Hep C

[Guest guest]

Terry.

having gone thru yhe tx for 44 weeks and i reached a o vl however within 6 months it retnd, I only lost a little hair and was very sick, but i THINK that the sicker it makes you , the more hair loss, this means it is working. I know its very hard but please hang in there, Your vl and timeframe sound very hopefull, I wouldnt give up, you have come so far, but you must continue to sustain the o vl. It prop wont get much worse, just not better either until you have completed the tx. I think in my case, i could have excepted that it wasnt working sooner but thought I came this far. I wouldnt do it ant different even though it did not work this time Im hopefull for something new that wil work. Im not a Dr I only speak from my exp. Please dont give up UNLESS the Dr says it has become dangerous for youm They will know when you must stop.

You can do it!!

Betty

From: Christ <ludichrist2000@...> Sent: Friday, September 25, 2009 11:33:41 AMSubject: Re: [ ] hep c

Hi Terry

Here is some info for you.

Procrit -

http://search. / search?ei= utf-8 & fr=slv8-tyc7 & p=procrit%20medicat ion & type=

epogen -

http://search. / search?ei= utf-8 & fr=slv8-tyc7 & p=epogen%20informat ion & type=

neupogen -

http://search. / search?ei= utf-8 & fr=slv8-tyc7 & p=neupogen%20side% 20effects & type=

I am not a doctor or an expert, but it sounds like you are doing something wrong.

Drug interactions? ??

You shouldnt be having high fevers, ending up in the hospital, having to have transfusions, or losing 70 pounds in just a few months.

I would go consult another doctor, and get a second opinion.

Nice doctors doesnt mean good doctors.

You drop in VL is good news.

Your being so sick is not.

I have a doctor appmt myself in a few minutes.

I will try to find more info for you later when I get back.

Check out our groups links section.

http://health. dir.groups. / group/HepCWebWar riors/links

folder - 009 Anti-biotics and meds [drug interactions]

http://health. dir.groups. / group/HepCWebWar riors/links/ antibiotics_ and_HCV_00125342 2622/

Others here might be able to answer your questions better.

Talk to you in a bit.

love

don in ks

From: martinez_a_terry <martinez_a_terry>Subject: [ ] hep c Date: Friday, September 25, 2009, 6:21 AM

On feb 20,2009 i started interferon and rebetol, my viral load was in the billions.... ........ Now just about 7 months later my viral load is 0 ,yes 0 and the doctor wants me to continue until march 2010, i'm also on procrit 3x wk,Epogen40, 000 2x wk and Neupogen 300 micrograms 2x wk, also been hospitalized for very high fevers and blood transfusions is this normal procedure ? also have lost48 lbs in these 7 months, do i need to stay on treatment, i really like this doctor but, i feel like its killing me not to mention the fianiacial burden and i don't qualify foe unemployment or disability, Any advice, Thanks so much

TERRY------------ --------- --------- ------

[Guest guest]

Thank goodness! And good that your docs tested you for it regardless of your risk factors - one in 12 people around the world do have it and it is way under-diagnosed. So happy that you do not have it as I do, though LDN is helping it greatly!

Nola Chris

In a message dated 6/8/2010 9:57:17 A.M. Central Daylight Time, mrgrtmcguinness@... writes:

I do not have HEP C and had no way of contracting it but they tested anyway and I did not thank goodness.X

[Guest guest]

I do not have HEP C and had no way of contracting it but they tested anyway and I did not thank goodness.X

Margaret Harrickey

[Guest guest]

you might wanna try squeezed lemon in your water and are you drinking lots of

water? theres times when i get a head-ache and my first reation is to get a tall

glass of water and put my fresh lemon in it because it takes my head-ache right

away ,i squeeze a half of a lemon in a 12 ounce glass of water. be surprised wat

else lemon water does good,try it first thing in the morn. is it fiber that

helps the soft bowls,i think thats wat i was told. hope u feel better

From: judy pouncy <hootie069@...>

Subject: hep c

" none group " <Hepatitis C >

Date: Monday, July 12, 2010, 12:36 PM

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

you might wanna try squeezed lemon in your water and are you drinking lots of

water? theres times when i get a head-ache and my first reation is to get a tall

glass of water and put my fresh lemon in it because it takes my head-ache right

away ,i squeeze a half of a lemon in a 12 ounce glass of water. be surprised wat

else lemon water does good,try it first thing in the morn. is it fiber that

helps the soft bowls,i think thats wat i was told. hope u feel better

From: judy pouncy <hootie069@...>

Subject: hep c

" none group " <Hepatitis C >

Date: Monday, July 12, 2010, 12:36 PM

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

TICKLED PINK SHERI,THAT YOU ARE NOW UNDETECTED.GOOD FOR YOU

From: Sheri Sheeder <sherisheeder@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 3:53 AM

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

TICKLED PINK SHERI,THAT YOU ARE NOW UNDETECTED.GOOD FOR YOU

From: Sheri Sheeder <sherisheeder@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 3:53 AM

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

IM THINKING THAT SHERI'S HEP C VIRUS'S IN HER BLOOD IS SO LOW THAT THEY ARE NOT

DETECTING THE VIT BUT CONTINUING TREATMENT JUST INCASE THERES A FEW OF THEM

HIDING OUT IN THE BLOOD SOMEWHERE.

From: Jackie Ware <bchgirl49@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 10:01 AM

 

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

IM THINKING THAT SHERI'S HEP C VIRUS'S IN HER BLOOD IS SO LOW THAT THEY ARE NOT

DETECTING THE VIT BUT CONTINUING TREATMENT JUST INCASE THERES A FEW OF THEM

HIDING OUT IN THE BLOOD SOMEWHERE.

From: Jackie Ware <bchgirl49@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 10:01 AM

 

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Thanks Sheri,

My doc got me taking shots every night and

I am on my 8 week. I wish it was over. I even lost

weight but I can't let this disease take over so

I am trying to eat. I even went to a dietation

Thanks for the info.

You are an angel from God.

I'll be praying for us. Thank you for making

me feel not so alone.

Love, Judy

----- Forwarded Message ----

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 1:53:32 AM

Subject: Re: hep c

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Thanks Sheri,

My doc got me taking shots every night and

I am on my 8 week. I wish it was over. I even lost

weight but I can't let this disease take over so

I am trying to eat. I even went to a dietation

Thanks for the info.

You are an angel from God.

I'll be praying for us. Thank you for making

me feel not so alone.

Love, Judy

----- Forwarded Message ----

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 1:53:32 AM

Subject: Re: hep c

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Yes deb you are correct, they also said that if they were to stop treatment now

and there was still a few floating around and they replicated that those would

more then likely be imune from the medicines and nothing would work. As far as

being able to afford it, I was eligable through the roche company's finacial

program and I have payment arrangments with my dr. and I have one hell of a

supportive boyfriend and family. Sorry it took so long to answer but I took my

shot early because I am having a procedure done on friday and don't want to

still be sick from the shot, so I check my computer when I can't sleep and can't

get comfortable. I'm waiting for the pain pill to take effect cause that's the

only thing that help with the body aches and headaches that I get. Just don't

give up, there is hope.

God Bless You All

Sheri

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Tue, July 13, 2010 10:50:58 AM

Subject: Re: hep c

 

IM THINKING THAT SHERI'S HEP C VIRUS'S IN HER BLOOD IS SO LOW THAT THEY ARE NOT

DETECTING THE VIT BUT CONTINUING TREATMENT JUST INCASE THERES A FEW OF THEM

HIDING OUT IN THE BLOOD SOMEWHERE.

From: Jackie Ware <bchgirl49@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 10:01 AM

 

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Yes deb you are correct, they also said that if they were to stop treatment now

and there was still a few floating around and they replicated that those would

more then likely be imune from the medicines and nothing would work. As far as

being able to afford it, I was eligable through the roche company's finacial

program and I have payment arrangments with my dr. and I have one hell of a

supportive boyfriend and family. Sorry it took so long to answer but I took my

shot early because I am having a procedure done on friday and don't want to

still be sick from the shot, so I check my computer when I can't sleep and can't

get comfortable. I'm waiting for the pain pill to take effect cause that's the

only thing that help with the body aches and headaches that I get. Just don't

give up, there is hope.

God Bless You All

Sheri

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Tue, July 13, 2010 10:50:58 AM

Subject: Re: hep c

 

IM THINKING THAT SHERI'S HEP C VIRUS'S IN HER BLOOD IS SO LOW THAT THEY ARE NOT

DETECTING THE VIT BUT CONTINUING TREATMENT JUST INCASE THERES A FEW OF THEM

HIDING OUT IN THE BLOOD SOMEWHERE.

From: Jackie Ware <bchgirl49@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 10:01 AM

 

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

i never thought of that,that they can become immune to the

treatment...yeah,that you dont want.so i can see why they make you gfo so long

on treatment. hang in there sher bear!

From: Jackie Ware <bchgirl49@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 10:01 AM

 

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

i never thought of that,that they can become immune to the

treatment...yeah,that you dont want.so i can see why they make you gfo so long

on treatment. hang in there sher bear!

From: Jackie Ware <bchgirl49@...>

Subject: Re: hep c

Hepatitis C

Date: Tuesday, July 13, 2010, 10:01 AM

 

Sheri, good to hear that someone has good news.  But I'm not sure I understand,

if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

you were able to afford the cost?  Jackie

 

________________________________

From: Sheri Sheeder <sherisheeder@...>

Hepatitis C

Sent: Tue, July 13, 2010 3:53:32 AM

Subject: Re: hep c

 

Goodmorning Judy,

I'm still feeling lousy myself and still taking the shots. I just took the one

that ended month four and I still have alot more to go but I did get some really

good news last week when my blood test results came back. It showed that my

viral load is undetectable on the test, that don't mean it's gone it just means

that it's so low that it don't show up in the test so I will have to complete

the full treatment program so that leaves 32 weeks left.

What I've been doing as far as eating is, when I'm sick to my stomach I drink

apple juice it seems to settle it down, then I eat light after I have taken my

shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

day and since I take my shots on tuesday I usually pigout on monday (lol).

I hope this helps out. I hope you feel better soon, there is hope.

Sheri

________________________________

From: judy pouncy <hootie069@...>

none group <Hepatitis C >

Sent: Mon, July 12, 2010 12:36:10 PM

Subject: hep c

 

Good morning,

I feel lousy but trying to hang in there with this infergen and ribavarin.

Help me. I had diarheaa and I don't know what to eat?

[Guest guest]

Just as there is a period of time between your initial exposure to the virus and

the first antibodies being detected, there is a period of time during viral

replication that copies of the virus are not detected. Antibodies may take

anywhere between 2 weeks to 6 months to show up after exposure. There is also

the period of time the virus is in the liver cell incubating and dividing before

causing the cell to die and release the viral material. Some doctors are

treating genotype 2 or 3 for 3 months if the patient displays immediate or rapid

response to treatment (undetectable after 2 weeks of treatment). Genotype 1

patients still need 48 weeks to insure virus elimination, some are doing 72

weeks.

>

> From: Jackie Ware <bchgirl49@...>

> Subject: Re: hep c

> Hepatitis C

> Date: Tuesday, July 13, 2010, 10:01 AM

>

>  

>

> Sheri, good to hear that someone has good news.  But I'm not sure I

understand,

> if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

>

> you were able to afford the cost?  Jackie

>

>  

>

> ________________________________

> From: Sheri Sheeder <sherisheeder@...>

> Hepatitis C

> Sent: Tue, July 13, 2010 3:53:32 AM

> Subject: Re: hep c

>

>  

> Goodmorning Judy,

>

> I'm still feeling lousy myself and still taking the shots. I just took the one

> that ended month four and I still have alot more to go but I did get some

really

>

> good news last week when my blood test results came back. It showed that my

> viral load is undetectable on the test, that don't mean it's gone it just

means

> that it's so low that it don't show up in the test so I will have to complete

> the full treatment program so that leaves 32 weeks left.

>

> What I've been doing as far as eating is, when I'm sick to my stomach I drink

> apple juice it seems to settle it down, then I eat light after I have taken my

> shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

> jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

> day and since I take my shots on tuesday I usually pigout on monday (lol).

>

> I hope this helps out. I hope you feel better soon, there is hope.

>

> Sheri

>

> ________________________________

> From: judy pouncy <hootie069@...>

> none group <Hepatitis C >

> Sent: Mon, July 12, 2010 12:36:10 PM

> Subject: hep c

>

>  

> Good morning,

>

> I feel lousy but trying to hang in there with this infergen and ribavarin.

>

> Help me. I had diarheaa and I don't know what to eat?

>

>

[Guest guest]

Just as there is a period of time between your initial exposure to the virus and

the first antibodies being detected, there is a period of time during viral

replication that copies of the virus are not detected. Antibodies may take

anywhere between 2 weeks to 6 months to show up after exposure. There is also

the period of time the virus is in the liver cell incubating and dividing before

causing the cell to die and release the viral material. Some doctors are

treating genotype 2 or 3 for 3 months if the patient displays immediate or rapid

response to treatment (undetectable after 2 weeks of treatment). Genotype 1

patients still need 48 weeks to insure virus elimination, some are doing 72

weeks.

>

> From: Jackie Ware <bchgirl49@...>

> Subject: Re: hep c

> Hepatitis C

> Date: Tuesday, July 13, 2010, 10:01 AM

>

>  

>

> Sheri, good to hear that someone has good news.  But I'm not sure I

understand,

> if the viral load is undetectable, how come another 32 weeks?  And may I ask

how

>

> you were able to afford the cost?  Jackie

>

>  

>

> ________________________________

> From: Sheri Sheeder <sherisheeder@...>

> Hepatitis C

> Sent: Tue, July 13, 2010 3:53:32 AM

> Subject: Re: hep c

>

>  

> Goodmorning Judy,

>

> I'm still feeling lousy myself and still taking the shots. I just took the one

> that ended month four and I still have alot more to go but I did get some

really

>

> good news last week when my blood test results came back. It showed that my

> viral load is undetectable on the test, that don't mean it's gone it just

means

> that it's so low that it don't show up in the test so I will have to complete

> the full treatment program so that leaves 32 weeks left.

>

> What I've been doing as far as eating is, when I'm sick to my stomach I drink

> apple juice it seems to settle it down, then I eat light after I have taken my

> shot, like pudding, jello, bananas, soup, ramin noodles and peanut butter and

> jelly sandwiches. If I'm feeling better then I eat about 5 or 6 small meals a

> day and since I take my shots on tuesday I usually pigout on monday (lol).

>

> I hope this helps out. I hope you feel better soon, there is hope.

>

> Sheri

>

> ________________________________

> From: judy pouncy <hootie069@...>

> none group <Hepatitis C >

> Sent: Mon, July 12, 2010 12:36:10 PM

> Subject: hep c

>

>  

> Good morning,

>

> I feel lousy but trying to hang in there with this infergen and ribavarin.

>

> Help me. I had diarheaa and I don't know what to eat?

>

>

[Guest guest]

Hi Judy, Weight loss is not uncommon but 40 lbs in 6 months is quite a lot,

hopefully you are still at a healthy weight. How much water do you drink daily?

You should try to drink 1 ounce of water for every 2 lbs of body weight...I

drank 100 ounces as I weighed 200 lbs. (a gallon is 128 ounces). Nausea is

also not uncommon, try eating 6 or 7 small meals a day vs 2 or 3 large meals.

The combo meds are a type of chemotherapy so nearly every part or system in the

body will be affected in some way. You may want to keep a side effect diary so

when you see your Dr. you will be able to remember everything you want to tell

him/her.

Glenn

>

> Good afternoon.

>

> I went to the doctor and now I have finished

> 24 weeks and I have another 24 weeks.

>

> November was a bad month I went to the emergency Nov 3 and

> got IV, potassium,nausea in the IV and I feel so much better

> after that. They reduced in half my medication, maybe

> that's why I feel better but since this treatment I lost

> 40 lbs. Anyone else having this problem.

>

> God Bless you all. Judy

>

>

>

>

>

>

[Guest guest]

Hi Judy, Weight loss is not uncommon but 40 lbs in 6 months is quite a lot,

hopefully you are still at a healthy weight. How much water do you drink daily?

You should try to drink 1 ounce of water for every 2 lbs of body weight...I

drank 100 ounces as I weighed 200 lbs. (a gallon is 128 ounces). Nausea is

also not uncommon, try eating 6 or 7 small meals a day vs 2 or 3 large meals.

The combo meds are a type of chemotherapy so nearly every part or system in the

body will be affected in some way. You may want to keep a side effect diary so

when you see your Dr. you will be able to remember everything you want to tell

him/her.

Glenn

>

> Good afternoon.

>

> I went to the doctor and now I have finished

> 24 weeks and I have another 24 weeks.

>

> November was a bad month I went to the emergency Nov 3 and

> got IV, potassium,nausea in the IV and I feel so much better

> after that. They reduced in half my medication, maybe

> that's why I feel better but since this treatment I lost

> 40 lbs. Anyone else having this problem.

>

> God Bless you all. Judy

>

>

>

>

>

>

[Guest guest]

Judy, Here is a letter to share with family and friends:

AN OPEN LETTER TO THOSE WITHOUT HCV

Having Hepatitis C means that many things change. Just because you can't see

the changes doesn't mean they aren't real.

Most people don't understand much about this disease or the disability the

treatment causes and their effects, and of those that think they know many are

actually misinformed. In the spirit of informing those who wish to

understand.....

These are the things that I would like you to understand about me before you

judge me.

Please understand that HCV and its treatment doesn't mean I'm not still a human

being. I have to spend most of my day being very careful what I do, and if you

visit I might not seem like much fun to be with, but I'm still me stuck inside

this body. I still worry about school and work and my family and friends, and

most of the time I'd still like to hear you talk about yours too.

Please understand the difference between " happy " and " healthy " . When you've got

the flu you probably feel miserable with it, but I've been sick for years. I

can't be miserable all the time, in fact I work hard at not being miserable. So

if you're talking to me and I sound happy, it means I'm happy. That's all. I may

be tired. I may be in pain. I may be sicker than ever. Please, don't say, " Oh,

you're sounding better! " I am not sounding better, I am sounding happy. If you

want to comment on that, you're welcome.

Please understand that being able to stand up for five minutes, doesn't

necessarily mean that I can stand up for ten minutes, or an hour. It's quite

likely that doing those five minutes has exhausted my resources and I'll need to

recover - imagine an athlete after a race. They couldn't repeat that feat right

away either.

Please repeat the above paragraph substituting, " sitting up " , " walking " ,

" thinking " , " being sociable " and so on ... it applies to everything that I do.

Please understand that HCV and its treatment are variable. It's quite possible

(for me, it's common) that one day I am able to walk to the park and back, while

the next day I'll have trouble getting to the kitchen. Please don't scold me

when I'm ill by saying, " But you did it before! " If you want me to do something,

ask if I can and I'll tell you. In a similar vein, I may need to cancel an

invitation at the last minute, if this happens please don't take it personally.

Please understand that " getting out and doing things " does not make me feel

better, and can often make me worse. HCV (and if on treatment) may cause a

secondary/reactive depression but they are not caused by depression. Telling me

that I need some fresh air and exercise is not correct and probably not

appreciated - if I could possibly do it that, I would.

Please understand that if I say I have to leave/sit down/lie down/take these

pills now, that I do have to do it right now - it can't be put off or forgotten

just because I'm doing something else more exciting. HCV does not forgive their

victims easily.

Please understand that I can't spend all of my energy trying to get well from

my chronic illness. With a short-term illness like the flu, you can afford to

put life on hold for a week or two while you get well. But an important part of

having a chronic illness is coming to the realization that you have to spend

energy on having a life while you're sick/disabled. This doesn't mean I'm not

trying to get better. It doesn't mean I've given up. It's just how life is when

you're dealing with a chronic illness and its treatment.

If you want to suggest a cure to me, please don't. It's not because I don't

appreciate the thought; and it's not because I don't want to get well. It's

because I have had many people suggest one at one point or another. At first I

tried to research or try them, but then I realized that I was using up so much

energy looking for answers that I was making myself sicker, not better. If there

was something that cured, or even helped, all people with a certain illness or

disability then we'd know about it. This is not a drug-company conspiracy, there

is worldwide networking (both on and off the Internet) between people with

similar and different chronic illnesses and disabilities, and if something

worked we would know about it.

If after reading that, you still want to suggest a cure, then do it if you

must. Preferably in writing and accompanied by the scientific papers that prove

it works. But don't expect me to rush out and try it. I might not even reply. If

I haven't had it or something like it suggested before, and it sounds

reasonable, I'll probably take what you said and discuss it with my doctor.

Please understand that getting better from an illness can be very slow. And

getting better might not happen at all. People with Chronic HCV have so many

systems in their bodies out of equilibrium, and functioning wrongly, that it may

take a long time to sort everything out, if it ever happens.

But most importantly, I need you to understand me.

Adapted Anne with permission from " An Open Letter To Those Without CFS/Fibro " by

Ricky Buchanan (aka Bek Oberin). Original is at:

http://notdoneliving.net/foothold/openletter/

[Guest guest]

Judy, Here is a letter to share with family and friends:

AN OPEN LETTER TO THOSE WITHOUT HCV

Having Hepatitis C means that many things change. Just because you can't see

the changes doesn't mean they aren't real.

Most people don't understand much about this disease or the disability the

treatment causes and their effects, and of those that think they know many are

actually misinformed. In the spirit of informing those who wish to

understand.....

These are the things that I would like you to understand about me before you

judge me.

Please understand that HCV and its treatment doesn't mean I'm not still a human

being. I have to spend most of my day being very careful what I do, and if you

visit I might not seem like much fun to be with, but I'm still me stuck inside

this body. I still worry about school and work and my family and friends, and

most of the time I'd still like to hear you talk about yours too.

Please understand the difference between " happy " and " healthy " . When you've got

the flu you probably feel miserable with it, but I've been sick for years. I

can't be miserable all the time, in fact I work hard at not being miserable. So

if you're talking to me and I sound happy, it means I'm happy. That's all. I may

be tired. I may be in pain. I may be sicker than ever. Please, don't say, " Oh,

you're sounding better! " I am not sounding better, I am sounding happy. If you

want to comment on that, you're welcome.

Please understand that being able to stand up for five minutes, doesn't

necessarily mean that I can stand up for ten minutes, or an hour. It's quite

likely that doing those five minutes has exhausted my resources and I'll need to

recover - imagine an athlete after a race. They couldn't repeat that feat right

away either.

Please repeat the above paragraph substituting, " sitting up " , " walking " ,

" thinking " , " being sociable " and so on ... it applies to everything that I do.

Please understand that HCV and its treatment are variable. It's quite possible

(for me, it's common) that one day I am able to walk to the park and back, while

the next day I'll have trouble getting to the kitchen. Please don't scold me

when I'm ill by saying, " But you did it before! " If you want me to do something,

ask if I can and I'll tell you. In a similar vein, I may need to cancel an

invitation at the last minute, if this happens please don't take it personally.

Please understand that " getting out and doing things " does not make me feel

better, and can often make me worse. HCV (and if on treatment) may cause a

secondary/reactive depression but they are not caused by depression. Telling me

that I need some fresh air and exercise is not correct and probably not

appreciated - if I could possibly do it that, I would.

Please understand that if I say I have to leave/sit down/lie down/take these

pills now, that I do have to do it right now - it can't be put off or forgotten

just because I'm doing something else more exciting. HCV does not forgive their

victims easily.

Please understand that I can't spend all of my energy trying to get well from

my chronic illness. With a short-term illness like the flu, you can afford to

put life on hold for a week or two while you get well. But an important part of

having a chronic illness is coming to the realization that you have to spend

energy on having a life while you're sick/disabled. This doesn't mean I'm not

trying to get better. It doesn't mean I've given up. It's just how life is when

you're dealing with a chronic illness and its treatment.

If you want to suggest a cure to me, please don't. It's not because I don't

appreciate the thought; and it's not because I don't want to get well. It's

because I have had many people suggest one at one point or another. At first I

tried to research or try them, but then I realized that I was using up so much

energy looking for answers that I was making myself sicker, not better. If there

was something that cured, or even helped, all people with a certain illness or

disability then we'd know about it. This is not a drug-company conspiracy, there

is worldwide networking (both on and off the Internet) between people with

similar and different chronic illnesses and disabilities, and if something

worked we would know about it.

If after reading that, you still want to suggest a cure, then do it if you

must. Preferably in writing and accompanied by the scientific papers that prove

it works. But don't expect me to rush out and try it. I might not even reply. If

I haven't had it or something like it suggested before, and it sounds

reasonable, I'll probably take what you said and discuss it with my doctor.

Please understand that getting better from an illness can be very slow. And

getting better might not happen at all. People with Chronic HCV have so many

systems in their bodies out of equilibrium, and functioning wrongly, that it may

take a long time to sort everything out, if it ever happens.

But most importantly, I need you to understand me.

Adapted Anne with permission from " An Open Letter To Those Without CFS/Fibro " by

Ricky Buchanan (aka Bek Oberin). Original is at:

http://notdoneliving.net/foothold/openletter/