Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 Welcome to the group. ~Esther & Carol~ ''To get out of a difficulty, one usually must go through it.'' " Never look down on anybody unless you are helping them up. " ----- Original Message ----- From: <swaine.t@...> < egroups> Sent: Thursday, October 05, 2000 11:29 PM Subject: [ ] New Member > Hello > > Just signed up today. Results of a sweeping blood test, where they > test for everything came back, elevated esr result. So I went > searching to find out about it, and found this site. Don't know for > certain if I have RA yet, but I know my knees are a problem. Got to > go back for retesting etc. I'm 28. Bye for now, only keep this > brief. > > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Change subscription options: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 Welcome , There are many of us still waiting for a diagnosis and are re-testing as well. You have come to the right place and the right people for support, information and an occasional chuckle when things get you down. Please keep us posted as to your results. Regards, Sylvia > Hello > > Just signed up today. Results of a sweeping blood test, where they > test for everything came back, elevated esr result. So I went > searching to find out about it, and found this site. Don't know for > certain if I have RA yet, but I know my knees are a problem. Got to > go back for retesting etc. I'm 28. Bye for now, only keep this > brief. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2000 Report Share Posted October 7, 2000 Welcome, ! Hope you like it here. We are a very smart, compassionate, and funny group. Together we share excellent information and support. An accurate diagnosis can take some time, but it is very much worth the wait and trouble. Sorry you must go through this. ----- Original Message ----- From: " " <swaine.t@...> < egroups> Sent: Thursday, October 05, 2000 10:29 PM Subject: [ ] New Member > Hello > > Just signed up today. Results of a sweeping blood test, where they > test for everything came back, elevated esr result. So I went > searching to find out about it, and found this site. Don't know for > certain if I have RA yet, but I know my knees are a problem. Got to > go back for retesting etc. I'm 28. Bye for now, only keep this > brief. > > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Change subscription options: > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2000 Report Share Posted October 7, 2000 Hello Thanks for that. Not sure what is next, excpet another blood test I assume. Then who knows. Been surfing to find out any info I can. At this point not sure how much I am to read into the initial blood test. Although the first thing the nurse asked as she saw the results on screen was if I had Arthritis. If it is correct, I'll be glad to start doing something about it. Might even have painfree horse riding again, but not done much in the past 2 years, no horses near here just now. anyone know any good links for a possible new starter? Thanks, ----- Original Message ----- From: Matsumura <Matsumura_Clan@...> < egroups> Sent: Saturday, October 07, 2000 12:32 PM Subject: Re: [ ] New Member > Welcome, ! > > Hope you like it here. We are a very smart, compassionate, and funny group. > Together we share excellent information and support. > > An accurate diagnosis can take some time, but it is very much worth the wait > and trouble. Sorry you must go through this. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 Welcome, Brannie! This is a good group. I have a friend who is newly diagnosed with lupus - he thinks. You answered a question I was going to post. Wasn't sure if RA and lupus could be diagnosed together. Do you have a postive Rheumatoid factor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 Brannie,this bunch of nice people has a lot of members with multiple diseases,most of them the same as yours. I only have RA so I'm one of the lucky ones. So many of us have those days where it hurts to just walk to the bathroom.I have had total hip replacements (which now have to be repaired),my wrist has a metal plate in it and I have had both shoulders replaced. One lung has some scarring from some inflammation during a flare. Where do you live? I am in Minnesota and have found lots of help for low income people. I'm glad to meet you and hope we can help you in any way. The other Joyce (namu) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 welcome!! sounds like you have your hands full like the rest of us!!! i am 41, suffering from inflammatory spondyloarthropy, oa and suffering from some internal bleeding from the meds and also a new insurance plan this year. have been home on disability since december, started ss disability papers and returning to my rheumi on monday for evaluation of whether i should return to work. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Welcome Marie, you will love this group. there are some very knowledgable and caring people here. And most important very sympathetic. Ask andy questions that you might have, The brains of this group(you know who you are ) will find the answer. Good luck, a R. > I would like to introduce myself. I'm Marie, age 43, mom to twins Joe and > , age 15. > > I was diag. with RA last April. I had not been feeling right for a while > and finally decided to get a physical. I knew I had a touch of arthritis in > my hands because they were stiff every now and then. Needless to say when > the test results came back I was a bit overwhelmed. > > My ANA test came back positive. I can't remember what my titter count was, > but it was in the low range. Based on that test and physical exam my dr. > told my I have serum neg. RA. He thinks there may be a mild case of lupus > lurking around too. He said we will have to wait a bit for everything to > fully declare itself. > > I am hoping I'm at the tail end of a nasty flare. These past 10 days of > been pure hell. Everything aches, very tired, and my mood has been anything > but nice. I saw my rheumy last week. He told me to double my Vioxx and gave > me Ambien to help me sleep. Still waiting for the effects of either > medication to work. > > > Marie > AKA TwinMom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Welcome, Marie! Sorry that you haven't been feeling well. I hope your flare ends very soon. Too bad also that your diagnosis is still fairly uncertain. Don't worry. That's a common problem with rheumatic diseases. Sometimes it's very hard to tell in the beginning exactly which disease you have. Does your physician have a Plan B in case the Vioxx still doesn't work even after you increase the amount? Glad you found us. Looking forward to getting to know you. ----- Original Message ----- From: " M. Bowen " <bowens@...> < > Sent: Tuesday, March 27, 2001 4:28 PM Subject: [ ] New Member > I would like to introduce myself. I'm Marie, age 43, mom to twins Joe and > , age 15. > > I was diag. with RA last April. I had not been feeling right for a while > and finally decided to get a physical. I knew I had a touch of arthritis in > my hands because they were stiff every now and then. Needless to say when > the test results came back I was a bit overwhelmed. > > My ANA test came back positive. I can't remember what my titter count was, > but it was in the low range. Based on that test and physical exam my dr. > told my I have serum neg. RA. He thinks there may be a mild case of lupus > lurking around too. He said we will have to wait a bit for everything to > fully declare itself. > > I am hoping I'm at the tail end of a nasty flare. These past 10 days of > been pure hell. Everything aches, very tired, and my mood has been anything > but nice. I saw my rheumy last week. He told me to double my Vioxx and gave > me Ambien to help me sleep. Still waiting for the effects of either > medication to work. > > > Marie > AKA TwinMom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Welcome Marie. You can join our club of the undiagnosed. We have many members here that are not certain of their diagnosis, myself included. I was told I had RA for 20+ years, but recently was told I have psoriatic arthritis. I'm 46 and am on Enbrel, mtx, vioxx, vicodan, fosamax and several supplements. I hope you feel better soon. Is your doctor planning on giving you DMARD's such as plaquenil, mtx, gold, or Arava? The Vioxx is just an anti-inflammatory to control inflammation, but doesn't stop the progression of the disease. Your doctor may be running more tests to find out what you have before deciding on treatment. I hope you get answers soon, so that you can get proper treatment. A very close friend of mine have twins too, a boy and a girl that just turned 16. The girl looks just like her mom and the boy is a mirror image of his dad. They have been a lot of fun over the years and are good friends to my 2 children. Glad you found us, but sorry it has to be because of illness. a ----- Original Message ----- From: " M. Bowen " <bowens@...> < > Sent: Tuesday, March 27, 2001 5:36 PM Subject: [ ] New Member > I would like to introduce myself. I'm Marie, age 43, mom to twins Joe and > , age 15. > > I was diag. with RA last April. I had not been feeling right for a while > and finally decided to get a physical. I knew I had a touch of arthritis in > my hands because they were stiff every now and then. Needless to say when > the test results came back I was a bit overwhelmed. > > My ANA test came back positive. I can't remember what my titter count was, > but it was in the low range. Based on that test and physical exam my dr. > told my I have serum neg. RA. He thinks there may be a mild case of lupus > lurking around too. He said we will have to wait a bit for everything to > fully declare itself. > > I am hoping I'm at the tail end of a nasty flare. These past 10 days of > been pure hell. Everything aches, very tired, and my mood has been anything > but nice. I saw my rheumy last week. He told me to double my Vioxx and gave > me Ambien to help me sleep. Still waiting for the effects of either > medication to work. > > > Marie > AKA TwinMom > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 Paige, Do you know what kind of helmet it is? Is it a helmet or a band? My son has a Starband and in 4 weeks we have seen much improvement. The doctors had me reposition him for 3 1/2 months and it didn't get any better. My son has torticollus also. Make sure you get her into physical therapy, it does wonders. Also, make sure that they put the fastening strap on the opposite side of the torticollus. We made that mistake in his first starband and it made the tort worse. It seems most pediatricians say it will work it self out. I have not seen or heard of a case yet. And who wants to take that chance. Good luck, Cherie - 's Mom -----Original Message----- From: pgoode@... [mailto:pgoode@...] Sent: Saturday, April 14, 2001 8:37 PM Plagiocephaly Subject: New Member My husband and I noticed that our daughter had a flat spot on her head within a few months of life. Our pediatrican kept saying it would take care of itself. She was finally at her 6 mos appt and we brought it up again and with a second look they diagnosed her with torticollus. They didn't tell us anything about a helmet etc and I had to do all the research about it. My pediatrician said that in all the cases she has seen, the head takes care of itself. I went for a second opinion and have a prescription to get a helmet made. I have heard there are different kinds but don't know what kind this is. Only that this is one of the only places to get one made around where we live. We are upset that she wasn't diagnosed earlier and have since had workups done through early intervention etc. I never realized how much damage has been done to her with her ear moved forward and her bulge on her forhead. I am interested in hearing the results other families have had using a helmet and also those who have not. I am new at this and am just trying to gather information and learn as much as I can to help my daughter! Paige Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 Welcome Leann- I just looked at Nina's adorable pictures - I love the first one with her little tongue sticking out, hehe. She looks like there's some definite flatness - on her right, right? Has your pediatrician suggested a helmet or band yet? See what Cranial Tech suggests. Are her ears assymmetrical also? They kind of looked like they are in the back view picture. Wishing you a Happy Easter. Debbie Abby's mom 3/1/00 DOC 2/16/01 p.s. I love the name Nina - thought about it for Abby : ) -- In Plagiocephaly@y..., " LeAnn " <lkeim@s...> wrote: > Hi everyone. My name is LeAnn and my 6 1/2 month old is Nina. I > have been learning alot on the torticollis site, as she has been > going to pt since 4 months of age for that. I unfortunately didn't > find all of you until a few weeks ago and although her head > shape is much better, it is still mishapen. I have been looking at > some of the head shapes in the files but still being new to this, I > have a hard time picking up the details and knowing what I'm > looking for. I have posted Nina's pics in the files section and was > wondering if some of you would look at them and give me some > feedback? I have sent some of these to Cranial Tech for an > evaluation and hope to hear something tomorrow from them. > Thanks for your help! > > LeAnn & Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 Paige, As you will hear from a lot of people in this group, the doctors told us that 's head would round out on its own. We now have her in a DOC Band - she started when she was 12 months old - she is now 14 months and we see a very big change. Her ears are almost aligned and now that her forehead is " normal " her eye has opened and her face is symmetrical. Where do you live? We are in the " Metro DC " area (Northern VA). We first went to Children's Hospital when was 6 months old, and they told us it would round out on its own. 5 months later we got a second opinion when her head was still flat. (BTW - she does not have Tort.) Good luck to you and if you want to, please feel free to e-mail me directly. -- -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 She looks like there's some definite flatness - on her right, right? - yes - tort on the left, flat on the right Has your pediatrician suggested a helmet or band yet? - no. ped has said nothing but he did refer us to PT and to neurologist; PT keeps thinking she won't need one; neurologist said keep doing what you're doing since it had been working. I just don't want to wait too long. we have an MRI on the 26th and see the neuro again that same day. see ped this tuesday Are her ears assymmetrical also? - yes, you can see it from the front too. LeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Can anyone tell me by looking at Nina's pictures if she has mild, moderate, or severe plagio? No one has ever told me and I don't know how it's measured. (I'm pretty sure it is not severe as she is much better than she was) LeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 LeAnn Under Bookmarks there is a link http://www.neurosurgery.org/journals/online_j/feb97/2-2-3.html it explains how to measure and what is mild, moderate and severe. To me she looks moderate, but I am no doctor. My son's neurosurgeon and physical therapist measures . was really severe, 12 mm or greater is considered severe and was 18 mm. Good luck Cherie - 's Mom -----Original Message----- From: LeAnn [mailto:lkeim@...] Sent: Sunday, April 15, 2001 9:05 PM Plagiocephaly Subject: Re: New member Can anyone tell me by looking at Nina's pictures if she has mild, moderate, or severe plagio? No one has ever told me and I don't know how it's measured. (I'm pretty sure it is not severe as she is much better than she was) LeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Paige, You are have done and are doing the right thing. It is great that you were so conscientious to go and get a second opinion. That was the right thing to do. Also, you are getting started at the right time. 6 months is really a prime time to begin. You should see good results. We had our daughter in a locally made helmet - she got started at 9 months since we could not convince our ped that something was wrong until she was 7 months. Then we had to wait to see the specialist and wait to see the orthotist!!!!! Our ped also told us that it woud correct itself - wrong!!! We had in her helmet from the time she was 9 months until about 15 months. We had good luck with our helmet, but our orthotist is the one who made the difference. A good orthotist will make any of the products out there work for you. Would you be willing to share where you live? We have almost 700 members here. It is possible that some of our members live near you or are using the same ortho that you will be using. That was my experience. I live in Oklahoma and was lucky enough to run across a member here who used my ortho and the same product we used and filled me before we got started!! Are you also getting PT for the tort? Correcting that will definately help with the plagio. Welcome to the group - I hope you will stick with us. I think you will find this group to be an awesome source of support, encouragement and answers!!! Please keep us posted! Marci (Mom to - helmet grad) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 LeAnn, Welcome to the group and I will go and check out Nina's files sometime today. Just wanted to say welcome and I'm glad that you found us! If Nina does have plagio you can rest easy that you are not too late to seek treatment. I'll let you know what I think after I have had a chance to take a look!! Marci (Mom to - helmet grad) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 LeAnn I just looked at Nina's pictures and she is SOOOOO cute!!!!! Her flattening looks mild to moderate to me. Not severe for sure. It does look like she has plagio, in fact, her head looks very similar to my daughter's. She also had plagio on the right and tort on the left. Did you say you are going to see the neuro or that you already have? If you feel like you would be interested in treatment I would start really pushing now for getting the helmet or band since she is at such an optimal age! Also, it takes awhile to get through the entire procedure. You ultimately have to make the decision. We decided to go for it immediately when the neuro diagnosed plagio since he accompanied his diagnosis with a HUGE list of possible side effects that could occur is left untreated. (He kind of used a scare tactic with us in my opionion!!) Still, I do not regret having gotten treatment and if I were faced with the same situation again I would do it again! Please keep us posted! Marci (Mom to - helmet grad) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Welcome LeAnn, Glad that you found us. Nina is such a cutie. That is wonderful that repositioning her is working. Let us know what CT says. April Mommy to Bri and Mandy > Hi everyone. My name is LeAnn and my 6 1/2 month old is Nina. I > have been learning alot on the torticollis site, as she has been > going to pt since 4 months of age for that. I unfortunately didn't > find all of you until a few weeks ago and although her head > shape is much better, it is still mishapen. I have been looking at > some of the head shapes in the files but still being new to this, I > have a hard time picking up the details and knowing what I'm > looking for. I have posted Nina's pics in the files section and was > wondering if some of you would look at them and give me some > feedback? I have sent some of these to Cranial Tech for an > evaluation and hope to hear something tomorrow from them. > Thanks for your help! > > LeAnn & Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 LeAnn, Your MRI will show if the sutures are closed or open. If they are open you have plagio, if they are closed you might be looking at cranio. Your specialist will be able to tell you for sure after the MRI results are in. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Welcome to the group! I must say that Nina is so absolutely adorable!!!! She does seem to have some flattening on the back right side of her head. You can see that in the top view you posted. It doesn't look very severe, but I think you should speak to your pediatrician about getting an opinion from a trained professional so that you can ease your own mind about this. Good luck to you and keep us posted. Stasia > Hi everyone. My name is LeAnn and my 6 1/2 month old is Nina. I > have been learning alot on the torticollis site, as she has been > going to pt since 4 months of age for that. I unfortunately didn't > find all of you until a few weeks ago and although her head > shape is much better, it is still mishapen. I have been looking at > some of the head shapes in the files but still being new to this, I > have a hard time picking up the details and knowing what I'm > looking for. I have posted Nina's pics in the files section and was > wondering if some of you would look at them and give me some > feedback? I have sent some of these to Cranial Tech for an > evaluation and hope to hear something tomorrow from them. > Thanks for your help! > > LeAnn & Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 , Hello my name is Jill Ramos and I also have a 6 1/2 month old son named Gavin! Although Gavin does have biparetal plagiocephaly it is his twin Tommy who is in the DOC band. It didn't occur to me to wonder about Tommy's flat spot until my mother-in-law pointed out that it wasn't normal (embarrassing, isn't it?). From everything I have researched into this condition, DOC vs. STAR bands, it seems to me (and this is OPINION only) that it is the same as brand vs. generic, and that the orthotist is the one who really makes the difference. I have a friend on this site who has twins in the STAR band, and as far as I know she is satisfied with the treatment. Don't feel guilty about not knowing what to look for...a lot of mommies on this site didn't get treatment for their little angels until 10 months and beyond, and still got results! Good luck and let us know how it goes! Jill Ramos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 When Gavin is on his back his neck is flat to the floor. It would seem to me that the lack of the arch and resulting positioning of the head could cause spinal problems. Hi ! Welcome to the group! Just to give you a little comfort, I have never heard of plagio causing spinal problems. There is, however, a condition called torticollis that affects the muscles in the neck. Many babies who have tort. end up with plagio as a result. Does Gavin have any trouble turning his head in one direction, or lack range of motion? If so, he would probably benefit from some physical therapy. There is also a group called torticolliskids if you would like to learn more about it. WE are thinking of cancelling the Tuesday Appt. and looking into the DOC band and trying to get in to see a chiropractor. If it were me, I would keep you appt. AND consult with Cranial Technologies about the DOC Band as well. Both products can work wonders, but it is really in the hands of the orthotist/clinician that you work with. I would interview both parties and ask MANY questions. If you would like some help with question ideas, visit www.plagiocephaly.org/support/questions.htm . After you have talked with both providers, you will be able to make a decision that is best for your baby and his situation. However, with Gavin being nearly 7 mo. we want to start SOON and are thinking of forgoing the whole insurance hassle and paying out-of-pocket. You're right in that you should get started ASAP, but don't give up on insurance. Whomever you decide to go with will likely have to do some paper work with insurance before the casting is done, but if you are firm with them that you want an answer (yesterday! ), they may be willing to put a push on it. Getting an approval/denial shouldn't take much longer than a week, if not less, and as soon as you have an answer one way or the other, you can get started. If you are denied, you will have to pay out of pocket to get started, but you can appeal your insurance's decision (see the FILES for lots of help!). If you have anymore questions, there are so many helpful members in the group. Post any time, and join us for chat on Tues. nite. Glad you found us!! ) Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support... ----- Original Message ----- From: glandtcj@... Plagiocephaly Sent: Saturday, June 23, 2001 10:31 AM Subject: new member Hi,My name is . My son Gavin is 6 1/2 mo. and we just this week found out about plagio. We expressed concern about the left side of his head being flat and angled and through the 2 and 4 mo. appts. were told it would straighten out. Recently my sister who just started working at USA Baby memtioned that she has seen several customers' babies wearing helmets. So last week at his 6 mo appt I asked the doctor and he didn't know much or even give it a name but said that he'd had one patient who had used it and was pleased with the result. He had his nurse give me the name of the rehab place to call. I finally got on Internet, started typing things like flat head and skull abnormalitiies and lo and behold there is an actual name for the condition and it really can cause problems. Now I feel guilty that I didn't question it more sooner. We have an appt for Tuesday with a rehab center that goes through STARBand. Now getting on this site this morning and reading a few postings I'm having second thoughts. Have many people been pleased with the STARBand or have many run into problems? It seems that no one has had problems with DOC bands, is that true? Also, a new thought came to my husband and me this morning. When Gavin is on his back his neck is flat to the floor. It would seem to me that the lack of the arch and resulting positioning of the head could cause spinal problems. Has anyone on the list addressed this before? WE are thinking of cancelling the Tuesday Appt. and looking into the DOC band and trying to get in to see a chiropractor. If our thoughts are correct a chiropractor could provide convincing evidence to the insurance company. However, with Gavin being nearly 7 mo. we want to start SOON and are thinking of forgoing the whole insurance hassle and paying out-of-pocket. NOT that we're well-off mind you--we're both teachers--but we do have some savings and want to get going on this ASAP. I feel that we're against the clock in trying to get the best results. All input regarding STARBand vs. DOC and potential spinal problems is very, very welcome. Thanks--I'm so glad I found this group. Thank God for Internet! GlandtGrren Bay, WIFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2001 Report Share Posted June 24, 2001 , I'm sooo glad you found us and good for you for taking matters into your own hands!! My daughter did not wear a band - she wore a helmet which is similar. I can tell you that we have had good and bad stories about both the STARband and the DOCband. We have come to the conclusion that the skill level, professionalism and experience of the orthotist is what makes the difference. If you have an excellent orthotist then you will have good luck with either device. The key is to interview the orthotist first and find out what his/her experience with the STARband is. If he/she has only made a few or if you are uncomfortable with the feeling you get from him/her then you may want to look into the DOCband. I agree that you are at a good age to get started, but you don't want to wait too much longer. The treatment will go quicker and be more complete the earlier you start. As far as the insurance thing goes, I would definately file the claim. You may have to pay upfront, but while you are making the payments you can be going through the appeals process. And who knows, maybe your company will pay without a fuss. It certainly never hurts to try and the insurance companies have been under the gun lately for not allowing band treatment for plagio babies. OK, sorry this is so long! I hope it helps and please stick with us. I think you will find this group to be a great source of advice, support and friendship! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
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