Hep C

June 2, 1999

CREE8V1

Thamks for the reply, until I got on this net - I never heard of AIH. I

never even heard of it spoken at Veterans Hospital GI clinics. Now I

understand a little more about AIH. Between bouts with cancer &

Hep - my world has revolved around getting, keeping, and boosting

my immune system. I can't even imagine - what you guys are going

through - but I'm starting to see. I know each dx has different protocols,

even though it seems that we are getting the same tests - but for

totally different outcomes. Thanks! I'm getting an education today.

Rocco

[ ] Hep C

> From: CREE8V1@...

>

> Rocco, HCV and AIH have entirely different dx's and treatments. AIH is a

non

> viral, non infectious disease caused by our immune systems gone haywire

and

> attacking the liver. HCV, as you know is a virus attacking the liver.

While

> your treatment involves trying to boost the immune system to fight the

virus,

> our treatment involves suppressing our immune systems to stop the

attacking.

> Hope this helps.

>

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February 7, 2000

Hello,

Not everyone has the side effects of the treatment. I know many who have

been able to continue working and one guy played on two softball teams.

Usually, the first night, or maybe week or two may be the worse...it depends

on the individual person. I had very few sides and aspirin or a 'tylenol

cold medicene' took care of what little aches, etc. I got.

One of the keys is to drink lots and lots of water. Most people find it

easier to inject the interferon in the evening and then sleep off the sides

if they have any.

Have you had a biopsy, genotype and PCR done? The biopsy will determine

exactly what and how much damage has been done; the genotype will tell what

kind of Hep C you have (some types are easier to treat than others) and the

PCR will tell you how much of the virus you have, or your 'viral load'. If

you've not had these done, I would insist to your doc that you have them

before you even think of starting treatment.

Also, unfortunately, younger people usually respond to treatment better than

those over 40-45 (based on studies I believe). So if you don't have a lot of

damage to your liver, and if your viral load is not extremely high, you might

want to consider checking into the 'alternatives'. That would be the

supplements and/or vitamins that are liver friendly. Many have had success

in keeping the viral count down using this method and usually feel better

also.

Have you checked out the Hepatitis Central web site? There is lots and lots

of wonderful information there.

It's only my personal opinion, but I wouldn't rush into the treatment combo.

There are other possible therapy's out there, but also none of them can offer

a cure for this disease. The " Peg " treatment may be released later this year

and it shows a lot of promise and I understand the sides from it are easier

to tolerate.

Good luck,

Betty

March 31, 2000

Hi Kim:

Yes, I had the same thing while I was on combo for 48 week. First my

advice to you is to try and stick it out, try using a good boy lotion like

Vaseline Intensive Care or Gold-BOM lotion, when you shower don't use any

soap if you have to use soap use Dove. Drink a lot of water DRINK A LOT OF

WATER! and STAY out of the sun.

Good luck,

Les

March 31, 2000

Hi Kim:

Yes, I had the same thing while I was on combo for 48 week. First my

advice to you is to try and stick it out, try using a good boy lotion like

Vaseline Intensive Care or Gold-BOM lotion, when you shower don't use any

soap if you have to use soap use Dove. Drink a lot of water DRINK A LOT OF

WATER! and STAY out of the sun.

Good luck,

Les

March 31, 2000

Kim what levels are normal? PCR is negative?

alley/

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March 31, 2000

Kim what levels are normal? PCR is negative?

alley/

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alleypat@...

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November 21, 2000

It isn't a big deal except that people recognize their names and, rightly or

wrongly, hep c becomes of interest to the masses. Most people live in their

own little world, we can't help it, I'm just as guilty as anyone else.

Sometimes a " famous " name will touch their world where a nobody name won't.

Thanks for passing it along

alley/

November 21, 2000

It isn't a big deal except that people recognize their names and, rightly or

wrongly, hep c becomes of interest to the masses. Most people live in their

own little world, we can't help it, I'm just as guilty as anyone else.

Sometimes a " famous " name will touch their world where a nobody name won't.

Thanks for passing it along

alley/

January 6, 2005

Go to a real doctor first, read everything that you can and make informed

decisions on your treatment. Not saying alternative treatments do not work but

this is your life. I know people who have died from this disease take it very

seriously. If you are drinking, smoking or doing anything else to hurt yourself

STOP now.

January 10, 2005

Hi kfreqer, read everything carefully both the pros and cons of any medication you take or thinking of taking only you know whats good for you. I ve heard and read that coll. silver is malarkey. read about Milk thistle, Thymus, Colostrum, N A C , Sam-e,and AHCC among other things. When I had active Hep C I took the conventional treatment along with a host of herbal items and was virus free in 6 mos and still virus free after 3 years this was good for me but as I said only you know whats good for you. Good luck and remember only make informed decisions about your care so read, read, and read.

March 22, 2006

Hi, Lili,

see our group page main menu, files section, disease research results,

hepatitis.

It's important to use the device both on the bloodstream on the wrist

or ankles arteries, and also on the liver itself.

Best of Luck,

bG

>

> Has anyone had any good results with This treatment and hepc>

>

> Lili

>

March 26, 2009

Hi...My name is Debbie, I found out last June that I have hep c. I had my liver

biopsy in August . My Dr. says I have minimal liver damage and is not

recomending treatment at this time as I am for the most part asymptomatic, so he

will do another biopsy in 5 yrs.with the hope for better drugs with less side

effects. I've had hepc for approximately 28 yrs. I got it from my ex. from

sharing needles...little did I know that many years later and drugs behind me,

that this would be my burden to bare for being stupid and ignorant.

Hepatitis C

From: heaven_scent_in_55@...

Date: Thu, 26 Mar 2009 13:26:08 +0000

Subject: hep c

just found out a month ago that i have hep c. if its from an only tattoo i

recieved,that would be 13 yrs ago,im 53 now.i found out just recently that the

guy that tattooed me actually has hep c himself.i myself havent seen him in 13

yrs and yes its water under the bridge

i have been to the liver doc and he said my viral load was 244,000,he checked me

for outter signs and said i look good. he made an appointment for me to have a

liver bi. and i canceled it 24 hrs before i was to go in. i guess im just not

ready for this and ive made up my mind that im not doing treatment,i know i

would never be able to hack those drugs they are using,i have depression now

that im doing well keeping at bay without meds.i relize that i have to do the

biopsy in order for the doc to get an idea where my liver sits with damage...i

will do the biopsy,i just need time to obsorb this news first.i heard that

genotype 1 is popular in the u.s. ok,i was wondering,if you have type 1 is it

more dangerous to the liver and is type 2/and 3 better to have than 1 ? i know

treatment is less time with type 2 but im wondering if its better to have

type2/3 if your not doing treatment? hope i didnt confuse you anyhow im

wondering if theres anyone else out there that has had hep c for a long time and

NOT doing treatment? i wonder how long a person can live with hep c and not do

the treatment...thanks alot...deb here

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March 26, 2009

Just some food for thought on having HCV for many years....

I had HCV for many years and was also without symptoms. When I would have

blood tests done over the years, I always had elevated liver levels. I was

told many times that I should consider treatment. I always blew it off.

When I was 53, I became disabled. I was literally falling down and was

using a walker to get around. I had also previously been diagnosed with

rheumatoid arthritis a couple of years earlier.

After seeing a lot of specialists and having a ton of tests, I learned that

I had cryoglobulenemia as a result of HCV. The cryo can lead to disabling

illnesses such as RA and neuropathy.

Make a long story short......I believe that had I treated the HCV years

earlier, I may have prevented these disabling problems.

I did treat the HCV and have been undetectable now for over a year since

finishing treatment. I'll never know for sure, but I wish I had done it a

long time ago.

In fact, about 5 or 6 years earlier, my husband and I saw a specialist who

said perhaps we could wait for a better treatment.....that didn't

happen.....and 5 or 6 years later, I did the same old interferon treatment

that was available earlier. Only by then, I had become ill enough to

qualify for SSDI.

I hope that a better treatment will happen, but don't count on it. Do what

you need to do to insure a healthy future life.

Just my personal opinion based on personal experience.....

Dorothy

RE: hep c

Hi...My name is Debbie, I found out last June that I have hep c. I had my

liver biopsy in August . My Dr. says I have minimal liver damage and is not

recomending treatment at this time as I am for the most part asymptomatic,

so he will do another biopsy in 5 yrs.with the hope for better drugs with

less side effects. I've had hepc for approximately 28 yrs. I got it from my

ex. from sharing needles...little did I know that many years later and drugs

behind me, that this would be my burden to bare for being stupid and

ignorant.

March 26, 2009

>

> just found out a month ago that i have hep c. if its from an only tattoo i

recieved,that would be 13 yrs ago,im 53 now.i found out just recently that the

guy that tattooed me actually has hep c himself.i myself havent seen him in 13

yrs and yes its water under the bridge

>

> i have been to the liver doc and he said my viral load was 244,000,he checked

me for outter signs and said i look good. he made an appointment for me to have

a liver bi. and i canceled it 24 hrs before i was to go in. i guess im just not