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Hi,sorry if this could be a repeat question, but have any of you

experienced a worsening of hypercoagulation while on Heparin then

switched to something else that has really helped ?

I have high SFM on the ISAC panel ( 36 ) plus high on hereditary

thrombosis risk.I have been on Heparin for three yrs. It helped me

until about one mo. ago, when I started experiencing chest pressure

of a different type plus shortness of breath, which was also

different.

I also take some supplements for blood thinning. Due to exhausting

all measures, I returned to my Cardiologist last week and

immediately was scanned for blood clots of the lungs and in my legs.

Yesterday, he did a heart cath. ALL was clear, for which I am

thankful, but now, I am back to square one. Since getting off

Heparin for the tests, the sypmtoms lessened so...one might think,

Heparin " could " be the culprit here.

Any suggestions most welcome. My brain is blank, while I recoup from

two days of dye injection, which in itself is not good for CFIDS

pts., in my opinion.

Thanks in advance for any thoughts and better health to everyone.

Betty Law

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a) If it's really $2000 it went up a lot. It used to be $1100 or so.

B) I believe the most important thing to measure is SFM and that is $80 at

Hemex. Then if you have high SFM you can follow up with other testing. Or some

of the other testing can be done at other labs (such as lp(a) and fibrinogen are

becoming common at other labs.)

c) Some of the natural fibrinolytics are unfortunately very expensive. Heparin

is cheap.

Thanks,

Doris

----- Original Message -----

From: Bob Joy

All this talk of heparin and hypercoagulation.

The complete test at www.hemex.com is $2000. The heparin is cheap. The

average physician 'doesn't have clue'.

For $120 you could try the OTC fibrinolytics. Some people have improvement

within days. http://www.geocities.com/GuaiWhey/hypercoa.htm

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Hi Betty

Did your SFM get better during your 3 years on heparin? Did it get worse when

you suddenly got worse?

Hypercoagulation can be triggered by infection or chemicals, and probably other

things as well. So it seems most useful to know what your SFM was since the

first test.

Originally in the protocol I heard that some people were switching to coumadin

after a certain amount of time on heparin. For me I don't think that would help

because my coagulation defects are all in the fibrinolyisis side, not the

thrombosis side. But yours might be on the thrombosis side and coumadin might

work ok for you.

I sometimes get shortness of breath when I am not on the heparin, so I can't

help you with that or the chest pressure. What does your doctor say? Is he

worried about the heparin?

Thanks,

Doris

----- Original Message -----

Hi,sorry if this could be a repeat question, but have any of you

experienced a worsening of hypercoagulation while on Heparin then

switched to something else that has really helped ?

I have high SFM on the ISAC panel ( 36 ) plus high on hereditary

thrombosis risk.I have been on Heparin for three yrs. It helped me

until about one mo. ago, when I started experiencing chest pressure

of a different type plus shortness of breath, which was also

different.

I also take some supplements for blood thinning. Due to exhausting

all measures, I returned to my Cardiologist last week and

immediately was scanned for blood clots of the lungs and in my legs.

Yesterday, he did a heart cath. ALL was clear, for which I am

thankful, but now, I am back to square one. Since getting off

Heparin for the tests, the sypmtoms lessened so...one might think,

Heparin " could " be the culprit here.

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  • 1 year later...
  • 4 years later...
Guest guest

thank alana!

bettylou

Alana wrote:

>

>

>

> It's an anti-coagulent. People who are unusually immobilized are more

> likely to get a blood clot. I have two friends who were quadruplegics

> immobilized in hospital beds who died from blood clots. I think it's

> less of an issue if you're getting out of bed, and is. In ICU

> standard orders for everyone include heparin and an oral laxative.

>

>

> >

> > What's heparin and why are they giving it to everyone in ICU?

> > bettylou

> >

>

>

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