Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 : I tested positive for ParvoB19 IgG but negative for IgM. My Doc said by the time we are 55 80% of the population has had parvo (and thought they had the flu). I know parvo can be latent in the liver an re-emrge in immunosuppressed liver transplant recipients. But I have not heard it acknlowledged in the conventional medical community that is can re- emerge in the immunocpompetent. When you re-activate your Parvo- do you have measurable IgM antibodies? Barb > > Hello , > > Do you test positive for Parvo B 19? I also have the bone pain and question if Parvo B 19 is the link. > Thanks, > Re: Re: Can you help me??? .......Penny > > > As a nutritional counselor I have worked with many people with CFS. Everyone has different stories and backgrounds. Lots of different treatments. there are as many stories as there are people. > > But my recommendation has always been the same. I ask them to do a 60 day regimen of food an supplements. the supplements are minimal - a chelating agent to pull out toxins, probiotics to maintain healthy flora in the colon, enzymes to digest what you are eating and digest excess proteins and fats in the blood, and also minerals and antioxidents to promote healthy cells. > > The diet is fairly restrictive in one sense - it is difficult in this country because it is not the food we are used to consuming. But, the varieties are huge and you can have as much as you want so you are never hungry. Unlimited fresh vegetables, raw is best but lightly steamed ok too. Fresh fruits - just try to keep the ratio of two servings of veggies to every one of fruits. Brown rice, clean meats (no hormones, antibiotics) and they must be grilled or baked. Not allowed at all for 60 days: no oils, (for cooking or on salads - try lemon juice!) nothing from a box, can, bag etc. you must get the food in its natural state. A fruit roll up is not a piece of fresh fruit. no coffee, no hydrogenated oils, no alcohol, etc. No cereal grains. No sugar, no dairy, no flours at all. Only fruits, vegetables and clean meats (fish is included) and brown rice. If you have no candida/yeast issues, ezekial bread is ok. But no butter, jam or cream cheese on it! Also no > salt if you have high BP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 When I first got CFS I had bone pain in my legs. This went away after chelating. paul d. --- <teresasimmons@...> wrote: > Hello , > > Do you test positive for Parvo B 19? I also have the > bone pain and question if Parvo B 19 is the link. > Thanks, > Re: Re: Can you help > me??? .......Penny > > > As a nutritional counselor I have worked with many > people with CFS. Everyone has different stories and > backgrounds. Lots of different treatments. there are as > many stories as there are people. > > But my recommendation has always been the same. I > ask them to do a 60 day regimen of food an supplements. > the supplements are minimal - a chelating agent to pull > out toxins, probiotics to maintain healthy flora in the > colon, enzymes to digest what you are eating and digest > excess proteins and fats in the blood, and also minerals > and antioxidents to promote healthy cells. > > The diet is fairly restrictive in one sense - it is > difficult in this country because it is not the food we > are used to consuming. But, the varieties are huge and > you can have as much as you want so you are never hungry. > Unlimited fresh vegetables, raw is best but lightly > steamed ok too. Fresh fruits - just try to keep the > ratio of two servings of veggies to every one of fruits. > Brown rice, clean meats (no hormones, antibiotics) and > they must be grilled or baked. Not allowed at all for 60 > days: no oils, (for cooking or on salads - try lemon > juice!) nothing from a box, can, bag etc. you must get > the food in its natural state. A fruit roll up is not a > piece of fresh fruit. no coffee, no hydrogenated oils, > no alcohol, etc. No cereal grains. No sugar, no dairy, > no flours at all. Only fruits, vegetables and clean > meats (fish is included) and brown rice. If you have no > candida/yeast issues, ezekial bread is ok. But no > butter, jam or cream cheese on it! Also no > salt if you have high BP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hello Barb, I have been tested twice in the past six years and was positive for IgG and IgM. Thanks, ================== I tested positive for ParvoB19 IgG but negative for IgM. My Doc said by the time we are 55 80% of the population has had parvo (and thought they had the flu). I know parvo can be latent in the liver an re-emrge in immunosuppressed liver transplant recipients. But I have not heard it acknlowledged in the conventional medical community that is can re- emerge in the immunocpompetent. When you re-activate your Parvo- do you have measurable IgM antibodies? Barb > > Hello , > > Do you test positive for Parvo B 19? I also have the bone pain and question if Parvo B 19 is the link. > Thanks, mental@groups<mailto:Cmental@groups> .com> > Sent: Monday, June 05, 2006 2:06 AM > Subject: Re: Re: Nutrional Aspects > > > I love what Deanne is doing with her nutrional counseling. I personally have benefitted from cleaning up my diet (even though I've always eaten quite healthy) and removing processed foods. I work at our school cafeteria and encourage the kids to eat fruits, salads or veggies instead of just carbs~and I tell them that jello and ketchup doesn't count (even mental@groups .com> > Sent: Sunday, June 04, 2006 9:47 AM > Subject: Re: Re: Can you help me??? .......Penny We Made Changes Your email is all new. Learn More<http://us.lrd./_ylc=X3oDMTJqbzBlOWwzBF9TAzk3MzU5NzE0BF9wAzEEZ3JwSW\ QDOTE1NzQEZ3Jwc3BJZAMxNjAwMDYxNjQ1BHNlYwNuY21vZARzbGsDaW5mbwRzdGltZQMxMTQ5NjA2MT\ Yx;_ylg=1/SIG=11gd5l5o4/**local/newemail.html> Share Feedback<http://us.lrd./_ylc=X3oDMTJrMjUzYnVoBF9TAzk3MzU5NzE0BF9wAzIEZ3\ JwSWQDOTE1NzQEZ3Jwc3BJZAMxNjAwMDYxNjQ1BHNlYwNuY21vZARzbGsDZmRiY2sEc3RpbWUDMTE0OT\ YwNjE2MQ--;_ylg=1/SIG=11im36rmb/**http://surveylink./wix/p1412899.aspx> Recent Activity a.. 15New Members<http://us.lrd./_ylc=X3oDMTJkYW04YnBqBF9TAzk3MzU5NzE0BGdycElkAzk\ xNTc0BGdycHNwSWQDMTYwMDA2MTY0NQRzZWMDdnRsBHNsawN2bWJycwRzdGltZQMxMTQ5NjA2MTYx;_y\ lg=1/SIG=11s51bcsr/**/members> Visit Your Group <http://us.lrd./_ylc=X3oDMTJja25ic29rBF9TAzk3MzU5NzE0BGdycElkAzkxNTc0BG\ dycHNwSWQDMTYwMDA2MTY0NQRzZWMDdnRsBHNsawN2Z2hwBHN0aW1lAzExNDk2MDYxNjE-;_ylg=1/SI\ G=11k2kdaqk/**> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Val, One of the things I was concerned about is if I was allergic to metal. So far I haven't had a problem. But is it possible of some kind of allergy? I would not be able to live with that kind of pain. I am not to big on pain. Donna R Bone pain Does anyone else in the group have constant bone pain from their TJR?� I had a TKR 3 1/2 years ago and have had pain level of at least " 3-4 " 24/7 since then.� It keeps me from sleeping often and has made my life miserable.� � To add to the issue I cannot sleep when taking pain medication.� Stuff that puts other people to sleep keeps me awake. � I have searched far and wide for information concerning bone pain and haven't found anything that resembles my problem. � About 48 years ago I accidentally cut the end of a finger off.� Ever since then I have suffered constant pain in that hand.� Since it is just a small location�I can tolerate it.��I had hoped that the bone pain in my knee would go away but, if anything, it is increasing.� Perhaps it is just becoming a larger issue because I now understand that I will, most likely, never be free of that constant pain. � I have some other issues with my TKR that may be solved with another surgery; pain walking, more pain walking up or down stairs.� I see my surgeon again next week. � My left knee went " bone to bone " a couple of months ago.� The pain from being bone to bone is tolerable compared to that of my TKR knee.� At least it goes away when I am off of it. � Val in Idaho � � Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 It may be easier if it was an allergy. I have had the same bone pain with my amputated finger for 48+ years and there is no metal there. I always thought it was nerve damage. It finally came to me that the finger/hand pain increases and decreases in conjunction with use such as hammering nails or walking, but it never goes away. I was in denial over the bone pain issue for about 3 years but now I understand what is going on and that something must be done. Now if I can just find a way to get help on the issue. I can withstand a lot of pain as long as I know it will end sometime. This has my attention though because it just won't go away. It scares me to death that my left knee may be a candidate for a TKR. I am not sure I could live with twice the pain I have now. I don't know where the " ¿½ " stuff in my other message came from. I sure didn't put it in there. Val in Idaho From: Donna Rae <rae900@...> Subject: Re: Bone pain Joint Replacement Date: Thursday, May 20, 2010, 12:19 PM Val, One of the things I was concerned about is if I was allergic to metal. So far I haven't had a problem. But is it possible of some kind of allergy? I would not be able to live with that kind of pain. I am not to big on pain. Donna R Bone pain Does anyone else in the group have constant bone pain from their TJR? I had a TKR 3 1/2 years ago and have had pain level of at least " 3-4 " 24/7 since then.� It keeps me from sleeping often and has made my life miserable.� � To add to the issue I cannot sleep when taking pain medication.� Stuff that puts other people to sleep keeps me awake. � I have searched far and wide for information concerning bone pain and haven't found anything that resembles my problem. � About 48 years ago I accidentally cut the end of a finger off.� Ever since then I have suffered constant pain in that hand.� Since it is just a small location�I can tolerate it.��I had hoped that the bone pain in my knee would go away but, if anything, it is increasing.� Perhaps it is just becoming a larger issue because I now understand that I will, most likely, never be free of that constant pain. � I have some other issues with my TKR that may be solved with another surgery; pain walking, more pain walking up or down stairs.� I see my surgeon again next week. � My left knee went " bone to bone " a couple of months ago.� The pain from being bone to bone is tolerable compared to that of my TKR knee.� At least it goes away when I am off of it. � Val in Idaho � � Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 I have web TV and lots of times the bigger computers do that to me Not your fault. Donna R Bone pain Does anyone else in the group have constant bone pain from their TJR? I had a TKR 3 1/2 years ago and have had pain level of at least " 3-4 " 24/7 since then.� It keeps me from sleeping often and has made my life miserable.� � To add to the issue I cannot sleep when taking pain medication.� Stuff that puts other people to sleep keeps me awake. � I have searched far and wide for information concerning bone pain and haven't found anything that resembles my problem. � About 48 years ago I accidentally cut the end of a finger off.� Ever since then I have suffered constant pain in that hand.� Since it is just a small location�I can tolerate it.��I had hoped that the bone pain in my knee would go away but, if anything, it is increasing.� Perhaps it is just becoming a larger issue because I now understand that I will, most likely, never be free of that constant pain. � I have some other issues with my TKR that may be solved with another surgery; pain walking, more pain walking up or down stairs.� I see my surgeon again next week. � My left knee went " bone to bone " a couple of months ago.� The pain from being bone to bone is tolerable compared to that of my TKR knee.� At least it goes away when I am off of it. � Val in Idaho � � � � � Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Yes Val, I had so much pain in my knee before the replacement so much so, I would end up in hospital I just couldn't stand it any longer. Any way because of my young age, the OS didn't want to another joint as that would have been no 5, so he made me wait and wait, unit I begged him in tears to do it, he did but I continued with that pain for over 8 years until now all by its self its dissipating.very slowly. It can be the same as having an amputation of a limb, people who have legs and arms off for whatever reason, still remain in pain although the affected limb is gone. If everything is okay with the joint then perhaps seek a specialist pain clinic that's what I have done.   -- Bone pain Does anyone else in the group have constant bone pain from their TJR? I had a TKR 3 1/2 years ago and have had pain level of at least " 3-4 " 24/7 since then. It keeps me from sleeping often and has made my life miserable. To add to the issue I cannot sleep when taking pain medication. Stuff that puts other people to sleep keeps me awake. I have searched far and wide for information concerning bone pain and haven t found anything that resembles my problem. About 48 years ago I accidentally cut the end of a finger off. Ever since then I have suffered constant pain in that hand. Since it is just a small location I can tolerate it. I had hoped that the bone pain in my knee would go away but, if anything, it is increasing. Perhaps it is just becoming a larger issue because I now understand that I will, most likely, never be free of that constant pain. I have some other issues with my TKR that may be solved with another surgery pain walking, more pain walking up or down stairs. I see my surgeon again next week. My left knee went " bone to bone " a couple of months ago. The pain from being bone to bone is tolerable compared to that of my TKR knee. At least it goes away when I am off of it. Val in Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Has anyone gotten pain with tumor resorption/reduction? Or does it only happen with bone resorption via tumor growth? ~Eileen Quote Link to comment Share on other sites More sharing options...
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