my happy little update

[Guest guest]

Hi everyone - here is my update. I have clinical Lyme but two

POS for Rikettsia.

I have been on ABX ( Zithro ) and Flagyl for 4 months now....and what

happened was as follows:

1st month - immediate improvement with mood, energy and sleep. The

fevers lasted mornings only, and I would be well by evening.

2nd month - changed over onto Mepron

Had no side effects from the Mepron. I took Quinine and Clyndamycin

for a while - the Quinine sent me spinning - turns out it can have

nasty side effects, with severe tinnitus, and my favourite, psychosis.

Had about 10 days of fever, probably in response to my hideous time

with the Quinine. That is why I changed to Mepron.

3rd month - the best so far. I have a 6 week menses cycle, so I had 5

weeks of no fevers - and 4 days at *the end* of my menses. Usually I

flare up a week before, then during, and a bit after. I had little PMS.

I still have migraines - but not as severe.

4th month - Dr M has agreed to keep me on ABX as I am improving so

easily. I realise for many of you, trying the medications has been

very trying. I have been lucky in that I only had one adverse effect,

and now I am doing well. Apart from terrible yeast, ( which the

acidophilus isn't addressing ) I am doing better.

I had two flare ups this month - and a cold. I feel a little run down

as I am having to start working on my home business more.

So now I am starting Plaquenil and staying on the Zithromax. I am

doing so so well. It almost feels like I have gone through the worst.

THough I know of so many of you who do so well on ABX - and then

relapse....I worry about that. I did go off of ABX for 2 weeks during

this process without relapse, but I realise it is very short.

I have noticed, month by month, things are just getting easier. Based

on that, it would not make sense to pull me off of ABX right now. Dr

said he would not keep me on them if I a)got worse stayed the same

He has asked me to write my personal experience up so he can submit it

to the Canadian College of Physicians. He is lobbying for more

teaching and is using case histories to prove this.

I NEVER thought this treatment would work, based on so much of the

negative stuff I had read in certain groups about relapse - and even

if I do relapse, I have hope now, that in time, some better strategies

will come about. Now that I have had some time off of being ill, I can

think clearer, and feel more hopeful - for all of us. This is my

little positive note to those out there, starting ABX and wondering,

while reading about all the side effects, if it will be worth it.

JUST THE BREAK - is worth it. HAve faith,

Namaste

Carmen