New and thinking of starting LDN-MS

[Guest guest]

Hi Melisa

I have been doing LDN (3mg) for a year and love it, I have

had a lot of benefits see below:

Improvements in last year since taking LDN

Flexibility of leg, at first only in the middle of

the night (after taking LDN at 9pm) now all day as well – can kneel for

the first time in 15 years

Improved strength and balance of left leg, can stand

balanced on both legs for the first time in many years (not very well).

Combination of improved flexibility, strength & balance has lead to improvement

in mobility

Regained 80-90% of smell and taste which I lost

nearly completely for 3 years

Improved co-ordination of left hand. When I

first regained it a few months after I started taking LDN I could type

perfectly. Then I lost it due to allergic reaction to LDN & now I

have the improved co- ordination but weakness of hand which negatively impacts

on the co-ordination. Little & ring finger the weakest. Since

stopping LDN

Have totally regained normal speaking - I had been

gradually losing both the strength/projection of my voice for the last 2

years. Raising my voice and even talking was often an effort.

Choking – much, much improved had hardly any in

last few months

Pins & needles and flares of pain like being

jabbed with a needle – none in last five months

No colds/flu & no bouts of sinus (which used to

be a constant problem & lead to exacerbation of MS – LDN boosts

immune system)

Feel really good/cheerful (LDN releases endorphins)

BUT UNFORTUNATELY I have had to stop LDN because of

severe spasms keeping me awake all night. I have now been off LDN for nearly

6 weeks (still spasming & sleepless) and I have started LOSING some of the

benefits. The following has happened – leg stiff & mobility

much less, post nasal drip returned, some choking, loss some of sense of smell,

pain flares in toesL

As soon as I can stop the spasms I will start LDN again

but very slowly and transdermally.

The history is I have had secondary progressive ms for 15

years & have been on 3 mg ldn for 1 year. I have had hot flashes for

the last 20 years (sigh) but they did seem to be a lot better for several

months on ldn J. Then they

started getting much worse and I had hot hands (which I saw another chap said

he had on the website), I also have bad insomnia, usually wake every 2

hours & sometimes cannot go back to sleep for ages, but you know I think it

did get better after 6 months on LDN. Melatonin is not recommended for

those with MS.

Then I saw that transdermal ldn (in emu oil base) is best

for those with allergies (as it by passes the liver on 1st round)

& I too have lots of those – until recently I was literally allergic

to everything – mould, fridge mould, chemicals, preservatives,

supplements, drugs, preservatives, food etc. I also found that

kinesiology was the only thing that helped the allergies a lot though some do

not hold.

In the first two weeks that I was off LDN (while I was

desensitising to the allergy to ldn & waiting for transdermal ldn) I found

a mixture of things happened – hot hands stopped immediately &

flashes reduced but I am stiffer & less stable & waking every hour

(because of allergies). I definitely will keep on with ldn cream at

night, I have had a lot of benefits even though I have had MS for 45 years -

it seems daytime is not effective.

I would definitely recommend that you take it.

Start immediately. At the very least LDN halts the progression of MS but

I think you can expect BIG BENEFITS especially as you have only had MS for a

(relatively) short time. Just watch yourself for allergic reactions. Do

not take more than 3.00mg for some time but if you haven’t had those

nasty night spasms ever you should be fine as they are the only reaction that I

find intolerable. If you are worried about allergies take it transdermally.

All the best

Trish