphins) > > > > BUT I have had to stop LDN because of severe spasms keeping me awake all > night. I have been off LDN for a month (still spasming) and I have started > LOSING some of the benefits. The following has happened - flexibility & > mobility much less, post nasal drip returned, some choking, loss some of > sense of smell, pain flares in toesL > > > > Two months later I am still spasming but am taking 2.00 mg of LDN > transdermally once a week which stops the sinus, choking and pain flares. > It has also proved the spasms are caused by allergy to LDN as the night I > take it they are much, much worse. As I have been dealing with multiple > allergies for years I know that as long as I persist I will deal with this > one too. > > > > LDN is magic just persist & be patient & you will see it too BUT if you are > at all allergic I would strongly recommend you take it transdermally - > transdermal has benefits too : > > 1 immediate absorption > > 2 do not need to take it with food > > 3 easier to adjust the dose up or down as you need > > > > > > All the best > > Trish > > > > > > > > > > I have been taking LDN for about 2mth now and started on a low dose of 1.5mg > and now I'm taking 3.0 mg and I think it will be @that dose for a while. I > have very vivid dreams everyday with LDN. Is it doing anything for MS, not > sure. Any feedback is greatly appreciated. > > Sent from my BlackBerry device on the Wireless Network > > _____ > Quote Link to comment Share on other sites More sharing options...
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