Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 ,My wife was diagnosed with MS when she lost her left eye vision by almost 95%, in March this year, 2010. (Her first symptoms were numbness in her left two fingers which we mistakenly attributed to cold weather as MS is rather un-heard of in our part of the world. This being felt that it is a western world disease not affecting India most of the time). Ophthalmologist diagnosed Optic Neuritis and subsequently, our Neuro-physician started with the standard treatment - 5 days of intra venous Solu-Medrol followed by three weeks of tapering of steroid alongwith enzymes and vitamins. But, we did not get any improvement at all. Rather, after 4th week of the first major symptom, when she lost vision of her left eye, she started complaining of difficulty of vision and blurring of vision in right eye also. We once again went to the doctor, but nothing and no further diagnosis or improvement. By this time I had come across this wonderful drug and asked my doctor if I can start this if he has nothing else to prescribe. He declined vehemently, as he had no medical book referring to this line of treatment. I showed all the e-mails and literature available from the group, but to no effect. Then taking the matters in my hands, I started LDN, very slowly (she is very very sensitive to medications), only 0.5mg for first 2 weeks, then 1.0, slowly now 4.5mg since last 1-1/2 months. My wife reported some initial improvement, cheering us. But no appreciable improvement. Strangely, the vision clears comparatively in the night, however, in the day there is no improvement. With her right eye vision also affected she is unable to read newspapers and standard text and cannot recognize people on the street till they are sufficiently close. This has stopped her from driving and with no further improvement she is having depression about how to cope-up with this problem and carry out day-to-day activity. (She is only 40 right now).She has a small group of learners with whom she practices aerobics twice a day. This cheers her a bit and adds energy physically and mentally in her. In this however, one more problem she has noticed. In case she is doing exercise vigorously and perspiring her vision deteriorates and becomes more blurred. Should she discontinue Aerobics?? After taking LDN, she is able to go to sleep only after about 1-1/2 to 2 hrs. Is this normal? She also has to go to toilet for urination and she is also complaining that she finds it difficult to control, it starts to pass slowly as she is unable to hold fully.Any help or advice is welcome and thanks for taking time for reading the long story. Should we give her Magnesium and Calcium with Vitamin D also?Rajeev AgarwalIndia.From: bren_ldn <TwisterAlley2@...>low dose naltrexone Sent: Sat, August 21, 2010 12:51:03 PMSubject: [low dose naltrexone] Re: Digest Number 6308 Trish, take 1000mg of magnesium and 1000mg of calcium before bed, L-Taurine. Also consider getting some magnesium oil and soak feet as per instructions on jug or google search the magnesium oil. Have your vitamin D level checked. Try eliminating gluten from your diet and see if that helps also. , LDN user 7 yrs for chronic progressive MS ================================================= > > I have had SPMS for 15 years & RRMS for 45 years and have seen the following > Improvements over the last year since taking LDN: > > 1 Flexibility of leg, at first only in the middle of the night > (after taking LDN at 9pm) now all day as well - can kneel for the first time > in 15 years > > 2 Improved strength and balance of left leg, can stand balanced on > both legs for the first time in many years (not very well). Combination of > improved flexibility, strength & balance has lead to improvement in mobility > > 3 Regained 80-90% of smell and taste which I lost nearly completely > for 3 years > > 4 Improved co-ordination of left hand. When I first regained it a > few months after I started taking LDN I could type perfectly. Then I lost > it due to allergic reaction to LDN & now I have the improved co- ordination > but weakness of hand negatively impacts on the co-ordination. Little & ring > finger the weakest. > > 5 Have totally regained normal speaking - I had been gradually > losing both the strength/projection of my voice for the last 2 years. > Raising my voice and even talking was often an effort - now I am told not to > talk so loud! > > 6 Choking - much, much improved had hardly any in last few months > > 7 Pins & needles and flares of pain like being jabbed with a needle > - none in last five months > > 8 No colds/flu & no bouts of sinus (which used to be a constant > problem & lead to exacerbation of MS - LDN boosts immune system) > > 9 Bladder improved > > 10 Feel really good/cheerful (LDN releases endorphins) > > > > BUT I have had to stop LDN because of severe spasms keeping me awake all > night. I have been off LDN for a month (still spasming) and I have started > LOSING some of the benefits. The following has happened - flexibility & > mobility much less, post nasal drip returned, some choking, loss some of > sense of smell, pain flares in toesL > > > > Two months later I am still spasming but am taking 2.00 mg of LDN > transdermally once a week which stops the sinus, choking and pain flares. > It has also proved the spasms are caused by allergy to LDN as the night I > take it they are much, much worse. As I have been dealing with multiple > allergies for years I know that as long as I persist I will deal with this > one too. > > > > LDN is magic just persist & be patient & you will see it too BUT if you are > at all allergic I would strongly recommend you take it transdermally - > transdermal has benefits too : > > 1 immediate absorption > > 2 do not need to take it with food > > 3 easier to adjust the dose up or down as you need > > > > > > All the best > > Trish > > > > > > > > > > I have been taking LDN for about 2mth now and started on a low dose of 1.5mg > and now I'm taking 3.0 mg and I think it will be @that dose for a while. I > have very vivid dreams everyday with LDN. Is it doing anything for MS, not > sure. Any feedback is greatly appreciated. > > Sent from my BlackBerry device on the Wireless Network > > _____ > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.