Fibromyalgia and LDN

[Guest guest]

I have FM and have been on 4.5mg of LDN for 6 months now and have seen no

difference in my pain levels, sleep, and flareups. I take one tablet each night

at about 10 pm.

Any suggestions?

Thanks for your help.

nna

[Guest guest]

I think you ask more people about this - your posts are coming to my address alone - you should ask the entire group. There could be other reasons it's not working for you.Normally sucrose is a preferred filler as it aids fast metabolization of the NTX.Also what is your height and weight?Good luck. Jackie

From: speedygonzales1958 <speedygonzales1958@...>Subject: [low dose naltrexone] Fibromyalgia and LDNlow dose naltrexone Date: Thursday, June 17, 2010, 2:34 PM

I have FM and have been on 4.5mg of LDN for 6 months now and have seen no difference in my pain levels, sleep, and flareups. I take one tablet each night at about 10 pm.Any suggestions?Thanks for your help.nna------------------------------------

[Guest guest]

I know what you mean by the smell being to much. When the Exxon tanker sank of the UK the smell was awful and the loss to wildlife was terrible. The same thing happened when the TorrsCayon went down of the UK coast, the health of both humans and wildlife suffered bedly so try and keep away from it. May be it is a "wake up" call to us all to stop using so much oil and move towards renewable energy sources?

(UK)

-----Original Message-----From: low dose naltrexone [mailto:low dose naltrexone ]On Behalf Of smalk50@...Sent: 17 June 2010 22:09vbaker@...; low dose naltrexone Subject: Re: [low dose naltrexone] Fibromyalgia and LDN

I'm not flaring but when the wind blows from the south, that smell is too much for me - my throat burns - and we're 90 miles away from the coast. And extremely stressful!!!!!!

As for the fibro, diet is extremely important with most health concerns, especially fibro. Just eliminating gluten did away with most of my main symptoms - I still have pain but nowhere near where it was.

Nola Chris

In a message dated 6/17/2010 3:39:44 P.M. Central Daylight Time, vbakersstar writes:

I live in New Orleans and since the oil gusher in the Gulf I've been having a flare. A holistic practitioner (my veterinarian) says she thinks that the air quality here could definitely contribute to the flare, but that just the stress alone of what is happening here is probably enough.

[Guest guest]

nna,

I think you need to find a compounding pharmacy that developes the LDN is

capsule form. Fortunately I live in an area where there are 3 very reputable

compounding pharmacies. All make the LDN using capsules. I have a script for

4.5 but have needed to reduce my dose because of sleep challenges. I've never

heard of the LDN coming in a pill form; capsules and liquid. I would suggest

looking up a certified compounding pharmacy - if there isn't one in your area

many will ship for a nominal charge or for free. I know there is a link on the

low dose naltrexone.com website for certified pharmacies.

LDN has been a miralce for me - I've been on it since late May and have been

playing with my dose. My pain levels have diminished at least 80 - 90%. I

believe I read that in the Standford Study that was conducted there were approx

30% who did not receive any benefit. You might want to check out

www.patientslikeme. They have a FM/CFS group and there is quite a bit of LDN

data and sharing going on there.

>

>

> From: speedygonzales1958 <speedygonzales1958@...>

> Subject: [low dose naltrexone] Fibromyalgia and LDN

> low dose naltrexone

> Date: Thursday, June 17, 2010, 2:34 PM

>

>

> I have FM and have been on 4.5mg of LDN for 6 months now and have seen no

difference in my pain levels, sleep, and flareups.  I take one tablet each night

at about 10 pm.

>

> Any suggestions?

>

> Thanks for your help.

>

> nna

>

>

>

> ------------------------------------

>

>