RE: [rheumatoidarthritis-low dose naltrexone] RE: Disease progression

[Guest guest]

Don’t know the mindset Margaret. They once

again had no explanation to offer me that caused it to make sense to suppress

the immune system and they just trot out what theyknow. The young doctor said

he didn’t believe they would in his lifetime ever find out another way of

solving autoimmune RA. I said ‘LDN?’. He had no answer .

Ironically they wont provide even low dose

prednisolone because of long term damage that might do, as if it is worse than

the meth. Etc.

Nuala

From:

rheumatoidarthritis-low dose naltrexone

[mailto:rheumatoidarthritis-low dose naltrexone ]

On Behalf Of Margaret Schooling

Sent: 16 August 2010 18:07

rheumatoidarthritis-low dose naltrexone

Cc: low dose naltrexone

Subject: Re:

[rheumatoidarthritis-low dose naltrexone] RE: Disease progression

Hi Nuala

This is so disappointing and you must feel devastated. Like you I can't take it

on board. I'm going to read the Mercola article more thoroughly tomorrow with

you in mind. There must be a reason that some people don't respond to LDN and

it's scandalous that they won't do their stupid trials on it - also what is

this mindset that insists on suppressing the immune system.

Margaret

From: Nuala White

<nualawhite@...>

rheumatoidarthritis-low dose naltrexone

Cc: low dose naltrexone

Sent: Sun, August 15, 2010 4:59:32

PM

Subject:

[rheumatoidarthritis-low dose naltrexone] RE: Disease progression

Hi Margaret and all,

Just back from the rheumatologist after an 18mth gap. I saw a young

doctor working on the RA team under my consultant. He was at least not as

pompous as the others.

Bad news and Im very upset realy. Lots of disease progression in

many joints and they kind of shake their heads at me. They have warned me,

nicely of ongoing damage to organs like my heart etc with this much

inflammation going on. He was not happy with the joints on my hands wrists knee

etc. He also noticed my arms not straightening.

So once more he wants me on Methotrexate and hydroxychlorine(n antimalarial drug which is often used to

boost the meth. effects.).

cAPS NOT DELIBERATE! Cant seem to switch

them off!

They don’t consider enbrel or anything

like unless yo have failed on Meth and at least one other immune suppressant,

Wont look at LDN until they see double

blind trials on RA effectiveness.

Oh Dear. I am a bit phased. I eed to go

away and think what to do because it does look like I feared that the LDN is

not managing to stop progression even though in many ways I am stronger

healthier and fitter.

Nuala

From: rheumatoidarthritis- low dose naltrexone [mailto:

rheumatoidarthritis- low dose naltrexone

] On Behalf Of Margaret Schooling

Sent: 16 August 2010 11:50

rheumatoidarthritis- low dose naltrexone

Cc: low dose naltrexone

Subject:

[rheumatoidarthritis-low dose naltrexone] Summary of RA treatments by Dr Mercola

I've not studied

this yet but it covers many of the problems and solutions surrounding RA that

we on our RA-ldn group often discuss. Well worth looking at.

http://articles.mercola.com/sites/articles/archive/2010/08/16/rheumatoid-arthritis-protocol.aspx

Margaret

[Guest guest]

Margaret,

Im getting confused. It says here

that it made no difference to CRP levels? That’s the count which for me

is going way up again. AM I reading this wrongly?

I have been taking bcomplex which includes 50mg of B6 daily.

However, scientists from Chung

Shan Medical

University in Taiwan said that no changes were observed for

pyridoxal-5-phosphate (PLP), the active form of vitamin B-6, in

relation to levels of C-reactive protein (CRP), another marker of

inflammation.

Im finding it really difficult to absorb any technical stuff to do with

it all right now, possibly a reaction, maybe due to my head being completely

full of my dissertation which Im finally writing and under pressure for.

I need to read the article Jayne referred to in her mail yesterday too.

AM thinking resveratrol…it has come up a lot recently.

A thinking diet, again.

AM thinking oil of oregano and/or colloidal silver in a more

disciplined way because my thoat has been bad a lot too.

Cheers

Nuala

rheumatoidarthritis-low dose naltrexone

Cc: low dose naltrexone

Subject: Re:

[rheumatoidarthritis-low dose naltrexone] RE: Disease progression

_______________________________

[Guest guest]

Hi NualaAre you taking this 100 mg dose of Vit B6? I put the article in our Links section the other day. Do you think it was worth a try.MargaretB-6 May Improve Arthritis Measures July 2010A daily dose of vitamin B-6 at the current upper tolerable levels may reduce amounts of inflammatory compounds in people suffering from rheumatoid arthritis, a new study says. Levels of the pro-inflammatory compounds interleukin-6 (IL-6) and tumor necrosis factor-alpha (TNF-alpha) significantly decreased following 12 weeks of supplementation with 100 mg of vitamin B-6, according to findings published in the European Journal of Clinical Nutrition. However, scientists from Chung Shan Medical University in

Taiwan said that no changes were observed for pyridoxal-5-phosphate (PLP), the active form of vitamin B-6, in relation to levels of C-reactive protein (CRP), another marker of inflammation. The Taiwanese scientists performed a single-blind co-intervention study with 35 participants randomly assigned to receive either 5 mg per day of only folic acid or 5 mg per day of folic acid, plus 100 mg of vitamin B-6. After 12 weeks of supplementation, significant decreases were observed in levels of IL-6 and TNF-alpha only in participants of the B-6 group, the researchers said. “A large dose of vitamin B-6 supplementation (100 mg per day) suppressed pro-inflammatory cytokines (that is, IL-6 and TNF-alpha) in patients with rheumatoid arthritis,†the researchers concluded. Vitamin B-6, a water-soluble vitamin that

exists as pyridoxine, pyridoxal and pyridoxamine is found in beans, meat, fish and some fruits and vegetables, like spinach and avocado. The Recommended Dietary Allowance (RDA) is 1.3 mg for men and women aged between 19 and 50.European Journal of Clinical Nutrition Published online ahead of print.________________________________From: Nuala White <nualawhite@...>rheumatoidarthritis-low dose naltrexone Cc: low dose naltrexone Sent: Sun, August 15, 2010 8:33:53 PMSubject: RE: [rheumatoidarthritis-low dose naltrexone] RE: Disease progression Don’t know the mindset Margaret. They once again had no explanation to offer me that caused it to make sense to suppress the immune system and they just trot out what theyknow. The young doctor said he didn’t believe they would in his lifetime ever find out another way

of solving autoimmune RA. I said ‘LDN?’. He had no answer .Ironically they wont provide even low dose prednisolone because of long term damage that might do, as if it is worse than the meth. Etc.Nuala ________________________________ From:rheumatoidarthritis- low dose naltrexone [mailto: rheumatoidarthritis- low dose naltrexone ] On Behalf Of Margaret SchoolingSent: 16 August 2010 18:07rheumatoidarthritis- low dose naltrexone Cc: low dose naltrexone Subject: Re: [rheumatoidarthritis-low dose naltrexone] RE: Disease progression Hi NualaThis is so disappointing and you must feel devastated. Like you I can't take it on board. I'm going to read the Mercola article more thoroughly tomorrow with you in mind. There must be a reason that some people don't respond to LDN and it's

scandalous that they won't do their stupid trials on it - also what is this mindset that insists on suppressing the immune system.Margaret________________________________ From:Nuala White <nualawhite@...>rheumatoidarthritis- low dose naltrexone Cc: low dose naltrexone Sent: Sun, August 15, 2010 4:59:32 PMSubject: [rheumatoidarthritis-low dose naltrexone] RE: Disease progression Hi Margaret and all,Just back from the rheumatologist after an 18mth gap. I saw a young doctor working on the RA team under my consultant. He was at least not as pompous as the others. Bad news and Im very upset realy. Lots of disease progression in many joints and they kind of shake their heads at me. They have warned me, nicely of ongoing damage to organs like my heart etc with this much inflammation going on. He was not happy with the

joints on my hands wrists knee etc. He also noticed my arms not straightening. So once more he wants me on Methotrexate and hydroxychlorine(n antimalarial drug which is often used to boost the meth. effects.).cAPS NOT DELIBERATE! Cant seem to switch them off!They don’t consider enbrel or anything like unless yo have failed on Meth and at least one other immune suppressant, Wont look at LDN until they see double blind trials on RA effectiveness. Oh Dear. I am a bit phased. I eed to go away and think what to do because it does look like I feared that the LDN is not managing to stop progression even though in many ways I am stronger healthier and fitter. Nuala ________________________________ From:rheumatoidarthritis- low dose naltrexone [mailto: rheumatoidarthritis- low dose naltrexone ] On Behalf Of

Margaret SchoolingSent: 16 August 2010 11:50rheumatoidarthritis- low dose naltrexone Cc: low dose naltrexone Subject: [rheumatoidarthritis-low dose naltrexone] Summary of RA treatments by Dr Mercola I've not studied this yet but it covers many of the problems and solutions surrounding RA that we on our RA-ldn group often discuss. Well worth looking at.http://articles.mercola.com/sites/articles/archive/2010/08/16/rheumatoid-arthritis-protocol.aspxMargaret