Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 as attached From: qxci-scio-epfx-english [mailto:qxci-scio-epfx-english ] On Behalf Of dave@...Sent: 09 March 2009 14:53qxci-scio-epfx-english Subject: Re: Celiac Disease Hello all...Where do we find Dr Allistair's protocol. I have Celiac myself.Kind regards Dave Sent from my Verizon Wireless BlackBerry From: "Dr Renier du Toit" Date: Sat, 7 Mar 2009 17:09:28 +0200<qxci-scio-epfx-english >Subject: Re: Celiac Disease See Dr Alistair's protocols. Regards, Renier du Toit MA(Clin.Psych.),PsyD,ND,DIHom.www.collegenaturalmedicine.co.za Celiac Disease Hello everyone, I am new with the SCIO and I have a friend with Celiac Disease. She is 64yr. Has anyone ever worked with someone with this disease? Could you give me some ideas where to start with her? Any protocols? She has no peristaltic action in her bowels. She takes Cassacara and Slippery Elm every couple of day to help her go.She also has other issues. She has MAJOR allergies to scents,florecent lighting,etc...(She used to do furniture stripping and was chemically poisened.) She also has migraines.And Post Tramatic Stress...she was also told by someone that she has Epstein-Barr.Could all these things be related in some way?Any help would be GREATLY appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Sounds like allergies play a prominent role in her issues. I just found this info.. Celiac disease is treated by eliminating all gluten from the diet. The gluten-free diet is a lifetime requirement. http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ Best of luck to you, Joni >> Hello everyone, I am new with the SCIO and I have a friend with Celiac Disease. She is 64yr. Has anyone ever worked with someone with this disease? Could you give me some ideas where to start with her? Any protocols? She has no peristaltic action in her bowels. She takes Cassacara and Slippery Elm every couple of day to help her go.> > She also has other issues. She has MAJOR allergies to scents,florecent lighting,etc...> (She used to do furniture stripping and was chemically poisened.) > She also has migraines.> And Post Tramatic Stress...she was also told by someone that she has Epstein-Barr.> Could all these things be related in some way?> > Any help would be GREATLY appreciated!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Biopsy is the gold standard for ruling in/out celiac. (If IgA is low or dysfunctional the blood tests aren't accurate.) I'm not sure that I have answers to your other Qs but CVID and GI issues do go together for many. Mom to CVIDer Sent on the Now Network™ from my Sprint® BlackBerry Celiac disease Hi all. My 12 year old CVID son is being biopsied tomorrow for possible Celiac Disease. I have been doing a bit of research and am confused. Does anyone in the group have this condition as well? I am reading that CVID kids can have a Celiac Sprue " like " condition??? What is that? Is it the same? It says the intestine damage is similar, but the Gluten Free diet doesn't seem to work? If anyone has any insight on this, it would be greatly appreciated.... Thanks a bunch! Kim, Mom to 12-CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 Mollie (age 6, mild pid but unknown) had had 2 biopsies done but she was already gluten free prior to the testing, so they were not accurate. A gluten free diet certainly helps her (and our 4 year old also). Mollie did have a positive allergy test to wheat as an infant, but tested negative for an allergy just a few weeks ago. She was glutened by accident at a restaurant on Tuesday and it is not a good few days for her. So even without a celiac dx, she is on a gluten free diet. Good luck with testing! Rita Wow!! Have you checked out the new books?? Introduce educational excellence with Usborne Books to your community. Host a show and earn free books! Great time to order gifts too. http://www.ubah.com/J0511/ Hi all. My 12 year old CVID son is being biopsied tomorrow for possible Celiac Disease. I have been doing a bit of research and am confused. Does anyone in the group have this condition as well? I am reading that CVID kids can have a Celiac Sprue " like " condition??? What is that? Is it the same? It says the intestine damage is similar, but the Gluten Free diet doesn't seem to work? If anyone has any insight on this, it would be greatly appreciated.... Thanks a bunch! Kim, Mom to 12-CVID _________________________________________________________________ Hotmail® is up to 70% faster. Now good news travels really fast. http://windowslive.com/online/hotmail?ocid=TXT_TAGLM_WL_HM_70faster_032009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Apart from the various protocols on the SCIO, one also when on the move and eating out, can use the zeropoint laser to treat food and drinks prior to cooking and ingestion. As a bonus the laser also improves the taste of food stuffs all. Here is a link to my website so you can find out more... http://quantumedical.zeropointglobal.com/resources/audiovideo.shtmlRegards Hello! All Health Practitioners. TECHNOLOGY TAKES OUT THE GUESS WORK! The revolutionary SCIO quantum biofeedback device is the product of years of research combining holistic medicine with advanced quantum technology. The SCIO gives you information about your body on a quantum energetic level. It reveals anything that is negatively affecting health by finding energetic imbalances in the body by responding to the body's electric reactivity patterns. Further details at our website or just reply to this email asking for more information Thank you for you attention. Branco QuantuMedical Ltd. Tel.: +49 30 3010 1163 Mobile: +49 176 2079 6804 http://quantumedical.com/ http://www.sciosan.com/site/scio.html http://quantumedical.zeropointglobal.com/resources/audiovideo.shtml This e-mail is confidential and may contain privileged information. If you are not the addressee it may be unlawful for you to read, copy, distribute, disclose or otherwise use the information in this e-mail. If you are not the intended recipient please notify us immediately. qxci-scio-epfx-english From: joni_job@...Date: Tue, 17 Mar 2009 16:07:10 +0000Subject: Re: Celiac Disease Sounds like allergies play a prominent role in her issues. I just found this info.. Celiac disease is treated by eliminating all gluten from the diet. The gluten-free diet is a lifetime requirement. http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ Best of luck to you, Joni >> Hello everyone, I am new with the SCIO and I have a friend with Celiac Disease. She is 64yr. Has anyone ever worked with someone with this disease? Could you give me some ideas where to start with her? Any protocols? She has no peristaltic action in her bowels. She takes Cassacara and Slippery Elm every couple of day to help her go.> > She also has other issues. She has MAJOR allergies to scents,florecent lighting,etc...> (She used to do furniture stripping and was chemically poisened.) > She also has migraines.> And Post Tramatic Stress...she was also told by someone that she has Epstein-Barr.> Could all these things be related in some way?> > Any help would be GREATLY appreciated!> Share your photos with Windows Live Photos – Free. Try it Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 People with celiac should never eat gluten.all the people should avoid gluten.all the people should avoid grains.grains ,maize peanut are contaminated with mycotocines and fungus http://knowthecause.com/ http://www.questioningaids.com/index.php?option=com_content & view=article & id=146:corn-aids & catid=52:front-page-news Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 I'd like to make some small clarifications to this material. One can have celiac disease (CD) with no overt symptoms at all. About half those with CD are symptom-free at the time of diagnosis. In these cases, CD was suspected because of nutritional deficiencies and confirmed (usually) through a blood test followed by a biopsy. Obesity definitely doesn't rule out CD, as doctors used to think. About 1% of the overall population in the U.S. has CD. It's more common among those who already have an AD. Ethnicity is a factor, too. Any untreated AD can trigger others. Oats: Oats often are contaminated with gluten grains, particularly in the U.S. Gluten-free oats now are on the market; several brands are available. However, some people with CD can't tolerate even pure oats. Oat intolerance seems to have a genetic basis. (Note: Bob's Red Mill sells both gluten-free and non-GF oats. Make sure you get the GF version!) Harper MARKETPLACE Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. Hobbies & Activities Zone: Find others who share your passions! Explore new interests. Stay on top of your group activity without leaving the page you're on - Get the Toolbar now. Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Hi Kristi, Trent who is 26 has just recently been diagnosed with Coeliacs disease, as was his older brother. The first thing I did was go through our pantry and labelled the food items we had - Smiley face for foods which are okay and a red cross for foods he cannot eat. You will be surprised at what actually contains wheat/oats/barley/rye. My eldest son, joined the coeliacs society - I haven't as yet not sure that it is really worth it. I did download an app for iphone which has been great, we have probably learnt more from that than going to a dietician. It lists all foods and indicates whether it is 'friendly' or not. Handy when reading labels and not sure if xyz ingredient is okay or not. Fast food treats - Mcs sundaes and chips are okay, as are Hungry Jacks - KFC is a big no no. Tomato Sauce - some brands are okay some are not. For us Heinz is the better brand, as Trent is covered in spots again I think the tomato sauce he has been drinking of late has something in it he can't have. Trent loves his rice which fortunately isn't a problem but the pasta he also loves now costs about 10 times more than the cheap brand I use to get. During the school/work term I cook up a large amount of pasta and freeze into small bags for his lunch. I haven't done this as yet, but have been told to mix a small amount of oil with it which helps with separation when thawing. It sounds all rather daunting but if you keep to fresh foods it isn't too bad. For us the biggest problem has been eating out, gf food to many is salad, which can be boring for a night out. At our local cafe, where Trent likes to eat regularly I either take my own bread/wrap or which I have been finding easier of late, order a hamburger without the roll, with chips on the side (which replaces the roll). Have heard conflicting thoughts on chips - some say the oil is hot enough to kill off any cross contamination others say no, in this instance I take the risk as it isn't often and only a few. Here our supermarkets have an area in their Healthy food section dedicated to gluten free food - items are more expensive but you can still get biscuits and chips etc. Have also found in the freezer section pastry and some frozen food items, though the meatballs I purchased recently where like eating sawdust. Gluten free bread is one of the most horrible foods out and it is expensive (as all gf stuff is). You may find it easier to bake your own or just keep shopping around until you find a baker who makes a nice one. All the best, I'm sure you will manage and will find that it isn't that big a change to your life. Keep smiling Jan mother of Trent 26yo w/DS from the LandDownUnder From: [mailto: ] On Behalf Of KristiD Sent: Wednesday, 19 January 2011 2:57 AM Subject: Celiac Disease Hi everyone! I haven't commented in a while, but I need some advice now. is almost 2 and a half and has had diarrhea for about 3 months. He had an endoscopy a week and a half ago because none of his other tests had been positive for anything. His GI doctor just called me and said the biopsy results were positive for celiac disease and lactose deficiency. I had done a lot of research beforehand and was fully expecting this diagnosis. It's stressful because it adds just one more thing to our laundry list of medical problems but I know we'll manage okay. I know celiac disease is fairly common in people with DS, so I just wanted to see if any of you have experience with it. If you have any tips for me as a complete newbie to this or if you know of any DS/Celiac groups out there? As far as the lactose deficiency, he already drinks soy milk because he's never been able to tolerate dairy very well. So that's not such a dramatic finding. Thanks everyone! Kristi Mom to (6) and (2 - DS and a whole list of other things which now includes celiac disease) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 The classic GF diet is loaded with additives and white processed foods that can cause even more problems. We use the SCD(it's GF too) which can be found at pecanbread.com. They also have a listserv that is AWESOME. Carol in IL Mom to , 10!!!! *Club Layton* <http://clublayton.blogspot.com/> Where games are played, and friends are made! *A big THANK you to :* Layton Athletics <http://laytonathletics.com/> 5402 Austin Court Ringwood, IL 60072-9404 (815) 728-9700 *for their generous *donation* of their building for our activities!!* On Tue, Jan 18, 2011 at 9:56 AM, KristiD <kristiduda@...> wrote: > > > Hi everyone! > I haven't commented in a while, but I need some advice now. is almost > 2 and a half and has had diarrhea for about 3 months. He had an endoscopy a > week and a half ago because none of his other tests had been positive for > anything. His GI doctor just called me and said the biopsy results were > positive for celiac disease and lactose deficiency. > > I had done a lot of research beforehand and was fully expecting this > diagnosis. It's stressful because it adds just one more thing to our laundry > list of medical problems but I know we'll manage okay. > > I know celiac disease is fairly common in people with DS, so I just wanted > to see if any of you have experience with it. If you have any tips for me as > a complete newbie to this or if you know of any DS/Celiac groups out there? > > As far as the lactose deficiency, he already drinks soy milk because he's > never been able to tolerate dairy very well. So that's not such a dramatic > finding. Thanks everyone! > > Kristi > Mom to (6) and (2 - DS and a whole list of other things which > now includes celiac disease) > > > Quote Link to comment Share on other sites More sharing options...
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