Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 The twitching and muscle loss are late stage lyme things. Four months ago my arms and legs were almost totally useless. My meds have really made a difference. I am now back to about 60%. I will so be praying for you all. Remember that the Western Blot must be done. If you are like me you most likely feel like there is nothing to lose. I was at the point where I had lost all hope and the Lyme dx in a way scared me even more. It had been three years, and I had finally accepted that I had MS and that my life was no longer in my control. I was afraid to hope for a recovery when I was told it was Lyme. I thought the very idea of " bacteria infection " destroying my mind and body was nuts. Now my memory is better, my speech is clearer and I enough wits about me that I can actually recognize my own progress. That alone is a miracle. Hang in there. This Lyme thing is a crazy emotional ride, but there are others who have survived the worst of it and actually recovered a decent life for themselves. Keep on. davy thomas -- [ ] lyme/husband/als???? Hi again...for those of you that have written directly to me I so appreciate your support...We go to a Lyme dr on Oct 14th so pray for us that this ALS Diagnosis is wrong.... I just want to know if anyone suffering from late stage lyme has the severe muscle twitching, loss of muscle or the weakness of the hands? These night sweats he is having are awfull...hes been floating between below normal temp and a slight fever(100.9)and this waiting game i guess is what is so hard...the not knowing which to deal with and sad as it is praying to GOD that IT IS LYME!!!!! Im so thankful to have found this site...God Bless you all! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 Hi, I also have the muscle twitching, sometimes it is annoying and sometimes it hurts.My arms actually jerk at my fiance while i am sleeping. I am taking calcium and zinc supplements....eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Hi, I have a question, if you don't mind my asking how the doc came to the conclusion of aids?? I have a lot of the same symptoms and I was diagnosed with lyme,...eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Your message has been edited. Please read the file entitled " Cleaning " Instructions found at /files/ for more information. Lyme Aid Owner ========== eve...he was dx with ALS which is Lou Gehrigs disease although i still think its neurological lyme and we went to a specialist yesterday so hopefully we will be on the road to recovery....he started him on anitibiots so we can get an accurate lyme test from Igenex.... eve <eveandal@...> wrote: Hi, I have a question, if you don't mind my asking how the doc came to the conclusion of aids?? I have a lot of the same symptoms and I was diagnosed with lyme,...eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 eric...his fever come and goes at night with the sweats...sometimes his body temp is below normal sometimes elevated eric schulman <eric_s11050@...> wrote:did your husband have a fever first! eric very important! --- Laurie <laurie362004@...> wrote: > > > eve...he was dx with ALS which is Lou Gehrigs > disease although i still think its neurological lyme > and we went to a specialist yesterday so hopefully > we will be on the road to recovery....he started him > on anitibiots so we can get an accurate lyme test > from Igenex.... > Quote Link to comment Share on other sites More sharing options...
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