Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Carmen Sometimes I feel like I can only dream of being off pred. completely. I am down to 10 mg per day. I am so afraid to see what happens when I decrease again. Thanks for your post it gives me hope that some day I'll be home free. Best Wishes. Judy > Judy, I'm decreasing a half mg. a month and I've never had any problems. I'm > so afraid to go any faster. I've got one and a half left to go and then I'll > be home free, hopefully. > xxoo > Carmen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 That sounds like a wonderfull time.. Dumblins and Sauerkraut.. mmm my favorites too. Haven't ever had duck though.. Glad you had a good time.. Love Kelley Kelley in Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2003 Report Share Posted August 20, 2003 Dearest Carmen, thank you so much friend for being there and being the true, sweet person that you always are. I love you for that. Your words up-lift me Carmen. It has been so hard. I went school shopping with my mom for the kids last night and I was riddled with pain, and literally crawled in her SUV when we were done. Held the pain to myself, wanted to cry and just couldn't bring myself to tell her how bad it was, or the pain. She just sat there and stared at me, and I tried bringing up another conversation to get her off of the subject. I just wanted to crawl in a hole and wither away. It's just eating at me badly, but then turned around and my little one had brought me a beautiful little votive at the store when we were in there. He didn't tell me, and went to the register with his older brother and spent his money on me. I started to cry when he gave it to me, and he told me how much he loved me and how much I do for him, that he wanted to do something special for me. He took my breath away, and for that small moment...I forgot everything, my pain, my hurt, my troubles and lost myself in his eyes, and that incredible hug and kiss, and then felt worth it. I felt important and loved as a mother. It's just incredible, how God sends us little messages from either up above, or down here on earth. Carmen, you are a true and wonderful friend, and I am hoping that we are blessed to meet someday in the near future. Love you. Love, Sue #2 -- Sue #2 Hi Sue Two... Sometimes I don't receive all the Stills' postings and I don't know why. Yours is one that I missed but reading down from Louise's post, I grasped much of your pain and misery. I don't know how the rest went but I sure can tell you are one miserable puppy. Shingles seem to be going around. One of my friends had it and now, my neighbor has it also. How in the heck do you get it? Everyone says it's so painful. Your little ones need you as does your whole family including this one. I wish I had the " power " to go " Zap " and you'd be fine again. I think most of us get depressed when we are sooooo down and out. You've always been such an " up " person for all of us so know that we are all pulling for you to start on the road to recovery. I know that sometimes life just seems so overwhelming when you feel very rotten. I hope your Rheumatologist can give you the magic " pill and you'll start feeling better soon. I just took a minute to say a big prayer for you so I hope it works. Very, gentle hugs for you and air kisses. xxoo Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Carmen. A very happy, happy belated birthday my dear, friend!!! I am sorry that I missed it. I hope that it was truly wonderful. Love Sue#2 -- Re: My Birthday Hey, Jeanne, My birthdate, Aug. 13th, was not posted either.... ( But....I received many " Happys " from our group for which I thank everyone again. I hope your birthday was as enjoyable as mine and you had little if any pain..... ) Here's to next year!!!! xxoo Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Hey Carmen, she wrote to me and I cut and pasted that part for the post. Maybe that is why you missed it. She said she will get back with us when feeling better. Don't be scared, be happy. You are so cute by the way and give me lots of smiles, Melt ----- Original Message ----- From: <pscarmen@...> > Hello Goddess, > I was just asking about you and " boing " here you are. Again, I did not see > your post. I am having a lot of my posts not being delivered to me. Why? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 Hi Dennis, You're up late also.... I guess it's best for you to do what makes you comfortable in your body and your mind. I'm very hesitant to try the once a week injection also. I hope, if you do increase the steroids, that they will help more for a while. Then, maybe, you can start reducing little by little. I always hated taking Prednisone but loved the way it worked. I'm sooooooooo happy to be off if it completely. Take care, Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Thanks Carmen for the Birthday wishes. I will most likely be spending my Birthday at the Urgent care clinic, or at least the morning hours. I am very ill tonight, and I just noticed that my diabetes is really out of sorts. My blood sugar is at 317, and that's real bad. Plus I am passing glucose and ketones through the urine, which makes me really worried. Last time this happened, ( 3 yrs ago ) my kidneys paid dearly. If it wasn't so late and if I wasn't so out of it I would go to the ER tonight. Instead I am going to bed and hope that it improves over night. But, happy birthday to me...I am very happy to be 40 something and proud of it..LOL I will be having my favorite Ice cream cake and spending the day with my husband. The rest of my family lives too far away to be here and well...as far as friends go...I don't have too many of them left...I feel a pity thing going on here, sorry. Its the drugs that's making me feel this way. Hope all is well with you and yours. Have you found any dates for me to come down and visit yet? I really need the warmth. take care and thank you very much again for the Birthday wishes. Sincerely, Lorie in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 HAPPY BIRTHDAY LORIE!!!! Sorry your feeling bad though, let us know how things go!! Luv and hugs, Aj & Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 HAPPY BIRTHDAY LORIE!!!! Sorry your feeling bad though, let us know how things go!! Luv and hugs, Aj & Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Hi Lorie, I'm sooooooooo sorry to read that you are not feeling well especially with your birthday tomorrow. I don't know much about diabetes but 317 sound VERY high. I hope your ice cream cake will be sugarless !!! I have to wait to see what week my son and family will be out here and then I can let you know about coming down here. There shouldn't be a problem if you want to come down soon but let me check for sure. The weather here has not been warm...only in the sixties. I'll check Monday for the seven day forecast and see what the next week will bring. It will be lovely to have you and I'm sure Pattymelt will come down on a weekend and maybe the other gals also or we can drive and meet them somewhere. Here is my phone number.....write it down so we can chat when I know the dates my son will be here. 760-325-4333. I think Alaska flies right into Palm Springs from Seattle....maybe United or American also. Can your husband come with you? Palm Springs is a small town so don't expect the night life like in Las Vegas....but it will be nice for you to lie out in the sun and warm those bones !!! I hope your sugar goes down by morning and you have a half way decent day with your husband. How in the heck do you know when you pass those things in your urine? Happy 42nd birthday you youngster... xxoo Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Oh, sweet Lorie; I know you don't want to go but maybe it is best? Let me know if you can set it up to come down ok. I wish we were with you right now because we could take you and just make a party of it if that were possible. The ice cream sounds so good. That is what I had last year. If you want to visit at the chat page let me know and I will be there. Many hugs dear and lots of love. Re: carmen Thanks Carmen for the Birthday wishes. I will most likely be spending my Birthday at the Urgent care clinic, or at least the morning hours. I am very ill tonight, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Oh, sweet Lorie; I know you don't want to go but maybe it is best? Let me know if you can set it up to come down ok. I wish we were with you right now because we could take you and just make a party of it if that were possible. The ice cream sounds so good. That is what I had last year. If you want to visit at the chat page let me know and I will be there. Many hugs dear and lots of love. Re: carmen Thanks Carmen for the Birthday wishes. I will most likely be spending my Birthday at the Urgent care clinic, or at least the morning hours. I am very ill tonight, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 i had a reaction with plaquenil so it may be the antibiotic? eric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 I am on Quinine and Clyndamycin - it's not listed in the CLynda's side effects...it's a wee bit better now, so I am just hoping it will be better - if not by tomorrow, i will probably discontinue the Quinine first. None of my doctors or pharamacists know what the heck is going on - thanks to you all CArmen , I > > i had a reaction with plaquenil so it may be the antibiotic? > eric Quote Link to comment Share on other sites More sharing options...
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