To feel better

[Guest guest]

April 1988 I had a neurological attack that sent me to the hospital for over one

month and out of work for many months. MRI showed I had lesions on my brain stem

/ pons area of the brain. After ruling out Lyme disease, encephalitis, stroke,

cancer and other things the neurologist diagnosed me with multiple sclerosis. It

was very upsetting. I was only 34 years old. My passion was playing sports and

could see myself doing this until the day I died. This dream is over forever.

I've been using LDN since March 2005. Started at 3mgs and went to 4.5mgs three

months later. I only wish I had found out about LDN sooner as I wouldn't be

dealing with the physical problems I now have. This I am sure of. LDN truly is a

blessing for me.

I am open-minded and willing to experiment to find what works best for me. This

group and others bring up many ideas -some good, some not. I've tried 6-8mgs

LDN, also tried skipping doses to see if this is better for me. Tried homemade

liquid LDN and morning / afternoon dosing. I find for me it is best to take

4.5mgs LDN compounded capsules every night at 10pm.

I think most people who join this group do so to improve their health, I know

this is why I joined and I stay to help others who want to do the same. I know

where the bodies are buried. Although I find it interesting to read about

different theories and the occasional debates I am not into getting involved

with them and I wish the group would stay on topic. Good thing for some I am not

the moderator.

I will never tell anyone what to do, but I will tell them what works best for me

and others who have MS that use LDN successfully. We are struggling with a

serious illness and this is no time to play around with risky advice from people

who don't have MS. You don't understand what it is like, you can't unless you

have it.

I wish Dr. Zagon nothing but the best, but for me I am going to 'dance with them

that brung ya'. Dr. Bihari and his protocol is the way to go, in my opinion, of

course.

Art

Low Dose Naltrexone Forum

http://ldn.proboards.com/index.cgi?

One more thing, call your local NMSS office and ask them why they don't

recognize LDN as a legitimate treatment and fully fund trials.

http://www.charitynavigator.org/index.cfm?keyword_list=national+multiple+scleros\

is+society & Submit2=GO & bay=search.results

--

[Guest guest]

Hi All,I too have MS. I was diagnosed at the age of 26 in October of 1986. I've been taking LDN since February of this year. My doctor advised me to start on 1.5 mgs for three weeks, then to take 3.0 mgs for three weeks and then continue with 4.5 mgs. if I could tolerate it. I did as he said and felt great when I went up to 3.0 mgs. I had more energy than I had in years and my MS fatigue was gone! When I went up to 4.5 mgs I felt horrible. I felt like I had a dark cloud over my head. I felt down and cranky every day. I tried for about six weeks to stick it out on 4.5 mgs. thinking I would adjust. I wasn't getting much sleep during the night. I was exhausted all the time. Finally I asked this group for advice and everyone was so kind. Many advised that I should take less than 4.5 mgs. because of my weight. I weigh about 115 lbs.; probably less now since LDN has suppressed my appetite and I'm just never very hungry (my doctor warned me that this was a side effect some of his patients had experienced). I think 4.5 mgs was too much for me. Now that I went down to 3.0 mgs I feel FANTASTIC again! So far I've had no disease activitiy. I thank God I found LDN. It is important to listen to your body. 4.5 mgs is the correct dosage for Art and 3.0 mgs. is the correct dosage for me.AnitaOn Jun 13, 2010, at 2:53 PM, art_ldn wrote:April 1988 I had a neurological attack that sent me to the hospital for over one month and out of work for many months. MRI showed I had lesions on my brain stem / pons area of the brain. After ruling out Lyme disease, encephalitis, stroke, cancer and other things the neurologist diagnosed me with multiple sclerosis. It was very upsetting. I was only 34 years old. My passion was playing sports and could see myself doing this until the day I died. This dream is over forever.I've been using LDN since March 2005. Started at 3mgs and went to 4.5mgs three months later. I only wish I had found out about LDN sooner as I wouldn't be dealing with the physical problems I now have. This I am sure of. LDN truly is a blessing for me.I am open-minded and willing to experiment to find what works best for me. This group and others bring up many ideas -some good, some not. I've tried 6-8mgs LDN, also tried skipping doses to see if this is better for me. Tried homemade liquid LDN and morning / afternoon dosing. I find for me it is best to take 4.5mgs LDN compounded capsules every night at 10pm. ArtLow Dose Naltrexone Forumhttp://ldn.proboards.com/index.cgi?One more thing, call your local NMSS office and ask them why they don't recognize LDN as a legitimate treatment and fully fund trials.http://www.charitynavigator.org/index.cfm?keyword_list=national+multiple+sclerosis+society & Submit2=GO & bay=search.results--

[Guest guest]

Hi Anita,

Thanks for sharing your LDN experience and for helping to support group members.

If you'd like a copy of the free book, last year's is available here:

'Those Who Suffer Much, Know Much' 2009 edition

47 x LDN health case studies, 9 interviews with health professionals

http://www.ldnresearchtrustfiles.co.uk/docs/2009.pdf

The 2009 International Awareness Week book is also free and available here:

'101 Reasons Why... You Should Know About LDN' 2009 edition

100 x patient testimonies of health success with LDN, LDN Research Trust

http://www.ldnresearchtrustfiles.co.uk/docs/International%20LDN%20Awareness%20We\

ek%20eBook.pdf

I'm working on the 2010 editions now, and we welcome all new stories:

(1) First Name, Surname Initial, Country

(2) Diagnosis Date, Diagnosed Condition

(3) LDN Start Date

(4) Your LDN Story

All my best,

Cris

8b. Re: To feel better

Posted by: " Anita Meyers " anitabmeyers@... anitameyers49

Date: Sun Jun 13, 2010 5:15 pm ((PDT))

Hi All,

I too have MS. I was diagnosed at the age of 26 in October of 1986.

I've been taking LDN since February of this year. My doctor advised me

to start on 1.5 mgs for three weeks, then to take 3.0 mgs for three

weeks and then continue with 4.5 mgs. if I could tolerate it. I did as

he said and felt great when I went up to 3.0 mgs. I had more energy

than I had in years and my MS fatigue was gone! When I went up to 4.5

mgs I felt horrible. I felt like I had a dark cloud over my head. I

felt down and cranky every day. I tried for about six weeks to stick

it out on 4.5 mgs. thinking I would adjust. I wasn't getting much

sleep during the night. I was exhausted all the time. Finally I asked

this group for advice and everyone was so kind. Many advised that I

should take less than 4.5 mgs. because of my weight. I weigh about 115

lbs.; probably less now since LDN has suppressed my appetite and I'm

just never very hungry (my doctor warned me that this was a side

effect some of his patients had experienced). I think 4.5 mgs was too

much for me. Now that I went down to 3.0 mgs I feel FANTASTIC again!

So far I've had no disease activitiy. I thank God I found LDN. It is

important to listen to your body. 4.5 mgs is the correct dosage for

Art and 3.0 mgs. is the correct dosage for me.

Anita

9a. Re: Digest Number 6211

Posted by: " Anita Meyers " anitabmeyers@... anitameyers49

Date: Sun Jun 13, 2010 7:28 pm ((PDT))

Thanks for the info Silvia,

I look forward to reading her book.

Anita