Guest guest Posted June 13, 2010 Report Share Posted June 13, 2010 Sorry I missed your first post, Lauri. Yes, if you know people who benefiting long-term from taking 4.5mg LDN twice a day who'd like to contribute their detailed health case studies, then of course we're all interested. Please email them to ask if they'd be happy to do that. In response to your later email... nothing should be taken personally from recent posts and I'll explain why... Anyone can create an identity, join and post in a group. Many long-term members of this group, myself included, have seen people join the group with less than altruistic reasons over these past years... to disrupt, to sell and profit, to raise their own profile or push their own agendas... or in other words, someone who is not necessarily who they say they are and whose motivation for being here is questionable. They have come and gone, frequently, but in-between quite a few have made rash statements, some have encouraged group members to join them elsewhere, others have harassed members or stirred the pot behind the scenes, etc. It's important for everyone in this group, particularly newcomers, to know that all long-term group members have their best interests at heart at all times. Group members contribute and support newcomers from a position of knowledge and experience gained here over many years. And those group members know from those years of personal experience that Bihari's protocol works well for the majority, and has been working well for the majority since the 1980s. Even so, members still keep an open mind. To clarify... 'keeping an open mind' is not the same as 'believing everything that everyone says', particularly in light of what this group has been subjected to by comings and goings over the years. So yes, naturally, they will ask for more information in support of a claim that differs from that which they know works well, because not to do so would subject newcomers to possibly unproven, confusing, conflicting, or perhaps even dangerous information... because 'someone said so'. There is nothing personal about that and no-one is targeting you or any other individual personally. This group guides and protects newcomers because they were once new to LDN themselves, without medical support, trying to find their own way forward, and they know how hard it was for them. They have volunteered hundreds of thousands of hours of their time to support newcomers so others don't have to go through what they went through. And that commitment has contributed substantially to the growth in the numbers of people benefiting from LDN and who have subsequently gone on to also spread the word about LDN. That you heard about LDN at all is due in large part to LDN advocates' all over the world who are committed to raising LDN awareness and alleviating the suffering of people they've never met. It's true that Bihari's protocol doesn't work for every person every time. Every person is different. LDN cannot be considered a stand alone treatment because... while it's true that some have done nothing more than take LDN and have benefited, others have not and have had to modify their lifestyle or other factors along with taking LDN. If a person is eating fast food dinners every night they can't expect to achieve the same level of outcome from LDN as someone who eats salads every night... and that's just one possible variable factor among potentially thousands of variable factors, of which only one would be the size of their LDN dose. That same person could well have a stumbling block when they start LDN. If you were supporting that new person, a person who has no prior knowledge or experience of LDN, you'd probably ask questions to get a better handle on the variables in their individual circumstances, and you'd probably encourage them toward a healthier lifestyle (among other variable factors), and you'd probably exhaust all those possibilities... long before experimenting with a proven dosing regimen. Why? Because it's more likely one or more of those variable factors is the stumbling block, the reason why LDN is not working as well for them as it is for others. I hope this clears the air about why questions are posed here. They are just questions. No fingers are/were being pointed, and there are no hanging judges here :-) Just a group of people doing their best to help others, as safely as possible. All my best, Cris Kerr 'Advocate for the value of patient testimony' Freely Shared LDN Resource Book: 'Those Who Suffer Much, Know Much' http://www.ldnresearchtrustfiles.co.uk/docs/2009.pdf Ex Administrator - 'Case Health - Health Success Stories' website (May 2001 to May 2009 - casehealth.com.au & casehealth.com) " The good we secure for ourselves is precarious and uncertain until it is secured for all of us and incorporated into our common life. " Jane Addams Quote Link to comment Share on other sites More sharing options...
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