Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Chris- I was treated for Lyme (positive test) from 1997-2000 and did one year of orals (did nothing) before starting bicillin injections, first once a week than every other week as I was feeling better. I did the shots for two years and stopped when I felt 100%. I just started showing symptoms again, this past October, and we think its a reinfection. I work with wildlife and am outdoors alot. This time I got two negative tests and one equivocal and started treatment with orals, again, and was allergic to two different ones. So, I'm on bicillin shots, again, and am doing really well. Just did 7 and have 3 more to go. They are once a week. Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Hi Jessie, My name is Joanne and I live in Rhode Island. I was diagnosed with lyme in 2002, but they think I had it for over 10 years before the diagnosis. I was treated with bicillin shots for over a year before they tried IV antibiotics. Personally, I did better with the bicillin shots, as I had a lot of complications with the IV (clafarin (sp?) and primaxin). Once I went off the IV, I went back to the bicillin shots for another six months, but didn't get as much benefit as the first round. Right now, I'm only being treated for the arthritis, sleep problems and depression...the doctor wants to see how I do off the antibiotics for awhile. Hope that helps a little, Joanne --- Jessie MacMillan <jessiemacmillan@...> wrote: > What experience have people had with bicillin shots > (als known > as " butt darts " !)? Along with thinking about IV abx, > I'm also looking > into bicillin shots. > > Thanks, > Jessie > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 > > What experience have people had with bicillin shots (als known > as " butt darts " !)? Along with thinking about IV abx, I'm also looking > into bicillin shots. > > Thanks, > Jessie Butt darts? Jessie!! Actually, a most appropriate name! It is NOT a fun game. A warning, butt darts hurt! The larger the dartboard, the easier the game over the long haul. Bicillin is very thick and requires a medium to large dart and a slow injection, to get the thick goo right into the muscle of the dartboard. Instead of doing the injection twice a week, I did a larger dose 2,4 units once a week. Other than the pain of the injection, scar tissue build up and herxing, I had no other side effects. My husband, who happens to be a paramedic, did the injections. If you are serious about trying this, a nurse can show a friend or family member how to do the injection. This requires a lot of trust on the dart thrower and the dartboard. The cost is approx $850-900.00 for a box of 10-2,4 units, and half that amount for the 1,2 units bicillin. Feel free to send me a private email if you have any further questions..Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Didn't really work for me - maybe other had better luck with them. Chris -------------- Original message ---------------------- From: " Jessie MacMillan " <jessiemacmillan@...> > What experience have people had with bicillin shots (als known > as " butt darts " !)? Along with thinking about IV abx, I'm also looking > into bicillin shots. > > Thanks, > Jessie > > > > > > May is Lyme Disease Awareness Month. Encourage awareness by purchasing the > book Confronting Lyme Disease: What Patient Stories Teach Us and sharing it > with family, friends and acquaintances. Please see > http://www.confrontinglyme.com/ for more information. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 I am having Bicillin IM injections for the second time. 2.4 million units twice per week. My physician recommends injecting half the syringe into one buttock and the other half in the other side. This helps prevent knots and lumps from forming. I had 6.5 weeks worth the first time around when I was extremely ill, and it helped me tremendously. My doc recommended a longer course of treatment; however, I could not do it financially, so I had to settle for the 6.5 weeks. Now I am undergoing approximatley 8 weeks, which will also have to suffice. I herxed terribly the first couple of doses this time around and last night was pretty bad after getting the shots yesterday afternoon, but it does help to keep me going. It never brings me back to 100% capacity, but personally, I believe I will never never be completely well again. I am grateful to be able to function at maybe 60% of my pre-Lyme capacity. I still do things slowly, am forgetful, have pain, but I am thinking more clearly thanks to the Bicillin. It has worked well for me, but each of my LLMD's have recommended IV ABX. I will probably undergo this at the end of the year when I have insurance. Butt Darts is a good name for the Bicillin injections. The needle is long and heavy guage. I have gotten used to it, though, and it really isn't too bad when you get the shots. It's the mental antcipation and anxiety that blows it out of proportion for me. Some days I dread and fear getting them, but when I get stuck it's really not bad. I think we are able to control our thoughts to overcome the anxiety of it. My personal belief in the atonement and crucifixion of Jesus Christ helps me accept the needles. He was crucified with large spikes, and if he could endure that for me, I can endure the Bicillin Butt Darts to improve my health. I hope this helps. Jessie MacMillan <jessiemacmillan@...> wrote: What experience have people had with bicillin shots (als known as " butt darts " !)? Along with thinking about IV abx, I'm also looking into bicillin shots. Thanks, Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Lizzie, The shots don't sound like fun, so besides the scar tissue and Herxing, are you feeling better? Do you think they work? Jessie > > > > What experience have people had with bicillin shots (als known > > as " butt darts " !)? Along with thinking about IV abx, I'm also looking > > into bicillin shots. > > > > Thanks, > > Jessie > > Butt darts? Jessie!! Actually, a most appropriate name! It is NOT a > fun game. A warning, butt darts hurt! The larger the dartboard, the > easier the game over the long haul. Bicillin is very thick and > requires a medium to large dart and a slow injection, to get the thick > goo right into the muscle of the dartboard. Instead of doing the > injection twice a week, I did a larger dose 2,4 units once a week. > Other than the pain of the injection, scar tissue build up and > herxing, I had no other side effects. My husband, who happens to be a > paramedic, did the injections. If you are serious about trying this, a > nurse can show a friend or family member how to do the injection. This > requires a lot of trust on the dart thrower and the dartboard. The > cost is approx $850-900.00 for a box of 10-2,4 units, and half that > amount for the 1,2 units bicillin. Feel free to send me a private > email if you have any further questions..Lizzie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Joanne, Thanks for responding. It sounds like the shots can help, but like any treatment with Lyme, the success of it depends on the individual. We all have to use the trial-and-error method! I hope you find that you don't need antibiotics again. Jessie > > Hi Jessie, > > My name is Joanne and I live in Rhode Island. I was > diagnosed with lyme in 2002, but they think I had it > for over 10 years before the diagnosis. I was treated > with bicillin shots for over a year before they tried > IV antibiotics. Personally, I did better with the > bicillin shots, as I had a lot of complications with > the IV (clafarin (sp?) and primaxin). Once I went off > the IV, I went back to the bicillin shots for another > six months, but didn't get as much benefit as the > first round. > > Right now, I'm only being treated for the arthritis, > sleep problems and depression...the doctor wants to > see how I do off the antibiotics for awhile. > > Hope that helps a little, > Joanne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Thanks, Chris. I'm curious about what has worked for you. Have you tried IV abx? Jessie > > Didn't really work for me - maybe other had better luck with them. > > Chris > -------------- Original message ---------------------- > From: " Jessie MacMillan " <jessiemacmillan@...> > > What experience have people had with bicillin shots (als known > > as " butt darts " !)? Along with thinking about IV abx, I'm also looking > > into bicillin shots. > > > > Thanks, > > Jessie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Thanks, Tina. I'm gaining a better understanding of how butt darts work (and clearly, the name is right on " target " !). Jessie > What experience have people had with bicillin shots (als known > as " butt darts " !)? Along with thinking about IV abx, I'm also looking > into bicillin shots. > > Thanks, > Jessie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 > > > > > > What experience have people had with bicillin shots (als known > > > as " butt darts " !)? Along with thinking about IV abx, I'm also > looking > > > into bicillin shots. > > > > > > Thanks, > > > Jessie HI JESSIE, THE BICILLIN SHOTS WERE KILLING OFF BB, BUT MY LLMD HAD A SUSPECIAN THAT BY OTHER SYMPTOMS I WAS EXHIBITING, I MAY HAVE BABESIA. I HAD THE SHAKING CHILLS AND WAS WAKING UP GASPING, THIS HAD BEEN GOING ON FOR YEARS. SHE WANTED TO TAKE ME OFF BICILLIN AND TREAT THE BABS. SHE ALSO TESTED ME FOR BARTENELLA AND I HAD A STRONG POSITIVE THROUGH A WESTERN BLOT. I FINISHED TREATMENT FOR THE BABS AND AM CURRENTLY BEING TREATED FOR BARTENELLA. WHEN WE FINISH IN A MONTH OR TWO I WILL GO BACK ON THE BICILLIN INJECTIONS FOR THE BB. PRESENTLY I AM EXPERIENCING A MAJOR, INTENSE HERX. I AM ON MINOCYCLINE AND KETEK...WOW!! LIZZIE > > Butt darts? Jessie!! Actually, a most appropriate name! It is NOT a > > fun game. A warning, butt darts hurt! The larger the dartboard, the > > easier the game over the long haul. Bicillin is very thick and > > requires a medium to large dart and a slow injection, to get the > thick > > goo right into the muscle of the dartboard. Instead of doing the > > injection twice a week, I did a larger dose 2,4 units once a week. > > Other than the pain of the injection, scar tissue build up and > > herxing, I had no other side effects. My husband, who happens to > be a > > paramedic, did the injections. If you are serious about trying > this, a > > nurse can show a friend or family member how to do the injection. > This > > requires a lot of trust on the dart thrower and the dartboard. The > > cost is approx $850-900.00 for a box of 10-2,4 units, and half that > > amount for the 1,2 units bicillin. Feel free to send me a private > > email if you have any further questions..Lizzie > > > Quote Link to comment Share on other sites More sharing options...
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