Hail LDN!

[Guest guest]

We recently returned from our “once in a lifetime” trip to Europe for 5

weeks (have never been before and unless we win Lotto will never go

again). We had an absolutely awesome time – enjoyed it more than I’d

dared hope!! We had 5 days in Paris then hired a car and my wife drove

us (on the “wrong” side of the road for we Aussies) through France,

Switzerland, northern Italy (as far south as Pisa), southern Germany

and Austria.

I have LDN to thank for making the trip far more pleasant than it

otherwise would have been!! One of the issues about half of people

with PLS (a form of motor neurone disease and little brother to ALS/Lou

Gehrig's disease) face is urinary urgency and before I started on LDN

over 6 years ago I was one. I remember times when on a car trip in

less than an hour I’d be absolutely desperate to pee even when I’d had

nothing to drink for hours and when we found a quiet spot to pull over

for me the volume said I wasn’t imagining the need to go...........

It was only after about 9 months on LDN that I realised my urinary

urgency was improving and over time it seems to have continued to

improve to the point where I now consider myself almost “normal” in

that respect. At times whilst on the pc now I can think to myself I

need to go soon, yet can continue working away for at least another

hour, sometimes two, without a problem. If I leave it too long then as

those with urinary urgency issues may know, as soon as I stand up the

need becomes more desperate.

On our trip we did one long day of travel in the car (over 6 hours) and

I didn’t need to go until we got to our destination. On another day in

Vienna we were on one of those hop-on, hop-off bus tours with different

routes. It had been about 2 hours since we left the hotel when the

first urge to go came, yet we completed another almost 2 hours on the

bus on 2 different tours before being dropped off at the Donauturm

(Danube Tower), went up the tower, took lots of photos, then came down

then finally went to the toilet in the café at the base of the tower

and still wasn’t uncomfortable or desperate! No way I could have done

that without LDN – I would have ended up embarrassing myself and my

wife by peeing myself within maybe half an hour of the first urge.

Hail LDN!!

Cheers,