Re: Ever Present Dosing Question

[Guest guest]

I have also been on the 3.0 dose for MS since April 2006 with very little, if any, disease progression.

At 4.5 mgs. I experienced too much spasticity so I follow Dr. Bihari's guideline of remaining at 3.0 in such cases. I follow his instruction of only taking LDN once a day between 9 PM and 3 AM; and I use a pharmacy he recommended. Due to problems with certain fillers and a late blooming intolerance for lactose, I use acidophilis as my capsule filler, as he recommended.

For those thinking about LDN and wanting to stop disease progression, I hope you don't become confused by other discussions on this site. I think that the long-term users of LDN who are having a degree of success with this amazing medication, would agree that this simple and basic protocol is a good place for you to start and hopefully continue. And our dedicated professionals with long years of experience with LDN also largely agree.

I also hope that some of the posts are not discouraging any interested people; that would be a terrible shame!

Joyce

[Guest guest]

Dave-- The long time users of LDN seem to say exactly what you've

said. These are people whose MS is in remission, whose lung cancer has

disappeared from imaging scans, whose HIV or Hep C viral loads have reduced

to undetectable. Those are the voices I listen to.

Some folks with MS who get bad cramping have to stay at 3.0mg, and I think

there are some other circumstances where the exactly dose may be different

from 4.5mg. But as you say, our patron saint Dr Bihari found that 4.5mg is

the magic number.

I had to start at 1.5mg because I have Hashimoto's thyroiditis, per Dr

Bihari's and others' directions, but I got myself to 4.5mg as quickly as

possible.

wishing you most well.

--

>Dear Fellow Travelers,

>

> A few days ago I posted comments by my Penn State Hershey neuro about

> taking more than one dose per day, and how that was definitively a no-no.

> I read some responses which had the usual replies about how everyone is

> different, and what works for some may not work for another, etc. I

> appreciate all that, and not being a doctor, I would never foist my

> regimine on another, or give advice. Not my place. Nor is it my place to

> make anyone's choices, and I simply do not care what choices anyone else

> makes. I only relate what was told to me by a young man who dwells on the

> cutting edge of his profession as far as research goes. Hell, he

> prescribed LDN to me. I did not ask for it, as I had never heard of it at

> that time. I had only told him I was rejecting all CRAB drugs. He reached

> into the black bag, and out came LDN.

> Since then, and discovery of this forum, I have been quite surprised

> at the variation on dosing comments which I have read, the number of

> which is, perhaps the highest of any topic here. For my money, I must

> recall our late patron saint, Dr. Bihari. Do you think he settled on

> 4.5mg once a day by guesswork? This was the product of his own

> exploration, experimentation, and accumulated knowledge, and I for one,

> find it at least odd people would consistently question this. But, to

> each his or her own, and I am a great believer in doing what works for

> you, not what 'they'tell you.

> Nevertheless, I was actually warned against double dosing, and when

> first prescribed, there was absolutely no question the dose would be 4.5 mg.

> Again, I am not trying to convert anyone. This is a forum. We post

> information gleened from our collective experiences. That is all I am

> doing. Nothing more. Be well, and love to all.

>

>Dave in Pa.

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

I'm at 3.0, subtle differences at 4.5 or nothing different, have kept me at 3.0 every time I've tried 4.5

I could probably go to 4.5 and stay there, but I choose not to

Re: [low dose naltrexone] Ever Present Dosing Question

Dave-- The long time users of LDN seem to say exactly what you've said. These are people whose MS is in remission, whose lung cancer has disappeared from imaging scans, whose HIV or Hep C viral loads have reduced to undetectable. Those are the voices I listen to.Some folks with MS who get bad cramping have to stay at 3.0mg, and I think there are some other circumstances where the exactly dose may be different from 4.5mg. But as you say, our patron saint Dr Bihari found that 4.5mg is the magic number.I had to start at 1.5mg because I have Hashimoto's thyroiditis, per Dr Bihari's and others' directions, but I got myself to 4.5mg as quickly as possible.wishing you most well.-->Dear Fellow Travelers,>> A few days ago I posted comments by my Penn State Hershey neuro about > taking more than one dose per day, and how that was definitively a no-no. > I read some responses which had the usual replies about how everyone is > different, and what works for some may not work for another, etc. I > appreciate all that, and not being a doctor, I would never foist my > regimine on another, or give advice. Not my place. Nor is it my place to > make anyone's choices, and I simply do not care what choices anyone else > makes. I only relate what was told to me by a young man who dwells on the > cutting edge of his profession as far as research goes. Hell, he > prescribed LDN to me. I did not ask for it, as I had never heard of it at > that time. I had only told him I was rejecting all CRAB drugs. He reached > into the black bag, and out came LDN.> Since then, and discovery of this forum, I have been quite surprised > at the variation on dosing comments which I have read, the number of > which is, perhaps the highest of any topic here. For my money, I must > recall our late patron saint, Dr. Bihari. Do you think he settled on > 4.5mg once a day by guesswork? This was the product of his own > exploration, experimentation, and accumulated knowledge, and I for one, > find it at least odd people would consistently question this. But, to > each his or her own, and I am a great believer in doing what works for > you, not what 'they'tell you.> Nevertheless, I was actually warned against double dosing, and when > first prescribed, there was absolutely no question the dose would be 4.5 mg.> Again, I am not trying to convert anyone. This is a forum. We post > information gleened from our collective experiences. That is all I am > doing. Nothing more. Be well, and love to all.>>Dave in Pa.~~~ There is no way to peace; peace is the way ~~~~ --A.J. Muste------------------------------------

[Guest guest]

NO OTHER DRUG/MED/ISSUE seems to be torn apart and scrutinized anywhere I've ever seen online as with this med.

A doc gives a script and people follow it blindly, even to their detriment and through side effects that can kill a horse. But with LDN everyone wants to change things.

I don't care what others do, I only tell people to take 3 or 4.5 MG, ONLY, and ONCE a day, AFTER 9pm Standard/10pm DST, and before 3AM, that's it.

Anyone doing anything else is on their own, don't complain if it doesn't help if you're not doing it the way Dr. Bihari describes from his experiences and patents from 1980s on.

Me, My Dad, My Bro, all take our LDN in those parameters and I'm grateful we're all still alive, stable and happy about it.

[low dose naltrexone] Ever Present Dosing Question

Dear Fellow Travelers,

A few days ago I posted comments by my Penn State Hershey neuro about taking more than one dose per day, and how that was definitively a no-no. I read some responses which had the usual replies about how everyone is different, and what works for some may not work for another, etc. I appreciate all that, and not being a doctor, I would never foist my regimine on another, or give advice. Not my place. Nor is it my place to make anyone's choices, and I simply do not care what choices anyone else makes. I only relate what was told to me by a young man who dwells on the cutting edge of his profession as far as research goes. Hell, he prescribed LDN to me. I did not ask for it, as I had never heard of it at that time. I had only told him I was rejecting all CRAB drugs. He reached into the black bag, and out came LDN.

Since then, and discovery of this forum, I have been quite surprised at the variation on dosing comments which I have read, the number of which is, perhaps the highest of any topic here. For my money, I must recall our late patron saint, Dr. Bihari. Do you think he settled on 4.5mg once a day by guesswork? This was the product of his own exploration, experimentation, and accumulated knowledge, and I for one, find it at least odd people would consistently question this. But, to each his or her own, and I am a great believer in doing what works for you, not what 'they'tell you.

Nevertheless, I was actually warned against double dosing, and when first prescribed, there was absolutely no question the dose would be 4.5 mg.

Again, I am not trying to convert anyone. This is a forum. We post information gleened from our collective experiences. That is all I am doing. Nothing more. Be well, and love to all.

Dave in Pa.

[Guest guest]

I only want to remind people that ms and cfs or fibro are

quite different stories.

[Guest guest]

I think the problem is people think they have to try to Drive the body, the body knows better, but they don't think so. So they tinker and get worse and then blame everyone but themselves.

[low dose naltrexone] Re: Ever Present Dosing Question

I have also been on the 3.0 dose for MS since April 2006 with very little, if any, disease progression.

At 4.5 mgs. I experienced too much spasticity so I follow Dr. Bihari's guideline of remaining at 3.0 in such cases. I follow his instruction of only taking LDN once a day between 9 PM and 3 AM; and I use a pharmacy he recommended. Due to problems with certain fillers and a late blooming intolerance for lactose, I use acidophilis as my capsule filler, as he recommended.

For those thinking about LDN and wanting to stop disease progression, I hope you don't become confused by other discussions on this site. I think that the long-term users of LDN who are having a degree of success with this amazing medication, would agree that this simple and basic protocol is a good place for you to start and hopefully continue. And our dedicated professionals with long years of experience with LDN also largely agree.

I also hope that some of the posts are not discouraging any interested people; that would be a terrible shame!

Joyce

[Guest guest]

What's amazing is that it is just So Simple, like you posted:

so I follow Dr. Bihari's guideline of remaining at 3.0 in such cases. I follow his instruction of only taking LDN once a day between 9 PM and 3 AM; and I use a pharmacy he recommended.

What could be simpler?

I take my 3.0 MG at Midnight, and they're in a S M T W T F S pill case.

My dad and bro take 4.5 MG at 11pm. They also take some vitamins, more than I do. I only take B1 100 MG with a Super B Complex that has 100 MG B1, instead, every 3rd day. And also a Magnesium 500 MG every 3 days. Plus I normally have a salad meal a day, a full bowl, with lots of variety, it's grown over time. That seems to help with constipation issues.

The body seems to know how to do the rest, most of the time.

I go to a chiropractor regularly and when I have other issues. A Winning combination.

[low dose naltrexone] Re: Ever Present Dosing Question

I have also been on the 3.0 dose for MS since April 2006 with very little, if any, disease progression.

At 4.5 mgs. I experienced too much spasticity so I follow Dr. Bihari's guideline of remaining at 3.0 in such cases. I follow his instruction of only taking LDN once a day between 9 PM and 3 AM; and I use a pharmacy he recommended. Due to problems with certain fillers and a late blooming intolerance for lactose, I use acidophilis as my capsule filler, as he recommended.

For those thinking about LDN and wanting to stop disease progression, I hope you don't become confused by other discussions on this site. I think that the long-term users of LDN who are having a degree of success with this amazing medication, would agree that this simple and basic protocol is a good place for you to start and hopefully continue. And our dedicated professionals with long years of experience with LDN also largely agree.

I also hope that some of the posts are not discouraging any interested people; that would be a terrible shame!

Joyce