Guest guest Posted April 21, 2005 Report Share Posted April 21, 2005 Hi Eve, I have Lyme 26 years and have had many balance problems. I have fallen over many times. 13 weeks ago I began a new Lyme treatment. Within 3 days the severe headspins stopped and have not returned. There are also many other steady improvements. Check it out at www.Lymephotos.com <http://www.lymephotos.com/> & <lymestrategies/> lymestrategies/ Regards, Rosemary. _____ From: [mailto: ] On Behalf Of eve Sent: Thursday, 21 April 2005 3:17 PM Subject: [ ] loss of balance I was wondering if anyone has felt a loss of balance and fallen done because of it. I have fallen backwards so much , they think I might have pulled a muscle because of it, does anyone know anything that might help??...eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Hi Flag, I can't speak for Harold; but I can share why my balance was compormised after my CI Surgery. My balance nerve in my left ear was destroyed during surgery. When my balance issues did not resolve itself after 3 months I pleaded for exercises to do at home and I did those exercises 3 times a day for 8 months to retrain my eyes, ears and brain to work together on my balance. It took a lot of hard work doing those exercises 3 times a day and I started seeing progress after 3 months. Today, I feel pretty darn good even though I can't walk unsupported in the dark, or in the surf of the ocean or on any uneven ground. I have no regrets about losing my balance. I always did have a bit of a sway anyway due to not seeing out of my right eye and being profoundly deaf in both ears. Besides, I am in awe with what my CI has given me hearing wise! I often think about what it would be like to have the right ear implanted but I have no support to go for it unless I lose the sight in my left eye. I'm happy with what I have now. Thanks for sharing your experience! Patti > > > > I had my CI-left on March 25 and received my processor April 29. I am due to get my CI-right on September 23; however, I have had a vestibular balance evaluation and the doctor says that my left side balance is seriously compromised. He is concerned that if the same thing happens to my right side balance, I would be left with little ability to balance myself. Has anyone experienced this? How bad can it be? Please advise. > > > > Harold > > Flint MI > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2011 Report Share Posted August 27, 2011 When I lost all of my hearing in February, I lost my entire vestibular balance system. It took my 6 weeks to relearn how to sit, stand, and walk. After 6 months, movements are becoming automatic. They say it takes 20 years for the body/brain to relearn a " NEW " way to balance. I only have oscilopsia or bouncy vision due to the loss. So based on my experience, any balance can be relearned in a new way. Has that happened with the affected ear so far? If your body is sensitive to CI insertion/use, it would be a future concern. I rehabbed 3-4 hours a day to get this far. It was hard work. Also, the vestibular balance regions of the nerve/ear seem to be related as far as my experience goes. Auditory and balance functions are co-related and sensitive to one another. I wish I had an answer, but I can share this experience with you... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 Thanks for your story. I have congenital vestibular malformations that probably contributed to loss of balance following the implant on my right side. With the same situation on my left, I am extremely reluctant to undertake the risk of the second implant. Your comments only reinforce my determination to pass on the surgery at this time. I am doing very well with the first CI and working in the education field; it would be catastrophic to not be able to work with up to 4 years of hard work in recovery.  Maybe later. Again thanks.  Harold in Flint MI From: flagrobertomalo <Unkardelta@...> Sent: Wednesday, August 24, 2011 11:40 PM Subject: Re: Loss of Balance  > > I had my CI-left on March 25 and received my processor April 29. I am due to get my CI-right on September 23; however, I have had a vestibular balance evaluation and the doctor says that my left side balance is seriously compromised. He is concerned that if the same thing happens to my right side balance, I would be left with little ability to balance myself. Has anyone experienced this? How bad can it be? Please advise. >  > Harold > Flint MI > > Quote Link to comment Share on other sites More sharing options...
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