Re: Does Igenex WB have false positives?

March 27, 2005

> I just tested positive for Lyme through the WB at Igenex. My IGM positive

and IGG negative. Is this for real or are there many false positives w/this

lab? I have been ill for 9 years now w/CFS/Fibro and a bunch of other

conditions. I am on 300mg doxy right now..day 10 and notice nothing, no

herx. I am just doubting my dx of Lyme since I dont' think I have been

bitten and I have taken other abx over the years w/o a herx. Anyone know

how often this lab has false positives?

It is very common not to herx on abx, there are several I had no effects

from and a few that sent me into an evil herx. I dont think there are many

false positives at all, think there are 100x's more false negatives. A lot

of people never recall a bite and if it was from a nymphal tick, it was the

size of a period....... and hard to miss add to that the fact that barely a

1/3rd of bites produce a rash and its even harder to miss.

I did the entire 'you have MS, FMS, CFS yadayada yada and even thrown in

the 'you just want to be ill' routine, not fun. I went nearly 2 decades

w/wrong dxes and all I have to show is permanent SSD. Make sure, in your

own mind, what you have, do the research, lymenet.org has a great diagnostic

tool in its 2000 guidelines for diagnosing and treating Lyme disease. Lyme

is first and foremost a clinical diagnosis, do you fit those symptoms etc.

Oh, to add, I do have MS, FMS and CFS, but they are all caused by Lyme.

Take care,

March 27, 2005

-Was your WB positive according to CDC or Igenex?

-- In , " Suzanne Crossley " <maycross@c...>

wrote:

>

> I just tested positive for Lyme through the WB at Igenex. My IGM

positive and IGG negative. Is this for real or are there many false

positives w/this lab? I have been ill for 9 years now w/CFS/Fibro and

a bunch of other conditions. I am on 300mg doxy right now..day 10 and

notice nothing, no herx. I am just doubting my dx of Lyme since I

dont' think I have been bitten and I have taken other abx over the

years w/o a herx. Anyone know how often this lab has false positives?

>

> Thanks

> Suz

>

March 27, 2005

Ever since my llmd dumped me (raised his rates and dumped all is old-

rate patients for " whatever " reason) I think everything is b.s. -

maybe Igenex is too.

So what if I, if anyone, tests positive with Igenex. I think the

llmd's stick together for political and economical reasons. Maybe

lyme is a real disease, but the political/economical ramifications

of lyme will corrupt the care just as sure as anything. It sure did

with me - as well as with one after another of the patients of the

llmd I was seeing. Call me " cynical? " Call it a " herx. " They

would. Go to an endocriologist, Suz. It might not be Lyme.

>

> I just tested positive for Lyme through the WB at Igenex. My IGM

positive and IGG negative. Is this for real or are there many false

positives w/this lab? I have been ill for 9 years now w/CFS/Fibro

and

a bunch of other conditions. I am on 300mg doxy right now..day 10

and

notice nothing, no herx. I am just doubting my dx of Lyme since I

dont' think I have been bitten and I have taken other abx over the

years w/o a herx. Anyone know how often this lab has false

positives?

>

> Thanks

> Suz

>

March 28, 2005

Sandy,

I think it was positive by CDC based on my bands. I had 23-25, 30, 39, 41, 58,

66, positive. I think if two of the bands 23-25, 39, or 41 are positive it is