Lyme and mothers/ low milk supply

[Guest guest]

I would never, ever use breastmilk since I have Lyme. It is very

possible to infect the baby if the baby already isnt infected form being

carried by a sick mother. Lyme has been found in many, if not all, bodily

fluids. If the mother is infected, has rececently been infected or heck,

for any past infection ( Lyme) I wouldnt feed breastmilk. Just way too

risky.

[ ] Lyme and mothers/ low milk supply

> Hi, sorry for jumping in here. I'm a Lymie and a lactation consultant,

> and since I had supply problems with all four of my children, low milk

> supply has become my specialty.

>

> Recently I learned that Lyme affects the pituitary, and I wonder if that

> contributed to my supply problems. I'm throwing two questions out to

> this group: if anyone here had unexplained low milk supply when nursing

> their babies, please contact me. The same thing, if you were really

> sick, but you had completely normal milk supply, also contact me. My

> email address is:

>

> hjacobson @ tiscalinet.ch (remove spaces)

>

> Thank you!

>

> son

>

> www.mother-food.com

>

>

>

>

>

> Questions and/or comments can be directed to the list owner at

-Owner

>

>

[Guest guest]

I have always felt bad because i couldnt breast feed my boys...now i think it's

one of the only good things to happen to them !!I have lyme and coinfections and

have been told that i have had them undiagnosed for many years.i had my boys

tested and they came back negetive.When trying to breast feed i couldnt make

enough milk so the doctar told me not to try .My breast became black and blue.my

boys are now 16 and 18.

i would like to take this moment to mentchon a couple of bumps i have on my

nipple area.They are skin colored & painless for the most part.my best friend

(age39)developed breast cancer this past year so i promised her i would go in

for my mammogram.the day of my appointment i was online researching and decided

to google a new phrase " lyme disease and breast cancer " .This brought me to alot

of info.one site i found about borrelia had pictures of various things.One

categroary was named " variations in lyme disease rash " .i clicked on this and was

stunned to find one picture that appeared to be a nipple area of a breast!I

thought to myself huh..that looks like my breast .So...i clicked on the picture

to enlarge it and sure enough there was a nipple with three skin colored nodules

surrounding it.(still in the pink area of the nipple.)It looked just like my

breast!!This rash was named BORRELIA LYMPHOCYTOMA.after intense search on the

net i printed off the info and took it with me to my Doctar.she was stunned and

had never heard of this condition.In an article that i took her it stated that

this can be mistaken for lymphoma.It also said that it may even turn to lymphoma

after time...it said it can be caused from nuerologic borrelia infection.i had

my mammogram done and it came back fine.they did ultra sound of the area

also.after all these tests came back OK my doctar did a skin biopsy of these

bumps.Those also came back ok.Not sure what lab was used.My reading has found

others in europe whom have had this.Some had masectomy before finding out about

the lyme disease.I have read that this is vary rare...that most doctars arent

familar with this in US.in europe 2% of borrelia cases develop these nodules and

they can appear on other areas beside the breast.I have one on my forehead

also.My doctar isnt too worried ...i am thou!!She says to treat the horses and

the zebras will stand out on thier own!! This is just one more way this bacteria

is able to silently invade or immune!!Please read about Borrelia lymphocytoma

before and breast surgery or chemo.

beth

molymie

--- son <hjacobson@...> wrote:

From: son <hjacobson@...>

Date: Fri, 29 Apr 2005 19:26:54 +0200

Subject: [ ] Lyme and mothers/ low milk supply

Hi, sorry for jumping in here. I'm a Lymie and a lactation

consultant,

and since I had supply problems with all four of my children,

low milk

supply has become my specialty.

Recently I learned that Lyme affects the pituitary, and I

wonder if that

contributed to my supply problems. I'm throwing two questions

out to

this group: if anyone here had unexplained low milk supply when

nursing

their babies, please contact me. The same thing, if you were

really

sick, but you had completely normal milk supply, also contact

me. My

email address is:

hjacobson @ tiscalinet.ch (remove spaces)

Thank you!

son

www.mother-food.com

[Guest guest]

Borrelia lymphocytoma in the breast

Ugeskr Læger 2005;167: 1649-1650

We present the case of a 44-year-old woman who discovered a tumour under her

right nipple. There was no history of tick bite by Ixodes ricinus or any early

sign of infection with Borrelia. The lesion was recognisable only on

mammography. A cutaneous biopsy provided the diagnosis of cutaneous lymphoid

hyperplasia, and blood samples showed elevated Borrelia burgdorferi antibody IgG

titre levels. The patient was treated with peroral phenoxymethylpenicillin for

10 days, and at a clinical control six weeks later the subareolar lesion was no

longer recognisable. Subareolar tumors in women of are often malignant, i.e.

breast cancer, or due to infections in the mammary duct system. Malignant

conditions must first be ruled out, but mammography as a supplementary

examination might be indicated in young women with retroareolar tumors, even

though mammography as a primary diagnostic tool normally is not used in women

below the age of 30. The taking of a thorough medical history is also essential.

Korrespondance: Hørby, Søndervej 48 C, DK-2830 Virum.

E-mail: jhoerby@...

Antaget: 1. juni 2004

Interessekonflikter: Ingen angivet

--- son <hjacobson@...> wrote:

From: son <hjacobson@...>

Date: Fri, 29 Apr 2005 19:26:54 +0200

Subject: [ ] Lyme and mothers/ low milk supply

Hi, sorry for jumping in here. I'm a Lymie and a lactation

consultant,

and since I had supply problems with all four of my children,

low milk

supply has become my specialty.

Recently I learned that Lyme affects the pituitary, and I

wonder if that

contributed to my supply problems. I'm throwing two questions

out to

this group: if anyone here had unexplained low milk supply when

nursing

their babies, please contact me. The same thing, if you were

really

sick, but you had completely normal milk supply, also contact

me. My

email address is:

hjacobson @ tiscalinet.ch (remove spaces)

Thank you!

son

www.mother-food.com

[Guest guest]

heather wrote:

I would never, ever use breastmilk since I have Lyme. It is very

possible to infect the baby if the baby already isn't infected form being

carried by a sick mother. Lyme has been found in many, if not all,

bodily fluids. If the mother is infected, has rececently been infected

or heck, for any past infection ( Lyme) I wouldnt feed breastmilk. Just

way too risky.

,

This is just my opinion, and only a general one at that. There may be

differences, say, if a mother has a fresh active infection, or if she

was infected before pregnancy. A LLD would have to give specific

recommendations.

My take is this: the baby is already infected in the womb. Breastmilk

helps develop optimal maturity in the baby's intestine, which is

extremely important for avoiding food sensitivities and preventing

allergies, celiac, and developmental problems. They get immune

substances in breastmilk that can help an otherwise potentially

immune-challenged baby.

I would rather do as Dr. Klinghardt recommends for heavy metal

extraction. If you have amalgam fillings while pregnant, ok, breastfeed,

ok, but at some point, as early on as possible, begin gentle chelation.

And with children, as early on as possible, begin treatment, but give

them the mothering they can get from breastfeeding.

Of my four children (and I had Lyme before getting pregnant though

didn't know it), the length of time I nursed had nothing to do with

their later getting active Lyme. My Lyme doctor suggested that although

Lyme is present in breastmilk, because it is in the presence of immune

cells it isn't as lethal as, say, transmission through contact to urine,

where the Lyme isn't kept in check.

She also suggested that treatment with children is fairly easy because

they are young and their tissue is permeable so the antibiotics can go

deep. Of course it should be fairly long-term antibiotics. My children

were treated immediately as it broke out (we were REALLY lucky to

recognize what we had and find a Lyme literate doctor), and they have

not been active since (this was four years ago).

BTW - a firstborn always has a higher toxic load. If a mother writes

that her firstborn was nursed a long time and was really ill, but later

borns were nursed less and are healthier, it's likely this is just

because of the nature of the firstborn getting the heaviest load of

fat-soluble toxins, including our neurotoxins. :-(

I don't follow this list -- so if anyone wants to write, please send to

my private address.

son

[Guest guest]

,

I just read your post on Lyme Aid about milk supply issues while

breastfeeding with Lyme disease. I was just diagnosed with chronic

and acute Lyme in January. I have had it for years but just started

getting really sick this last January and figured out why. I have

two children, a son who is 2 yrs 5 months and a daughter who just

turned 1. I breastfeed my son until he was 1. The last 4 months of

breastfeeding him I was pregnant with my daughter. I am now just

weaning my daughter off of breast milk. In fact today I'm going

cold turkey and giving her goat milk. We just got her Lyme tests

back last Friday and she does not have it. My son has chronic and

acute Lyme. My argument and my docs argument to continue

breastfeeding her was that if she already had Lyme, giving her

breast milk was better for her to help prevent allergies, etc than

not to. Now that I know she doesn't have it I'm not going to give

her any chances at getting Lyme through my milk.

I didn't have any supply issues with either child until I was

pregnant or until recently when I started to pump less frequently.

That's the other thing. Both babies were born with shoulder

dystocia and had a hard time nursing. My son couldn't latch well at

all and I was solely pumping starting at 4 1/2 months. My daughter

had neurological problems from her shoulder dystocia and was

hospitalized for failure to thrive at 4 1/2 weeks so I have been

solely pumping for her since then. I can't even tell you how many

lactation consultants we saw and advice I was given from other

mothers to try. I did produce enough milk that I was able to give

my son breast milk too up until this January when I got sick and

decided to pump less (before I knew I had Lyme).

I'm just baffled that my son has Lyme but my daughter doesn't.

Especially since it was with her breastfeeding when I got really

sick. I'm not sure how to explain it. Of course we will get her

tested again in a few years to be sure. She shows no physical signs

of Lyme either.

This is a topic that interests me quite a bit. I have even

contacted Igenex to let them know I have frozen breast milk from

before I started antibiotics, while on them and I will keep pumping

1x a day until I'm done with antibiotics if they wanted to have a

samples of my milk from each stage to test. They haven't called me

back to take me up on my offer. I let them know my offer is to help

with further studies, not for my benefit.

Anyway I am really interested in other mothers who have children

that were breastfeed and what their outcome with passing Lyme was.

It's too bad mothers are not screened for Lyme when they get

pregnant. Of course I know not all tests will show all positive

mothers, but at least the ones that do come back positive and didn't

know they had it can have the knowledge to make sound decisions.

Take care!

> Hi, sorry for jumping in here. I'm a Lymie and a lactation

consultant,

> and since I had supply problems with all four of my children, low

milk

> supply has become my specialty.

>

> Recently I learned that Lyme affects the pituitary, and I wonder

if that

> contributed to my supply problems. I'm throwing two questions out

to

> this group: if anyone here had unexplained low milk supply when

nursing

> their babies, please contact me. The same thing, if you were

really

> sick, but you had completely normal milk supply, also contact me.

My

> email address is:

>

> hjacobson @ tiscalinet.ch (remove spaces)

>

> Thank you!

>

> son

>

> www.mother-food.com