Re: Update on me--turn for the worse

[Guest guest]

Yes, all three of my lyme tests were also negative. (That seems to be the norm

in about 50% of the people I hear from). But I have the classical symptoms of

lyme as well and feel worse if I stop the anti-microbials. I know no one, not

even the doctors who receive positive tests can say of absolute certainty that

our conditions are directly related to lyme, or any particular microbe. But as

you said, the proof is in the pudding.

I started out on the abx. But I find I get just as good results taking

anti-microbial herbs. Besides, they are cheaper and don't require a doctor's

visit.

Craig

mrpotto2002 <csalfi@...> wrote:

Well, I am now a firm believer that I have lyme. Proof is in the

pudding. I had been a wee bit skeptical that I had lyme since my blood

tests repeatedly came up negative. About 3.5 weeks ago my LLMD had me

discontinue my abx regiment because of high bun and creatinine blood

tests. Upon retest my creatinine moved back in range but my bun was

still elevated (I got retested again on Friday). Over the last week my

symptoms have worsened. The head and facial tingling has intensified

and over the past few days I've experienced some panicky symptoms

(i.e. shallow breathing, conscious of my breathing and the feeling

that I'm going to stop breathing). I have also had increased insomnia

and have had a great deal of difficulty falling asleep. So...I took

matters into my own ahnds and began to take some leftover Ceftin

---500 mgs 2x per day. I felt like I couldn't wait any longer to go

back on abx since it will into next week before my doc can assess my

situation. I don't think I'll tell my LLMD because I'm sure he'd have

a problem with what I did.

Anyway...just venting a bit. I hope to hear some thoughts on this.

Chris

[Guest guest]

Also, Babesia affects breathing, heavy chest, shallow breaths, etc. My doctor

told me that I had the worse case of Babesia he has seen in 10 yrs.

mrpotto2002 <csalfi@...> wrote:

Well, I am now a firm believer that I have lyme. Proof is in the

pudding. I had been a wee bit skeptical that I had lyme since my blood

tests repeatedly came up negative. About 3.5 weeks ago my LLMD had me

discontinue my abx regiment because of high bun and creatinine blood

tests. Upon retest my creatinine moved back in range but my bun was

still elevated (I got retested again on Friday). Over the last week my

symptoms have worsened. The head and facial tingling has intensified

and over the past few days I've experienced some panicky symptoms

(i.e. shallow breathing, conscious of my breathing and the feeling

that I'm going to stop breathing). I have also had increased insomnia

and have had a great deal of difficulty falling asleep. So...I took

matters into my own ahnds and began to take some leftover Ceftin

---500 mgs 2x per day. I felt like I couldn't wait any longer to go

back on abx since it will into next week before my doc can assess my

situation. I don't think I'll tell my LLMD because I'm sure he'd have

a problem with what I did.

Anyway...just venting a bit. I hope to hear some thoughts on this.

Chris

[Guest guest]

HI chris,

If I had a nickel for each negative test I've had, I would be on my

way to being rich!! But, I and my doctor, have no doubt that I have

Lyme. I've had it for 18 years and have been treated for it for the

last 16 years. It's been up and down because I have chronic lyme,

lucky me! I put my faith in God and he has pulled me through. Good

luck to you!

> Well, I am now a firm believer that I have lyme. Proof is in the

> pudding. I had been a wee bit skeptical that I had lyme since my

blood

> tests repeatedly came up negative. About 3.5 weeks ago my LLMD had

me

> discontinue my abx regiment because of high bun and creatinine

blood

> tests. Upon retest my creatinine moved back in range but my bun was

> still elevated (I got retested again on Friday). Over the last

week my

> symptoms have worsened. The head and facial tingling has

intensified

> and over the past few days I've experienced some panicky symptoms

> (i.e. shallow breathing, conscious of my breathing and the feeling

> that I'm going to stop breathing). I have also had increased

insomnia

> and have had a great deal of difficulty falling asleep. So...I took

> matters into my own ahnds and began to take some leftover Ceftin

> ---500 mgs 2x per day. I felt like I couldn't wait any longer to go

> back on abx since it will into next week before my doc can assess

my

> situation. I don't think I'll tell my LLMD because I'm sure he'd

have

> a problem with what I did.

> Anyway...just venting a bit. I hope to hear some thoughts on this.

>

> Chris

[Guest guest]

What type of anti-microbials do you use?

[Guest guest]

Theresa, what abx does your llmd have you on for your babesia? Are they working?

Thanks for the reply.

Chris

> Also, Babesia affects breathing, heavy chest, shallow breaths, etc. My doctor

> told me that I had the worse case of Babesia he has seen in 10 yrs.

>

>

> mrpotto2002 <csalfi@...> wrote:

> Well, I am now a firm believer that I have lyme. Proof is in the

> pudding. I had been a wee bit skeptical that I had lyme since my blood

> tests repeatedly came up negative. About 3.5 weeks ago my LLMD had me

> discontinue my abx regiment because of high bun and creatinine blood

> tests. Upon retest my creatinine moved back in range but my bun was

> still elevated (I got retested again on Friday). Over the last week my

> symptoms have worsened. The head and facial tingling has intensified

> and over the past few days I've experienced some panicky symptoms

> (i.e. shallow breathing, conscious of my breathing and the feeling

> that I'm going to stop breathing). I have also had increased insomnia

> and have had a great deal of difficulty falling asleep. So...I took

> matters into my own ahnds and began to take some leftover Ceftin

> ---500 mgs 2x per day. I felt like I couldn't wait any longer to go

> back on abx since it will into next week before my doc can assess my

> situation. I don't think I'll tell my LLMD because I'm sure he'd have

> a problem with what I did.

> Anyway...just venting a bit. I hope to hear some thoughts on this.

>

> Chris

>

>

>

>

>

> Questions and/or comments can be directed to the list owner at

> -Owner

>

>

[Guest guest]

Craig, how long have you been on abx/natural abx? What are your symptoms and I

assume the drugs help.

Thanks for the reply

Chris

>

>

> Yes, all three of my lyme tests were also negative. (That seems to be the norm

> in about 50% of the people I hear from). But I have the classical symptoms of

> lyme as well and feel worse if I stop the anti-microbials. I know no one, not

> even the doctors who receive positive tests can say of absolute certainty that

> our conditions are directly related to lyme, or any particular microbe. But

as

> you said, the proof is in the pudding.

>

> I started out on the abx. But I find I get just as good results taking

> anti-microbial herbs. Besides, they are cheaper and don't require a doctor's

> visit.

>

> Craig

>

> mrpotto2002 <csalfi@...> wrote:

> Well, I am now a firm believer that I have lyme. Proof is in the

> pudding. I had been a wee bit skeptical that I had lyme since my blood

> tests repeatedly came up negative. About 3.5 weeks ago my LLMD had me

> discontinue my abx regiment because of high bun and creatinine blood

> tests. Upon retest my creatinine moved back in range but my bun was

> still elevated (I got retested again on Friday). Over the last week my

> symptoms have worsened. The head and facial tingling has intensified

> and over the past few days I've experienced some panicky symptoms

> (i.e. shallow breathing, conscious of my breathing and the feeling

> that I'm going to stop breathing). I have also had increased insomnia

> and have had a great deal of difficulty falling asleep. So...I took

> matters into my own ahnds and began to take some leftover Ceftin

> ---500 mgs 2x per day. I felt like I couldn't wait any longer to go

> back on abx since it will into next week before my doc can assess my

> situation. I don't think I'll tell my LLMD because I'm sure he'd have

> a problem with what I did.

> Anyway...just venting a bit. I hope to hear some thoughts on this.

>

> Chris

>

>

>

>

>

>

> Questions and/or comments can be directed to the list owner at

> -Owner

>

>

[Guest guest]

The classic treatment for Babesia is quinine which is also used for malaria.

There is a little bit of information about Babesiosis in the Merck Manual. It

is

listed directly underneath malaria. I prefer the Merck Manual for medical

professionals over the one for the general public because it gives more

information. I do not know of any alternative meds for this condition. There

is

a great book available from the " The Pharmacist Letter " about herbs and

supplements that gives uses for them and also any interactions with

prescription medications. I haven't been able to purchase it because I'm

disabled due to fibromyalgia and don't have the money to invest in it. If I

could

just tuck $20-25 dollars a month away for it I could get it. Hope this helps a

little.

> > Well, I am now a firm believer that I have lyme. Proof is in the

> > pudding. I had been a wee bit skeptical that I had lyme since my blood

> > tests repeatedly came up negative. About 3.5 weeks ago my LLMD had

me

> > discontinue my abx regiment because of high bun and creatinine blood

> > tests. Upon retest my creatinine moved back in range but my bun was

> > still elevated (I got retested again on Friday). Over the last week my

> > symptoms have worsened. The head and facial tingling has intensified

> > and over the past few days I've experienced some panicky symptoms

> > (i.e. shallow breathing, conscious of my breathing and the feeling

> > that I'm going to stop breathing). I have also had increased insomnia

> > and have had a great deal of difficulty falling asleep. So...I took

> > matters into my own ahnds and began to take some leftover Ceftin

> > ---500 mgs 2x per day. I felt like I couldn't wait any longer to go

> > back on abx since it will into next week before my doc can assess my

> > situation. I don't think I'll tell my LLMD because I'm sure he'd have

> > a problem with what I did.

> > Anyway...just venting a bit. I hope to hear some thoughts on this.

> >

> > Chris

> >

> >

> >

> >

> >

> > Questions and/or comments can be directed to the list owner at

> > -Owner@Y...

> >

> >

[Guest guest]

I was on zithromax and mepron for the babesia, one time for 10 mo. and another

time for 4mo. Now, I am taking the herbal pill for babesia that I saw

mentioned on another lyme group, it is arteminin or phytoartemisinin. You are

suppose to work up to 6 per day.

" Schultz, RPh " <schultz-l@...> wrote:

The classic treatment for Babesia is quinine which is also used for malaria.

There is a little bit of information about Babesiosis in the Merck Manual. It is

listed directly underneath malaria. I prefer the Merck Manual for medical

professionals over the one for the general public because it gives more

information. I do not know of any alternative meds for this condition. There is

a great book available from the " The Pharmacist Letter " about herbs and

supplements that gives uses for them and also any interactions with

prescription medications. I haven't been able to purchase it because I'm

disabled due to fibromyalgia and don't have the money to invest in it. If I

could

just tuck $20-25 dollars a month away for it I could get it. Hope this helps a

little.

[Guest guest]

Chris

I did 10mo. of mepron/zithromax a couple of yrs back. and another time 5mo. of

the combo. I still have night sweat on and off so I started the herbal

phytoartemisinin for the babesia. I will try this for now, I am sick of the

meds and the side effects. (5yrs of abx)

csalfi@... wrote:

Theresa, what abx does your llmd have you on for your babesia? Are they working?

Thanks for the reply.

Chris

> Also, Babesia affects breathing, heavy chest, shallow breaths, etc. My doctor

> told me that I had the worse case of Babesia he has seen in 10 yrs.

>

>

> mrpotto2002 wrote:

> Well, I am now a firm believer that I have lyme. Proof is in the

> pudding. I had been a wee bit skeptical that I had lyme since my blood

> tests repeatedly came up negative. About 3.5 weeks ago my LLMD had me

> discontinue my abx regiment because of high bun and creatinine blood

> tests. Upon retest my creatinine moved back in range but my bun was

> still elevated (I got retested again on Friday). Over the last week my

> symptoms have worsened. The head and facial tingling has intensified

> and over the past few days I've experienced some panicky symptoms

> (i.e. shallow breathing, conscious of my breathing and the feeling

> that I'm going to stop breathing). I have also had increased insomnia

> and have had a great deal of difficulty falling asleep. So...I took

> matters into my own ahnds and began to take some leftover Ceftin

> ---500 mgs 2x per day. I felt like I couldn't wait any longer to go

> back on abx since it will into next week before my doc can assess my

> situation. I don't think I'll tell my LLMD because I'm sure he'd have

> a problem with what I did.

> Anyway...just venting a bit. I hope to hear some thoughts on this.

>

> Chris

>